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Gluten Intoxication


ceciceco

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ceciceco Newbie

Hi Guys, 

I turn to this forum as I feel helpless. 
I have been diagnosed celiac since about 6 years now and a month ago, I have accidentally ate gluten, as the waiter in the restaurant confirmed my meal didn't contained gluten when it actually did. 


We went through the entire list of ingredients (Yes they didn't even made the meal themselves) and I could see written "Flour". So I insisted to look at the ingredients after quickly developing symptoms. Sorry if this message doesn't read easy. Just writing this note looks like a crazy effort for me.

Indeed, since this gluten attack, I have bloating, burning eyes, sadness, chill and constant freezing, and most of it: extreme tiredness (I sleep all the time, and that's very bad for work) and I have the biggest brain fog ever. 

I am turning to you guys as I really don't know what to do. 
1. Is that normal? Even after a month? 
2. Do you have any advice to cope those symptoms and/ or to help the healing? 

So far what I have done: 
- drinking a lot of water, camomile, peppermint tea
- probiotics
- vitamins
- bone broth and Miso soup
- no alcohol
- Sleeping sleeping sleeping 
- avoiding food that is hard to digest like some fruits or dairy
- intermittent fasting to give my stomach some rest 

Please, let me know if you would have any advice guys.. 😔 





 


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trents Grand Master
43 minutes ago, ceciceco said:

Hi Guys, 

I turn to this forum as I feel helpless. 
I have been diagnosed celiac since about 6 years now and a month ago, I have accidentally ate gluten, as the waiter in the restaurant confirmed my meal didn't contained gluten when it actually did. 


We went through the entire list of ingredients (Yes they didn't even made the meal themselves) and I could see written "Flour". So I insisted to look at the ingredients after quickly developing symptoms. Sorry if this message doesn't read easy. Just writing this note looks like a crazy effort for me.

Indeed, since this gluten attack, I have bloating, burning eyes, sadness, chill and constant freezing, and most of it: extreme tiredness (I sleep all the time, and that's very bad for work) and I have the biggest brain fog ever. 

I am turning to you guys as I really don't know what to do. 
1. Is that normal? Even after a month? 
2. Do you have any advice to cope those symptoms and/ or to help the healing? 

So far what I have done: 
- drinking a lot of water, camomile, peppermint tea
- probiotics
- vitamins
- bone broth and Miso soup
- no alcohol
- Sleeping sleeping sleeping 
- avoiding food that is hard to digest like some fruits or dairy
- intermittent fasting to give my stomach some rest 

Please, let me know if you would have any advice guys.. 😔 





 

The effects of one accidental glutening experience should not last a month IMO. Are you sure you haven't continued to get some gluten since then? And, maybe something else is wrong that has nothing to do with gluten but is coincidental.

ceciceco Newbie
4 minutes ago, trents said:

The effects of one accidental glutening experience should not last a month IMO. Are you sure you haven't continued to get some gluten since then? And, maybe something else is wrong that has nothing to do with gluten but is coincidental.

Thank you so much for your response.

Yes I am sure as I cook everything myself :)
 

Well I have checked if there could be anything else, but it really looks like it is the gluten as the symptoms I developed from the glutening experience never went away... 
 

Scott Adams Grand Master

I'm sorry to hear of your ordeal, and want to share this article with you, although it may be too late:

 

knitty kitty Grand Master

@ceciceco,

Welcome to the forum!

I would suggest excluding the Miso soup.  Miso is made from soybeans that have been fermented by a mold, Aspergillus, which might be grown on wheat or barley.  Some Celiacs develop sensitivity to soybeans and molds.  

Have you tried the Low Fodmap diet?

The AutoImmune Protocol Diet has been scientifically proven to heal the intestines and reduce inflammation.  This is my favorite diet if I get glutened.  After a few weeks I can expand to the Fodmap diet.  

The Fodmap diet allows Cruciferous vegetables, though.  Cruciferous vegetables (broccoli, cabbage, cauliflower, etc.) may be problematic.  They contain lots of sulfur that certain intestinal bacteria utilize and release sulfur gas as a byproduct, causing bloating.  

Make sure you are getting plenty of Vitamin D which helps regulate the immune system.  Vitamin D level should be above 78 nmol/l to be effective.  

Hope this helps!

Russ H Community Regular

Hello ceciceco,

Unfortunately I don't think you can do anything. It is a matter of riding it out. The immune response to gluten varies greatly between different people. Coeliac disease seems to fall into 3 different categories: silent (sub-clinical), predominantly gastrointestinal, and gastrointestinal with extra-gastrointestinal effects. I have a theory that the latter category gets worse and longer symptoms from an accidental gluten exposure because it boosts cross-reacting antibodies, similar to having a vaccine booster. It takes months for these antibodies to come down. I know someone who only has gastrointestinal symptoms who occasionally cheats with gluten and he is ill for a day or so. It makes me ill for weeks.

ceciceco Newbie
On 3/3/2022 at 6:55 PM, Scott Adams said:

I'm sorry to hear of your ordeal, and want to share this article with you, although it may be too late:

 

Hi Scott, 

That does help. Thank you so much for sharing. And it is not too late.


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ceciceco Newbie
1 hour ago, Russ314 said:

Hello ceciceco,

Unfortunately I don't think you can do anything. It is a matter of riding it out. The immune response to gluten varies greatly between different people. Coeliac disease seems to fall into 3 different categories: silent (sub-clinical), predominantly gastrointestinal, and gastrointestinal with extra-gastrointestinal effects. I have a theory that the latter category gets worse and longer symptoms from an accidental gluten exposure because it boosts cross-reacting antibodies, similar to having a vaccine booster. It takes months for these antibodies to come down. I know someone who only has gastrointestinal symptoms who occasionally cheats with gluten and he is ill for a day or so. It makes me ill for weeks.

Thank you so much Russ for sharing the story. I feel less alone. I will be patient then.

23 hours ago, knitty kitty said:

@ceciceco,

Welcome to the forum!

I would suggest excluding the Miso soup.  Miso is made from soybeans that have been fermented by a mold, Aspergillus, which might be grown on wheat or barley.  Some Celiacs develop sensitivity to soybeans and molds.  

Have you tried the Low Fodmap diet?

The AutoImmune Protocol Diet has been scientifically proven to heal the intestines and reduce inflammation.  This is my favorite diet if I get glutened.  After a few weeks I can expand to the Fodmap diet.  

The Fodmap diet allows Cruciferous vegetables, though.  Cruciferous vegetables (broccoli, cabbage, cauliflower, etc.) may be problematic.  They contain lots of sulfur that certain intestinal bacteria utilize and release sulfur gas as a byproduct, causing bloating.  

Make sure you are getting plenty of Vitamin D which helps regulate the immune system.  Vitamin D level should be above 78 nmol/l to be effective.  

Hope this helps!

Hello Knitty Kitty, 

Thank you for taking the time to response to my post. You advice help a lot. I will go through the details of such a diet tomorrow, it seems very interesting. Thank you. 

Awol cast iron stomach Experienced

Sorry it happened to you.  I personally had to stop eating out entirely. 

My most recent cc was at the dentists office. ( Set back happened for me last month.   The pandemic led to staff turnover. I'm not certain if they cc me with equipment or dropping the ball with the products used on me. As they have it in my chart . I'm always repeating at start  of every visit I'm gluten-free . They say we know it's in your chart. I am strongly considering switching Dr. 

Knitty gave great ideas with AIP the other posters too. The only things I would add is I will puree my foods if my GI is struggling. Drink tons of water.

I personally have to up my magnesium, zinc, and vit D as well. My daily multivitamin and probiotic is not enough when I get cc. My body needs more as my autonomic nervous system and skin react too, so my body's demand to heal requires more.  I often need to support with additional electrolytes. I sometimes use slippery elm as well or non alcohol bitters to support digestion.

I also use epsom salt baths, sauna, and accupuncture as well for my overall inflammation, skin eruptions, and numerous other symptoms.

Hope you feel better soon. 

 

 

 

ceciceco Newbie
On 3/5/2022 at 11:54 PM, Awol cast iron stomach said:

Sorry it happened to you.  I personally had to stop eating out entirely. 

My most recent cc was at the dentists office. ( Set back happened for me last month.   The pandemic led to staff turnover. I'm not certain if they cc me with equipment or dropping the ball with the products used on me. As they have it in my chart . I'm always repeating at start  of every visit I'm gluten-free . They say we know it's in your chart. I am strongly considering switching Dr. 

Knitty gave great ideas with AIP the other posters too. The only things I would add is I will puree my foods if my GI is struggling. Drink tons of water.

I personally have to up my magnesium, zinc, and vit D as well. My daily multivitamin and probiotic is not enough when I get cc. My body needs more as my autonomic nervous system and skin react too, so my body's demand to heal requires more.  I often need to support with additional electrolytes. I sometimes use slippery elm as well or non alcohol bitters to support digestion.

I also use epsom salt baths, sauna, and accupuncture as well for my overall inflammation, skin eruptions, and numerous other symptoms.

Hope you feel better soon. 

 

 

 

 

Oh god. 

People just don't take this allergy seriously this is it. 
I actually did acupuncture last Saturday and it helped. 
I am taking all your advice into account. Thank you so much for taking the time to read and reply. Thanks to all of you.
Xx

trents Grand Master

cecicec0, Celiac disease is not an allergy. It is an autoimmune disorder.

ceciceco Newbie
23 hours ago, trents said:

cecicec0, Celiac disease is not an allergy. It is an autoimmune disorder.

Understood Trents

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    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
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    • trents
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    • Jack Common
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