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Pregnant, glutened and terrified

LCArseneault
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LCArseneault Rookie
LCArseneault
Posted

I was diagnosed after my third miscarriage as part of recurrent pregnancy loss workup. I really didn’t have much in terms of GI symptoms at all and would have never guessed. I’ve been gluten free for 3 months now and am 7 weeks pregnant, and was told my nachos were gluten free but I looked at the ingredients and they very much are not - the multigrain Tostitos. I ate probably 3/4 of a bag over the course of a couple of days. I am petrified of miscarrying again. It seems from what I can read that the anti-TTg can damage the placenta. Anyone have any similar experiences they can share? 😩

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Wheatwacked Veteran
Wheatwacked
Posted
37 minutes ago, LCArseneault said:

was told my nachos were gluten free but I looked

Hi @LCArseneault Welcome to the Forum. I am sorry to hear of your miscarriages. Congrats on the new pregnancy. My wife had three miscarriages before our son was born in 1976. He was diagnosed with Celiac as an infant when he was weaned. You would think that 42 years later there would be progress but there is still denial. It took a few months of Nutramagen baby formula exclusively followed by reweaning onto a gluten free diet tp recover and he grew up strong and healthy. At the time he was one of 13 children diagnosed in the country. It was suggested because I was a very colicky baby that I should see what a GFD does for me. I was 25 and had no digestive issues ( I did not consider underweight, and picky eater). Well in 2014 I finally tried it when I realized that at 63 I was the spitting image of my infant son with his bloated infant belly, unable to stand more than 5 minutes. Problems that had been blamed on alcohol cigarettes and age disappeared. I counted 18. Alcohol addiction (30 years) just went away. After a lifetime of being a mouth breather my nose works and the shortness of breath, blamed mostly on tobacco has completely resolved despite continuing to smoke a pack a day (not proud, just fact). The point here is get your husband on board with getting tested and regardless of the results, at least of month of GFD. The whole house being GFD will improve yours, your baby's and your husbands quality of life.

Nutritional deficiencies are comorbid with Celiac and these deficiencies will affect your pregnancy. Folate is well known for neural tube defects like spina bifida but choline works with folate. Estimate less than 10% eat the minimum recommended of choline.

Low choline levels in pregnant women raise babies' risk for brain and spinal-cord defects, study shows   "Choline, an essential nutrient found in egg yolks, soy, wheat germ and meats, was the only nutrient measured whose blood levels were linked to risk of neural tube defects."

Iodine and fertility: do we know enough?   "In this article, the metabolism of iodine and its potential role in fertility will be discussed, including the impact of both iodine deficiency and excess states and the importance of iodine in normal fetal development ...  Mills et al. (2018) conducted a study in over 500 women in the USA and found that those with lower urinary iodide levels had a 46% reduction in fertility. Moreover, women with low iodine levels also took longer to conceive, with 28% of the iodine deficient group failing to conceive at 12 months compared to only 12.5% in the iodine sufficient group. This suggests that iodine deficiency may contribute to a proportion of UI in developed countries (Mills et al., 2018). Another study in West Africa showed that women with iodine deficiency have twice the risk of reproductive failure and again, the risk of reproductive failure being directly proportional to the severity of iodine deficiency (Dillon and Milliez, 2000)."

Vitamin D and Pregnancy  A recent study found women taking 4,000 IU of vitamin D daily had the greatest benefits in preventing preterm labor/births and infections ...    The study confirmed vitamin D at this level is not only safe for you, but for your baby, and the researchers from this study now recommend this daily dosage of vitamin D for all pregnant women. The average prenatal vitamin only contains 400 IU of vitamin D, so additional supplementation should be taken daily.

NNowak Collaborator
NNowak
Posted
9 hours ago, LCArseneault said:

I was diagnosed after my third miscarriage as part of recurrent pregnancy loss workup. I really didn’t have much in terms of GI symptoms at all and would have never guessed. I’ve been gluten free for 3 months now and am 7 weeks pregnant, and was told my nachos were gluten free but I looked at the ingredients and they very much are not - the multigrain Tostitos. I ate probably 3/4 of a bag over the course of a couple of days. I am petrified of miscarrying again. It seems from what I can read that the anti-TTg can damage the placenta. Anyone have any similar experiences they can share? 😩

After diagnosis at age 24, I experienced infertility and three second term miscarriages. I also have 4 beautiful children- now ages 15-24. Ask your practitioner about progesterone. Methylated B complex prior to your pregnancy, and during, is essential. You may need choline as well - phosphatidylcholine. Check with your OB.

Right now detox with a lot of water and rest. Focus on what you can control by eating only what you’re familiar with. Please reduce your stress with this. I fully understand your anxiety about this - I’m sorry you are going through this. Hugs 💕

Scott Adams Grand Master
Scott Adams
Posted

Try to relax, as extra stress won't be able to turn back the clock. I think this unfortunate episode is unlikely to cause a miscarriage. I would, however, be extra vigilant about your gluten-free diet, and it sounds like you will be going forward. This article may help:

 

Sabaarya Community Regular
Sabaarya
Posted
On 5/23/2022 at 6:39 PM, NNowak said:

After diagnosis at age 24, I experienced infertility and three second term miscarriages. I also have 4 beautiful children- now ages 15-24. Ask your practitioner about progesterone. Methylated B complex prior to your pregnancy, and during, is essential. You may need choline as well - phosphatidylcholine. Check with your OB.

Right now detox with a lot of water and rest. Focus on what you can control by eating only what you’re familiar with. Please reduce your stress with this. I fully understand your anxiety about this - I’m sorry you are going through this. Hugs 💕

Hi. I had 2 miscarriages before my son. Well at that time I hadn’t  been diagnosed with celiac yet. My doctor put me on baby aspirin and progesterone for 3 months and I was able to carry my baby. I did have occasional spotting during my pregnancy and was so panicking but thank god was able to have my baby…

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  • Recent Activity

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    • Wheatwacked
      3 year old gluten intolerance?

      By Wheatwacked · Posted

      If you mean continueing on Gluten Free my answer is yes.  She showed significant improvement in her behavior and that translates to a happy family.  Do get her tested as sooon as you can.  You might want to investigate genetic testing for Celiac Disease.  Children recover more quickly than adults.  It took my son about 6 months on Nutramigen before going to regular food, gluten free.  Blood tests are not always accurate in very young children. You may be advised to see a gastroenterologist instead of relying on blood tests results. Logic: She is better off gluten than before.  Wheat flour has no nutritional value and has an omega 6: omega 3 ratio of 22:1.  Our bodies do better at 3:1.  Omega 6 causes inflammation. When my son was diagnosed, back in 1976, his doctor recommended my wife and I also go gluten free.  We declined and lived to regret it.  I started GFD at 63 and have spent the last 10 years undoing the damage, some of my symptons went all the way back to my childhood and things I lived with all my life got better.
    • Wheatwacked
      3 year old gluten intolerance?

      By Wheatwacked · Posted

      Hi @Nicbent35,             When my son was diagnosed with Celiac Disease when he was weaned, so I understand your frustration.       With improvement so dramatic, it cannot be a coincedence. Get her to the doctor and tell the story and insist on testing.  In the meantime, though, continue on GFD.  Her health is more important than convincing a doctor.  Bring videos of her behaviors if you can.  Even if the blood tests and biopsy prove negative, that is part of the diagnosis process for NCGS and later when she is recovered you can always do a Gluten Challenge.      This is an important time in her developement.  Celiac Disease causes malabsorption syndrome, leading to malnutrition, regardles of what she eats.  Though NCGS may not cause malabsorption, it will affect food choices which can lead to malnutrition.  There may be benifits that an official diagnosis may have, but they don't trump a healthy child.      Get her healthy, then worry about validation later.  Celiac Disease is difficult to diagnosed, especially in children, because doctors look for antibodies in the blood and young children have immature immune systems.  Also you don't mention any gastrologic symtoms and celiac disease is traditionally considered gastrolic only.  Not true.  There are over 200 symptom that celiac disease and the accompaning malnutrion mimics or causes that often causes misdiagnosis and delay in recovery. While at the doctors, ask them about vitamin D deficiency and Iodine deficiency in particular. Milk being the primary source of iodine in the diet, but concerns exist regarding the lower iodine content in organic milk and reduced milk consumption in certain demographics.  Vitamin D deficiency is 40% of the industrialized population and a recent study in the Great Britain showed a wopping 60%, beaten only by some areas of Canada at 70%. And B1, B2, B3, B5 and B6.  Deficiencies in these are common in untreated Celiac Disease and they affect energy production. Are You Confused About Your Celiac Disease Lab Results?
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      Anyone else with very high HDL?

      By knitty kitty · Posted

      @plumbago, Are you taking any folate with your B12?   Folate helps regulate HDL levels.  You may try taking a methylfolate supplement with your B12.   If there's a folate deficiency because you aren't absorbing sufficient folate, or have the MThF mutation causing a functional folate deficiency (methylfolate trap), you can have a functional B12 deficiency despite supplementing, resulting in HDL levels not getting regulated, but running high or low.   Pushing the envelope in explanations, too. P. S. Are you taking a B Complex?  Folate and B12 Cobalamine need enzymes made from B6 Pyridoxine's interaction with Thiamine, and B2 Riboflavin's interaction with Thiamine.  Is your Vitamin D low?
    • Nicbent35
      3 year old gluten intolerance?

      By Nicbent35 · Posted

      Thank you for all that helpful info, does that mean it’s not a good idea to do what I’m doing? Or since it’s only been a week should I see if I could get her tested now? Would it show up still since it hasn’t been long if they tested her?
    • trents
      3 year old gluten intolerance?

      By trents · Posted

      Welcome to the forum, @Nicbent35! There is something called gluten withdrawal that might have come into play here as well. As strange as it might sound, gluten has some addictive properties similar to opiates and some people feel physically and emotionally out of sorts for a few weeks after it is removed from their diet. There are two recognized gluten disorders, celiac disease (aka, "gluten intolerance") and Non Celiac Gluten Sensitivity (aka, NCGS or just "gluten sensitivity" for short). They have symptoms that overlap. The difference is that celiac disease is an autoimmune condition that causes inflammation in the small bowel lining and, over time, damages the lining of the small bowel. There are specialized blood antibody tests that have been developed for diagnosing celiac disease. NCGS, on the other hand, does not damage the lining of the small bowel. No tests are yet available for NCGS. Celiac disease must first be ruled out in order to arrive at a diagnosis of NCGS but NCGS is 10x more common than celiac disease. Please be aware that if your daughter is on a gluten free diet, the celiac disease blood antibody tests will not give valid results. For the testing to be valid, she would need to have been eating normal amounts of gluten for weeks/months leading up to the day of the blood draw. If you remove gluten from her diet as an experiment, valid testing can be done later on but she would need to be restarted on gluten for weeks/months ahead of the blood draw. Also be aware that once on a gluten free diet, restarting gluten can produce more severe symptoms because all tolerance may have been lost.
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