Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tingling toes and fingertips.

Sabaarya
 Share

Recommended Posts

Sabaarya Community Regular
Sabaarya
Posted

Hi..

I’ve been on strict gluten-free diet since December and so have on and off situations. I see improvement. My iron level and vitamin deficiencies got improved a little bit. I used to have light tingling in my right hand before the diagnose and B12 shots helped me a lot. I’ve never had crazy GI symptoms and those are better now. But it’s been 3 days since I developed pins and needles in my toes and fingertips. Kind of scared of brain tumor. Also I do take SSRI, Lexapro,not sure if that can cause tingling as well.Does anyone else have those tingling situation while on gluten-free diet?

thank you 

Saba

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jays911 Contributor
Jays911
Posted
On 8/18/2022 at 2:42 PM, Sabaarya said:

Hi..

I’ve been on strict gluten-free diet since December and so have on and off situations. I see improvement. My iron level and vitamin deficiencies got improved a little bit. I used to have light tingling in my right hand before the diagnose and B12 shots helped me a lot. I’ve never had crazy GI symptoms and those are better now. But it’s been 3 days since I developed pins and needles in my toes and fingertips. Kind of scared of brain tumor. Also I do take SSRI, Lexapro,not sure if that can cause tingling as well.Does anyone else have those tingling situation while on gluten-free diet?

thank you 

Saba

Sounds like neuropathy. Lots of possible causes. I had similar sensations, plus tremors and falls, until my docs caught my low magnesium level and got it addressed. 

Sabaarya Community Regular
Sabaarya
Posted
  • Author
1 hour ago, Jays911 said:

Sounds like neuropathy. Lots of possible causes. I had similar sensations, plus tremors and falls, until my docs caught my low magnesium level and got it addressed. 

My last blood work showed low magnesium as well.  But before diagnose I had it only in my right hand now a year after diagnose it’s in my extremities and it also bother me when I do wear shoes and walk. While walking it’s tingling for a bit and then get better

Jays911 Contributor
Jays911
Posted
4 minutes ago, Sabaarya said:

My last blood work showed low magnesium as well.  But before diagnose I had it only in my right hand now a year after diagnose it’s in my extremities and it also bother me when I do wear shoes and walk. While walking it’s tingling for a bit and then get better

Have your docs check. They tried regular magnesium supplements for me, and the 4 hour infusions. Neither worked. Then they put me on 8 doses of slow magnesium a days. Tingling and falls stopped. Good luck. 

VsSecret Newbie
VsSecret
Posted

I recently explained this problem to my NP along with tingling bottom lip. She was very interested and did research and decided to put me on folic acid. I have seen a remarkable change in my fingers and lips not so much for the toes as of yet. I would think if I added B12 it would defiantly help me.  I have been strict gluten-free for a year or more.  Unfortunately I seem to have a lot of falls also. I too have added magnesium to my diet but a mixture of 3 different types which I drink at night before bed. My iron is good but other nutrients are not so.

knitty kitty Grand Master
knitty kitty
Posted

It's rare to have a deficiency in just one single vitamin.  Deficiencies usually occur in all of them.  

The eight B vitamins all work together.  Folate B9 needs B12 Cobalamine but also B6 Pyridoxine and Riboflavin B2 which needs enzymes made from Niacin B3 and Thiamine B1.  

Folic acid is the synthetic form of Folate.  It's better to take Folate because our bodies cannot use the folic acid form well.  Some of us Celiacs have the MTHFR genetic variation and methylated forms of vitamins are better for us, like methylcobalamine and methylfolate.  

We need the four fat soluble vitamins, A, D, E, and K, too, and Vitamin C, as well as minerals like potassium, calcium, molybdenum in addition to magnesium.  

 

VsSecret Newbie
VsSecret
Posted

Interesting. This is great information for me to research. I appreciate your response to the post. 

I’m pretty much on a paleo diet. I feel like it’s really hard to get the nutrients I need. I have to get real creative. 

I have seen a marked improvement from my celiac and UC is now in remission. Now to start working on adding nutrition  and overall health. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


knitty kitty Grand Master
knitty kitty
Posted
(edited)

Here's a good article for you to start your research...

Mucosal reactivity to cow's milk protein in coeliac disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/

 

I stick to a Paleo diet, the Autoimmune Protocol Diet (AIP) which promotes healing.

Efficacy of the Autoimmune Protocol Diet for Inflammatory Bowel Disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5647120/

And...

An Autoimmune Protocol Diet Improves Patient-Reported Quality of Life in Inflammatory Bowel Disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6892563/

 

Edited by knitty kitty
Add more information

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jess270
      - Jess270 replied to AnnaNZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Bitters for digestion?

      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions...
    2. cristiana
      - cristiana commented on Jefferson Adams's article in Origins of Celiac Disease
      7

      Why Bananas No Longer Cure Celiac Disease

      I missed this article when it was first put up. It is interesting to read, as my old neighbour who sadly passed away a few years ago was a trainee midwife during WWII. Bananas disappeared from the shops in Britain during the war, but she told me that those that did get to the UK were kept back for infants with coeliac disease. I didn't realise that...
    3. trents
      - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    4. GeoPeanut
      - GeoPeanut replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease, and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with...
    5. trents
      - trents replied to KRipple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac or Addison's complications? Can someone share their experience?

      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,060
    • Most Online (within 30 mins)
      7,748
    Vaughn Zellick
    Newest Member
    Vaughn Zellick
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jess270
      Bitters for digestion?

      By Jess270 · Posted

      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      Vaccines

      By trents · Posted

      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Vaccines

      By GeoPeanut · Posted

      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Are they close to a drug that will help celiacs with cross contamination

      By kate g · Posted

      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
×
×
  • Create New...