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Tingling toes and fingertips.

Sabaarya
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Sabaarya Community Regular
Sabaarya
Posted

Hi..

I’ve been on strict gluten-free diet since December and so have on and off situations. I see improvement. My iron level and vitamin deficiencies got improved a little bit. I used to have light tingling in my right hand before the diagnose and B12 shots helped me a lot. I’ve never had crazy GI symptoms and those are better now. But it’s been 3 days since I developed pins and needles in my toes and fingertips. Kind of scared of brain tumor. Also I do take SSRI, Lexapro,not sure if that can cause tingling as well.Does anyone else have those tingling situation while on gluten-free diet?

thank you 

Saba

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Jays911 Contributor
Jays911
Posted
On 8/18/2022 at 2:42 PM, Sabaarya said:

Hi..

I’ve been on strict gluten-free diet since December and so have on and off situations. I see improvement. My iron level and vitamin deficiencies got improved a little bit. I used to have light tingling in my right hand before the diagnose and B12 shots helped me a lot. I’ve never had crazy GI symptoms and those are better now. But it’s been 3 days since I developed pins and needles in my toes and fingertips. Kind of scared of brain tumor. Also I do take SSRI, Lexapro,not sure if that can cause tingling as well.Does anyone else have those tingling situation while on gluten-free diet?

thank you 

Saba

Sounds like neuropathy. Lots of possible causes. I had similar sensations, plus tremors and falls, until my docs caught my low magnesium level and got it addressed. 

Sabaarya Community Regular
Sabaarya
Posted
  • Author
1 hour ago, Jays911 said:

Sounds like neuropathy. Lots of possible causes. I had similar sensations, plus tremors and falls, until my docs caught my low magnesium level and got it addressed. 

My last blood work showed low magnesium as well.  But before diagnose I had it only in my right hand now a year after diagnose it’s in my extremities and it also bother me when I do wear shoes and walk. While walking it’s tingling for a bit and then get better

Jays911 Contributor
Jays911
Posted
4 minutes ago, Sabaarya said:

My last blood work showed low magnesium as well.  But before diagnose I had it only in my right hand now a year after diagnose it’s in my extremities and it also bother me when I do wear shoes and walk. While walking it’s tingling for a bit and then get better

Have your docs check. They tried regular magnesium supplements for me, and the 4 hour infusions. Neither worked. Then they put me on 8 doses of slow magnesium a days. Tingling and falls stopped. Good luck. 

VsSecret Newbie
VsSecret
Posted

I recently explained this problem to my NP along with tingling bottom lip. She was very interested and did research and decided to put me on folic acid. I have seen a remarkable change in my fingers and lips not so much for the toes as of yet. I would think if I added B12 it would defiantly help me.  I have been strict gluten-free for a year or more.  Unfortunately I seem to have a lot of falls also. I too have added magnesium to my diet but a mixture of 3 different types which I drink at night before bed. My iron is good but other nutrients are not so.

knitty kitty Grand Master
knitty kitty
Posted

It's rare to have a deficiency in just one single vitamin.  Deficiencies usually occur in all of them.  

The eight B vitamins all work together.  Folate B9 needs B12 Cobalamine but also B6 Pyridoxine and Riboflavin B2 which needs enzymes made from Niacin B3 and Thiamine B1.  

Folic acid is the synthetic form of Folate.  It's better to take Folate because our bodies cannot use the folic acid form well.  Some of us Celiacs have the MTHFR genetic variation and methylated forms of vitamins are better for us, like methylcobalamine and methylfolate.  

We need the four fat soluble vitamins, A, D, E, and K, too, and Vitamin C, as well as minerals like potassium, calcium, molybdenum in addition to magnesium.  

 

VsSecret Newbie
VsSecret
Posted

Interesting. This is great information for me to research. I appreciate your response to the post. 

I’m pretty much on a paleo diet. I feel like it’s really hard to get the nutrients I need. I have to get real creative. 

I have seen a marked improvement from my celiac and UC is now in remission. Now to start working on adding nutrition  and overall health. 

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knitty kitty Grand Master
knitty kitty
Posted
(edited)

Here's a good article for you to start your research...

Mucosal reactivity to cow's milk protein in coeliac disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/

 

I stick to a Paleo diet, the Autoimmune Protocol Diet (AIP) which promotes healing.

Efficacy of the Autoimmune Protocol Diet for Inflammatory Bowel Disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5647120/

And...

An Autoimmune Protocol Diet Improves Patient-Reported Quality of Life in Inflammatory Bowel Disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6892563/

 

Edited by knitty kitty
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    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

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    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

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    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
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      Autoimmune Reaction to SO many foods

      By trents · Posted

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
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