Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Idea - How About A gluten-free Convention

Nantzie

Recommended Posts

floridanative Community Regular
floridanative
Posted

Well I was thinking if we did it in DC (free museums you know) we could march on the mall and get some news coverage for our cause but I guess we can try and get the coverage no matter where were are. Now is it Maryland everyone is thinking about now? Sorry I'm confused after skimming the posts so fast.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 89
  • Created
  • Last Reply
Lollie Enthusiast
Lollie
Posted

I just started reading this thread- But I love all this!!! I would take ChelsE on!!!! It could be a Tx, show down!!!!!! Hey we could travel together! I would definantly go where ever this wound up being.

And seriously, it would be nice to meet everybody in person!

My DH is in advertising, He might be able to help with some of this as a pro bono type situation.

Lollie

Suezboss Apprentice
Suezboss
Posted
I just started reading this thread- But I love all this!!! I would take ChelsE on!!!! It could be a Tx, show down!!!!!! Hey we could travel together! I would definantly go where ever this wound up being.

And seriously, it would be nice to meet everybody in person!

My DH is in advertising, He might be able to help with some of this as a pro bono type situation.

Lollie

I just started reading this also.. but all these ideas sound WONDEFUL!! I can help in any way needed!

:D

  • 1 month later...
Guest arnelwendy
Guest arnelwendy
Posted

iN november columbia univeristy is having a 3 day conference. for average joe or medical prof Averge joe it is about 200 not including room but it includes food that is gluten free the event should not be missed.

NY IS A LOVELY CITY TO VISIT AND GOOD DEAL OF CELIAC FRIENDLY RESTURANTS.

I WAS TOLD IT SHOULD HAVE OVER 2000 PEOPLE. THEY TOLD ME IT COSTS THEM 600 PER PERSON

taz sharratt Enthusiast
taz sharratt
Posted

we have something like that in the uk, its run by allergy uk and its a 3 day evevt, tickets are £9 and you get free goodie bag, make over ( gluten free), talks, new gluten-free food taisters, compotitions the works !! i had an email sent to me last week about it and i really wanted to go but it was so short notice for me as the date was this w end, ive never been to one of these things brfore it would have been really interesting!!!

Guest Robbin
Guest Robbin
Posted
:) I was just thinking of this thread today and wondering if anyone was still interested. I would love to meet everyone :)
utdan Apprentice
utdan
Posted

This is really great! One of the best ideas I've seen on this forum.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


watchthestars Rookie
watchthestars
Posted
iN november columbia univeristy is having a 3 day conference. for average joe or medical prof Averge joe it is about 200 not including room but it includes food that is gluten free the event should not be missed.

NY IS A LOVELY CITY TO VISIT AND GOOD DEAL OF CELIAC FRIENDLY RESTURANTS.

I WAS TOLD IT SHOULD HAVE OVER 2000 PEOPLE. THEY TOLD ME IT COSTS THEM 600 PER PERSON

do you know the name of this conference? (so i can google it.)

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

I just read this thread too... I would be in also. I would do whatever I can to help. I would hope to have it something within a drive of my state, like previously mentioned Washington DC or something. Keep this idea going, I am in!!!!

utdan Apprentice
utdan
Posted

I have a question, is everyone trying to meet at an existing convention like the University of Baltimore or trying to create a new convention? Who would organize it?

  • 2 weeks later...
jayhawkmom Enthusiast
jayhawkmom
Posted

I just saw this thread...and thought it would be AWESOME!!

In my area, in August, they are having a gluten-free picnic, sponsored by the Cel Kids network, for all the little gluten-free kids in the area. I was told that last year, companies came out of the woodwork to donate stuff and that all families in attendance went home with a huge bag full of products.

It would be awesome to have that type of "convention" -- food, families, and fun. In a safe environment for those who are touched by Celiac and Gluten Intolerance. I'd SO be there if I had ample opportunity to plan for it!

  • 2 weeks later...
eLaurie Rookie
eLaurie
Posted

Count me in, wherever, I'll be there!

I'm new to all this, but wondered about getting Annalise Roberts involved ...good promotion for her cookbook, maybe contacting OSI Restaurant Partners, Inc. for sponsorship. Most of their restaurants have gluten free menus on their websites. Again, great exposure for them.

Open Original Shared Link

From OSI's site:

Headquartered in Tampa, Florida, it was founded in 1988 and today operates 931 Outback Steakhouses (domestic and international), 209 Carrabba's Italian Grills, 108 Bonefish Grills, 41 Fleming's Prime Steakhouse & Wine Bars, 22 Roy's, 35 Cheeseburger in Paradises and four Lee Roy Selmon's restaurants. The company has restaurants in all 50 states, and Outback Steakhouse restaurants are open in 21 countries.

(I'm so excited to know about all their chains! I knew about Outback and Bonefish, but didn't know Carrabba's and Fleming's. Yum!, Memphis has these!)

Thx4noticingMe Newbie
Thx4noticingMe
Posted

I realize this is late but it gives information about a gluten free convention that happens annually. They go to different cities each year but here is the itinerary and contact info for the next year. I was invited to attend with a friend, but was unable to attend this year. I do plan on making the next year.

Gluten Intolerance Group®

31214 - 124 Ave. SE

Auburn, WA 98092

National Education Conference, Salt Lake City, Utah

June 9-11, 2006

WHAT: Gluten Intolerance Group National Education Conference

WHERE: Sheraton City Centre Hotel, 150 West 500 South Salt Lake City,

UT 84101

WHEN: June 9-11, 2006

WHO: 15 international, national, and regional experts to present

including:

* Dr. John Zone, Professor of Dermatology, University of Utah

Health

Sciences Center. Keynote topic: skin health for people with celiac

disease.

* Dr. Carol Fenster, author/consultant, The Savory Palate, Inc.

Topic:

baking cream puffs, tea sandwiches and other delights with alternative

grains.

* Dr. Alessio Fasano, Co-director, University of Maryland Center

for Celiac

Research. Topic: advances in celiac research.

* Executive Chef Aaron Flores, DoubleTree Hotel, Illinois. Topic:

cooking

naturally gluten-free.

* Registered Dietician Shelley Case, Case Consulting. Topic:

Gluten-free

diet basics and advanced.

* Dr. Janet Harnesburger, Pediatric Gastroenterologist. Topic:

Raising

children with celiac disease.

Auction:

The Saturday night banquet will include an auction to raise funds in

support

of the programs of the Gluten Intolerance Group. Donations of items to

be

auctioned are appreciated. Contact GIG.

Exhibits:

More than 40 exhibitors with products and services related to celiac

disease

and the gluten-free diet. Attendees may place orders and buy products on

site. Authors of gluten-free living books on site to autograph their

books.

Health Screenings:

* Free cholesterol, glucose, blood pressure, and body mass

analysis by

Registered Nurses.

* Bone density testing available for a reduced fee.

Cost:

* Early bird registration by May 20 is $190 for GIG members. After

May 20 is

$238 for GIG members. Non-members pay $240 prior to May 20, or $312

after

May 20.

* Kid's Day Camp (ages 5-15) ranges $85-150.

* Child Care (age up to 4 years) ranges $40-113

* Family discount rate and one day rates available.

Registration: Sign-up online at www.gluten.net or call (206) 246-6652

to

request a registration form.

News Media Contact:

Barb Shelley, Gluten Intolerance Group, (801) 673-7837,

shelleycomm@comcast.net

Event Calendar For Immediate Release

Today's Date: March 5, 2006

For more information, contact:

Gluten Intolerance Group of North America

31214-124 Ave. SE

Auburn, WA 98092

Phone: (206) 246-6652 or send email to info@gluten.net

KerriAnne Rookie
KerriAnne
Posted
do you know the name of this conference? (so i can google it.)

The Columbia Univeristy Celiac Disease Center Symposium in Nov 2006:

Open Original Shared Link

jayhawkmom Enthusiast
jayhawkmom
Posted

There is a conference at Stanford - in September. Danna Korn is speaking!

Saturday, September 16, 2006

GENERAL PROGRAM

8:30 a.m. to 9:00 a.m. Registration & Gluten Free Continental Breakfast

9:00 a.m. to 9:15 a.m. Welcoming and Opening of Conference - Eric Sibley, M.D., Ph.D.

9:15 a.m. to 10:00 a.m. Peter Green, M.D. – Celiac Disease– The Basics

10:00 a.m. to 10:45 p.m. Gary M. Gray, M.D. – World-wide Research and Overview of CSRF Progress 2006

10:45 a.m. to 11:15 a.m. Break with the Vendors

11:15 a.m. to 11:45 a.m Gail G. Pyle, M.D. – Management of Celiac Sprue

11:45 a.m. to 12:15 p.m. Melinda Dennis, RD - Gluten free diet

12:15 p.m. to 2:00 p.m. Gluten Free Lunch & Beer Tasting

1:00 p.m. to 2:00 p.m. Office Hours – Meet with speakers; ask those questions

2:00 p.m. to 2:30 p.m. Jenny Stadler, Ph.D. – Resources for Gluten Free Products

2:30 p.m. to 3:00 p.m. Ann Whelan – New food labeling laws

3:00 p.m. to 3:30 p.m. Raffle drawing, Break with the Vendors

3:30 p.m. to 4:30 p.m. Danna Korn - Live -and LOVE -- the gluten-free lifestyle

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Positive biopsy

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each...
    2. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

      This technology is currently years away, as it will need to go through an extensive FDA approval process.
    3. trents
      - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease...
    4. Jordan Carlson
      - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine...
    5. wellthatsfun
      - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,998
    • Most Online (within 30 mins)
      7,748
    SpoonedMango
    Newest Member
    SpoonedMango
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Positive biopsy

      By Scott Adams · Posted

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Help understand results

      By trents · Posted

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Fruits & Veggies

      By Jordan Carlson · Posted

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      heaps of hope!

      By wellthatsfun · Posted

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.