Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Idea - How About A gluten-free Convention


Nantzie

Recommended Posts

floridanative Community Regular

Well I was thinking if we did it in DC (free museums you know) we could march on the mall and get some news coverage for our cause but I guess we can try and get the coverage no matter where were are. Now is it Maryland everyone is thinking about now? Sorry I'm confused after skimming the posts so fast.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 89
  • Created
  • Last Reply
Lollie Enthusiast

I just started reading this thread- But I love all this!!! I would take ChelsE on!!!! It could be a Tx, show down!!!!!! Hey we could travel together! I would definantly go where ever this wound up being.

And seriously, it would be nice to meet everybody in person!

My DH is in advertising, He might be able to help with some of this as a pro bono type situation.

Lollie

Suezboss Apprentice
I just started reading this thread- But I love all this!!! I would take ChelsE on!!!! It could be a Tx, show down!!!!!! Hey we could travel together! I would definantly go where ever this wound up being.

And seriously, it would be nice to meet everybody in person!

My DH is in advertising, He might be able to help with some of this as a pro bono type situation.

Lollie

I just started reading this also.. but all these ideas sound WONDEFUL!! I can help in any way needed!

:D

  • 1 month later...
Guest arnelwendy

iN november columbia univeristy is having a 3 day conference. for average joe or medical prof Averge joe it is about 200 not including room but it includes food that is gluten free the event should not be missed.

NY IS A LOVELY CITY TO VISIT AND GOOD DEAL OF CELIAC FRIENDLY RESTURANTS.

I WAS TOLD IT SHOULD HAVE OVER 2000 PEOPLE. THEY TOLD ME IT COSTS THEM 600 PER PERSON

taz sharratt Enthusiast

we have something like that in the uk, its run by allergy uk and its a 3 day evevt, tickets are £9 and you get free goodie bag, make over ( gluten free), talks, new gluten-free food taisters, compotitions the works !! i had an email sent to me last week about it and i really wanted to go but it was so short notice for me as the date was this w end, ive never been to one of these things brfore it would have been really interesting!!!

Guest Robbin
:) I was just thinking of this thread today and wondering if anyone was still interested. I would love to meet everyone :)
utdan Apprentice

This is really great! One of the best ideas I've seen on this forum.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



watchthestars Rookie
iN november columbia univeristy is having a 3 day conference. for average joe or medical prof Averge joe it is about 200 not including room but it includes food that is gluten free the event should not be missed.

NY IS A LOVELY CITY TO VISIT AND GOOD DEAL OF CELIAC FRIENDLY RESTURANTS.

I WAS TOLD IT SHOULD HAVE OVER 2000 PEOPLE. THEY TOLD ME IT COSTS THEM 600 PER PERSON

do you know the name of this conference? (so i can google it.)

TinkerbellSwt Collaborator

I just read this thread too... I would be in also. I would do whatever I can to help. I would hope to have it something within a drive of my state, like previously mentioned Washington DC or something. Keep this idea going, I am in!!!!

utdan Apprentice

I have a question, is everyone trying to meet at an existing convention like the University of Baltimore or trying to create a new convention? Who would organize it?

  • 2 weeks later...
jayhawkmom Enthusiast

I just saw this thread...and thought it would be AWESOME!!

In my area, in August, they are having a gluten-free picnic, sponsored by the Cel Kids network, for all the little gluten-free kids in the area. I was told that last year, companies came out of the woodwork to donate stuff and that all families in attendance went home with a huge bag full of products.

It would be awesome to have that type of "convention" -- food, families, and fun. In a safe environment for those who are touched by Celiac and Gluten Intolerance. I'd SO be there if I had ample opportunity to plan for it!

  • 2 weeks later...
eLaurie Rookie

Count me in, wherever, I'll be there!

I'm new to all this, but wondered about getting Annalise Roberts involved ...good promotion for her cookbook, maybe contacting OSI Restaurant Partners, Inc. for sponsorship. Most of their restaurants have gluten free menus on their websites. Again, great exposure for them.

Open Original Shared Link

From OSI's site:

Headquartered in Tampa, Florida, it was founded in 1988 and today operates 931 Outback Steakhouses (domestic and international), 209 Carrabba's Italian Grills, 108 Bonefish Grills, 41 Fleming's Prime Steakhouse & Wine Bars, 22 Roy's, 35 Cheeseburger in Paradises and four Lee Roy Selmon's restaurants. The company has restaurants in all 50 states, and Outback Steakhouse restaurants are open in 21 countries.

(I'm so excited to know about all their chains! I knew about Outback and Bonefish, but didn't know Carrabba's and Fleming's. Yum!, Memphis has these!)

Thx4noticingMe Newbie

I realize this is late but it gives information about a gluten free convention that happens annually. They go to different cities each year but here is the itinerary and contact info for the next year. I was invited to attend with a friend, but was unable to attend this year. I do plan on making the next year.

Gluten Intolerance Group®

31214 - 124 Ave. SE

Auburn, WA 98092

National Education Conference, Salt Lake City, Utah

June 9-11, 2006

WHAT: Gluten Intolerance Group National Education Conference

WHERE: Sheraton City Centre Hotel, 150 West 500 South Salt Lake City,

UT 84101

WHEN: June 9-11, 2006

WHO: 15 international, national, and regional experts to present

including:

* Dr. John Zone, Professor of Dermatology, University of Utah

Health

Sciences Center. Keynote topic: skin health for people with celiac

disease.

* Dr. Carol Fenster, author/consultant, The Savory Palate, Inc.

Topic:

baking cream puffs, tea sandwiches and other delights with alternative

grains.

* Dr. Alessio Fasano, Co-director, University of Maryland Center

for Celiac

Research. Topic: advances in celiac research.

* Executive Chef Aaron Flores, DoubleTree Hotel, Illinois. Topic:

cooking

naturally gluten-free.

* Registered Dietician Shelley Case, Case Consulting. Topic:

Gluten-free

diet basics and advanced.

* Dr. Janet Harnesburger, Pediatric Gastroenterologist. Topic:

Raising

children with celiac disease.

Auction:

The Saturday night banquet will include an auction to raise funds in

support

of the programs of the Gluten Intolerance Group. Donations of items to

be

auctioned are appreciated. Contact GIG.

Exhibits:

More than 40 exhibitors with products and services related to celiac

disease

and the gluten-free diet. Attendees may place orders and buy products on

site. Authors of gluten-free living books on site to autograph their

books.

Health Screenings:

* Free cholesterol, glucose, blood pressure, and body mass

analysis by

Registered Nurses.

* Bone density testing available for a reduced fee.

Cost:

* Early bird registration by May 20 is $190 for GIG members. After

May 20 is

$238 for GIG members. Non-members pay $240 prior to May 20, or $312

after

May 20.

* Kid's Day Camp (ages 5-15) ranges $85-150.

* Child Care (age up to 4 years) ranges $40-113

* Family discount rate and one day rates available.

Registration: Sign-up online at www.gluten.net or call (206) 246-6652

to

request a registration form.

News Media Contact:

Barb Shelley, Gluten Intolerance Group, (801) 673-7837,

shelleycomm@comcast.net

Event Calendar For Immediate Release

Today's Date: March 5, 2006

For more information, contact:

Gluten Intolerance Group of North America

31214-124 Ave. SE

Auburn, WA 98092

Phone: (206) 246-6652 or send email to info@gluten.net

KerriAnne Rookie
do you know the name of this conference? (so i can google it.)

The Columbia Univeristy Celiac Disease Center Symposium in Nov 2006:

Open Original Shared Link

jayhawkmom Enthusiast

There is a conference at Stanford - in September. Danna Korn is speaking!

Saturday, September 16, 2006

GENERAL PROGRAM

8:30 a.m. to 9:00 a.m. Registration & Gluten Free Continental Breakfast

9:00 a.m. to 9:15 a.m. Welcoming and Opening of Conference - Eric Sibley, M.D., Ph.D.

9:15 a.m. to 10:00 a.m. Peter Green, M.D. – Celiac Disease– The Basics

10:00 a.m. to 10:45 p.m. Gary M. Gray, M.D. – World-wide Research and Overview of CSRF Progress 2006

10:45 a.m. to 11:15 a.m. Break with the Vendors

11:15 a.m. to 11:45 a.m Gail G. Pyle, M.D. – Management of Celiac Sprue

11:45 a.m. to 12:15 p.m. Melinda Dennis, RD - Gluten free diet

12:15 p.m. to 2:00 p.m. Gluten Free Lunch & Beer Tasting

1:00 p.m. to 2:00 p.m. Office Hours – Meet with speakers; ask those questions

2:00 p.m. to 2:30 p.m. Jenny Stadler, Ph.D. – Resources for Gluten Free Products

2:30 p.m. to 3:00 p.m. Ann Whelan – New food labeling laws

3:00 p.m. to 3:30 p.m. Raffle drawing, Break with the Vendors

3:30 p.m. to 4:30 p.m. Danna Korn - Live -and LOVE -- the gluten-free lifestyle

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Coping with Celiac Disease
      0

      Is tTG 9 normal after 4 months gluten-free?

    2. - knitty kitty replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      TTG IgA and IGA elevated mildy

    3. - trents replied to boy-wonder's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      New to gluten free living, in5ro and small question

    4. - AllyJR posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Gluten free parakeet food

    5. - boy-wonder posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      New to gluten free living, in5ro and small question


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,198
    • Most Online (within 30 mins)
      7,748

    David Pearch
    Newest Member
    David Pearch
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lizzie42
      My daughter has been gluten-free about 4 months. Prior, her tTG was over 100 (test maxed at 100). Her liver, iron, vit d are all normal again and she has grown 2 inches and gained 4.5 pounds in just 4 months! It's amazing. But her tTG is still at 9. Is that normal or should it be zero? Is she still getting gluten? We are SO strict. We don't eat out.  She was previously having tummy pain still. I cut oats completely 3 weeks ago and that is gone.  Can gluten-free oats raise tTG? Would I know based on symptoms? I was going to try her on oats again now that she doesn't say her tummy hurts anymore.  Also, our house is gluten free apart from one loaf of bread my husband uses. He makes sandwiches on a plate then puts it in the dishwasher. Yesterday when my celiac kids weren't home, my youngest and I ate "real" pasta. I was SO careful. All pans went in the dishwasher, I didn't spill any, I cleaned the sink I drained it in. Today my girl has her dermatitis herpetiformis rash back and had a huge hour long meltdown then fell asleep. Just like before diagnosis. Is it that hard to avoid cross contamination? Will one crumb off the plate or me cooking pasta when she's not home get her?  Again, we do not eat out, she's not in school yet, and she doesn't eat anything I don't give her. 
    • knitty kitty
      Hi, @thejayland10, Do you still consume dairy?  Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten.   You might try cutting out the processed gluten free foods.  Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol Diet by Dr. Sarah Ballantyne, a Celiac herself). Processed gluten free foods can be full of excess carbohydrates which can alter your microbiome leading to Small Intestinal Bacterial Overgrowth (SIBO).  SIBO is found in some people who are not responding to a gluten free diet.  SIBO can elevate tTg IgA levels.  The AIP diet cuts out sources of carbohydrates like rice, potatoes (nightshades), quinoa, peas, lentils, legumes, which starves out the SIBO bacteria.  Better bacteria can then proliferate.   I followed the AIP diet to get rid of my SIBO.  It's a strict diet, but my digestive tract had time to rest and heal.  I started feeling better within a few days.  Feeling improvement so soon made sticking to the AIP diet much easier. References: Small intestinal bacterial overgrowth among patients with celiac disease unresponsive to a gluten free diet https://pmc.ncbi.nlm.nih.gov/articles/PMC7759221/   Luminal antigliadin antibodies in small intestinal bacterial overgrowth https://pubmed.ncbi.nlm.nih.gov/9260801/#:~:text=Luminal total IgA concentrations (p,response to local bacterial antigens.   Potato glycoalkaloids adversely affect intestinal permeability and aggravate inflammatory bowel disease https://pubmed.ncbi.nlm.nih.gov/12479649/
    • trents
      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears down the "villi" (mucosal finger-like projections that make up the lining). Over a significant period of time as gluten continues to be consumed, this generally results in impaired nutrient absorption. There are specific blood antibody tests available to check for celiac disease but the testing will not be valid while on a reduced gluten diet or a gluten free diet. Those already having having begun a gluten free diet must go back to consuming generous amounts of gluten for a period of weeks if they wish to pursue testing for celiac disease. Fourth, NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Fifth, you state that you are convince you don't have celiac disease by are just "gluten intolerant" (aka, gluten sensitive). How do you know that? It seems to me you are making a dangerous assumption here. I suggest you consider getting formally tested for celiac disease.
    • AllyJR
      Has anyone found a gluten free parakeet seed mix? I can't find a single one! My doctor wants me to make sure all pet food in the house is gluten free but I'm not sure if that's even possible with parakeets. We love our birds so much! I'm wondering if anyone has ever made their own bird seed mix if gluten free ones are not available. 
    • boy-wonder
      Hi, new member. About me, I had been suffering with weight gain, bloating and irregular and extreme bowel habits for a year or so. For example, I went on holiday in 2023, then again I  2024 at the same time of year and every shirt I wore in 2023 didn't fit anymore, couldn't even do the buttons up. Being in my mid 50s I put it down to age and middle aged spread. I'd been lucky all my life having good metabolism and being able to eat anything and as much as I like without putting on any weight, it drove my other half mad. Over a conversation with a friend health and age Related stuff came up and he mentioned someone he knew who had recently found out they were gluten intolerant,  I looked it up and had every one of 8 or so symptoms listed. Bloating,  weight gain,  headaches, brain fog,  constipation, etc etc. I took the decision to give going gluten free a try. Within 1 week I had lost 4 lb, now 7 weeks in I've lost 13 lb. I feel much better in general,  the bloating has severely subsided, it used to keep me awake at night as I felt so uncomfortable.  So pretty much a success story, as everyone here knows,  going gluten free isn't always easy, and eating out can be awkward,  but I consider myself lucky that I appear to have an intolerance rather than an allergy or being celiac.  I can deal with most of the gluten free options at the supermarket but, the big one for me is bread, I love bread, and the gluten free options I've tried are pretty poor. I was at a posh black tie event last night and chose all the food options I thought would be gluten free,  however,  there was bread on the table and I couldn't resist it, I had I small piece of bread,  god it was good, I wanted more but I resisted. Today I feel a bit dodgy, my stomach is churning, and I generally feel a bit urgh.  So here's the question, is that really down to 1 small piece of bread or is it coincidence?  I'd be interested in hearing how other people have reacted to a similar situation,  as I was considering having a day off every now and then and enjoying some lovely fresh bread.
×
×
  • Create New...