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sarahlovescookies
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sarahlovescookies Newbie
sarahlovescookies
Posted

i have been battling with stomach issues for the past 3 months and it’s been really tough. to summarize, i did a blood test and they said i could have celiac disease so i went off gluten. and it got better for sure but it hasn’t gone away entirely and i know it’ll probably take time for it to fully go away but this issue started only 3 months ago so im confused shouldnt it be gone by now?? i still have bad stomach aches i still have excessive nausea and my stomach growls a lot and very loudly im not sure if it has to do with dairy or ibs (which i don’t even know if i have it) this is all really confusing for me because i’m only 16 and my parents never experienced anything like this 

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trents Grand Master
trents
Posted

Sarah, welcome to the forum!

To achieve a truly gluten free lifestyle generally involves quite an education process as gluten is hidden in places and ways nobody ever expects. Recent research has shown that most people who claim to be eating gluten free are actually practicing a lower gluten diet but still getting "glutened" regularly. This particularly true for those still eating in restaurants and fast food places. Gluten is hidden through terminology sometimes and can not only be found in food but in pills and supplements. This resource might be of help in identifying sources of gluten you have not been aware of:

Also, it is common for celiacs to develop intolerance to some other foods that do not contain gluten. Most common among them are dairy, oats, and eggs perhaps but it can be almost anything. It might be helpful to keep a food diary for few weeks and see if you observe any patterns of stomach/bowel discomfort connected with certain foods.

There maybe other bowel problems going on as well such as IBS (Irritable Bowel Syndrome) and SIBO (Small Intestine Bacterial Overgrowth) which are more common in the celiac population than in the general population.

How were you diagnosed with celiac disease? Do you know the name of the tests that were run and the test values? I note you say that your physician said, "You probably have celiac disease." That sounds like he or she wasn't totally convinced. Please be aware that if further testing is planned, you will need to be eating regular amounts of gluten for up two months leading up the test. So, since you are already trying to eat gluten free, that is something to factor in.

 

 

sarahlovescookies Newbie
sarahlovescookies
Posted
  • Author
16 hours ago, trents said:

Sarah, welcome to the forum!

To achieve a truly gluten free lifestyle generally involves quite an education process as gluten is hidden in places and ways nobody ever expects. Recent research has shown that most people who claim to be eating gluten free are actually practicing a lower gluten diet but still getting "glutened" regularly. This particularly true for those still eating in restaurants and fast food places. Gluten is hidden through terminology sometimes and can not only be found in food but in pills and supplements. This resource might be of help in identifying sources of gluten you have not been aware of:

Also, it is common for celiacs to develop intolerance to some other foods that do not contain gluten. Most common among them are dairy, oats, and eggs perhaps but it can be almost anything. It might be helpful to keep a food diary for few weeks and see if you observe any patterns of stomach/bowel discomfort connected with certain foods.

There maybe other bowel problems going on as well such as IBS (Irritable Bowel Syndrome) and SIBO (Small Intestine Bacterial Overgrowth) which are more common in the celiac population than in the general population.

How were you diagnosed with celiac disease? Do you know the name of the tests that were run and the test values? I note you say that your physician said, "You probably have celiac disease." That sounds like he or she wasn't totally convinced. Please be aware that if further testing is planned, you will need to be eating regular amounts of gluten for up two months leading up the test. So, since you are already trying to eat gluten free, that is something to factor in.

 

 

Hey! thanks for all the tips appreciate it, i’m trying my best to get off dairy but it is a bit hard since most of my dinners involve yogurt or cheese. and i wasn’t actually diagnosed with celiac (they also didn’t say i probably had celiac he just read my blood tests and said celiac) i think the only way you can get an official diagnosis is through an endoscopy, and the doctor said that we would do another blood test in 3 months (around aug) to see if my blood levels went down. i don’t have the name of the tests right now but i can definitely find it later, i took a lot of tests including a stool test but nothing found in that. 

 

and today when i woke my throat was really scratching and i felt extreme nausea and of course a stomach ache, i do think i ate gluten by accident but i think it also has to do with the fact i ate a lot of dairy the night before. and about the eating gluten and test thing we got a nutritionist and she also said that it could be something else because i used to gluten everyday since my cereal had gluten and that’s when they did the blood test, but i think she mentioned that when they do it again in 3 months they’re obviously going to see it go down because i haven’t been eating gluten. 

 

 

Scott Adams Grand Master
Scott Adams
Posted

A biopsy is no longer required to diagnose celiac disease, and if you look at the articles linked in this article to the studies regarding diagnosing CD with only blood tests, you will see that it is now becoming much more common when TTG levels are 5x or higher than the marker for CD. Feel free to share your blood test results if you like:

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