Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Excessive bloating/burping minutes after eating most foods


Scp

Recommended Posts

Scp Rookie

So I got blood work results showing a TTG level of 100 (whatever that mean is I don’t know but the doctor seems to think celiac)

 

regardless of what I eat I burp excessively 90% if the time. Some gluten foods make my stomach hurt but sometimes not. Does this sound familiar to anyone? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)
27 minutes ago, Scp said:

So I got blood work results showing a TTG level of 100 (whatever that mean is I don’t know but the doctor seems to think celiac)

 

regardless of what I eat I burp excessively 90% if the time. Some gluten foods make my stomach hurt but sometimes not. Does this sound familiar to anyone? 

Can you also include the reference range for the tTG? What is normal range with that lab? There are no industry standards at this point so each lab uses a different reference range.

Just from experience, however, in the sense of seeing many of these tTG scores posted by forum participants, I would feel pretty confident that it is a strong positive for celiac disease. The TTG is probably the abbreviated version for TTG-IGA which is the single most common antibody test ordered by physicians for detecting celiac disease. It supposedly combines good sensitivity with good specificity. There are others that can be run as well.

I would also suspect that you have SIBO (Small Intestine Bacterial Overgrowth) that is causing the excessive burping. There are clinical tests for that but there is a home test also you can do with baking soda that pretty much does what the clinical test does. SIBO is very common among those with celiac disease. 

"Some gluten foods make my stomach hurt but sometimes not." Yes, this is very common. The intensity of the reaction will depend on many factors and just because you eat something with gluten in it and it doesn't give you a belly ache does not mean there is no inflammation going on. Once people go gluten free for a good amount of time they usually find their reactions to any gluten exposure to be more intense than when they were consuming gluten regularly. 

Please hear this! It's very important. If your doctor is recommending further testing for celiac disease, such as an endoscopy with biopsy, you need to still be eating regular amounts of gluten for the test to be valid. Don't start a gluten free diet or cut back on gluten until you have gotten feedback from your doctor concerning the possibility of more testing.

Edited by trents
Scp Rookie
2 hours ago, trents said:

Can you also include the reference range for the tTG? What is normal range with that lab? There are no industry standards at this point so each lab uses a different reference range.

Just from experience, however, in the sense of seeing many of these tTG scores posted by forum participants, I would feel pretty confident that it is a strong positive for celiac disease. The TTG is probably the abbreviated version for TTG-IGA which is the single most common antibody test ordered by physicians for detecting celiac disease. It supposedly combines good sensitivity with good specificity. There are others that can be run as well.

I would also suspect that you have SIBO (Small Intestine Bacterial Overgrowth) that is causing the excessive burping. There are clinical tests for that but there is a home test also you can do with baking soda that pretty much does what the clinical test does. SIBO is very common among those with celiac disease. 

"Some gluten foods make my stomach hurt but sometimes not." Yes, this is very common. The intensity of the reaction will depend on many factors and just because you eat something with gluten in it and it doesn't give you a belly ache does not mean there is no inflammation going on. Once people go gluten free for a good amount of time they usually find their reactions to any gluten exposure to be more intense than when they were consuming gluten regularly. 

Please hear this! It's very important. If your doctor is recommending further testing for celiac disease, such as an endoscopy with biopsy, you need to still be eating regular amounts of gluten for the test to be valid. Don't start a gluten free diet or cut back on gluten until you have gotten feedback from your doctor concerning the possibility of more testing.

Thank you for your reply. Yes I totally know about making sure I keep eating gluten so I don’t skew the test results. What boggles my mind though is how much I burp regardless of what I eat but everything you said makes sense. I’m also wondering if getting Covid a month ago has anything to do with all this. I don’t know of any solid research but the fact that Covid is an auto immune disease as well as celiac there’s a possibility maybe my immune system changed and have become more sensitive to glutenI’m also wondering if getting Covid a month ago has anything to do with all this. I don’t know of any solid research but the fact that Covid is an auto immune disease as well as celiac there’s a possibility maybe my immune system changed and have become more sensitive to gluten

trents Grand Master

COVID is a viral infection, not an autoimmune disease. Autoimmune diseases are ones in which the body begins to attack its own tissues. However, viral infections can trigger autoimmune disease genes that have been in a latent state to become active.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      33

      What should I do with these test results?

    2. - Itsabit replied to Itsabit's topic in Dermatitis Herpetiformis
      8

      SkinSafe

    3. - Itsabit replied to Itsabit's topic in Dermatitis Herpetiformis
      8

      SkinSafe

    4. - Jacki Espo replied to Itsabit's topic in Dermatitis Herpetiformis
      8

      SkinSafe

    5. - Itsabit replied to Itsabit's topic in Dermatitis Herpetiformis
      8

      SkinSafe


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,323
    • Most Online (within 30 mins)
      7,748

    Roger Simoes
    Newest Member
    Roger Simoes
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      From the article you linked: "Currently, there are no recommended methods to test for non-celiac gluten sensitivity." "No recommended methods" is the key phrase here. Just on the anecdotal evidence of reading many posts on this forum, I think we sometimes see some elevated igg test scores with NCGS. They seem to be mildly elevated in these cases, not high high.
    • Itsabit
      Thank you for your reply. I’m beginning to think of iodine as another culprit in this, as much as I fear it. I will say my rash is extreme and diffuse - it’s everywhere! I first had it on both sides of my neck in the summer of 2023. My PCP and dermatologist at the time, thought it was a reaction to jewelry I was wearing, even though I had been wearing the same necklaces for literally years with no reaction. The dermatologist at the time repeated over and over again that “allergies are acquired.” Which I knew. But I was not reacting to any other jewelry I was wearing. So it didn’t make any sense to me that it would only be from my necklaces. Anyway, it abated on it’s own. Only to come back with a vengeance months later - and I had not worn any necklaces at all. And the rash involved more area. I was put on Prednisone (oral steroid) taper and it worked well, and the itch and eventually the rash went away. Another trip to a different dermatologist at that time, prior to starting the Prednisone, told me to change all of my hygiene products like soap and shampoo, and to slather on Vaseline. None of which worked, hence the Prednisone. Needless to say, the itch and subsequent rash returned - and now spread everywhere, not just the hollows on both sides of my neck. It’s there, on my upper chest and left breast, both upper arms front and back, and elbows, my entire back, down both of my hips and buttocks and the front of my right thigh. Now the back of that right thigh is starting to itch as well. Also my lower right forearm and middle knuckle on my left hand since going gluten free. I’m just itching everywhere all the time. It keeps me awake, or wakes me up when I do fall asleep. I’m trying my best not to scratch, but it’s nearly impossible! I’ve been using a dry washcloth to rub instead of scratching. And I have used cool wet washcloths which help, but only lasts for a few minutes before starting up again. I’m pretty much at my wit’s end. Just waiting for something to indicate what’s really going on so I can do SOMETHING to stop it! 
    • Itsabit
      Reply to Russ H, Thank you for your input. As a nurse for 46 years I was aware of much of this. However, as a new member to dermatitis herpetiformis, I have been reading and researching everything I can about it in order to educate and help myself. I was hoping that the oral Dapsone would help to alleviate the itching. I knew the rash would take longer to abate. Instead of relief from the Dapsone, I had adverse reactions so had to stop it. After 2 months on it, if hadn’t helped with the itching at all, and I understand it usually helps in the first few days if it’s going to. My itch and rash actually got worse on the Dapsone and with going gluten free - which lead me to question whether I was getting glutined from other products I am using. It’s like a huge puzzle trying to put all these pieces together to somehow make it fit and make sense. Right now, myself and my doctor are perplexed. 
    • Jacki Espo
      I should add that I had a flare up I think was from cross contamination and during that time I ate gluten free chips and immediately had severe itching at the breakout site. I suspected it was the iodine in the salt from the chips that did it. It seems like iodine may impact a flare up but does not impact me if I’m otherwise not experiencing the rash.  Good luck. Wishing you the best. 
    • Itsabit
      Reply to Jackie, Thank you. I have not been eating any oats at all, but I am aware of a possible correlation. And I already rarely eat out, and not recently. So, whatever this is, I’m doing it to myself, somehow. 🤷‍♀️
×
×
  • Create New...