Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Functional Dyspepsia


Liam R

Recommended Posts

Liam R Apprentice

Hi all,

So now i know there is nothing sinister going on and after a year being a celiac on a gluten-free diet my villi are healed after the follow up endoscopy according to my Gastro Dr

My ongoing symptoms have been diagnosed as functional dyspepsia 

My main symptoms are sickness in the morning and gnawing stomach pain high up in the abdomen just under my rig cage,

I am currently taking 20mg prozac everyday and 15mg lansoprazole twice daily once in the morning and before bed to stop the morning sickness,

I cant really find much useful info on the web about the subject  and not many success stories either which is worrying,

My Dr said it can just sometimes go away or its life long " I WILL NOT SUBMIT TO THIS "  so here i am asking for all your advice on dyspepsia and what worked for you ?

I can accept that i may have to use PPIs in the short term but ultimately i dont want to be on medication long term and i know if i come of them now the gnawing/burning pain will return so a weaning off approach will be needed if i can find something that helps me get back to normality.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Long term use of PPI's can be a concern, as it can cause you not to break down and absorb nutrients in your food. Ironically many people who are prescribed them would actually benefit more by increasing their stomach acid using HCL supplements, but again, I do not want to second guess your doctor.

I will assume that you are very careful with your gluten-free diet and are 100% gluten-free, and don't eat in restaurants, etc. If there is any question about this, the starting point is really making sure your diet, including your supplements and medications are gluten-free:

The next step would be to look at this article:

 

knitty kitty Grand Master

 

knitty kitty Grand Master

I believe another thread mentioned tryptophan as beneficial for functional dyspepsia.

 

Effects of l-tryptophan on gastric emptying evaluated by breath test in relation to gastric accommodation

https://www.sciencedirect.com/science/article/pii/S1347861314000292

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,346
    • Most Online (within 30 mins)
      7,748

    Muffintops
    Newest Member
    Muffintops
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      You are welcome! We frequently get similar comments. Knowledge about celiac disease in the medical community at large is, unfortunately, still significantly lacking. Sometimes docs give what are obviously bum steers or just fail to give any steering at all and leave their patients just hanging out there on a limb. GI docs seem to have better knowledge but typically fail to be helpful when it comes to things like assisting their patients in grasping how to get started on gluten free eating. The other thing that, to me at least, seems to be coming to the forefront are the "tweener" cases where someone seems to be on the cusp of developing celiac disease but kind of crossing back and forth over that line. Their testing is inconsistent and inconclusive and their symptoms may come and go. We like to think in definite categorical terms but real life isn't always that way.
    • Rogol72
      Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back positive for dermatitis herpetiformis. The important thing is to get a definitive diagnosis of dermatitis herpetiformis. What you've described sounds like classic dermatitis herpetiformis though. Hopefully, your Dermatologist has come across dermatitis herpetiformis before and performs the skin biopsy correctly as trents mentioned. I've had the blisters on the knees, hips, forearms/elbows or anywhere that pressure is applied to the skin ... from clothing or otherwise. They itch like nothing on earth, and yes salt from sweat or soaps/shower gels will irritate a lot. I've been on Dapsone and it is very very effective at eliminating the dermatitis herpetiformis itch, and improved my quality of life in the early stages of getting on top of dermatitis herpetiformis while I adjusted to the gluten-free diet. But it does have various side effects as trents said. It can effect the red blood cells, lowering hemoglobin and can cause anemia, and requires regular blood monitoring whilst on it. You would need to consider it carefully with your Dermatologist if you do have dermatitis herpetiformis. Here's a very informative webinar from Coeliac Canada discussing everything dermatitis herpetiformis related.  https://www.youtube.com/watch?v=PAdmsNiyfOw I've also found this recent interview with a Dermatologist about dermatitis herpetiformis to be educational.  https://www.youtube.com/watch?v=rZnLeKutgUY Keep the chin up and keep advocating for yourself for a proper diagnosis. Though it sounds like you're on top of that already. Are you in the UK or Ireland? I'm curious because your surname is Irish. 
    • Philly224
      Thanks again everyone! Twenty mins on here way more helpful than both Dr's combined 😅
    • trents
    • trents
      I would go for four weeks to ensure a valid test, if you can tolerate it, that is.
×
×
  • Create New...