Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac and Gastroparesis

lhu7
 Share

Recommended Posts

lhu7 Apprentice
lhu7
Posted

I have been diagnosed with celiac for 4 years and I am still dealing with really bad fatigue, depression, nausea, feeling full quickly but still kinda hungry, headaches, and pressure in my head. Does anyone experience these symptoms? I am a very picky eater and have not liked and fruits and only a couple vegetables. I am thinking I might have gastroparesis thoughts? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

Is it possible your diet may somehow include gluten contamination? If you eat outside your home, especially in restaurants, this is likely the case. This article may be helpful:

 

Suzisqueue Rookie
Suzisqueue
Posted
On 7/5/2022 at 10:47 AM, lhu7 said:

I have been diagnosed with celiac for 4 years and I am still dealing with really bad fatigue, depression, nausea, feeling full quickly but still kinda hungry, headaches, and pressure in my head. Does anyone experience these symptoms? I am a very picky eater and have not liked and fruits and only a couple vegetables. I am thinking I might have gastroparesis thoughts? 

I've had terrible GI issues - recently had an endoscopy (I have a good GI doc). Did the FODMAP elimination diet and found I have a reactions to lots of stuff - milk is out for me now. So no grain, only monocots no dicots, no sugar, and no milk. My daughter calls it the 'sucks to be you diet'. I'm like what the hell am I gonna eat?!?? : (

As hard as it is, it's important to eat a variety of vegetables and fruit. Perhaps nutritional supplements, and always cook everything you eat from scratch so you know exactly what's in it.

If I were you, I'd get a poop diagnostic to see what microflora populates your neuroenteric system (stomach and guts). You likely have an imbalance of bad microflora which will cause a lot of psych stuff. Have to feed the good bugs, and not the bad. We do this with food. Food is medicine.

Hope this might be helpful, and you get felling better!! Keep in mind it's just my opinion.

Namaste,
Sue

  • 2 weeks later...
Posterboy Mentor
Posterboy
Posted

Lhu7,

Gastroparesis can happen when you get too low in Thiamine.

See this article about a "Rare Presentation of Thiamine Deficiency as Gastrointestinal Syndrome"....if (thiamine deficiency) happens mainly as GI symptoms it is called Gastrointestinal Beri Beri....

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4175961/

Benfotiamine is a fat soluble form that is better absorbed than the kind found in Multivitamins.....usually found in the diabetic section taking this with a Magnesium Citrate and a B-Complex should help your Gastroparesis after 2 or 3 months of taking them.

Also you might try some Lecithin......it is good for your Live and GI health as well.....because it down regulates to Acetylcholine in the body which the body needs to regulate the Parasympathetic Nervous System (IE the Vagus Nerve) which is important for you GI tract to work properly.....or Gastroparesis develops.

Here is a nice article that explains how a thiamine deficiency is often overlooked in GI diseases and doctor's have not yet awakened to this fact.

https://awaken.com/2021/02/the-overlooked-vitamin-that-improves-autoimmune-disease-and-autonomic-dysfunction/

It is kind of long but very exhaustive in its review and summary of the way a thiamine deficiency presents in disease(s......and how it can be often over looked....

As the first article noted it (a Thiamine deficiency) is not so much rare....but rarely (recognized) in medicine today....mainly because it affects so many body systems (including the GI tract) that it is often hard to isolate to thiamine in the first place......but rapid recovery is noted when it is addressed!

I hope this is helpful but it is not medical advice.

Posterboy,

  • 3 weeks later...
cabb30 Newbie
cabb30
Posted
On 7/5/2022 at 12:47 PM, lhu7 said:

I have been diagnosed with celiac for 4 years and I am still dealing with really bad fatigue, depression, nausea, feeling full quickly but still kinda hungry, headaches, and pressure in my head. Does anyone experience these symptoms? I am a very picky eater and have not liked and fruits and only a couple vegetables. I am thinking I might have gastroparesis thoughts? 

I have exactly the same symptoms, plus muscle weakness, and I was just diagnosed 2 years ago. Are your titers below 3 yet? Last I got mine tested this year, they were still at about... 14? I think?

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,685
    • Most Online (within 30 mins)
      7,748
    Janahawk
    Newest Member
    Janahawk
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Brook G
      Not sure if this is Celiac or just a gluten-free intolerance

      By Brook G · Posted

      People who are Celiac don't have a gluten response to Quinoa, but some people who are gluten intolerant do.  I react to quinoa just like I do to gluten.  Freddies/Kroger came out with their own gluten-free Bread and I didn't think to read the ingredients.  I couldn't figure out where I would have gotten gluten in my diet until I read the ingredients in their bread... QUINOA
    • trents
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By trents · Posted

      Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and the doc doing it is experienced, yes, the damage done to the lining of the small bowel can be spotted with the naked eye.
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect.  My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it.     I will have read up on mast cell activation.  I do not know anything about it.  Tums is my preferred gerd treatment.  I always figured a little extra calcium could not hurt me.  
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains.   An MD told her to avoid eating fortified grains.   My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020.   Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it.  Low folate absorption impacts serotonin and dopamine production.  My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq.  The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels.   My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken.  Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways.       If my brother had not gotten his testing through work, he would never would have started his supplement journey.  His testing is what triggered my getting functional health testing that tested similar biomarkers to his.  Again the celiac testing was an add-on test that I did off the cuff.  
    • trents
      Colonoscopy with large are of inflammation

      By trents · Posted

      Welcome to the forum, @growlinhard1! If eliminating gluten from your diet makes significant improvement in your symptoms then there are two possibilities. Either you have celiac disease (aka, gluten intolerance) or NCGS (Non Celiac Gluten Sensitivity, aka, gluten sensitivity). The difference is that celiac disease is an autoimmune disorder that creates inflammation and, over time, damages the lining of the small bowel which inhibits nutrient absorption whereas NCGS does not damage the lining of the small bowel. They share many of the same symptoms. At the end of the day, the antidote for both is to abstain from foods that contain wheat, barley or rye, the three gluten-containing grains. Some countries supply stipends and healthcare benefits for those with an official celiac diagnosis. If you live in the USA that does not apply. The main reasons for seeking an official celiac diagnosis are psychological and social. Many people have a hard time not falling off the gluten free bandwagon without an official diagnosis. They find it easy to rationalize it all away as being temporary or due to something else. When you have an official diagnosis, you tend to take gluten-free eating more seriously. Socially, family and friends are more likely to respect and attempt to comply with your need to eat gluten free if you have an official diagnosis of celiac disease. Your physician is more likely to take you seriously as well if you have an official diagnosis because there are typically other health problems that are spinoffs which develop from celiac disease in time. One autoimmune disease invites others. There are no tests for NCGS. Celiac disease must first be ruled out. We do have specific tests for celiac disease. By the way, some experts believe that NCGS can transition into celiac disease. If your endoscopy/biopsy is only a month away, I would encourage you to stick it out and go back on gluten to get an official diagnosis. You still have time to get a valid test result if you start back on gluten now, 10g of gluten daily which is about the amount found in 4-6 slices of wheat bread.
×
×
  • Create New...