Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

looking to go gluten and dairy free


EileenB1022

Recommended Posts

EileenB1022 Apprentice

Hi my name is Eileen. I'm new here i want and it has been suggested to me going gluten and dairy free might help me stomach wise. i do not have ceiac disease but i have GI issues and had my gallbladder out and alot of foods i used to love cause me pain as some that i was told was safe. i have some form possibly of  gastritis and hyperplasia which affects my stomach lining. wont know more till i see my new GI but people, many in my gastritis groups say going gluten free and dairy free helped them tremoundously.  i dont know alot thats why im here. i recently found we have a whole foods not far from me. i went to there website and filtered things so they just show gluten and dairy free. is that ok? i think most things i can make work just a few questions.. like they have chicken nuggets and other chicken type products they are gluten and dairy free. also is gatorade ok to drink? and for breakfast is cheerios ok? sorry so many questions. just trying to figure things out. thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

Welcome to the forum, Eileen!

Can you give more information about how you arrived at the conclusion that you do not have celiac disease. Were you formerly tested? What kind of testing was done?

If you don't have celiac disease then you could have NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms but there is no test for NCGS. Celiac disease must first be ruled out. NCGS is 10x more common.

Here is a primer for beginning the gluten free journey: 

Normally, the label "gluten free" can be trusted but the label "Certified Gluten Free" means even stricter standards were applied.

Gatorade should be gluten free but you can always google that kind of question on the internet. Also, on this forum there is a search tool you can use to answer many questions like that and there are many lists of mainline food products (whether they are gluten-free or not) on this forum. Gatorade products is one of them. I remember seeing it on the forum recently.

Edited by trents
EileenB1022 Apprentice
Just now, trents said:

Welcome to the forum, Eileen!

Can you give more information about how you arrived at the conclusion that you do not have celiac disease. Were you formerly tested? What kind of testing was done?

If you don't have celiac disease then you could have NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms but there is no test for NCGS. Celiac disease must first be ruled out. NCGS is 10x more common.

Here is a primer for beginning the gluten free journey: 

Normally, the label "gluten free" can be trusted but the label "Certified Gluten Free" means even stricter standards were applied.

Gatorade should be gluten free but you can always google that kind of question on the internet. Also, on this forum there is a search tool you can use to answer many questions like that and there are many lists of mainline food products (whether they are gluten-free or not) on this forum. Gatorade products is one of them. I remember seeing it on the forum recently.

Hi Trents,

  thank you for your warm welcome and quick response. much appreciated. over the course of the last year i have been tested for celiac three times. but this last year i have been through a lot, lost my gallbladder, hard time eating food i can eat. i knew yesterday i shouldnt eat mac and cheese i did and im still paying for it. several people on my gastritis sites suggested going gluten and dairy free they said it helped them. so thats why i want to do it. i admit before i was sick i didnt have the best diet. so this is so new to me thats why i have been navigating the whole foods website. ok i thought gatorade was ok. is cheerios and no sugar jam ok? just trying to think about breakfast. thanks for the link. i will check it out!

Wheatwacked Veteran

"With lactose intolerance, you can still eat cheese, but choose carefully. Hard, aged cheeses like Swiss, parmesan, and cheddars are lower in lactose. Other low-lactose cheese options include cottage cheese or feta cheese made from goat or sheep's milk." https://www.webmd.com/digestive-disorders/ss/slideshow-dairy#:~:text=With lactose intolerance%2C you can,from goat or sheep's milk.

It is very hard to replace the vitamins and minerals lost to you by going completely dairy free.

10 minutes ago, EileenB1022 said:

i have GI issues and had my gallbladder out and alot of foods i used to love cause me pain as some that i was told was safe.

Many here have mentioned gallbladder out before Celiac is diagnosed. A worldwide problem is lack of choline which is important for gall bladder bile and liver function. Only 10% on western diet get enough. https://nutrition.bmj.com/content/2/2/86

You might try the Fasano diet or similar for exclution of unidentified gluten from the diet for a few months while you heal.  Products allowed/disallowed in the Gluten Contamination Elimination Diet

 

EileenB1022 Apprentice

No i cant eat cheese at all. which is a shame cause it used to be one of my favorite foods. as i said, i had a hard time before my gallbladder came out and yesterday i made the mistake of eating mac and cheese. i know i knew better and since then i have been in pain i have to be very careful. im not here because im celiac or lactose sensitive, i have something going on with my stomach i already wrote what. im just trying to go easy on my damaged stomach.

trents Grand Master
(edited)

Eileen,

Gluten is only found in wheat, barley and rye. Products that contain either of these three grains or their derivatives (e.g., "malt" or "malt" flavoring). Many breakfast cereals not made from wheat, barley or rye use malt flavoring so that would be a no no. It's important to read ingredient labels. The first place to go is at the bottom of the ingredient list where it gives the allergens.

Edited by trents
EileenB1022 Apprentice
Just now, trents said:

Eileen,

Gluten is only found in wheat, barley and rye. Products that contain either of these three grains or their derivatives (e.g., "malt" or "malt" flavoring). Many breakfast cereals not made from wheat, barley or rye use malt flavoring so that would be a no no.

ok. i dont generally eat wheat or rye at least not bread wise. i usually eat cheerios for breakfast. if thats a no no is there a ceral that is ok? and if i buy gluten free bread, is butter/margarine or butter spray ok as well as sugar free jam?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Is butter made from grain? Eileen, we can't answer every specific food question you have. Get an understanding of what gluten is and the terminology used to disguise it. You need to do your own research. Googling those things is easy. Read labels.

EileenB1022 Apprentice
Just now, trents said:

Is butter made from grain? Eileen, we can't answer every specific food question you have. Get an understanding of what gluten is and the terminology used to disguise it. You need to do your own research. Googling those things is easy. Read labels.

oh ok thank you. i will try and do that!

Wheatwacked Veteran

got it

 

Kate333 Rising Star

Going gluten-free and DF are good suggestions but if you continue to eat highly processed/packaged foods high in sugar/salt/artificial colors/flavors/filler ingredients, you are not promoting healing.  I would recommend avoiding all that for a few weeks and eating only fresh, natural food (meats, veggies, fruits) and seeing how you feel on that kind of diet. 

If that doesn't help any, consider other problems.  Extreme stress/depression can really mess up the GI system (it's called the "gut-brain axis").  That could certainly be a major factor in your symptoms.  Anxietycentre.com has a wonderful website that describes all the physical symptoms linked to chronic stress.  You might benefit from a referral for counseling/low-dose antidepressant/antianxiety med.

I hope you feel better soon!  Best of luck on your healing journey.

EileenB1022 Apprentice
3 minutes ago, Kate333 said:

Going gluten-free and DF are good suggestions but if you continue to eat highly processed/packaged foods high in sugar/salt/artificial colors/flavors/filler ingredients, you are not promoting healing.  I would recommend avoiding all that for a few weeks and eating only fresh, natural food (meats, veggies, fruits) and seeing how you feel on that kind of diet. 

If that doesn't help any, consider other problems.  Extreme stress/depression can really mess up the GI system (it's called the "gut-brain axis").  That could certainly be a major factor in your symptoms.  Anxietycentre.com has a wonderful website that describes all the physical symptoms linked to chronic stress.  You might benefit from a referral for counseling/low-dose antidepressant/antianxiety med.

I hope you feel better soon!  Best of luck on your healing journey.

Hi. Thank you for your response so what your saying is, even if it's gluten and dairy free if it's in a package don't eat it? As far as my gastro issues I wish it was anxiety or in my head. I think I Posted a endoscope showed hyperplasia and the possibility of autoimmune gastritis.  He didn't do everything he was suppose to but that's why I'm on to my 3rd gastro. Wish it was anxiety or in my head but that's not the case. I don't think I mentioned I have lost 40 pounds due to not being able to eat amount other things many many things. I fear for my health that's not in my head.

Kyndryl Rookie

Hi Eileen, 
Sorry you are going through this whole ordeal it can be frustrating when you are trying to figure out what you can and can't eat. I know when I first got diagnosed with celiac disease I felt it was a bit daunting and overwhelming the gastro doctor printed out a piece of paper some generic info about celiac disease that didn't explain much and I had to figure out the rest by myself. So, I was in pain a lot of times. The thing is you have to listen to your body. Recently I have been in the hospital for colitis and gall bladder sludge and I am already gluten free and dairy free. And I was still in pain and my gall bladder was suffering. 

I would recommend seeing a functional doctor and getting a full work up of your blood work your body is probably inflamed and needs to heal and needs supplements to get everything functioning the way it needs to. Also, probably it would be good to see a nutritionist something I didn't when I first started with all the diet issues. 

My diet was strict to start my healing for gall bladder sludge: No gluten and dairy(obviously) no soda, no coffee (this was flaring up my symptoms)cutting out sugar, no alcohol, no candy, no chips, no fried food, no processed food, no canned food, no fast food,

What I eat: vegetables, fruits, coconut milk and coconut milk yogurt, protein powder, vegetable juice homemade, bone broth, decaf tea, salmon, chicken breast, turkey bacon, nuts, and eggs. I mean my diet is pretty restrictive but I couldn't take the constant pain and diarrhea from colitis and gall bladder sludge which had ended me up in the hospital twice. But I had to be serious about my health and have a better diet that nourished my body and helps it heal.

I also take supplements that my body needs to heal. I don't if you have some malabsorption going on in your stomach/colon but bloodwork would be a good step to check your liver and kidney functions and check your thyroid and blood sugar levels. That will help you to pinpoint the type of diet you need to feed yourself. 

As far as cereals that is processed foods and could be hurting your tummy I know I'm sensitive to everything. Why not try things like oatmeal, cornmeal, eggs w/ avocado or something like that instead and keep a food journal to see after you eat certain foods how you feel. 

EileenB1022 Apprentice
On 7/17/2022 at 1:53 PM, Kate333 said:

Going gluten-free and DF are good suggestions but if you continue to eat highly processed/packaged foods high in sugar/salt/artificial colors/flavors/filler ingredients, you are not promoting healing.  I would recommend avoiding all that for a few weeks and eating only fresh, natural food (meats, veggies, fruits) and seeing how you feel on that kind of diet. 

If that doesn't help any, consider other problems.  Extreme stress/depression can really mess up the GI system (it's called the "gut-brain axis").  That could certainly be a major factor in your symptoms.  Anxietycentre.com has a wonderful website that describes all the physical symptoms linked to chronic stress.  You might benefit from a referral for counseling/low-dose antidepressant/antianxiety med.

I hope you feel better soon!  Best of luck on your healing journey.

 

Hi, unfortuently i cant afford a functional doctor. i mostly have autoimmune gastritis. it was suspected through a endoscope i am following up with a new gastro beginning of sept. also it has been suggested to me to see a hemotologist. i could need b 12 shots. it all  comes together with autoimmune gastritis. i have trouble eating in general. i have to wait till next month to stock up on things gluten and dairy free. i cant eat much most days which is hard. right now i can only do what i can do. i also lost my gallbladder this past january. so much going on its almost overwhelming.

Kyndryl Rookie

Yes I realize a functional doctor is expensive. What I am saying is sometimes you won't always get the answers you are searching for in the conventional methods by seeing a primary care doctor and gastro. I am still trying to find a decent gastro doctor. What I am trying to say is once you start having damage with one thing you said you lost your gall bladder it could lead to other issues with your digestive tract/ colon / stomach etc. 

I would try to find a nutritionist that specializes in gastritis and yes they are cheap ones out there I just spoke to one and she was only 60 bucks. They all depend on your insurance or what package you pick. What I am saying is sometimes you have to do an elimination diet and try to keep things simple til your body calms down. Almost like a detox diet. That is why for me I had went on a juice detox just using carrots, beets, carrots, ginger and pineapple. I was doing that initially when my gall bladder was acting up. Drinking a lot of bone broth and tea. And sticking to simple fruits and vegetables. I know my body could handle freshly cooked vegetable and needed to salmon/chicken. I mean I barely even have juice it's mostly water sometimes OJ. But your body will thank you when you eat clean. 

EileenB1022 Apprentice
8 hours ago, Kyndryl said:

Yes I realize a functional doctor is expensive. What I am saying is sometimes you won't always get the answers you are searching for in the conventional methods by seeing a primary care doctor and gastro. I am still trying to find a decent gastro doctor. What I am trying to say is once you start having damage with one thing you said you lost your gall bladder it could lead to other issues with your digestive tract/ colon / stomach etc. 

I would try to find a nutritionist that specializes in gastritis and yes they are cheap ones out there I just spoke to one and she was only 60 bucks. They all depend on your insurance or what package you pick. What I am saying is sometimes you have to do an elimination diet and try to keep things simple til your body calms down. Almost like a detox diet. That is why for me I had went on a juice detox just using carrots, beets, carrots, ginger and pineapple. I was doing that initially when my gall bladder was acting up. Drinking a lot of bone broth and tea. And sticking to simple fruits and vegetables. I know my body could handle freshly cooked vegetable and needed to salmon/chicken. I mean I barely even have juice it's mostly water sometimes OJ. But your body will thank you when you eat clean. 

No i cant eat cheese at all. which is a shame cause it used to be one of my favorite foods. as i said, i had a hard time before my gallbladder came out and yesterday i made the mistake of eating mac and cheese. i know i knew better and since then i have been in pain i have to be very careful. im not here because im celiac or lactose sensitive, i have something going on with my stomach i already wrote what. im just trying to go easy on my damaged stomach.

 

well i think i found a good new pcp and gastro. this will be my 3rd gastro and i am so over the last yr what i have been through as far as the kind of doctors i have seen. as far as a funtional doctor i have contacted a couple before and im sorry you dont know my finances i cant afford the prices they quoted me. im not saying they are not better because i think they would be but if you dont have the money to pay them then thats it. you gotta do what you can do. i got a extra insurance just so i would be covered in a neighboring state that has better health care cause obviously the state im in isnt doing it for me. losing my gallbladder wasnt a choice so i have to deal with whatever. i think i probobly had all of this a year ago i just wasnt getting the help i needed(or deserved). and it all points to autoimmune gastritis thats different then regular gastritis there is b12 defiency which may require b12 shots i have slightly low iron , i have several autoimmune disorders. i have to ask this new pcp i havent met yet for a referral to a hemologist and a rheumatologist amoung other things. im under a great deal of stress and worry. i dont have the energy to make it through the day. i am well aware as far as my eating goes i wouldnt be here if i wasnt. as soon as i have a definite diagnosis and all the antibody bloodwork is done, which by the way my old gastro didnt do so then i had every intention of seeking out a dietian who specializes in gastritis or autoimmune disorders. thank you.

Kyndryl Rookie

I wish you all the best of luck with your blood work and getting some more answers. I remember when I started having gastrointestinal issues and was having fatigue my primary sent me to a rheumatologist that told me I had fibromyalgia. I don't know what information he made that on but I wanted a second opinion. So, keep looking for your answers I know you will find help. There are also communities that help with people living without a gallbladder too. So, I hope you find the support you need going forward. Also, finding a good therapist can help with all the overwhelming feelings too. Depends on your insurance but you could also try betterhelp.com even if its sporadically just to talk it through with someone. Good luck.

EileenB1022 Apprentice
1 minute ago, Kyndryl said:

I wish you all the best of luck with your blood work and getting some more answers. I remember when I started having gastrointestinal issues and was having fatigue my primary sent me to a rheumatologist that told me I had fibromyalgia. I don't know what information he made that on but I wanted a second opinion. So, keep looking for your answers I know you will find help. There are also communities that help with people living without a gallbladder too. So, I hope you find the support you need going forward. Also, finding a good therapist can help with all the overwhelming feelings too. Depends on your insurance but you could also try betterhelp.com even if its sporadically just to talk it through with someone. Good luck.

Thank you for your post. My sinus doctor also recommended seeing a rheumatologist mostly because of my several autoimmune disorders and I also have burning in my mouth. He thinks it could be autoimmune.  Hard to say if it's autoimmune or allergies or related to my autoimmune gastritis.  A therapist would help for sure something I thought of. I was on a waiting list but we are trying to move closer to where my new doctors are so I don't want to start up with someone and have to leave but all of this is causing great anxiety.  I literally wake up every morning consumed with the things I'm dealing with and the doctors who did me wrong

 Which is why I'm starting over a little bit of a distance and why we are trying to move.

 

 

 

 My

Wheatwacked Veteran
5 hours ago, EileenB1022 said:

I also have burning in my mouth

Nutritional deficiencies, such as a lack of iron, zinc, folate (vitamin B-9), thiamin (vitamin B-1), riboflavin (vitamin B-2), pyridoxine (vitamin B-6) and cobalamin (vitamin B-12)   Burning mouth syndrome

Vitamin C deficiency causes Scurvy NHS: Scurvy

  • feel very tired and weak all the time
  • feel irritable and sad all the time
  • have severe joint or leg pain
  • have swollen, bleeding gums (sometimes teeth can fall out)
  • develop red or blue spots on the skin, usually on your shins
  • have skin that bruises easily
  • These might be symptoms of scurvy.

Multiple Autoimmune and Depression: The role of vitamin D in autoimmune diseases: could sex make the difference?Vitamin D and Depression: Where is all the Sunshine?

5 hours ago, EileenB1022 said:

My sinus doctor also recommended seeing a rheumatologist mostly beca

I had congested sinuses and could never breath though my mouth until I started GFD at 63 years old.  Another one of my symptoms that "we don't know why, but for some people it's normal" that mysteriously disappeared once I was gluten free.

If it is indeed Celiac or NCGS the only treatment  your doctor can do is recommend GFD and replenishment of the vitamin and minerals. As two of my previous doctors said, it's a life choice. At this point I suggest serious GFD and vitamins, see how it helps. The only nutrition in milled wheat is calories and the artificial vitamins wheat flour is fortified with. You don't need a doctors permission, and you seem to be getting worse as we speak while searching for a "professional" to tell you what you already know.

EileenB1022 Apprentice
Just now, Wheatwacked said:

Nutritional deficiencies, such as a lack of iron, zinc, folate (vitamin B-9), thiamin (vitamin B-1), riboflavin (vitamin B-2), pyridoxine (vitamin B-6) and cobalamin (vitamin B-12)   Burning mouth syndrome

Vitamin C deficiency causes Scurvy NHS: Scurvy

  • feel very tired and weak all the time
  • feel irritable and sad all the time
  • have severe joint or leg pain
  • have swollen, bleeding gums (sometimes teeth can fall out)
  • develop red or blue spots on the skin, usually on your shins
  • have skin that bruises easily
  • These might be symptoms of scurvy.

Multiple Autoimmune and Depression: The role of vitamin D in autoimmune diseases: could sex make the difference?Vitamin D and Depression: Where is all the Sunshine?

I had congested sinuses and could never breath though my mouth until I started GFD at 63 years old.  Another one of my symptoms that "we don't know why, but for some people it's normal" that mysteriously disappeared once I was gluten free.

If it is indeed Celiac or NCGS the only treatment  your doctor can do is recommend GFD and replenishment of the vitamin and minerals. As two of my previous doctors said, it's a life choice. At this point I suggest serious GFD and vitamins, see how it helps. The only nutrition in milled wheat is calories and the artificial vitamins wheat flour is fortified with. You don't need a doctors permission, and you seem to be getting worse as we speak while searching for a "professional" to tell you what you already know.

I'm not searching for a "professional" i have a appointment with my new pcp in 2 weeks, my sinus dr already recommended a rheumatologist i see my gastro beginning of sept. im just starting to be treated for a sinus infection. i have many professionals lined up. i might most likely than not have autoimmune gastritis hence the gastro as my last one failed me. i am on the low side of iron and b12 typical with people with autoimmune gastritis. im gonna wait and speak to my doctor in 2 weeks about everything. i have alot of appointments lined up. i may have been done wrong this past year but im starting from scratch in a new area where there is better healthcare. im not doing anything "on my own" new doctors will figure it out.  im also going to be retested for allergies i know i have them. it could be many things: b12, my iron, my thyroid or my allergies. too much to figure out on my own. i pay alot for insurance insurance covers treatment from doctors. that is my choice. i cant do what needs to be done that has to come from the doctors. sorry im not taking advice from someone on the internet who knows nothing about me.

Wheatwacked Veteran
19 minutes ago, EileenB1022 said:

sorry im not taking advice from someone on the internet who knows nothing about me.

No apology needed.

EileenB1022 Apprentice
Just now, Wheatwacked said:

No apology needed. 

thank you. have a good night!

No i cant eat cheese at all. which is a shame cause it used to be one of my favorite foods. as i said, i had a hard time before my gallbladder came out and yesterday i made the mistake of eating mac and cheese. i know i knew better and since then i have been in pain i have to be very careful. im not here because im celiac or lactose sensitive, i have something going on with my stomach i already wrote what. im just trying to go easy on my damaged stomach.

knitty kitty Grand Master

@EileenB1022,

Welcome to the forum!  

We're very familiar with Celiac Disease and the various health conditions that can occur with it.  It takes ten years or longer for some of us to be properly diagnosed because Celiac Disease can cause so many effects on different organs and body systems.  

We Celiacs have wasted precious years of our lives to the detriment of our health because the body is not looked at as a whole. 

Our health care system divides the body up into isolated compartments with a specialized doctor for each divided part.  These doctors prescribe pharmaceuticals to remove the symptoms from that body part, BUT never gets to the systemic cause of the problem.

Celiac Disease affects the body as a whole.  Systemic Dysfunction caused by ingestion of wheat (and dairy) can manifest in different body parts.  Thyroid problems, gallbladder and liver dysfunction, neurological problems, gastritis and multiple autoimmune diseases can all be connected to underlying Celiac Disease.  

Some of the health issues you have mentioned frequently occur in Celiac Disease.  You said you had other autoimmune diseases.

We're saying that you should get tested for Celiac Disease.  Get a genetic test for the most common genes for Celiac Disease.  Since you seem to have such a strong negative reaction to gluten, a gluten challenge of consuming two slices of wheat bread (or equivalent like pizza and chocolate cake) a day for eight weeks, may not be the best option for you.  You have to be consuming gluten for eight weeks so that the antibodies your body makes against gluten can be measured in a blood test.  

You can get a genetic test for Celiac Disease without having to eat gluten.  The genetic test looks for  genes known to cause Celiac Disease.  

Celiac Disease depends on having certain HLA genetic markers.  These HLA markers are also involved in various other autoimmune diseases like diabetes, autoimmune thyroiditis, eczema, rosacea, autoimmune gastritis, etc.  

Another symptom of Celiac Disease is malabsorption of vitamins and minerals which can contribute to further health problems.  There are eight B vitamins that we cannot make so must consume every day.  If we can't absorb nutrients, we can become deficient in the essential vitamins and our health begins to suffer.  

Thiamine Vitamin B insufficiency is related to gallbladder sludge and gallbladder dysfunction.  Thyroid problems are related to thiamine insufficiency.  B12 deficiency can result in anemia.  

Correcting nutritional deficiencies caused by malabsorption and poor diet is part of proper follow up care for Celiac Disease patients.  

Hope this helps!

EileenB1022 Apprentice
Just now, knitty kitty said:

@EileenB1022,

Welcome to the forum!  

We're very familiar with Celiac Disease and the various health conditions that can occur with it.  It takes ten years or longer for some of us to be properly diagnosed because Celiac Disease can cause so many effects on different organs and body systems.  

We Celiacs have wasted precious years of our lives to the detriment of our health because the body is not looked at as a whole. 

Our health care system divides the body up into isolated compartments with a specialized doctor for each divided part.  These doctors prescribe pharmaceuticals to remove the symptoms from that body part, BUT never gets to the systemic cause of the problem.

Celiac Disease affects the body as a whole.  Systemic Dysfunction caused by ingestion of wheat (and dairy) can manifest in different body parts.  Thyroid problems, gallbladder and liver dysfunction, neurological problems, gastritis and multiple autoimmune diseases can all be connected to underlying Celiac Disease.  

Some of the health issues you have mentioned frequently occur in Celiac Disease.  You said you had other autoimmune diseases.

We're saying that you should get tested for Celiac Disease.  Get a genetic test for the most common genes for Celiac Disease.  Since you seem to have such a strong negative reaction to gluten, a gluten challenge of consuming two slices of wheat bread (or equivalent like pizza and chocolate cake) a day for eight weeks, may not be the best option for you.  You have to be consuming gluten for eight weeks so that the antibodies your body makes against gluten can be measured in a blood test.  

You can get a genetic test for Celiac Disease without having to eat gluten.  The genetic test looks for  genes known to cause Celiac Disease.  

Celiac Disease depends on having certain HLA genetic markers.  These HLA markers are also involved in various other autoimmune diseases like diabetes, autoimmune thyroiditis, eczema, rosacea, autoimmune gastritis, etc.  

Another symptom of Celiac Disease is malabsorption of vitamins and minerals which can contribute to further health problems.  There are eight B vitamins that we cannot make so must consume every day.  If we can't absorb nutrients, we can become deficient in the essential vitamins and our health begins to suffer.  

Thiamine Vitamin B insufficiency is related to gallbladder sludge and gallbladder dysfunction.  Thyroid problems are related to thiamine insufficiency.  B12 deficiency can result in anemia.  

Correcting nutritional deficiencies caused by malabsorption and poor diet is part of proper follow up care for Celiac Disease patients.  

Hope this helps!

Hi Knitty kitty,

 I'm sorry you went on and on about celiac disease I'm pretty sure i put it in my post but i DO NOT have celiac disease and before you say any more, i have been tested 3 times this year for it! the reason i am here and wanted to go gluten and dairy free is my autoimmune gastritis and the fact that i had my gallbladder out in january as first there is a lot of food i used to eat that i cannot eat anymore and second alot of food considered "safe" hurts my stomach most of the time. several people in my gastritis groups on facebook recommended trying gluten and dairy free. thats why i am here. im sorry if you didnt realize i wasnt celiac.

EileenB1022 Apprentice
Just now, EileenB1022 said:

Hi Knitty kitty,

 I'm sorry you went on and on about celiac disease I'm pretty sure i put it in my post but i DO NOT have celiac disease and before you say any more, i have been tested 3 times this year for it! the reason i am here and wanted to go gluten and dairy free is my autoimmune gastritis and the fact that i had my gallbladder out in january as first there is a lot of food i used to eat that i cannot eat anymore and second alot of food considered "safe" hurts my stomach most of the time. several people in my gastritis groups on facebook recommended trying gluten and dairy free. thats why i am here. im sorry if you didnt realize i wasnt celiac.

i just checked my post. sorry you didnt read it i made it clear i didnt have celiac disease why i wanted to try gluten and dairy free and the issues i was dealing with. pretty much what i told you.  sorry you didnt read it. i dont know why you didnt. you should really read someone's post before you respond.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Blue Roan replied to Blue Roan's topic in Related Issues & Disorders
      4

      Lymph nodes in neck + thyroid issues

    2. - Scott Adams replied to Dawn R.'s topic in Related Issues & Disorders
      1

      Gluten Ataxia

    3. 0

      Vanderbilt Celiac Disease Clinic Life with Celiac Disease: Home for the Holidays

    4. - knitty kitty replied to Bindi's topic in Super Sensitive People
      31

      Refractory or super sensitive?

    5. - glucel replied to Bindi's topic in Super Sensitive People
      31

      Refractory or super sensitive?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,915
    • Most Online (within 30 mins)
      7,748

    coolruth
    Newest Member
    coolruth
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Blue Roan
      @RMJ@Scott Adams@knitty kitty, Thank you for all of your responses, tips, and suggestions. I'm very grateful that this website exists. It makes me feel a lot less alone in my celiac journey!  The endocrinologist had me do a neck ultrasound just to be safe. Thankfully, thyroid and lymph nodes came back normal. knitty kitty, my Vitamin D is on the higher end of normal, but I will definitely consider the dentist route next time I have my checkup if I'm still noticing issues. Thank you! Scott, thanks for suggesting the ENT. I may consider seeing one if things don't resolve on their own. I am thankfully feeling a bit better now, so hopefully, this is just some sort of residual celiac inflammation like you mentioned, Scott. After all of the numerous tests and clinical visits I've had all year, I'm going to give my body (and wallet) a break for a few months to rest and heal without the stress of doctor appts/labwork and whatnot. Perhaps the health anxiety is also contributing to some of my symptoms.  Thank you once again for sharing your stories.  
    • Scott Adams
      Welcome to the forum. A search for "ataxia" in our forum shows 718 results: https://www.celiac.com/search/?q=Ataxia&quick=1&type=forums_topic We also have an article category dedicated to summarizing research on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/ Do you have a specific question about it?
    • knitty kitty
      Using a pressure cooker will break down Lectins.  Long cooking times as in using a crock pot will also reduce Lectin content.   However, having tried both, going lectin free for a few weeks is like a vacation for my digestive system.  I do hope you give the AIP diet a try.  I understand that changing ones diet takes a lot of mental readjustment which is difficult, but it's really worth the effort for long-term health.   P.S.  Once your digestive tract is healed up, you should be able to add beans and rice back into your diet gradually.
    • glucel
      Depending on which source you research sprouting or fermentation can reduce lectins. I sprout rice, buckwheat and quinoa. However, I admit that gas and intestinal inflammation still plague me after 5 1/2 mo gluten-free. I have been resisting but I may try the aip diet at some point.
    • cristiana
      Hi @jadeceoliacuk I am a UK based coeliac and I have used a private nutritionist a few times. She is very highly qualified and having just googled her details, she is listed on this website (see link).  For that reason, I think you could trust the listings here as I am quite sure she would not want to associate with this website unless it was a professional, trustworthy resource. https://www.nutritionist-resource.org.uk/ I hope this helps. Cristiana  
×
×
  • Create New...