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Celiac, IBS, SIBO and an online health clinic

JD-New to Celiac
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JD-New to Celiac Explorer
JD-New to Celiac
Posted

Does anyone know of an online reputable health clinic that will help me manage my celiac, IBS and what I now believe to be SIBO. I cannot get my local doctors or a GI to assist as I did not have the biopsy done for diagnosis. I saw a few online options but I am concerned that they are just looking to sell you their miracle cures and formulas. I continue to remain so very sick and my PCP told me I need to see a GI and the GI won't treat me without going back on gluten and then doing a biopsy.

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Tracy414 Explorer
Tracy414
Posted

Is there a different GI that would see you? Not sure where you live, but that seems pretty awful. Is there a way you can self refer? Some insurances allow that. Again, not sure where you are from. I am sorry you are going through all of this and I hope you find a medical professional who will listen.

JD-New to Celiac Explorer
JD-New to Celiac
Posted
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1 hour ago, Tracy414 said:

Is there a different GI that would see you? Not sure where you live, but that seems pretty awful. Is there a way you can self refer? Some insurances allow that. Again, not sure where you are from. I am sorry you are going through all of this and I hope you find a medical professional who will listen.

Because of the insurance I have when I see a specialist (which takes about two months for a new patient), I have to. pay out-of-pocket, which is hundreds of dollars. I don't want to go to another GI for them to say, "Patient states came here at direction primary care provider since "GI is supposed to be the expert" but is largely self directing his therapy." That is what the GI wrote in the report after I went to him. Actually the truth is the PCP would not treat me as he is unfamiliar with Celiac and referred me to this GI who told me that you cannot diagnose Celiac without doing a biopsy. He wanted me to go back on gluten and have the procedure done. So, a year later and a new PCP and I recently asked to have bloodwork done for deficiencies and here is what my new PCP said, "I added in the requested labs, but you'll probably have to pay for some of them.  I did my best to justify some of them, but this is an exhaustive list that isn't usually covered."  Really an exhaustive list? I asked him for the following, which I don't feel is exhaustive.

-Transglutaminase IgA or a tTg-IgA blood test
-Tests for iron, folate/folic acid, vitamin D, zinc, copper, calcium and vitamin B status (including B6/ B12/homocysteine levels)

Tracy414 Explorer
Tracy414
Posted

You can get the celiac antibodies for around $100, online. Poke your finger and send it back to be analyzed. I’m pretty sure you can do vitamins ones too, but not 💯 sure which ones or how they are resulted. May be cheaper and at least give you some ideas about possible deficiencies. Healthcare is so frustrating!! 

JD-New to Celiac Explorer
JD-New to Celiac
Posted
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16 minutes ago, Tracy414 said:

You can get the celiac antibodies for around $100, online. Poke your finger and send it back to be analyzed. I’m pretty sure you can do vitamins ones too, but not 💯 sure which ones or how they are resulted. May be cheaper and at least give you some ideas about possible deficiencies. Healthcare is so frustrating!! 

Yes, that is my new GO TO...online testing. I use "Request a Test" and so far they seem to be legit. I just had the genetic testing done as I just wanted further confirmation. My doctor would not order the copper test that I've been reading about so I might get that done.

Thanks for advice and indeed...healthcare is frustrating.

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