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Celiac and Gastroparesis


lhu7

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lhu7 Apprentice

I have been diagnosed with celiac for 4 years and I am still dealing with really bad fatigue, depression, nausea, feeling full quickly but still kinda hungry, headaches, and pressure in my head. Does anyone experience these symptoms? I am a very picky eater and have not liked and fruits and only a couple vegetables. I am thinking I might have gastroparesis thoughts? 


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Scott Adams Grand Master

Is it possible your diet may somehow include gluten contamination? If you eat outside your home, especially in restaurants, this is likely the case. This article may be helpful:

 

Suzisqueue Rookie
On 7/5/2022 at 10:47 AM, lhu7 said:

I have been diagnosed with celiac for 4 years and I am still dealing with really bad fatigue, depression, nausea, feeling full quickly but still kinda hungry, headaches, and pressure in my head. Does anyone experience these symptoms? I am a very picky eater and have not liked and fruits and only a couple vegetables. I am thinking I might have gastroparesis thoughts? 

I've had terrible GI issues - recently had an endoscopy (I have a good GI doc). Did the FODMAP elimination diet and found I have a reactions to lots of stuff - milk is out for me now. So no grain, only monocots no dicots, no sugar, and no milk. My daughter calls it the 'sucks to be you diet'. I'm like what the hell am I gonna eat?!?? : (

As hard as it is, it's important to eat a variety of vegetables and fruit. Perhaps nutritional supplements, and always cook everything you eat from scratch so you know exactly what's in it.

If I were you, I'd get a poop diagnostic to see what microflora populates your neuroenteric system (stomach and guts). You likely have an imbalance of bad microflora which will cause a lot of psych stuff. Have to feed the good bugs, and not the bad. We do this with food. Food is medicine.

Hope this might be helpful, and you get felling better!! Keep in mind it's just my opinion.

Namaste,
Sue

  • 2 weeks later...
Posterboy Mentor

Lhu7,

Gastroparesis can happen when you get too low in Thiamine.

See this article about a "Rare Presentation of Thiamine Deficiency as Gastrointestinal Syndrome"....if (thiamine deficiency) happens mainly as GI symptoms it is called Gastrointestinal Beri Beri....

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4175961/

Benfotiamine is a fat soluble form that is better absorbed than the kind found in Multivitamins.....usually found in the diabetic section taking this with a Magnesium Citrate and a B-Complex should help your Gastroparesis after 2 or 3 months of taking them.

Also you might try some Lecithin......it is good for your Live and GI health as well.....because it down regulates to Acetylcholine in the body which the body needs to regulate the Parasympathetic Nervous System (IE the Vagus Nerve) which is important for you GI tract to work properly.....or Gastroparesis develops.

Here is a nice article that explains how a thiamine deficiency is often overlooked in GI diseases and doctor's have not yet awakened to this fact.

https://awaken.com/2021/02/the-overlooked-vitamin-that-improves-autoimmune-disease-and-autonomic-dysfunction/

It is kind of long but very exhaustive in its review and summary of the way a thiamine deficiency presents in disease(s......and how it can be often over looked....

As the first article noted it (a Thiamine deficiency) is not so much rare....but rarely (recognized) in medicine today....mainly because it affects so many body systems (including the GI tract) that it is often hard to isolate to thiamine in the first place......but rapid recovery is noted when it is addressed!

I hope this is helpful but it is not medical advice.

Posterboy,

  • 3 weeks later...
cabb30 Newbie
On 7/5/2022 at 12:47 PM, lhu7 said:

I have been diagnosed with celiac for 4 years and I am still dealing with really bad fatigue, depression, nausea, feeling full quickly but still kinda hungry, headaches, and pressure in my head. Does anyone experience these symptoms? I am a very picky eater and have not liked and fruits and only a couple vegetables. I am thinking I might have gastroparesis thoughts? 

I have exactly the same symptoms, plus muscle weakness, and I was just diagnosed 2 years ago. Are your titers below 3 yet? Last I got mine tested this year, they were still at about... 14? I think?

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    • RMJ
      If your celiac antibody tests are still positive that may explain the ongoing symptoms.  You might examine your diet and try to get those tests in the normal range before doing something like an MRI or CT scan.  It took me almost six years to get all of my antibody tests in the normal range.  At first I thought I was eating gluten free by avoiding wheat, rye and barley in the ingredient list.  Then I made sure foods were labeled gluten free, one antibody was still positive.  Now if I eat processed foods I buy certified gluten free or foods labeled gluten free from companies with good reputations in the celiac community. 
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      @Ann13, thanks for the clarification. I think I understand your point now. Yes, I realize gluten can produce non Gi Reactions. Let us know if you find out that there is gluten in these inhalers. I have my doubts but gluten does show up in strange places. It could also be manufacturer dependent of these inhaler products are generic.
    • Ann13
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    • trents
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    • Ann13
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