Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

CELIAC DISEASES VS. BLOCKAGES IN SMALL INTESTINES


PATTYABER

Recommended Posts

PATTYABER Newbie

I recently read an article where celiac disease can cause a condition usually in children where the small intestines "flops over" causing a blockage in the small intestines.  It can also occur in teens and rarely in adults.  I haven't been tested yet but have an appointment next month with my gastroenterologist.  I did the 23 and me DNA testing a few years ago and am always getting updates.  I received one the other day that said I had the variants for celiac disease.  I felt for the first time that might explain the problems I have been having for years.  The pain, bloating, nausea, bowel issues, etc. and this past year I had an intestinal blockage in July that required extensive surgery and another surgery in December for a twisting of my small intestines that required a colon resection.  I was wondering if these issues could be related if it turns out I do have celiac disease.  

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wheatwacked Veteran
1 hour ago, PATTYABER said:

surgery in December for a twisting of my small intestines that required a colon resection.

My dad had that when he was 84. He had to have a colonoscopy after because his intestines were like lace. Funny, all the research I did when my brother had a stoma from intestine to bladder fixed indicated a high success rate for the operation. Intestinal surgery has a high survival and success. So why do such a large number of people with one surgery often require additional surgeries?

Do not mess with this! Your long-term symptoms fit Celiac Disease and you have the genes. Get a Celiac Panel done if you can before starting a gluten free diet. Do not delay. It does not matter if it is non-Celiac wheat/gluten sensitivity or Celiac disease. Take a multivitamin like Geritol Tablets to increase your vitamin intake. 100% RDA of the essential vitamins is the minimum you need. Ideally you want somewhere above the minimum and the upper limit. More is better. Celiac Disease can cause malnutrition which will hamper your effort to heal. Consider extra vitamin D, Thiamine and Choline. A shame they did not do a Celiac Biopsy or blood tests beforehand, but 10 years is common before the celiac disease diagnosis is found.

Link to comment
Share on other sites
Scott Adams Grand Master

I've not heard of volvulus being linked to celiac disease, but it would not surprise me at all if a study were to come out that showed a link. I agree...get tested for celiac disease before starting a gluten-free diet. More on volvulus:

https://www.medicalnewstoday.com/articles/321479 

PS - others have posted here before about it:

https://www.celiac.com/search/?q=volvulus&quick=1

Link to comment
Share on other sites
ViolaRose Rookie

Other conditions can be related especially    stomach conditions. Celiac is known as a disease that hides because it can mimic so many other things. But you can also have those conditions and not have celiac.

how were you diagnosed with the intestinal issues if you don’t mind me asking? I’ve had extra pain lately and I’m wondering if something new is wrong. 

 

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sh00148 replied to sh00148's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Nighttime Soiling (5 year old)

    2. - cristiana replied to sh00148's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Nighttime Soiling (5 year old)

    3. - Scott Adams replied to Blue Roan's topic in Related Issues & Disorders
      2

      Lymph nodes in neck + thyroid issues

    4. - Scott Adams replied to StrongerThanCeliac's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      2 Separate Glutenings - Recovery Timeline?

    5. - Scott Adams replied to Therockfrog's topic in Related Issues & Disorders
      2

      Itchy skin, tingling in feet and scalp


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,786
    • Most Online (within 30 mins)
      7,748

    bjboudreau
    Newest Member
    bjboudreau
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      68.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sh00148
      Thanks.  So something has come up on his blood tests and I have an appointment to discuss the findings on Monday. My son has been soya free and dairy free for a while as we did York food testing to check for allergies intolerances.     
    • cristiana
      Hi @sh00148 I am so glad that your son is going to have a blood test next week.    If the blood test is that soon, and he has been consuming normal levels of gluten up until now, he should have had enough exposure to gluten to test positive should you decide to stop the gluten immediately, as Scott suggest.  However, one thing you may wish to change in the short term instead/as well is to stop him consuming dairy products.  If he is a coeliac, he may have become temporarily dairy intolerant.  The tips of the villi, which line the gut and are damaged in coeliacs, produce lactase, an enzyme essential for the digestion of dairy.  If they are damaged it can contribute to diarrhea and gas.  I had this some months after my own coeliac diagnosis, and it improved no end when I gave up dairy for a while.  Once on a gluten free diet they heal, and most coeliacs can return to consuming dairy. I would have thought that with those bowel issues in a young child what is happening to him is entirely normal.    
    • Scott Adams
      It’s understandable to feel frustrated, especially when you’re managing celiac well but still experiencing new, unexplained symptoms. Many people with celiac notice sensations around the neck and jaw area, even without visible swelling. Sometimes, lymph node sensitivity or a tight feeling in the throat can linger as part of the body’s inflammatory response, even if your thyroid and other tests come back normal. It sounds like you’ve been thorough with testing and have seen multiple specialists, which is great. A few things might be worth considering: for some people with celiac, there can be lingering sensitivities to trace gluten, cross-reactive foods, or even certain environmental factors that can cause persistent inflammation. Since you’ve tried antihistamines and a humidifier, you might want to discuss options like different allergy medications or seeing an ENT specialist if you haven’t already. Some find that supplements (like anti-inflammatory options or probiotics) help support overall inflammation reduction, though you should always check with your doctor first. It’s frustrating when you feel the symptoms without an obvious cause, but trust your instincts—hopefully, with persistence, you’ll find answers and some relief soon.
    • Scott Adams
      It sounds like you’re really going through it—accidental gluten exposure can definitely take a toll, and when it happens twice close together, it can feel like it drags on even longer. Many people find that each glutening is a bit unpredictable in terms of recovery, and it could take a little extra time if your body hasn’t fully cleared out the first exposure before the second one hit. Staying hydrated, avoiding other potential irritants (like alcohol and spicy foods), and resting can help ease the symptoms as your gut heals. Hopefully, things start to settle soon! In the meantime, it could be helpful to communicate with friends about specific brands to look out for, even when it’s hard to ask in the moment. Hang in there—hope you’re feeling much better soon! This article, and the comments below it, may be helpful:    
    • Scott Adams
      @Therockfrog, it sounds like you’ve been through so much, and managing these symptoms must be incredibly challenging. Tingling in your feet and scalp, especially after eating specific foods, can sometimes be related to histamine intolerance or even a sensitivity to certain food proteins, as you’ve suggested. Since you’ve already noticed patterns with gluten, nuts, and dairy, it might be worth looking into a histamine intolerance or mast cell activation syndrome (MCAS), where the body has an exaggerated response to histamine and other triggers, which can cause itching, tingling, and even high cortisol levels. This would explain why your symptoms change with seasonal pollen too. If you’re considering eating some of these trigger foods before seeing the allergist, it could help with identifying specific IgE reactions. However, since this can worsen symptoms, you might consider working with your doctor to approach this slowly, maybe introducing one trigger at a time. It’s great you’ve tracked your symptoms so closely—that detailed information will help the allergist a lot. In the meantime, perhaps continue with antihistamines, as sometimes trying different types (H1 and H2 blockers, for example) under guidance can make a difference. Hang in there! It sounds like you’re very close to finding the root of these reactions.
×
×
  • Create New...