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I don’t understand my blood results/comments

Jessica93
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Jessica93 Newbie
Jessica93
Posted

Hi, so I have bad bloating and fatigue headaches etc and I’m convinced it’s gluten, I got some blood tests done and they have said it’s fine but there are comments on the blood tests. I have asked for a new GP appointment, am I being over active? Can anyone understand these results? I was told it was testing for celiac and gluten intolerance but I’m left feeling more confused and stressed especially with the additional comments in the results (I haven’t restricted intake)
 

trying to add them below:

12-Apr-2022
Tissu transglutaminase lgA lev - (ARAJ) •
Normal - No Change To Treatment
Tissu transglutaminase lgA lev
0.7
U/ml
Please note that restricting intake of gluten
prior to testing for celiac disease may cause
false negative results. If serology tests are
negative but there is a strong clinical suspicion of celiac disease suggest referral to gastrointestinal specialist.

IgA
12-Apr-2022
! Serum folate - (portia) - Low - script done
2.59
3.4
Folate Reference Range: > 3.8 ug/L
g/L
ug/l
12-Apr-2022
Serum TSH level - (portia) - Normal - No
1.41
mIU/L
Change To Treatment
12-Apr-2022
Blood haematinic levels - (portia) - Normal •
No Change To Treatment
Serum vitamin B12
Serum ferritin
599
63
12-Apr-2022
! Full blood count - FBC - (ARAJ) - Acceptable
ng/L

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Wheatwacked Veteran
Wheatwacked
Posted
(edited)

HI, welcome to Celiac.com. Unfortunately, it looks like the results you posted came out all scrambled.

Are you taking Portia birth control? 

2 hours ago, Jessica93 said:

! Serum folate - (portia) - Low - script done

did they give you a prescription for folic acid?

Full Blood Count is not normal but is acceptable?

 

2 hours ago, Jessica93 said:

am I being over active?

If they told you that you are OK, yet you feel like crap, then no, you are not overreacting.

Edited by Wheatwacked
trents Grand Master
trents
Posted
(edited)

You may have NCGS (Non Celiac Gluten Sensitivity) rather than celiac disease. The two share a lot of the same symptoms but NCGS does not damage the lining of the small bowel and therefore does not produce antibodies. There is not a test for NCGS and it is 10-12x more common than celiac disease. A diagnosis of NCGS is arrived at by first testing for and ruling out celiac disease. The antidote for both is the same - total elimination of gluten from the diet.

Edited by trents
Jessica93 Newbie
Jessica93
Posted
  • Author
2 hours ago, Wheatwacked said:

HI, welcome to Celiac.com. Unfortunately, it looks like the results you posted came out all scrambled.

Are you taking Portia birth control? 

did they give you a prescription for folic acid?

Full Blood Count is not normal but is acceptable?

 

If they told you that you are OK, yet you feel like crap, then no, you are not overreacting.

They gave me a script for folic but this is the second time with in a year that I’m low on it. 
yeah the term acceptable baffles me. 
I have a marina coil currently, there are a lot of words I. The results I just don’t understand. 
x

1 hour ago, trents said:

You may have NCGS (Non Celiac Gluten Sensitivity) rather than celiac disease. The two share a lot of the same symptoms but NCGS does not damage the lining of the small bowel and therefore does not produce antibodies. There is not test for NCGS and it is 10-12x more common than celiac disease. A diagnosis of NCGS is arrived at by first testing for an ruling out celiac disease. The antidote for both is the same - total elimination of gluten from the diet.

Oh thank you I have written this term down to take to my GP and look into a bit more. X

trents Grand Master
trents
Posted
4 hours ago, Jessica93 said:

Hi, so I have bad bloating and fatigue headaches etc and I’m convinced it’s gluten, I got some blood tests done and they have said it’s fine but there are comments on the blood tests. I have asked for a new GP appointment, am I being over active? Can anyone understand these results? I was told it was testing for celiac and gluten intolerance but I’m left feeling more confused and stressed especially with the additional comments in the results (I haven’t restricted intake)
 

trying to add them below:

12-Apr-2022
Tissu transglutaminase lgA lev - (ARAJ) •
Normal - No Change To Treatment
Tissu transglutaminase lgA lev
0.7
U/ml
Please note that restricting intake of gluten
prior to testing for celiac disease may cause
false negative results. If serology tests are
negative but there is a strong clinical suspicion of celiac disease suggest referral to gastrointestinal specialist.

IgA
12-Apr-2022
! Serum folate - (portia) - Low - script done
2.59
3.4
Folate Reference Range: > 3.8 ug/L
g/L
ug/l
12-Apr-2022
Serum TSH level - (portia) - Normal - No
1.41
mIU/L
Change To Treatment
12-Apr-2022
Blood haematinic levels - (portia) - Normal •
No Change To Treatment
Serum vitamin B12
Serum ferritin
599
63
12-Apr-2022
! Full blood count - FBC - (ARAJ) - Acceptable
ng/L

TSH is thyroid hormone levels.

Serum refers to things that are in the blood.

Folate is also known as folic acid. It works closely with the B-vitamin group. Maintaining adequate folate is especially important for women in their child bearing years. Low folate levels can result in birth defects, particularly those that have to do with brain and spinal chord developement.

haematinic: A hematinic is a nutrient required for the formation of blood cells in the process of hematopoiesis. The main hematinics are iron, B12, and folate. Deficiency in hematinics can lead to anaemia. In cases of hematinic deficiency, hematinics can be administered as medicines, in order to increase the hemoglobin content of the blood. (Wikipedia)

Full blood count - acceptable: I take that to mean nothing is significantly out of whack. Full blood count is also known as CBC (Complete Blood Count). It is measures the amount and shape of several types of cells that make up blood, such as red blood cells, white blood cells and platelets, as well as things that have to do with iron levels.

Jessica93 Newbie
Jessica93
Posted
  • Author
4 hours ago, trents said:

TSH is thyroid hormone levels.

Serum refers to things that are in the blood.

Folate is also known as folic acid. It works closely with the B-vitamin group. Maintaining adequate folate is especially important for women in their child bearing years. Low folate levels can result in birth defects, particularly those that have to do with brain and spinal chord developement.

haematinic: A hematinic is a nutrient required for the formation of blood cells in the process of hematopoiesis. The main hematinics are iron, B12, and folate. Deficiency in hematinics can lead to anaemia. In cases of hematinic deficiency, hematinics can be administered as medicines, in order to increase the hemoglobin content of the blood. (Wikipedia)

Full blood count - acceptable: I take that to mean nothing is significantly out of whack. Full blood count is also known as CBC (Complete Blood Count). It is measures the amount and shape of several types of cells that make up blood, such as red blood cells, white blood cells and platelets, as well as things that have to do with iron levels.

Thank you so much that’s really helpful! 

frieze Community Regular
frieze
Posted

Where is the rest of the celiac tests?

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trents Grand Master
trents
Posted
35 minutes ago, frieze said:

Where is the rest of the celiac tests?

Looks like the doc only ordered the tTG-IGA.

Wheatwacked Veteran
Wheatwacked
Posted

If you are low in folate you are probably low in choline and possibly B12 and B6. Low vitamin D is also common in Celiac Disease.

Beans are a good source of folate. Folic acid is synthetic folate almost as good and in the US the two are legally interchangeable. Eggs , steak and liver good for choline.

Folate Fact Sheet for Health Professionals    Choline Fact Sheet for Health Professionals

Folic Acid "Since 1998, folic acid has been added to cold cereals, flour, breads, pasta, bakery items, cookies, and crackers, as required by federal law. Foods that are naturally high in folate include leafy vegetables, okra, asparagus, certain fruits, beans, yeast, mushrooms, animal liver and kidney, orange juice, and tomato juice."

Choline

Quote

Deficiencies: Healthy humans with normal folate and vitamin B-12 status who were fed a choline-deficient diet developed fatty liver, liver damage [elevated plasma alanine (or aspartate) transaminase] or developed muscle damage (elevated creatine phosphokinase) that resolved when choline was restored to the diet (4,6). Elevations in markers of DNA damage (7) and alterations in lymphocyte gene expression (8) were also observed in choline deficiency. During pregnancy, women in the lowest quartile of dietary choline intake had a higher risk of having a baby with a neural tube defect (NTD)3 or cleft palate (9,10). https://academic.oup.com/advances/article/1/1/46/4657096

 

Jessica93 Newbie
Jessica93
Posted
  • Author
On 4/23/2022 at 2:49 AM, frieze said:

Where is the rest of the celiac tests?

Should there be more? I’m not sure what else they test I know about possibly doing biopsy but that’s all I have. Is there something else I should ask for? 

trents Grand Master
trents
Posted
6 hours ago, Jessica93 said:

Should there be more? I’m not sure what else they test I know about possibly doing biopsy but that’s all I have. Is there something else I should ask for? 

Here's a primer for the different blood tests that can be run for celiac disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

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