Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has anyone heard of the Covid vaccine/boosters triggering the celiac disease gene to cause celiac disease ?


Anne Jory

Recommended Posts

T burd Enthusiast
6 hours ago, Sabaarya said:

What is drug induced lupus? Do you have lupus?

good question. Many drugs can cause autoimmune response. The one I noticed was an antidepressant celexa. Antibiotics can also. HCQ can and they put me on that!!! I have lupus symptoms. Joint pain, swelling, fatigue, brain fog. Feels like pregnancy. But not the organ damage. DIL is supposed to go away, but I seem to be getting worse. I’m getting checked out now to see if other things are involved. 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 56
  • Created
  • Last Reply

Top Posters In This Topic

  • trents

    10

  • Anne Jory

    9

  • T burd

    7

  • Wheatwacked

    5

Top Posters In This Topic

  • trents

    trents 10 posts

  • Anne Jory

    Anne Jory 9 posts

  • T burd

    T burd 7 posts

  • Wheatwacked

    Wheatwacked 5 posts

Posted Images

T burd Enthusiast
17 hours ago, Scott Adams said:

I am not sure this is correct, and just want to share this article:

 

Yeah I drank soup after my daughter many times while she was sick and had zero covid illness. Even though I have clear other autoimmune issues going on…

17 hours ago, Scott Adams said:

I am not sure this is correct, and just want to share this article:

 

Yeah I drank soup after my daughter many times while she was sick and had zero covid illness. Even though I have clear other autoimmune issues going on…

17 hours ago, Scott Adams said:

I am not sure this is correct, and just want to share this article:

 

Yeah I drank soup after my daughter many times while she was sick and had zero covid illness. Even though I have clear other autoimmune issues going on…

17 hours ago, Scott Adams said:

I am not sure this is correct, and just want to share this article:

 

Yeah I drank soup after my daughter many times while she was sick and had zero covid illness. Even though I have clear other autoimmune issues going on…

17 hours ago, Scott Adams said:

I am not sure this is correct, and just want to share this article:

 

Yeah I drank soup after my daughter many times while she was sick and had zero covid illness. Even though I have clear other autoimmune issues going on…

T burd Enthusiast
6 hours ago, trents said:

The link is good except it misleads people into thinking only those types of drugs cause it. Diflucan, some antibiotics, HCQ, antidepressants can also cause it in people susceptible to it like me. Very common drugs. I saw stuffers linking most of these to DIL.

nansissons Newbie
On 5/29/2022 at 9:53 PM, Sabaarya said:

Actually my celiac disease was triggered after I got Covid 2 years ago. I didn’t have any problems before Covid. 2 month after Covid I started experiencing all celiac symptoms but at that time I didn’t know it was celiac. I was wondering why I’m not getting better,muscle pain,feet pain,joint pain,hair thinning,anemia,occasional diarrhea,pain under my ribs,back pain,hand tingling, buzzing in my ears. After experiencing all of that for 2 years I did find out that I have celiac disease and it was not Covid side effects. Covid just activated my celiac gene…

I'm glad I found this site ,I have had celiac since I was a baby ,I had the first vaccine was sick for 2,months my second shot well I got that done last summer and I'm still sick , I was wondering if celiac could be bad I also thought my epilepsy might a side effect with the vaccine , I'm not going for my booster,But I still wear my mask as well 

Scott Adams Grand Master

Welcome to the forum @nansissons. Has your diet been 100% gluten-free? Epilepsy can be related to celiac disease, so be sure your diet is gluten-free. If you eat out at restaurants you may be getting trace amounts in your diet.

As far as the vaccine causing either celiac disease or epilepsy, so far I haven't see any scientific publications that show a link. It there may be such a link that hasn't yet been discovered, it would seem to me that getting covid-19 might be an even greater risk than the vaccine, so you are likely better off vaccinated than not.

T burd Enthusiast
1 hour ago, Scott Adams said:

Welcome to the forum @nansissons. Has your diet been 100% gluten-free? Epilepsy can be related to celiac disease, so be sure your diet is gluten-free. If you eat out at restaurants you may be getting trace amounts in your diet.

As far as the vaccine causing either celiac disease or epilepsy, so far I haven't see any scientific publications that show a link. It there may be such a link that hasn't yet been discovered, it would seem to me that getting covid-19 might be an even greater risk than the vaccine, so you are likely better off vaccinated than not.

https://pubmed.ncbi.nlm.nih.gov/34957554/

Scott Adams Grand Master

Interesting article for sure, but is more of a discussion based on a small handful of cases, so it's not really the broad study I was hoping for. It does seem possible that there could be a certain number of autoimmune disease cases triggered by the vaccines, and they do discuss a case of Type 1 diabetes possibly being triggered, but don't mention celiac disease. It also mentions that getting the live virus could also cause such issues as well, thus, getting the vaccine would still likely be the best bet for most people. Here is the full article:

https://onlinelibrary.wiley.com/doi/10.1111/imm.13443 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wheatwacked Veteran

Celiac Disease and many other autoimmune diseases have a common finding: Low Vitamin D. We hide from the sun and the health agencies warn us of imminent danger of hypervitaminosis D. Maybe it is bad advice. 

About 25% of the US population have less than sufficient >29 nm/ml. plasma vitamin D.

Quote

According to recent studies, vitamin D deficiency is likely to be an important etiological factor in the pathogenesis of many chronic diseases, as well as it has been associated with higher mortality rate for respiratory disease. Vitamin D and infectious diseases Miragliotta G, Miragliotta L. Vitamin D and infectious diseases. Endocr Metab Immune Disord Drug Targets. 2014;14(4):267-71. doi: 10.2174/1871530314666141027102627. PMID: 25386893.

Quote

Patients with a vitamin D deficiency were 14 times more likely to have a severe or critical case of COVID-19. Additionally, the mortality rate for those with insufficient vitamin D levels was 25.6%, compared with 2.3% among those with adequate levels.  What is the link between vitamin D levels and COVID-19?

 

T burd Enthusiast
4 hours ago, Wheatwacked said:

Celiac Disease and many other autoimmune diseases have a common finding: Low Vitamin D. We hide from the sun and the health agencies warn us of imminent danger of hypervitaminosis D. Maybe it is bad advice. 

About 25% of the US population have less than sufficient >29 nm/ml. plasma vitamin D.

 

Slightly low D is what I had at diagnosis. I had developed drug induced lupus (which does not go away for me like it’s supposed to) and low D can cause lupus as well. 
 

 

Sabaarya Community Regular
On 5/31/2022 at 2:03 PM, nansissons said:

I'm glad I found this site ,I have had celiac since I was a baby ,I had the first vaccine was sick for 2,months my second shot well I got that done last summer and I'm still sick , I was wondering if celiac could be bad I also thought my epilepsy might a side effect with the vaccine , I'm not going for my booster,But I still wear my mask as well 

I got pretty sick after my Covid vaccine as well. I had Jansen so it was only 1 dose. How old are you Nansi?:)

  • 4 weeks later...
StacyLS Newbie

I developed gluten intolerance about 6 weeks after my second COVID vaccine. In searching the literature to see if any correlation had been found, I found research where researchers  induce gluten intolerance in mice by injecting an RNA virus. COVID is an RNA virus from the same Realm and Kingdom as the virus that Is used in research. I must wonder if there is enough similarity between the viruses (Reovirus and Coronavirus) for the vaccine to induce celiac and non-celiac gluten intolerance in humans. Just a theory, but it makes me wonder. 

cristiana Veteran
(edited)

"It also mentions that getting the live virus could also cause such issues as well, thus, getting the vaccine would still likely be the best bet for most people."

I think what this says, Scott, is a very good point.   A sibling and I developed both arrhythmia c. 10 days after our second jab.   We didn't realise this coincidence until some months later when we compared diaries.  But we were still encouraged by the medics and the British Heart Foundation Charity to have boosters because we were told that having actual Covid could be worse for us.  I felt there was some merit in this argument, and decided to have a booster.  It didn't make things worse.

Edited by cristiana
Wheatwacked Veteran

If your immune status is low from nutritional deficiency caused by diet or malabsorption syndrome, it seems to me that any extra load caused by the flu, or covid or similar, could lower it enough to let the immune system get out of control. Low Vitamin D (immune system master controller?) and zinc (antiviral) seem to be integral, but this is a guess, not enough research. I do know that since 2004 when I started using Cold-Eeze whenever I feel a scratchy throat I have not had a cold or virus and with my vitamin D plasma at 80 ng/ml since 2019 I don't even need the lozenges very often. Prior to 2004 I would get a bad cold two or three times a year.

cristiana Veteran

@Wheatwacked how much D do you take?  I've been prescribed 800 iu D3 a day but I wonder if it might not be enough.

trents Grand Master
2 hours ago, cristiana said:

@Wheatwacked how much D do you take?  I've been prescribed 800 iu D3 a day but I wonder if it might not be enough.

I would not think 800IU daily is enough to really make any difference. I take 4000IU daily and some are recommending more than that. Some years ago there was a lot of caution about taking too much D3 because it is fat soluble but those early limits have proved to be overly conservative and to result in sub-therapeutic administrations. Wheatwacked is really up on this and recommends 10k IU daily I believe. It will also depend on how much exposure you get to sunlight. Both you and I live in places where direct sunlight can be a scarce commodity for major parts of each year.

nansissons Newbie
16 hours ago, StacyLS said:

I developed gluten intolerance about 6 weeks after my second COVID vaccine. In searching the literature to see if any correlation had been found, I found research where researchers  induce gluten intolerance in mice by injecting an RNA virus. COVID is an RNA virus from the same Realm and Kingdom as the virus that Is used in research. I must wonder if there is enough similarity between the viruses (Reovirus and Coronavirus) for the vaccine to induce celiac and non-celiac gluten intolerance in humans. Just a theory, but it makes me wonder. 

 

On 5/29/2022 at 9:53 PM, Sabaarya said:

Actually my celiac disease was triggered after I got Covid 2 years ago. I didn’t have any problems before Covid. 2 month after Covid I started experiencing all celiac symptoms but at that time I didn’t know it was celiac. I was wondering why I’m not getting better,muscle pain,feet pain,joint pain,hair thinning,anemia,occasional diarrhea,pain under my ribs,back pain,hand tingling, buzzing in my ears. After experiencing all of that for 2 years I did find out that I have celiac disease and it was not Covid side effects. Covid just activated my celiac gene…

Thank for the info I got my second vaccine done a year a go and I'm still dealing with it so I'm not doing the booster vaccine I have to do alot of bed rest 

nansissons Newbie
4 hours ago, cristiana said:

@Wheatwacked how much D do you take?  I've been prescribed 800 iu D3 a day but I wonder if it might not be enough.

I just do the diet I was diagnosed with Celiac when I was a baby

4 hours ago, cristiana said:

@Wheatwacked how much D do you take?  I've been prescribed 800 iu D3 a day but I wonder if it might not be enough.

I was diagnosed with celiac disease when I was a baby

Wheatwacked Veteran

I've been taking 10000 iu (250 mcg) since early 2015. In 2018 I was up to 47 ng/ml. Jan 2020, 87 then Sept 2021 at 80. People with more fat need more to raise blood level because it is stored in the fat. It seems the major concern is calcification but it is actually quite rare.  The study that convinced me was of Kidney transplant patients getting various doses up to a one time 1.25 million IU.

Quote

Ekwaru et al16 recently reported on more than 17,000 healthy adult volunteers participating in a preventative health program and taking varying doses of vitamin D up to 20,000 IU/d. These patients did not demonstrate any toxicity, and the blood level of 25(OH)D in those taking even 20,000 IU/d was less than 100 ng/mL" Vitamin D Is Not as Toxic as Was Once Thought: A Historical and an Up-to-Date Perspective

 

  • 4 weeks later...
Jim Chris Contributor
On 6/30/2022 at 9:50 PM, StacyLS said:

I developed gluten intolerance about 6 weeks after my second COVID vaccine. In searching the literature to see if any correlation had been found, I found research where researchers  induce gluten intolerance in mice by injecting an RNA virus. COVID is an RNA virus from the same Realm and Kingdom as the virus that Is used in research. I must wonder if there is enough similarity between the viruses (Reovirus and Coronavirus) for the vaccine to induce celiac and non-celiac gluten intolerance in humans. Just a theory, but it makes me wonder. 

I was diagnosed with Celiac in May of 2022. I had been having lots of symptoms of covid for maybe a year before this. I kept wondering how did I get celiac at 70 years of age. I have had two moderna vaccinations and two subsequent boosters. I believe what you are saying may be more than just theory. I hope there would be a study to prove or disprove it but I'm thinking this may be more than just a coincidence. Thanks for bring this up.

Jim C

trents Grand Master
2 hours ago, Jim Chris said:

I was diagnosed with Celiac in May of 2022. I had been having lots of symptoms of covid for maybe a year before this. I kept wondering how did I get celiac at 70 years of age. I have had two moderna vaccinations and two subsequent boosters. I believe what you are saying may be more than just theory. I hope there would be a study to prove or disprove it but I'm thinking this may be more than just a coincidence. Thanks for bring this up.

Jim C

Jim C, for people in your age group to develop celiac disease is not uncommon at all. We see this over and over on the forum and that was true before COVID. The incidence of celiac disease in your age group has not changed but what has changed is that there is more awareness of celiac disease in general in the medical community such that more people of all age groups are being checked for it. Then too, you may have had celiac disease for years before diagnosis but the symptoms were not yet severe enough to prompt investigation. 

Anne Jory Rookie

You’re welcome Chris. It’s a question we may never know the answer to in our lifetime, but hopefully research will be done to see if there is a correlation to celiac and possibly other autoimmune disorders. You said you had Covid symptoms for a year. Did you mean celiac symptoms ? Good luck on your journey with this disease, we can all use a little luck…….l

Jim Chris Contributor
3 hours ago, Anne Jory said:

You’re welcome Chris. It’s a question we may never know the answer to in our lifetime, but hopefully research will be done to see if there is a correlation to celiac and possibly other autoimmune disorders. You said you had Covid symptoms for a year. Did you mean celiac symptoms ? Good luck on your journey with this disease, we can all use a little luck…….l

Yes, celiac not covid, although I just did get covid at the end of June. Very mild and not long lasting. Dr said because of my vaccinations and boosters. So what do we do?

 

  • 2 weeks later...
Ddowda74 Rookie
On 5/30/2022 at 6:52 AM, knitty kitty said:

@Anne Jory,

A stressor, like receiving the Covid vaccines, causes your immune system to gear up and make anti-Covid antibodies.  This immune system response uses up lots of Thiamine Vitamin B1 and can tip the balance into Thiamine deficiency. 

Symptoms of Thiamine deficiency include unintentional weight loss, diarrhea, and thyroid problems.  Without enough thiamine, the thyroid can become underactive (hypothyroidism).  During times when we get more thiamine from our daily diet, the thyroid may become overactive (hyperthyroidism).  This can lead to fluctuations in thyroid function, swinging from high to low and back again.  

Scientific research shows that when there's a deficiency of Thiamine, the thiamine transporter gene turns off signalling other genes down the line to turn on.  The other genes that get turned on are autoimmune diseases like Celiac, Diabetes, thyroid problems (hyper and hypo thyroidism) and more.  

Here's some articles by Dr. Derrick Lonsdale and Dr. Chandler Marrs, leaders in this field....

Hiding in Plain Sight: Modern Thiamine Deficiency

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

And...

https://www.hormonesmatter.com/vaccination-stressor/

And...

https://www.hormonesmatter.com/tag/gardasil-and-pots/

Do get checked for vitamin and mineral deficiencies caused by malabsorption due to Celiac Disease.  Discuss with your doctor the benefits of supplementing thiamine and the other B Complex vitamins and minerals while you heal.

Hope this helps!

Wondering which type of  doctor to go to for this testing. Thanks

On 5/29/2022 at 8:52 PM, trents said:

Welcome to the forum, Anne Jory!

I have not heard that the vaccine triggers celiac disease but I think there is still a lot we don't know about the effects of the vaccine long term.

I believe we do know that people who have celiac disease are more susceptible to contracting COVID and we also know that those with the genetic potential for celiac disease need some kind of stress trigger to "turn on" the genes to produce active celiac disease. 

I was wondering this as well. My symptoms have been a lot worse since I had Covid! 

trents Grand Master
(edited)

Ddowada74, you asked: "Wondering which type of doctor to go to for this testing?"

Vitamin level testing is really not very useful in many or most cases. It only measures that which is floating around in the blood, not what is actually making it into the cells that make up our tissues and organs. Symptoms of deficiencies are much more useful in dx them. 

IMO, the only good way to test for a thiamine deficiency is to start taking a good quality, easily assimilated thiamine supplement. The benfotiamine form of thiamine will give you the fastest and best results. Many people who actually have thiamine deficiencies report that they see significant symptom improvement within hours or days.

Edited by trents
Ddowda74 Rookie
11 minutes ago, trents said:

Ddowada74, you asked: "Wondering which type of doctor to go to for this testing?"

Vitamin level testing is really not very useful in many or most cases. It only measures that which is floating around in the blood, not what is actually making it into the cells that make up our tissues and organs. Symptoms of deficiencies are much more useful in dx them. 

IMO, the only good way to test for a thiamine deficiency is to start taking a good quality, easily assimilated thiamine supplement. The benfotiamine form of thiamine will give you the fastest and best results. Many people who actually have thiamine deficiencies report that they see significant symptom improvement within hours or days.

Thank you so much Trents! I had heard that about Vitamin B and Magnesium deficiency. I did test very low for iron and vitamin D when they did a thyroid and blood panel.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,097
    • Most Online (within 30 mins)
      7,748

    Claire Singer
    Newest Member
    Claire Singer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kathleen JJ
      We just had his diagnosis confirmed. The biopsy showed Marsch 3B.
    • Jeff Platt
      With patients who are experiencing ear ringing and ear pain I first want to make sure there is not any kind of ear infective process verified by your primary care. The next thing that I see as a dentist who treats a lot of temporomandibular joint disorders (TMJ), is that the jaw joint can be having a problem that causes the ringing to happen. My primary care physicians here in Colorado Springs will refer these patients to me for evaluation when they don’t find any source of infection with the ear. We are able to treat with a specific type of mouth splint and get resolution of the ringing and ear pain as we resolve the TMJ problem.  First a visit to your primary care to make sure your inner and outer ear is infection free. And if it is clean, a visit to a dentist who treats TMJ disorders. 
    • cristiana
      One thing I ought to add is that although any new medical condition diagnosis can come as a huge shock/blow, navigating the gluten free diet will one day become second nature to you all  Yes, mistakes occur on the way, but it will get easier.  A few things that have helped me on my journey: 1/ My husband has said to me a few times, and I think it helps. I should to try think of all the food I CAN still eat.  So much natural, unprocessed food, is gluten free, and a whole lot of processed and canned goods available in the supermarkets, too.  I can still eat Heinz Baked Beans and Tomato Soup, for example, and a lot of oven chips are gluten free.  Not all chocolate and candy contains gluten.  Excellent gluten free substitutes now exist in the supermarkets and I've lost count of the times I've been eating a product and shared it with a friend, and they have loved it.  Gluten-free doesn't mean taste free.  A lot of gluten-free substitutes are just as good as the 'real thing'. 2/ As time has gone by, I have met more and more coeliacs and other people who react strongly to gluten. This will happen to your son in time, and it often helps to be able to chat with someone who walks a similar path.  I now have over a dozen such buddies and we share tips and recipes, and also recommend 'safe' restaurants and cafes to each other.   3/ Family support.  It is good if you can offer a safe haven at home.  My family aren't coeliacs, but the only things they eat that are not gluten free is shop bought bread and pies, and occasionally biscuits and we keep them very separate.  The rest of the time we cook with gluten free substitutes and all eat the same.  I have always been a keen cake baker and my daughter who is not a coeliac actually prefers the crumbly texture of gluten free flour, so she always uses that, even outside the home.  You can spend lots of time cooking and baking with your son, he'll acquire a new skill, and without wishing to boast, if his cakes are as good as mine he will never be short of friends!!  My daughter has quite a following at Uni, and I don't think they realise that her cakes are even gluten-free! I hope some of this serves to encourage you. Cristiana    
    • cristiana
      @Kathleen JJ  I am based in the UK.  The following link is to a website for UK based consumers but even post-Brexit, we are still importing from and exporting to mainland Europe, so chances are some of the products mentioned in the link are from the same factory.  Therefore, what your son eats would likely be the same product that I eat when it comes to eating sweets. https://libereat.com/2021/07/gluten-free-sweets/#:~:text=Haribo Gold Bears are gluten,Starmix It would therefore appear that Haribo Gold Bears are the ones you need to buy for your son. In answer to your other questions - yes, European labelling is strict so "Gluten free" is trustable.  However, if I read "Residual gluten" on a label I would say that is not safe for coeliacs. But always check the ingredients lists first as ingredients do change over time.  When doing this, what you need to avoid (usually printed in bold in the ingredient list) are: Wheat, barley and rye. These grains all naturally contain gluten. Coeliacs must also avoid products which state, "May contain traces of wheat, barley and rye" or products where the statement occurs: "Made in a factory which also handles wheat, barley and rye"    However, one other thing to think about:  oats.  In the UK, we do produce quite a few cakes and some candy which contains oats.    Oats do not naturally contain gluten, but as the crops are often grown alongside wheat, barley and rye, or processed in the same plants, cross-contamination can occur and they pick up gluten 'en route'.   The good news is that some food producers now grow oats away from these crops, and process them in oat dedicated plants, so you end up with a product called "pure oats" which are suitable for the majority of coeliacs (a minority react to avenin, the oat protein, in the same way they would to gluten, but I won't go into that here - just making you aware in case down the line you think it could be a problem).   So increasingly, in the UK at least, manufacturers are now printing oats in bold.   In candy production, you might find vegan chocolate which contains oat milk, hence I mention it here.  Unless such a candy bar stated that it was suitable for coeliacs,  your son would have to avoid it.   Incidentally, I think the idea of having a party after your holiday is a very wonderful, positive start to your son's gluten-free diet journey.  I was symptomatic by the time I was finally diagnosed with Coeliac Disease and was quite keen to start the diet straight away.  But just a few days after my endoscopy I was due to visit Normandy.  My consultant said to me, "Don't bother about taking up the diet until you get back".   I did try to start it in France but back then French catering establishments didn't seem to appreciate coeliac customers (something my gastroenterologist seemed to know something about!) so I was so glad he told me not to worry until I came home!
    • Kathleen JJ
      @cristiana Do you have any suggestions for the gummy bear type of candy? Because that is what is getting passed around. Someone told me "you will have to read all labels thoroughly from now on" but to be honest: I don't know what I'm looking for that should or should not be there? And is the notion "gluten free" trustable? And what about "may contain residual gluten"? Is that safe?
×
×
  • Create New...