Being Gluten Free and Hashimoto's

[Cami Stein]

I was diagnosed with Hashimoto's in 1983. I take Synthroid.  My meds are controlled by my TSH, Free T3 and Free T4.  My doctor tests me every 6 months to a year.  Unless I am symptomatic and need a test.  For the past 7 years, I have been Gluten Free. Not diagnosed, but when I removed the gluten, I got rid of all the lower abdominal pain and issues.  

Here is my issue:  1) Since being gluten-free, the inflammation has gone down in my body (great), BUT, since Hashimoto's is connected with inflammation and is an auto-immune disease, My TSH has been going down and down for years.  2) My doctor "lowered" my meds, because he thought that they were too high and "suppressing" my thyroid function.  I was on the "new meds" for about 3 months and ended up gaining almost 35 lbs. It was horrendous. 3) I had no other symptoms of being tired etc.... which comes with my meds being off and my body changing. 4) He changed my meds, as he has for years, because my TSH was below the normal range and he didn't want me getting sick.  5) I contacted him and told him I blew up like a water balloon.  6) I asked him to go back to my normal meds I was on for a year.  6 months later, I was back to my normal weight. (phew).  So this is the back ground.

Here is my question:  Is there any info on Hashimoto's and being gluten-free, to show that it gives a false TSH reading?  I think it has something to do with the lack of inflammation in the body.

Anyone that can give me articles to read and pass onto my doctor, would be amazing.

 

Cami

[Darcy Martinez]

What med were you on that wasn't working?

[Cami Stein]

My meds were working. My doctor just changed the Synthroid and lowered it, because he thought my TSH and thyroid was being suppressed by my meds being too high.  I think I am getting a false reading on my TSH, because I removed the gluten from my diet and the inflammation has gone down.  It's very convoluted.

Just now, Cami Stein said:

and I think the VERY LOW tsh for some reason is being skewed by the fact I really altered my diet.

 

[Wheatwacked]

Do you have the actual TSH test results that you can share.

Low vitamin D is a common factor among numerous autoimmune diseases.  Possible Role of Vitamin D in Celiac Disease Onset

How Hashimoto's Disease Is Diagnosed

[Cami Stein]

TSH results         0.07 L               0.06 L             0.10 L                       last 3 test results.  I had my Vitamin D tested also, and it was quite normal. I take D monthly and that keeps my D levels just fine.

The range for my TSH is:  0.40 - 4.50 mI U/L

[Scott Adams]

16 hours ago, Cami Stein said:

My meds were working. My doctor just changed the Synthroid and lowered it, because he thought my TSH and thyroid was being suppressed by my meds being too high.  I think I am getting a false reading on my TSH, because I removed the gluten from my diet and the inflammation has gone down.  It's very convoluted.

 

Some members have reported that their thyroid levels went into the normal range after going gluten-free, but this would require follow up testing to verify. Here are our articles on this topic:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/