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Brand New to Celiac, confused is a nice term


Patrick 52

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Patrick 52 Newbie

So, after losing weight over the last 4 months and having constant diarrhea (15 to 20 bouts a day) I started passing out and my Wife had enough, went to the hospital, they were clueless except to say I appeared to be starving myself, the Biopsy from my intestines told the tale and with a blood test confirmation, I am now a Celiac person.

how do I find local groups, this site has been very helpful but also scary (I have to check my medicines to see what fillers they used are made of?!?) but this is now my life so I want to learn what to do, so any help would be great!

 

Diagnosed 5-3-2022


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trents Grand Master

Welcome, Patrick!

You may find this helpful: https://nationalceliac.org/celiac-disease-support-groups/

Scott Adams Grand Master

Welcome to the forum!

This article may be helpful:

 Also, this is a very old list, but some of these groups may still be active...hard to say though due to the pandemic:

 

Jays911 Contributor
On 5/18/2022 at 4:59 PM, Patrick 52 said:

So, after losing weight over the last 4 months and having constant diarrhea (15 to 20 bouts a day) I started passing out and my Wife had enough, went to the hospital, they were clueless except to say I appeared to be starving myself, the Biopsy from my intestines told the tale and with a blood test confirmation, I am now a Celiac person.

how do I find local groups, this site has been very helpful but also scary (I have to check my medicines to see what fillers they used are made of?!?) but this is now my life so I want to learn what to do, so any help would be great!

 

Diagnosed 5-3-2022

You will get better. It takes time, diligence and patience. I was diagnosed almost 9 years ago. Things do get better. Still issues (life is never perfect or easy), but recent second endoscopy showed I am almost 100% healed. Hang in there. 

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