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Does This Sound Normal?

Ginger38

By Ginger38
in Coping with Celiac Disease

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Ginger38 Rising Star
Ginger38
Posted

I feel physically and mentally absolutely terrible. My muscles are tender to touch. Im extremely exhausted. I can’t focus or work. Yesterday I was in the bathroom all day. Is this a normal reaction to gluten consumption even if it’s not a huge amount?  If so how long does this last? Ive been in tears I feel so poorly and I’m scared I’m not going to get back to my normal. 

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Scott Adams Grand Master
Scott Adams
Posted

People with celiac disease who go gluten-free, then accidentally or purposefully eat gluten months or years afterwards tend to have a wide range of reactions. Some have no reaction at all, perhaps because their gut is fully healed, while others have nearly instant reactions that are very bad and last for days or weeks.

This may be a bit late, but this article may be helpful:

 

Ginger38 Rising Star
Ginger38
Posted
  • Author
On 5/2/2022 at 1:29 PM, Scott Adams said:

People with celiac disease who go gluten-free, then accidentally or purposefully eat gluten months or years afterwards tend to have a wide range of reactions. Some have no reaction at all, perhaps because their gut is fully healed, while others have nearly instant reactions that are very bad and last for days or weeks.

This may be a bit late, but this article may be helpful:

 

Thank you. This makes sense 

C4Celiac Contributor
C4Celiac
Posted

Are you eating at Restaurants off Gluten free menus?

Or eating packaged foods that are not labeled "Certified Gluten Free"

Ginger38 Rising Star
Ginger38
Posted
  • Author
11 hours ago, C4Celiac said:

Are you eating at Restaurants off Gluten free menus?

Or eating packaged foods that are not labeled "Certified Gluten Free"

Yes I’ve been doing both 

C4Celiac Contributor
C4Celiac
Posted

Then you're eating gluten from Restaurants. You can't eat from gluten free menus from Restaurants regularly. You will eventually be eating Gluten. 

 

Ginger38 Rising Star
Ginger38
Posted
  • Author
38 minutes ago, C4Celiac said:

Then you're eating gluten from Restaurants. You can't eat from gluten free menus from Restaurants regularly. You will eventually be eating Gluten. 

 

So you feel like these physical symptoms are a reaction to gluten? 

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C4Celiac Contributor
C4Celiac
Posted

Probably if you have Celiac.

I haven't been eating gluten for 1 year and 9 months and still don't feel 100% yet.   And I never eat at restaurants... 

What's your anti body levels..

Stop eating at restaurants from gluten free menus.

Don't eat anything packaged that isn't certified gluten free.

Ginger38 Rising Star
Ginger38
Posted
  • Author
16 hours ago, C4Celiac said:

Probably if you have Celiac.

I haven't been eating gluten for 1 year and 9 months and still don't feel 100% yet.   And I never eat at restaurants... 

What's your anti body levels..

Stop eating at restaurants from gluten free menus.

Don't eat anything packaged that isn't certified gluten free.

My antibody levels are a weak positive 

C4Celiac Contributor
C4Celiac
Posted
6 hours ago, Ginger38 said:

My antibody levels are a weak positive 

then you have celiac

Ginger38 Rising Star
Ginger38
Posted
  • Author
4 hours ago, C4Celiac said:

then you have celiac

Thank you so much, this is what I have been trying to clarify. Talking to you made it very simple. Thanks again 

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      Hidden Gluten in distilled vinegar

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    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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