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Can't gain weight ?

C4Celiac
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C4Celiac Contributor
C4Celiac
Posted

I can't gain my initial normal weight back...

I'm not sure if it's because of the Gluten free diet or because my intestines aren't fully healed yet or what.

I'm about 6 pounds off from where my weight always was before this BS started.

I've only gained about 3 - 4 pounds in 1 year and 9 months.  I'm not losing weight but not gaining anymore...

My Dr has never mentioned anything about my weight I assume because I'm normal BMI for my height.

But who wants to look like a skinny loser?  Maybe Chics don't care. But not for Men.

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Scott Adams Grand Master
Scott Adams
Posted

Can I assume that your diet is 100% gluten-free, and you are not getting contamination through meds, supplements, shared kitchen pots, eating out, etc?

If so, the average time to recovery is 2 years. I had pretty severe mucosal damage and struggled for months not fully understanding sourced of hidden gluten, but after around the 2 year mark I began gaining weight (I was stuck at 160lbs. at 6'1" until I was ~27 years old, then shot up to 210lbs. quickly). I'm now trying to get down closer to 210' but it's hard!

C4Celiac Contributor
C4Celiac
Posted
  • Author

b8.webp.021c21b8c518e7e0eaf977cf7b3357f8.webp

I don't take any medication. The only thing I take is vitamin D and that's certified gluten free.  I never eat out from gluten free menus.  No shared pots. 

I'm coming up on 2 years soon..   3 months or so will be 2 years.

My soap and toothpaste is labeled gluten free. That's the only things I put on my body.

Anything packaged that I eat is certified gluten free and I don't eat much packaged.

It might just not be long enough for it to have dropped to normal yet naturally.  I'll see in Dec.

My TTG IGG did drop to normal range on my last check.....barely...    My TTG IGA only dropped by 2 more points but it has been falling with each check.. but only slowly. 

 

 

Scott Adams Grand Master
Scott Adams
Posted

In the test you show here it is almost 3x the cut off for celiac disease, so it is still definitely high. If you're sure your diet is 100% gluten-free (don't eat in restaurants!), you may want to try casein/dairy-free as well. I already shared this with you but here it is again:

 

knitty kitty Grand Master
knitty kitty
Posted

@C4Celiac

Are you supplementing with vitamins and minerals?  

C4Celiac Contributor
C4Celiac
Posted
  • Author

only vitamin D.   All my vit and minerals were normal range..

hmm ok so I guess I'll wait till it drops to normal range.  It's been dropping consistently.  but only slowly towards the end.. 😝

C4Celiac Contributor
C4Celiac
Posted
  • Author
11 hours ago, Scott Adams said:

In the test you show here it is almost 3x the cut off for celiac disease, so it is still definitely high.

 

 

I had over 100 so I think 8 is pretty low  🤣

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knitty kitty Grand Master
knitty kitty
Posted
23 minutes ago, C4Celiac said:

only vitamin D.   All my vit and minerals were normal range..

hmm ok so I guess I'll wait till it drops to normal range.  It's been dropping consistently.  but only slowly towards the end.. 😝

You can discuss with your doctor the benefits of supplementing with a B Complex while you're healing.  Did your doctor test all the vitamins or just B12 and Vitamin D?  B12 and Vitamin D are stored in the liver for a couple years.  By the time deficiency is seen in these, the stores have been depleted.  

Blood tests aren't always an  accurate reflection of vitamin levels in the tissues where they are actually used.  The body will starve the tissues of their stores of vitamins in order to put the vitamins in the blood stream to supply major organs like the brain and heart.  Deficiency symptoms of some vitamins can manifest before there's a change in blood levels.  

Celiac Disease affects our abilities to absorb enough vitamins and minerals.  Even the gluten free diet can be deficient in some nutrients. 

Here's an interesting article...

https://www.healthline.com/nutrition/vitamin-b-complex

 

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  • Recent Activity

    1. trents
      - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Hidden Gluten in distilled vinegar

      Take it easy! I was just prompting you for some clarification. In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution...
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      - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Hidden Gluten in distilled vinegar

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a...
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      Hidden Gluten in distilled vinegar

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      Hidden Gluten in distilled vinegar

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    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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