Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Navigating between gluten intolerance, candidosis and histamine intolerance

Spherical Bird
 Share

Recommended Posts

Spherical Bird Contributor
Spherical Bird
Posted

Hi everyone, 

As usual, I'm not completely done with my diet and haven't been able to come up with any kind of strategy to come to terms with my symptoms... So I would like to know if anyone who has encountered this triad of problems would have any advice.

 

For the small history, I began the year with some issues due to some gluten free breads (that I don't tolerate well) and later made the mistake of eating too few greens. 

 

As a result, I've been dealing with a candidosis that seems particularly agressive and limited to the bladder area (and I also begin to wonder if this is not the last stage of healing from it, since it doesn't give me migraines like it used to... But this said, I also heard it can inhibit symptoms too so... maybe I'm not healing, I wouldn't know)

 

To help with the healing, I've been taking lactobacillus pills that seems to be quite effective, but I feel very perplexed because I have a feeling I may have deficiencies that weren't showing on my blood tests. I know I am usually deficient in D in B12 when sick of this thing in particular... However, B9 seemed to be fine when I freshly began the diet. And yet, my sleep problems and how they got resolved by a multivitamin complex makes me feel perplexed too (I got explained that the glutamate issue I always had - which troubled my sleep - was tied to B1 deficiency, and what a relief ! Because this was the main symptom that made me question my problems with gluten)

So do I even have celiac ? I don't know either.

However I got a vitamin complex that solved the sleep issue but seems to have caused a candidosis crisis again. At first I assumed it was just vitamin C (known to irritate the bladder when in supplement form) but I've read a little more about this and...

Well, the other problem is that Candida albicans/candisosis feed itself with some of these supplements, so I'm confused on where to start to heal properly now...

 

And to add up, I've gotten some pretty wild reactions to avocados and suspect it was histamine intolerance too as this was pretty violent (I woke up from a feelin that felt like an electric shock in my head and with my heart racing like never before, it was difficult to recollect my thoughts after that and the next day, I had a foggy mind) to this day I still fear this even has affected my heart. Things feels normal right now, but I get very scared of anything that raises my heartbeat lately...

 

I'm really confused with all of this as my own sensibility to gluten may not be caused by celiac disease (although... maybe, who knows...) and it may or may not simply be caused by candidosis.

But this problem itself (candidosis, and gluten intolerance, because heck, both create leaky guts after all) well, it seems to imply an histamine intolerance too (at least I know what foods to avoid too) but all of this makes me sad and scared as I don't remember having such horrible reactions to avocados... I may have taken a lot of lemon juice that day (histamine liberator) maybe that was the issue but I don't know.

 

Anyway, I'll be very grateful if anyone can think of something to start with.

I'm currently taking 2 lactobacillus pills, a lot of greens and 2000 UI of D vitamins too.

I bought some B complex and planned to add it to my diet but I'm feeling scared about some more reactions of my bladder and possibly a worsening of histamine intolerance too and etc... To this point I expect everything.

 

I really don't know where to start because this feels complicated. Oddly enough, also clear enough for me to grasp what's wrong and what triggers some issues but still unclear...

Thank you very in advance much for your answers ! (And again, my apologies if there's typos again, I'm French)

(And sorry if I sound a little chaotic in my post too, I just really want to heal from all of this so... This is very frustrating...)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

Have you been screened for celiac disease or candida albicans? If you've been gluten-free then it's likely too late to get screened for celiac disease, unless you're willing to do a gluten challenge and eat 2 slices of wheat bread a day for 6-8 weeks. However, you can be screened for candida albicans any time.

Spherical Bird Contributor
Spherical Bird
Posted
  • Author
10 hours ago, Scott Adams said:

Have you been screened for celiac disease or candida albicans? If you've been gluten-free then it's likely too late to get screened for celiac disease, unless you're willing to do a gluten challenge and eat 2 slices of wheat bread a day for 6-8 weeks. However, you can be screened for candida albicans any time.

Unfortunately not for celiac. But this was mostly due to the fact that eating gluten would trigger rhinitis, sleep apnea, terrors, ataxia, migraines, panic attacks and affect my mood in awful ways.

I really wanted to and have been considering it again since I took vitamins that seriously dimished all of these symptoms. The extreme relief I got is what kept me going.

And unfortunatly, back then, I only had seen doctors which were doubtful too. I remember being laughed at when I mentionned having sleep apnea at my age. And the only serious doctor I had, which was my family's doctor, told me to seek another doctor because he got too many patients. The only thing I had left is a one year long prescription for urine tests. So I have that, at least. Even though I already know what it is. And then again, it was complicated to go and do these tests as I had urges...

And regarding candida albicans, I've been prescribed treatments for it but it didn't worked and didn't go away until I stop the vitamins and eat more greens.

The only thing that seemed to have helped too (if it wasn't helping the entire leaky gut problem too I think) well, these were probiotics...

But I keep wondering how long it will actually takes to heal fully from these things. I'm guessing we can grow a tolerance to histamine back ? But I also remember reading that histamine isn't good for guts either...

I think I understand all of these things well enough to heal alone from these (since I've seen some big benefits and it's a nightmare to get new doctors where I live...) but I guess what's missing is that I don't know well enough what truly damage the guts and what doesn't...

Do you, by chance, have an article or something that features all the possible sensitivities to food that are associated with that/leaky guts syndrome ?

Scott Adams Grand Master
Scott Adams
Posted

Have you tried either of these diets?

 

 

Spherical Bird Contributor
Spherical Bird
Posted
  • Author
On 4/2/2022 at 8:30 PM, Scott Adams said:

Have you tried either of these diets?

 

 

I'm famillar with the low FODMAP diet as it helped me a little during a painful crisis. 

However, I'm new to the AIP diet. I don't think I have an issue with beans, or maybe it's less painful than with nightshades, but I know for sure I resolutely have problems with tomatoes ! I even hated these as a kid actually...

I was told this might be because of their acidity or lectins (given the fact that I tolerate cooked tomatoes a little more)

I also remember that I always had the silly and not-so-justified (to others at least) habit to remove the tomato seeds.

I remember that they always seemed slightly easier to digest that way...

I luckily got the chance to get a few advices from a professional when it comes to reintroduce foods so I'll see how it goes...

Thanks for sharing anyway !

Spherical Bird Contributor
Spherical Bird
Posted
  • Author

As an update, I tried to reintroduce tomatoes, again, just to make sure I wasn't having wrong intuitions last time...

But as expected, I woke up several times from an uncomfortable tiggling sensation in my hands (it really felt like the bloodflow wasn't normal in these as I was sleeping, it was creepy...)

 And there was also my skin which looked dry (I mean, it had a lot of sheet marks that I don't have if I eat other things) and it was even red and hot in areas where it had more direct contacts with the mattress (tomatoes specifically does this... I have litterally no clue why) it disappeared during the day but damn, it's always the same reaction. I'm really puzzled... And I also struggled to open my eyes much widder too. Really odd... And to add up, I got shoulder pain today. Despite having that meal saturday.

All of this is very frustrating as I haven't got an official diagnosis, nor an assigned doctor and I really wish I had one... 

But I think this is the day to start the auto-immune protocol. I'll see how it goes... With the hope my guts might become less leaky. I ate a lot of nuts during the last years, not being aware about oxalates and the difficulties they can create (I learned that they can specifically impact the bladder... That makes a lot of sense...)

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jordan Carlson
      - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine...
    2. wellthatsfun
      - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free...
    3. knitty kitty
      - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

      That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies...
    4. knitty kitty
      0

      Vitamins I Take

    5. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

      @hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,994
    • Most Online (within 30 mins)
      7,748
    KimberlyS
    Newest Member
    KimberlyS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jordan Carlson
      Fruits & Veggies

      By Jordan Carlson · Posted

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      heaps of hope!

      By wellthatsfun · Posted

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Positive biopsy

      By trents · Posted

      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.