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Is It Too Late For My Son To Grow?


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key Contributor

ravenwoodglass,

I am sorry your son never got diagnosed. THat is very hard. My son will likely remain short and small. He has been on the diet very strictly for almost a year. He has only gained 6lbs and only grown 2 inches. He is just very tiny. HE is not on the growth chart at all for height or weight. He acts completely normal for his age. I know he is not going to be very tall one day and it makes me sad to think of him being so tiny as a guy one day, but I have to deal with it. I just keep thinking that alot of people aren't considered "perfect" and we as his family will have to nurture him as much as we can.

It isn't your fault he didn't get diagnosed. If I hadn't had the internet and Google, I wouldn't have ever diagnosed my son.

Monica


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ravenwoodglass Mentor
ravenwoodglass,

I am sorry your son never got diagnosed. THat is very hard. My son will likely remain short and small. He has been on the diet very strictly for almost a year. He has only gained 6lbs and only grown 2 inches. He is just very tiny. HE is not on the growth chart at all for height or weight. He acts completely normal for his age. I know he is not going to be very tall one day and it makes me sad to think of him being so tiny as a guy one day, but I have to deal with it. I just keep thinking that alot of people aren't considered "perfect" and we as his family will have to nurture him as much as we can.

It isn't your fault he didn't get diagnosed. If I hadn't had the internet and Google, I wouldn't have ever diagnosed my son.

Monica

Some of us are meant to be on the small side, some of us on the large. My DS was in the 65th percentile at birth but dropped to the -10 by a year, and never had a growth spurt and I have hoped for 3 years he would at least gain a couple inches. I think the issue bothers me sometimes more than him. :( One thing I would suggest is that you have your DS evaluated also by an endocrinologist, sometimes celiac can cause a problem with the growth hormones. This was not the case with my DS, they at least checked that out, too bad they didn't know to look for celiac back then. I think what makes me the most angry and sad is that I was so sick for so long also, couldn't they put 2 and 2 together?

key Contributor

I am sorry you were sick for so long. It really isn't fair. I have had my son tested at the endocrinologist, but it has been a little over a year or more, so I am thinking of having him evaluated again. It is tough. Yeah, I know what you are saying about it bothering you. My oldest son that doesn't have celiac (his blood tests were all negative) is also small. He is only in the tenth percentile, but I figure someone has to be in the 10th percentile. My youngest son with Celiac is extremely tiney.

Growth hormone scares me, especially since he has other things going on.

Monica

TCA Contributor

My son is tiny too, was in the -10th percentile, but he hasn't been measured in about 3 months. I'm 5'2 and my husband is 5'8". We both have grandfathers under 5'6", so genetics aren't on his side.

As far as the comment about being little feeling like a birth defect - We have a friend from college who is just barely 5'. He is AMAZING! He is so athletic and plays so many sports. He got married a couple years ago to a drop dead gorgeous girl - she's 5'7". He never complains of his height and is so outgoing that people who know him don't even notice it. He's a posterboard for good attitudes. :D

My husband was also small most of his life. He hit a growth spurt in college and grew about 3 more inches. You never know when those growth spurts might hit! I, on the other hand, haven't grown since 6th grade. Went from the tallest to the shorest in no time flat.....

key Contributor

TCA,

I agree that attitude and accepting this and being positive goes a long way as to how kids view themselves. I am always SO inspired by watching the DIscovery health channel. Two of my kids have things. The first one has a scar on his head from ear to ear. You can't see hardly any of it, but on one side a bit. No one has ever asked us about it and I don't think most people see it at all actually. It bothers me a bit, but he can have it revised, but the funny thing is that I see other people with scars and don't think anything of it. I knew a short guy growing up and he had like all the women! My son with the scar is in the tenth percentile, but has all the women liking him. He is like his dad! My husband is 5'9 and I am 5'2 inches and so genetics isn't on our side. I too had a short grandfather.

Anyway, I think our kids will be fine. No one is perfect!

Monica

ladyx Newbie
ravenwoodglass,

I am sorry your son never got diagnosed. THat is very hard. My son will likely remain short and small. He has been on the diet very strictly for almost a year. He has only gained 6lbs and only grown 2 inches. He is just very tiny. HE is not on the growth chart at all for height or weight. He acts completely normal for his age. I know he is not going to be very tall one day and it makes me sad to think of him being so tiny as a guy one day, but I have to deal with it. I just keep thinking that alot of people aren't considered "perfect" and we as his family will have to nurture him as much as we can.

It isn't your fault he didn't get diagnosed. If I hadn't had the internet and Google, I wouldn't have ever diagnosed my son.

Monica

Don't get discouraged I was just diagnosed just before my 30th birthday, I have had celiac probably since I was born (very Long story). My 2 year old son saved my life...he had severe symtoms and I was determined to find out what was wrong with him in the process I found out what was wrong with me...I have been blessed with an amazing GI. According to him there are only only a few labs in the country that corectly test for celiac disease so if your tests are inconclusive be sure that it is a reputable lab. When I was 14 I weighed about 69lbs...I loved volleyball but I was the shortest girl in my class and the skinniest. I started playing volleyball more and didn't make it home for supper usually. My two favorite foods were rice and popcorn so that is what I made when I got home from volleyball practice...lucky for me they are gluten free. (I am a vegetarian and we usually eat tons of gluten.) Within one summer I grew three shoe sizes...5-6inches (I had a stretch mark up the center of my abdomen from growing so fast) And weighed 120lbs. When I went to school the next year I was 1/2 an inch taller then my friends when I use to barely come up to there sholder. I beleive that between a gluten free diet and puberty everyones kids have a chance of growing. My 5 year Old was the same size between 6 months and 18 months but now she is taller then most 6 year olds she knows...so don't worry yet.

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    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
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    • trents
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    • Jack Common
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