Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cholestyramine. Anyone?

Geriatric Newby Caregiver
 Share

Recommended Posts

Geriatric Newby Caregiver Apprentice
Geriatric Newby Caregiver
Posted

One of my wife's doctors just prescribed a "squestering" medication called Cholesystyramine, to help reduce the severity of her diarrhea.  The idea is that it binds excess bile acid (which appears to be a major factor with her). We will let you know how it works.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Geriatric Newby Caregiver Apprentice
Geriatric Newby Caregiver
  • Author
Posted

I forgot to mention that we had tried this drug once before,  but that was prior to the diagnosis when she was still consuming gluten regularly. No wonder it had no effect then.

Link to comment
Share on other sites
Scott Adams Grand Master
Scott Adams
Posted

I think you mean Cholestyramine, and you may want to verify that it's gluten-free here:

https://dailymed.nlm.nih.gov/dailymed/search.cfm?labeltype=all&query=Cholestyramine 

Has this been working for her?

Link to comment
Share on other sites
Geriatric Newby Caregiver Apprentice
Geriatric Newby Caregiver
  • Author
Posted
39 minutes ago, Scott Adams said:

I think you mean Cholestyramine, and you may want to verify that it's gluten-free here:

https://dailymed.nlm.nih.gov/dailymed/search.cfm?labeltype=all&query=Cholestyramine 

Has this been working for her?

You are right about the spelling. No, it duid not help. In fact, it may have increased the inflammation that is in her large intestine. We don't know what has been causing that, but it is in addition to the Celiac disease which is in the small intestine, of course.

The only thing that seems to have helped has been steroids, which she gets prior to a CT scan, due to allergic reactions to the IV contrast dye. A discussion of steroid therapy ensued, but since we are still eagerly awaiting the first appointment with a new GI doctor at Stanfor who actually is a specialist in both Celiac Disease and Motility,  we made the decision to wait on steroids since we do not wish to mask the pathology for the new doctor.

That appointment is not until May 10th!

In the meantime she has begun fluid infusions twice a week in addition to her daily TPN infusions for nutrition. We hope this will help keep her out of the hospital. Dehydration has been sending her back about a week following every time she has been discharged.

Link to comment
Share on other sites
Scott Adams Grand Master
Scott Adams
Posted

Can I assume that she is not eating gluten-free oats (around 9% of celiacs have an additional sensitivity to avenin from oats)? Also, has she tried going dairy/casein-free, as this seems to be a common issue in celiacs, especially in the first year or two of a diagnosis?

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,751
    • Most Online (within 30 mins)
      7,748
    Xinlu
    Newest Member
    Xinlu
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Dhruv
      Confused with test results

      By Dhruv · Posted

      @trentsvery well said. But in india we mostly use pure form of wheat,  like wheat flour or Samoline than refined all purpospurpose Flour, which is very unhealthy. Over the period since atmosphere changes, globe warming definitely affecting whole farming concepts. I m not worried about how my child go off on wheat but why he can't eat once in a while his favorite food? I m also worried to take him completely off from wheat as that may make him more sensitive and cause any other diseases. No doctor has answer of my questions. How many people in this country or india suffer from more dangerous stomach diseases? If you see nothing is good for our body, drinking alcohol, medicines, smoking,  spicy food, green chilli, still we eat, and specially in India,  we eat a lot of spice everyday, our internal body organs had made that way, that's not the case anywhere else in the world we have more than 261 states if india , each state/city has different food, use different ingredients, ultimately it's human body, but it's the way how you develop your body and for which food. Cutting off on staple good is not a good idea, definitely we can decrease the quantity,  if i put my son only on rice, he may get sugar, that means one or other problem. How he can get his energy without eating carbs. I believe everything in small quantity is good for your health. Overdue or stopping can make more complications. When I send my sons reports to india , doctor said he is just above normal,  and don't think about it as if you eat wheat,  you will come positive for this test. I m just gathering opinions to make best decision. We asked him to keep a balance, once in while eating will never be harmful! 
    • Suzyq112
      Severe joint swelling from Celiac

      By Suzyq112 · Posted

      Thank you! I will look into these! 
    • trents
      Confused with test results

      By trents · Posted

      http://celiacindia.org.in/about-celiac-disease/celiac-disease/prevalence/ The incidence of celiac disease in India is the same as in the West. There has been a dramatic increase in the diagnosis of celiac disease in the past 30 or so years in developed countries. This has coincided with the development of good diagnostic tools and greater awareness and may also indicate higher rates of development of the condition due to changes in diet, environmental toxins, overuse of antibiotics and whatever things contribute to gut dysbiosis in our modern lifestyles. Some people believe that hybridization of wheat to produce varieties that are more drought and disease resistant and contain more gluten has also contributed to the problem.
    • trents
      Confused with test results

      By trents · Posted

      The onset of celiac disease can happen at any stage of life. And I don't think wheat is any less a part of the typical American diet than it is in India. But it may be true that we probably introduce wheat later into the diet after birth in the West than is common in India. I'm not sure it is accurate to say that having Asian genes affects the diagnostic process. Celiac disease is not uncommon in India. We have lots of Indian celiacs who have participated in our forum. It probably is true that the recognition of celiac disease in India by the medical profession happened later than it did in the West but I think it has become just as common in India as it has here. 
    • mswhis
      Can Celiac disease be related to Interstitial Cystitis.

      By mswhis · Posted

      Thank you. Constipation is not a big problem, but have irritable bowel issues, more diarrhea. The burning chronic pain in my bladder is unbearable.  I also have increased pressure in my pelvis. 
×
×
  • Create New...