Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I already feel like I’m going to get a negative result


Eloisee

Recommended Posts

Eloisee Newbie

Have been having some symptoms for years and others recently started within the past 6 months. I am awaiting results for anti-ttG IgA as well as anti-ttG DGP IgA/IgG. 

Did anyone else have night sweats as a symptom?

I have an active EBV infection around 15 years ago. For probably the past 5-10 years my symptoms included extreme bloating (sometimes after eating one bite of something or a whole meal), going to the bathroom relatively quickly after eating, fatigue, weight gain, unspecified iron deficient anemia, canker sores (inside mouth and back of throat), weird rashes occasionally (round and scaly, but not itchy), sometimes my lymph nodes are swollen, and most recently are the night sweats. It’s always been chalked up to anxiety or IBS, but I know myself and I’ve tried advocating. So just have to await the results now. 

I’ve also read that celiac can cause lactose/fructose/sucrose intolerance, which I’ve noticed when I have anything with dairy or even a fruit smoothie, I have almost always coughed after eating and then I have to feel like I have to continuously burp. I also notice at times I am hypoglycemic, don’t know if that could be a result as well. There’s just so much information to take in and it’s so overhelming and maybe I’m getting ahead of myself by reading things before getting my results, but alas I am human and it’s hard not to. 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Eloisee Newbie
57 minutes ago, Eloisee said:

Have been having some symptoms for years and others recently started within the past 6 months. I am awaiting results for anti-ttG IgA as well as anti-ttG DGP IgA/IgG. 

Did anyone else have night sweats as a symptom?

I have an active EBV infection around 15 years ago. For probably the past 5-10 years my symptoms included extreme bloating (sometimes after eating one bite of something or a whole meal), going to the bathroom relatively quickly after eating, fatigue, weight gain, unspecified iron deficient anemia, canker sores (inside mouth and back of throat), weird rashes occasionally (round and scaly, but not itchy), sometimes my lymph nodes are swollen, and most recently are the night sweats. It’s always been chalked up to anxiety or IBS, but I know myself and I’ve tried advocating. So just have to await the results now. 

I’ve also read that celiac can cause lactose/fructose/sucrose intolerance, which I’ve noticed when I have anything with dairy or even a fruit smoothie, I have almost always coughed after eating and then I have to feel like I have to continuously burp. I also notice at times I am hypoglycemic, don’t know if that could be a result as well. There’s just so much information to take in and it’s so overhelming and maybe I’m getting ahead of myself by reading things before getting my results, but alas I am human and it’s hard not to. 

*had* an active EBV. Apologies! 

Link to comment
Share on other sites
trents Grand Master

I note the burping you mention. Have you considered SIBO?

Also, the anemia. Have you been checked for pernicious anemia which revolves around the inability to assimilate B12?

What medications are you on?

Link to comment
Share on other sites
Eloisee Newbie
2 minutes ago, trents said:

I note the burping you mention. Have you considered SIBO?

Also, the anemia. Have you been checked for pernicious anemia which revolves around the inability to assimilate B12?

What medications are you on?

So the burping is weird, it’s not traditionally burping because I technically can’t burp. It’s like this build up which then just gurgles and makes noises (as it it’s coming from my throat). 

I’ve never had abnormal B12. Only ever a slight vitamin D deficiency. Also on my previous bloodwork done a month ago they tested my thyroid and T3 uptake was low and T4 Total was high (numbers weren’t so bad, but enough to be picked up as abnormal). 

I currently take an SSRI for anxiety (which I’ve been on for quite a long time) and birth control pill (been on that for about 12 years, but switched to the generic form about 3 years ago). 

Link to comment
Share on other sites
trents Grand Master

Are you on any vitamin and mineral supplements? Have you investigated any possible vitamin/mineral deficiencies that can result from taking an SSRI? Many prescription meds interfere with metabolism of certain nutrients.

Link to comment
Share on other sites
Eloisee Newbie
7 minutes ago, trents said:

Are you on any vitamin and mineral supplements? Have you investigated any possible vitamin/mineral deficiencies that can result from taking an SSRI? Many prescription meds interfere with metabolism of certain nutrients.

No supplements. Any blood tests in the past have come back normal. It was in 2017/2018 when it started showing my ferritin was low and IBC was high. It just seems like it would be something more than a vitamin deficiency given all of the symptoms I am having/have had. 

Link to comment
Share on other sites
trents Grand Master

As you say, the celiac antibody tests results are pending. If positive, the would explain a lot of what you are experiencing. There is also the possibility of NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not damage the small bowel villi. There is no test for NCGS. Celiac disease must first be ruled out. NCGS is 10-12x more common that celiac disease. I hope you were still eating regular amounts of gluten when the test was done.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Eloisee Newbie

The amount of gluten I consumed on a daily basis is quite a bit. I probably eat it in a least 2 meals every day. Thanks for all the feedback, will post an update when I get my results!

Link to comment
Share on other sites
C4Celiac Contributor
9 hours ago, Eloisee said:

 

Did anyone else have night sweats as a symptom?

Yes I had them before being diagnosed in early 2020..

It's your body trying to sweat out the poison..  

Link to comment
Share on other sites
Wheatwacked Veteran
10 hours ago, Eloisee said:

It just seems like it would be something more than a vitamin deficiency given all of the symptoms I am having/have had. 

Believe it.

Multiple deficiencies, each with its own symptoms. There is a thing called High Calorie Malnutrition. The Role of Thiamin in High Calorie Malnutrition

It is estimated that less than 10% on the SAD diet get enough Choline. Prehistoric man ate sodium to potassium ratio was about 1:11. Currently we are around 1:1. The WHO and many countries including the US have declared potassium a nutrient of concern. The 1 to 5 mg of Lithium we got from groundwater, well, we all drink bottle water. Vitamin D plasma level is considered normal above 29 ng/ml, yet a healthy lifeguard typically is 80 ng/ml. As the iodine intake is half what it was in 1970, prescriptions of thyroid meds has increased. In one study, 66% of childbearing age women were deficient in iodine. As has the incidence of breast cancer. Ideally we should consume a diet that is 66% omega 6 fatty acids to 34% omega 3. I recently read an estimate that is 20:1 in our western diet. Milk from conventional feed and supplemental Palmitic Acid to increase production Palmitic acid increased yields of milk and milk fat and nutrient digestibility across production level of lactating cows "A recent national study found that cows fed a diet of totally organic grass and legumes produced milk with elevated levels of omega-3 and CLA, which provides a markedly healthier balance of fatty acids. The improved fatty acid profile in grass-fed organic milk and dairy products brings the omega-6/omega-3 ratio to nearly 1 to 1, compared to 5.7 to 1 in conventional whole milk. Grass-fed cows produce healthier milk." They would like us to think lactose intolerance as the cause of inflammation and not just greed. In many of us we've killed off many of the beneficial microbes in our guts with diet.

Quote

By 2014, there was a 242 percent increase (232,670) in new cases of female breast cancer (Siegel, Zou, and Jemal 2014). During this period—1970 to 2014—the U.S. population increased 56.8 percent (203,392,031 to 318,892,100). Thus, the rate of increase in female breast cancer has been more than 4-fold (i.e., 4.26-fold) the increase in the U.S. population during the same period.  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4135458/

http://nutrientlog.doodlesnotes.net/  A bunch of daily meal plans with daily totals of most nutrients.

 

Link to comment
Share on other sites
knitty kitty Grand Master

Yes, I've had drenching night sweats.  

Night sweats are a sign of low Vitamin B12. 

Low Vitamin D can also cause night sweats or a sweaty head.

Link to comment
Share on other sites
  • 2 weeks later...
marcel g Apprentice
On 5/8/2022 at 1:23 PM, knitty kitty said:

Yes, I've had drenching night sweats.  

Night sweats are a sign of low Vitamin B12. 

Low Vitamin D can also cause night sweats or a sweaty head.

Also interesting. I also used to get night sweats. Sometimes I’d have to change my clothes and put a towel down to get back to sleep. I can’t remember when they stopped, if it coincided with going to a low gluten diet. 

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,782
    • Most Online (within 30 mins)
      7,748

    TFolden
    Newest Member
    TFolden
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      68.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It’s understandable to feel frustrated, especially when you’re managing celiac well but still experiencing new, unexplained symptoms. Many people with celiac notice sensations around the neck and jaw area, even without visible swelling. Sometimes, lymph node sensitivity or a tight feeling in the throat can linger as part of the body’s inflammatory response, even if your thyroid and other tests come back normal. It sounds like you’ve been thorough with testing and have seen multiple specialists, which is great. A few things might be worth considering: for some people with celiac, there can be lingering sensitivities to trace gluten, cross-reactive foods, or even certain environmental factors that can cause persistent inflammation. Since you’ve tried antihistamines and a humidifier, you might want to discuss options like different allergy medications or seeing an ENT specialist if you haven’t already. Some find that supplements (like anti-inflammatory options or probiotics) help support overall inflammation reduction, though you should always check with your doctor first. It’s frustrating when you feel the symptoms without an obvious cause, but trust your instincts—hopefully, with persistence, you’ll find answers and some relief soon.
    • Scott Adams
      It sounds like you’re really going through it—accidental gluten exposure can definitely take a toll, and when it happens twice close together, it can feel like it drags on even longer. Many people find that each glutening is a bit unpredictable in terms of recovery, and it could take a little extra time if your body hasn’t fully cleared out the first exposure before the second one hit. Staying hydrated, avoiding other potential irritants (like alcohol and spicy foods), and resting can help ease the symptoms as your gut heals. Hopefully, things start to settle soon! In the meantime, it could be helpful to communicate with friends about specific brands to look out for, even when it’s hard to ask in the moment. Hang in there—hope you’re feeling much better soon! This article, and the comments below it, may be helpful:    
    • Scott Adams
      @Therockfrog, it sounds like you’ve been through so much, and managing these symptoms must be incredibly challenging. Tingling in your feet and scalp, especially after eating specific foods, can sometimes be related to histamine intolerance or even a sensitivity to certain food proteins, as you’ve suggested. Since you’ve already noticed patterns with gluten, nuts, and dairy, it might be worth looking into a histamine intolerance or mast cell activation syndrome (MCAS), where the body has an exaggerated response to histamine and other triggers, which can cause itching, tingling, and even high cortisol levels. This would explain why your symptoms change with seasonal pollen too. If you’re considering eating some of these trigger foods before seeing the allergist, it could help with identifying specific IgE reactions. However, since this can worsen symptoms, you might consider working with your doctor to approach this slowly, maybe introducing one trigger at a time. It’s great you’ve tracked your symptoms so closely—that detailed information will help the allergist a lot. In the meantime, perhaps continue with antihistamines, as sometimes trying different types (H1 and H2 blockers, for example) under guidance can make a difference. Hang in there! It sounds like you’re very close to finding the root of these reactions.
    • Scott Adams
      Please see this article:  
    • Scott Adams
      Exciting news for sure, especially the fact that "existing drugs could be used to interrupt the inflammation process and help treat patients." Having to develop new drugs to target this genetic pathway would take many years, so finding existing drugs that do so could greatly speed up treatments.
×
×
  • Create New...