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Post endoscopy pathology results?

berrychuuu
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berrychuuu Newbie
berrychuuu
Posted

Hello!

I’m sorry if this is not posted in the correct location. I have been diagnosed with celiacs and had an endoscopy and colonoscopy done. My immediate results showed a healthy stomach and colon, while my duodenum showed positive celiac traits, and it was biopsied along with my colon.

A week later I got my final pathology results and my colon is still normal, but I have a result labeled “stomach” and that I have chronic gastritis and extensive intestinal metaplasia, but nothing like that was listed in my immediate report, nor was it reported that stomach biopsies were taken.

I’m very confused, do you think I got possibly misdiagnosed or someone else’s sample reports got mixed with mine? I have an appointment with the GI this Friday to discuss it. 

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trents Grand Master
trents
Posted

Just ask those same questions to the GI doc on Friday. Gastritis would not require a biopsy. It can be visible during the scoping. Also, the metaplasia of the intestines is not specified as to which part of the 30' long intestinal track so it's anyone's guess as to what that is saying. It could be referring to mucosal damage in the small bowel which is the hallmark of celiac disease.

berrychuuu Newbie
berrychuuu
Posted
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23 minutes ago, trents said:

Just ask those same questions to the GI doc on Friday. Gastritis would not require a biopsy. It can be visible during the scoping. Also, the metaplasia of the intestines is not specified as to which part of the 30' long intestinal track so it's anyone's guess as to what that is saying. It could be referring to mucosal damage in the small bowel which is the hallmark of celiac disease.

Thank you for the reassurance! I thought it was a bit strange since the same-day results of the EGD said no visibility of irritation, polyps, ulcers, etc in my stomach. Then the pathology biopsy results are saying chronic gastritis, so I wondered what was going on since gastritis is visually observed. Thank you for providing reassurance on the metaplasia as well, it said it was tested under the category of “stomach” so when I searched it and saw the results and “pre-cancer” everywhere I felt so sick to my stomach and confused.

I’ll make sure to report back Friday in case any one else needs this in the future!

Scott Adams Grand Master
Scott Adams
Posted

If they told you that you had mucosal damage consistent with celiac disease, it would be important to ask for a celiac disease blood panel. Just be sure to keep eating gluten until all tests are completed. Let us know how it turns out!

berrychuuu Newbie
berrychuuu
Posted
  • Author
43 minutes ago, Scott Adams said:

If they told you that you had mucosal damage consistent with celiac disease, it would be important to ask for a celiac disease blood panel. Just be sure to keep eating gluten until all tests are completed. Let us know how it turns out!

I’ve had my blood taken already with a positive celiac result which is what lead me to the EGD/colonoscopy, I think I’m more confused on their analyzed results of the biopsies they’ve taken unfortunately 😞. However I’ll still report back with their clarifications to see what happened with how they worded my results!

Scott Adams Grand Master
Scott Adams
Posted

With the celiac disease biopsies, ask them if they did a "Marsh" score on them. This is the standard method of rating the damage to the villi in those with celiac disease.

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