Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting glutened... mystery food (Made Good or Cedars Hummus?)

Alyssa Camille
 Share

Recommended Posts

Alyssa Camille Newbie
Alyssa Camille
Posted

I have been swollen for about two months now, literally continuously glutened by something. I am usually super healthy and great, not having issues. I've been eating Cedars hummus in the last two months and Made Good granola bars. Has anyone ever had issues/reactions to these brands? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum, Alyssa!

Are we to assume you have been diagnosed either with Celiac disease or NCGS (Non Celiac Gluten Sensitivity)? More info about your gluten journey, please.

Alyssa Camille Newbie
Alyssa Camille
Posted
  • Author
3 minutes ago, trents said:

Welcome to the forum, Alyssa!

Are we to assume you have been diagnosed either with Celiac disease or NCGS (Non Celiac Gluten Sensitivity)? More info about your gluten journey, please.

Hi, yes I have celiac disease. I was diagnosed 7 years ago. I am highly sensitive celiac, I am not able to handle the whole less than  20ppm thing that the US allows. I avoid majority of processed products when I can but once in a while I have something if I know it was made in a dedicated gluten free facility. I went on a work trip and my boss had bought me cedars hummus and I was eating that along with the Made Good bars she purchased for me, I liked them so much I bought them for my home but now I am just swollen all the time which is not the norm. Wild because I cannot find ANY evidence of even a hint of gluten in those products so not sure if anyone else has had a similar experience. Thank you trent

trents Grand Master
trents
Posted
1 hour ago, Alyssa Camille said:

Hi, yes I have celiac disease. I was diagnosed 7 years ago. I am highly sensitive celiac, I am not able to handle the whole less than  20ppm thing that the US allows. I avoid majority of processed products when I can but once in a while I have something if I know it was made in a dedicated gluten free facility. I went on a work trip and my boss had bought me cedars hummus and I was eating that along with the Made Good bars she purchased for me, I liked them so much I bought them for my home but now I am just swollen all the time which is not the norm. Wild because I cannot find ANY evidence of even a hint of gluten in those products so not sure if anyone else has had a similar experience. Thank you trent

Could be another ingredient besides gluten that is causing the issue. Hummus is made from a legume and some people don't tolerate legumes well. Also, a lot of protein/energy bars use sugar alcohols for sweetener and chicory for fiber, things that are famous for causing many people gas and bloating. I'm one of them.

Scott Adams Grand Master
Scott Adams
Posted

I checked Cedars hummus on their site and it is certified gluten-free:

https://www.cedarsfoods.com/Our-Foods.aspx#hommus

and so are the bars:

https://www.madegoodfoods.com/

I agree with @trents that it could be the legumes or some other ingredient. If the bars contain oats around 9% of celiacs can't tolerate oats.

Alyssa Camille Newbie
Alyssa Camille
Posted
  • Author
On 7/16/2022 at 11:36 AM, Scott Adams said:

I checked Cedars hummus on their site and it is certified gluten-free:

https://www.cedarsfoods.com/Our-Foods.aspx#hommus

and so are the bars:

https://www.madegoodfoods.com/

I agree with @trents that it could be the legumes or some other ingredient. If the bars contain oats around 9% of celiacs can't tolerate oats.

Thanks I appreciate it, yes I definitely can't tolerate oats unless FOR SURE certified gluten free. Thanks so much for your response 

On 7/16/2022 at 10:57 AM, trents said:

Could be another ingredient besides gluten that is causing the issue. Hummus is made from a legume and some people don't tolerate legumes well. Also, a lot of protein/energy bars use sugar alcohols for sweetener and chicory for fiber, things that are famous for causing many people gas and bloating. I'm one of them.

Thank you for the response I appreciate it

Scott Adams Grand Master
Scott Adams
Posted

Just to clarify, around 9% of celiac can't tolerate the protein in oats, so EVEN, and that means that they can't have even certified gluten-free oats.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 year later...
Judylissette Newbie
Judylissette
Posted

I get sick from Made Good bars - every single time AND I tried Cedars hummus last night and still sick this morning. Tossing the rest of it out. Only gluten gives me nausea, so there must be some level of gluten allowed or they must be going over it and those hypersensitive are experiencing the consequences. I quit Made Good last year and nausea went away.

Scott Adams Grand Master
Scott Adams
Posted

Is it possible you are sensitive to other ingredients in these products? Since both are certified gluten-free it seems unlikely that both would contain gluten.

Judylissette Newbie
Judylissette
Posted

I forgot that I did try Cedars one other time in the past and felt glutened then. I am both vegan and gluten-free and eat beans daily, including chickpeas. My diet is very boring and usually strict, as I consume the same foods over and over again on a regular basis and rarely eat out. If on the go and on my way somewhere, if I don't have fruit in my purse, I usually purchase Sabra hummus and eat it on the way to my destination without any issues. I got very sick from Cedars hummus, though, again, this time. As for Made Good, I am thinking perhaps it is the oats that are the issue? I am not completely certain. I generally avoid oats to begin with and that was the only oat product I consumed. I know certified gluten-free still allows for less than 20 parts per million (ppm) of gluten, when they are being certified. Who's to say that the amount sometimes isn't higher on a regular basis, except for when the companies know they are being tested. Or who knows if their source of the ingredients is not holding themselves up to the expected standard when they should? Personally, I don't trust many processed products to begin with and typically go for whole and raw foods. Thankfully, no issues with Sabra at all for years. Made Good I completely gave up on. Even tried it again a couple of times to see if it would make me sick and it did.

Scott Adams Grand Master
Scott Adams
Posted

Oats may be the culprit, as ~9% of people with celiac disease cannot tolerate oats, even "gluten-free" oats. All of the gluten-free certifications that I know of certify to below 10ppm.

In general if you see "gluten-free" on a label in the USA, Canada, Europe, Australia, etc., it does mean that the food is safe for those with celiac disease, and it does NOT mean that there is 19ppm gluten in it, as some people might lead you to believe.

Whenever a company detects gluten in the 5-19ppm (most tests can't accurately go below this level) in foods which they have labelled gluten-free, especially a USA-based company (lawsuits in the USA are far more common and easier to win in such cases), they will immediately seek to find and eliminate the source of the gluten contamination.

There is a very common myth or misconception that companies don't care at all if their products test between 5-19ppm, but they definitely do because a product recall could be just around the corner should they hit the 20ppm or higher level. Many people, including myself, now have home test kits like Nima, and companies are definitely aware of this.

 

Judylissette Newbie
Judylissette
Posted

Going to check Nima out. Thanks for bringing that up. This is all very good information to have. Thank you so much. I do think it may be oats with Made Good and perhaps Cedars may be manufactured in such a way that an oat cross-contamination may be occurring. I guess I may never know. In the meantime, will continue to be careful!

wildchild-nan Newbie
wildchild-nan
Posted

Some people have issues with chickpeas, you can make your own hummus with white beans

  • 2 months later...
Celiacmanbill Explorer
Celiacmanbill
Posted

I had issues with hummus in general because of a birch pollen allergy theres new studies from not too long ago chowing cumin causes a reaction I used to have it everyday in my rice and beans and felt super sick and worse and worse took it out and im getting alot better you wont even find cumin listed on any major allergy websites or any i dont think i had to find a pubmed study of it

knitty kitty Grand Master
knitty kitty
Posted

Here's some information about certain spices triggering symptoms in Celiac from a PubMed study.

 

Scott Adams Grand Master
Scott Adams
Posted

Meat glue can be another culprit:

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,960
    • Most Online (within 30 mins)
      7,748
    jujubean
    Newest Member
    jujubean
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Colonoscopy with large area of inflammation

      By trents · Posted

      Because you have already had the "gold standard" test done, and because you have some experiential evidence that removing gluten from your diet causes you to feel better, it would make sense to begin the gluten-free diet as you wait for biopsy results.
    • growlinhard1
      Colonoscopy with large area of inflammation

      By growlinhard1 · Posted

      I wasn't given any blood tests. I think I should try the gluten free diet because when I cut it out a few weeks ago for just a couple of days, I know I started feeling better. The difference was actually pretty dramatic. When I learned gluyen free earing may cause false negative biopsy results, I went back to gluten full force and feel like you know what × 10. Do you feel it would be okay since the gold standard for diagnosis is behind me or should I wait for biopsy results? In your opinion, of course. I know you can't offer me medical advice.
    • Wheatwacked
      3 year old gluten intolerance?

      By Wheatwacked · Posted

      My mom said when he was born "you got what you gave".  Until 5 years of he was gluten free, was well liked by his friends, although did get them into mischief at times, a leader of his group of friends, physically active and paid attention, as much as any preschooler.      At 5 years old we moved to my hometown and had to rely on our friends, my pediatrition (still the best doctor I ever had), my wife was a nurse so her aquaintences and doctor friends.  They all still believed back in 1980's that Celiac was a growing phase, and he wanted to be like everyone else.  So everyone's opinion was that if he tolerates gluten with no symptoms he had outgrown it.  He passed the summer at the beach (lots of vitamin D) was a prodegy swimmer and the whole team liked him and he fit in well.     Fall came, he started kindergarden school, less sun ( low vitamin D, Seasonal Affective Disorder is real), new people and a morning schedule that did not end up in a fun, active day at the beach.  Getting him going got more difficult.  By the first teacher-parent meeting in December, they brought up the subject.  He was disruptive in class.  By then we had forgotten what his doctor said 5 years earlier.  So he was diagnosed as ADHD.      Competitive swimming was his saving grace.  All though High School he continued to swim with his competetive team most days after or before school and with the beach club team in addition in the summer.  Some records he set lasted years.  After high school he became a professional ocean guard. Now getting close to retirement.  But always had difficulty concentrating on schoolwork.      He, and his wife, incidentally, is now having the health problems that I just have just gotten rid of.  I had forgotten what the doctor said to us 60 years earlier, bout Celiac Disease being hereditory.  He is starting to listen, but still in denial.  Loves his pizza.  At 63 I had arthritis, fibromyalgia, sleep apnea, enlarged prostate, alcoholism and I got dumber as the years passed.  They all are gone with gluten free and vitamin replenishment. My wife had allergies, endometriosis, fertility problems and miscarriages.  She passed 18 years ago. Sorry for the long story.  Reminds me of a Joni Mitchell song.  "L've looked at life from both sides now. From win and lose, but still somehow, it's life's illusions I recall. I really don't know life, at all"  
    • Beverage
      Vaccines

      By Beverage · Posted

      I feel for you. I've had an interesting history with some vaccine, especially t-DAP. One time after just getting it, I remember walking from the pharmacy to my car, reaching for the door handle of my car as my last memory, then waking up slumped into my car with the door wide open hours later. Nobody even knew I was there. I did get a bad cut from rotting rusty wood and probably animal droppings, and it had been 10 years, so I got a booster recently, but took someone with me. My doc back then did say he was concerned about my reactions to vaccines, but we never talked about what alternatives there might be. What is your risk when you do get sick? For me, I almost always end up needing prednisone and antibiotics and have to crawl back to life for months after those are done, prednisone really messes me up, raises my blood pressure to stroke levels, and the antibiotics mess up my intestines really bad. I have to take mega doses of C and D and B's, especially flush niacin, and probiotics.  So preventing flu is critical for me since I always get a long term negative effect from the treatment. I did a lot of research, traditional and alternative medicine, and they all say high vitamin D levels are crucial to so many kinds of illnesses, including flu, cancer, etc.  People with high D during covid had much better outcomes.  I always tested low in D even with high oral supplementation of D3 and K2.  So last year I saved up and bought a real vitamin D lamp, not one of those cheapie ones that you can get on Amazon that don't work, seriously, those are junk. Wow what a difference with a real D Lamp. We haven't been sick all year, which is rare for me, even after being around several sick people or people that came down sick just after visiting. I use the lamp about every other day or if I've been in a group of people or around anyone sick.  I have not yet had my D levels retested since starting with it (will do that at annual check up later this year), but I have not gotten a cold or flu (knock on wood), feel better than usual for a cold wet winter in the NorthWest, and my hair is growing in like crazy, all signs of improved vitamin D levels. It doesn't take long to use, just a few seconds and first and gradually build up. I now do it for a count of 200, which is about 3 minutes. I don't remember all the details on how the body creates its own vitamin D, but I do remember that the body makes a reaction on the skin and you don't want to wash that off for a few hours.  So I do the D Lamp right after my shower, not before.  There are 2 reputable ones that I found in my research: Sperti Vitamin D Lamp uses florescent tubes, you stand and turn in front of it, be sure to get the VITAMIN D LAMP, not the tanning lamp:  https://www.sperti.com/product/sperti-vitamin-d-light-box/ Chroma Vitamin D Lamp is LED's, you can stand and turn in front of it or hold it in your hand and wave it over your body, always keeping it moving so you don't burn:  https://getchroma.co/products/d-light-vitamin-d-light-device-uvb-red-nir AND YOU MUST WEAR SPECIFIC EYE PROTECTION WHEN USING, KEEP ALL PETS AND OTHERS AWAY, THE GLASSES ARE PROVIDED WITH THE D LAMP. I got the Chroma D Lamp when they had a huge sale last year, it's a small start-up company in Seattle.  Sperti is a larger longer term well known, and you can sign up for a 10% discount on their web site.  If Chroma had not had the sale when I was going to buy one, the Sperti would have been fine. They both often have back orders on them, but they do deliver as promised. I have read various articles on the effectiveness of the flu vaccine for example, not always highly effective every year.  Since your risk with vaccines is high, or if your risk of bad illness if you get sick is high, maybe consider how to mitigate both in another way, perhaps a D Lamp. 
    • trents
      Facial pain

      By trents · Posted

      That's what came immediately to my mind as well, Bell's palsy. And don't assume every medical problem is connected to her celiac disease as there is still something known as coincidence. Get this checked out by medical professionals and push for some serious testing. Don't let them brush you off. Be appropriately assertive.
×
×
  • Create New...