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TTG iga from 100+ to 8 .....

C4Celiac
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C4Celiac Contributor
C4Celiac
Posted

I'm gluten free for 1 year and 9 months.

my TTG IGA was 100+ at diagnoses.

5 months later it was 12.

4 months ago it was at 8.

0 - 3 U/mL is normal.

once it hit 12 its only been dropping by 2 - 3 points every 6 months.  Not sure what it is now.   My last Dr visit was like 2 months ago and I get tested again in December.

I still have some stomach discomfort though even at a #8...  not like it was when it first started...  but still there.  I asked my Dr if a number 8 is still high enough to be causing symptoms. he said yes...

 

is it normal for it to still be in weak positive range after almost 2 years???

 

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Scott Adams Grand Master
Scott Adams
Posted

We've had other report very similar issues with trying to get their tTg levels to the normal range.

The first thing we usually recommend is re-checking your diet for hidden gluten (see below), eliminating oat (even gluten-free oats), and milk/dairy:

 

 

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C4Celiac Contributor
C4Celiac
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Posted

I asked my Dr about Milk and antibodies.   he said it's only found with Children. But maybe he's wrong

I wasn't eating dairy for over a year after being diagnosed.   Even now I rarely eat it.   sometimes I'll have certified gluten free pizza which has dairy called Caulipower pizza. It's made by a Mother who has 2 celiac kids..   I'm sure they're eating it too... so it must be safe enough

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