Pins and needles…

[Sabaarya]

Hi..

I’ve been on strict gluten-free diet since December and so have on and off situations. I see improvement. My iron level and vitamin deficiencies got improved a little bit. I used to have light tingling in my right hand before the diagnose and B12 shots helped me a lot. I’ve never had crazy GI symptoms and those are better now. But it’s been 3 days since I developed pins and needles in my toes and fingertips. Kind of scared of brain tumor. Also I do take SSRI, Lexapro,not sure if that can cause tingling as well.Does anyone else have those tingling situation while on gluten-free diet?

thank you 

Saba

[Jskjrcoleman]

On 8/19/2022 at 11:21 PM, Sabaarya said:

Hi..

I’ve been on strict gluten-free diet since December and so have on and off situations. I see improvement. My iron level and vitamin deficiencies got improved a little bit. I used to have light tingling in my right hand before the diagnose and B12 shots helped me a lot. I’ve never had crazy GI symptoms and those are better now. But it’s been 3 days since I developed pins and needles in my toes and fingertips. Kind of scared of brain tumor. Also I do take SSRI, Lexapro,not sure if that can cause tingling as well.Does anyone else have those tingling situation while on gluten-free diet?

thank you 

Saba

I think you should really see a Neurologist. Not usual to have those symptoms when on a Gluten-free diet. You should be checked for MS, CIDP,  and any neurological disease. I have CIDP,  was in remission but caught Covid and it brought out my auto-immune disease. I am in a flare up now and can barely type my fingers hurt so bad from the tingling and pain. My feet are awful, pain, tingling, and numbness! 

The sooner you get checked the better! I don't mean to scare you but I just want you to be okay! 

Shannon

[Sabaarya]

1 hour ago, Jskjrcoleman said:

I think you should really see a Neurologist. Not usual to have those symptoms when on a Gluten-free diet. You should be checked for MS, CIDP,  and any neurological disease. I have CIDP,  was in remission but caught Covid and it brought out my auto-immune disease. I am in a flare up now and can barely type my fingers hurt so bad from the tingling and pain. My feet are awful, pain, tingling, and numbness! 

The sooner you get checked the better! I don't mean to scare you but I just want you to be okay! 

Shannon

I don’t have severe tingling. It’s very mild. A month ago I had eye nerves check up and doctor said there is no evidence of MS. All the nerves at the back of my eye looked very healthy. I didn’t know that MS affects eye nerves first.The interesting thing is that every time after my period I get weird symptoms. I believe bleeding puts all my levels down. My B12 got improved but it still low which is 300,my ferritin got improved as well but still very low it’s 12 now and was 3 last year, my magnesium level is still less than normal and plus my diet is mainly carbs and fat and I’m not taking vitamins every single day. It’s been 2 days since I’ve started B complex as well and I feel much better. Before diagnose I used to have tingling hand and after B12 shots it went away completely,maybe will ask doctor for B12 injections again. I’m taking antidepressants, Lexapro, was reading about side effects and it says that Lexapro can cause tingling and pins and needles. Anyways I do have an appointment with rheumatologist, will ask her to check for everything. 
Thank you 

[Scott Adams]

Definitely check in with your doctor, but celiac disease is known to cause gluten ataxia, which could explain your symptoms.

Are you taking a good multi-vitamin with minerals? One A Day or Geritol are good ones. You may also need to add extra B12, benfotiamine (B1 in a form that is absorbed better), and Magnesium Citrate (this can cause IBS-like issues in some people until you get used to it).

[Sabaarya]

23 minutes ago, Scott Adams said:

Definitely check in with your doctor, but celiac disease is known to cause gluten ataxia, which could explain your symptoms.

Are you taking a good multi-vitamin with minerals? One A Day or Geritol are good ones. You may also need to add extra B12, benfotiamine (B1 in a form that is absorbed better), and Magnesium Citrate (this can cause IBS-like issues in some people until you get used to it).

Hi Scott. I’m not taking multi vitamins. I do take magnesium glycinate every other day and asked doctor for B12 injections. Will see rheumatologist in October 

[Scott Adams]

In general the B vitamins work together, which is why B-Complex vitamins are so common. You may want to consider taking one.

[knitty kitty]

@Sabaarya,

There are eight B vitamins.  The eight B vitamins are called essential because our bodies cannot make them, so we must get them from our diet EVERY day.  

The eight B vitamins work together interconnectedly, but they all do different jobs.  B12 Cobalamine needs folate B9 and riboflavin B2 and pyridoxine B6.  Just taking B12 can cause an increased need for the other B vitamins which may result in a functional deficiency if there's not enough of the other vitamins around.  And Thiamine B1 and Niacin B3 are needed to provide energy and enzymes for further body functions.  The B vitamins all work together.  

Pins and needles is a classic symptom of Thiamine deficiency.  Vitamin B6 deficiency can manifest as pins and needles.  Vitamin C deficiency can show up as pins and needles.  Niacin deficiency can show up as pins and needles.  

Thiamine helps improve depression. 

Taking Thiamine with antidepressants has been shown to improve depression faster.

"Adjuvant thiamine improved standard treatment in patients with major depressive disorder: results from a randomized, double-blind, and placebo-controlled clinical trial"

https://pubmed.ncbi.nlm.nih.gov/26984349/

And...

The Role of Vitamins and Minerals in Psychiatry

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3046018/

And...

Peripheral Neuropathy Due to Vitamin Deficiency, Toxins, and Medications

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4208100/#__sec12title

And...

Nutritional Neuropathies

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/

@Jskjrcoleman,

Thiamine deficiency is also associated with Covid and long haulers.

Be well: A potential role for vitamin B in COVID-19

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428453/

And...

Evaluation of thiamine as adjunctive therapy in COVID-19 critically ill patients: a two-center propensity score matched study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8242279/

 

[Sabaarya]

13 minutes ago, knitty kitty said:

@Sabaarya,

There are eight B vitamins.  The eight B vitamins are called essential because our bodies cannot make them, so we must get them from our diet EVERY day.  

The eight B vitamins work together interconnectedly, but they all do different jobs.  B12 Cobalamine needs folate B9 and riboflavin B2 and pyridoxine B6.  Just taking B12 can cause an increased need for the other B vitamins which may result in a functional deficiency if there's not enough of the other vitamins around.  And Thiamine B1 and Niacin B3 are needed to provide energy and enzymes for further body functions.  The B vitamins all work together.  

Pins and needles is a classic symptom of Thiamine deficiency.  Vitamin B6 deficiency can manifest as pins and needles.  Vitamin C deficiency can show up as pins and needles.  Niacin deficiency can show up as pins and needles.  

Thiamine helps improve depression. 

Taking Thiamine with antidepressants has been shown to improve depression faster.

"Adjuvant thiamine improved standard treatment in patients with major depressive disorder: results from a randomized, double-blind, and placebo-controlled clinical trial"

https://pubmed.ncbi.nlm.nih.gov/26984349/

And...

The Role of Vitamins and Minerals in Psychiatry

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3046018/

And...

Peripheral Neuropathy Due to Vitamin Deficiency, Toxins, and Medications

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4208100/#__sec12title

And...

Nutritional Neuropathies

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/

@Jskjrcoleman,

Thiamine deficiency is also associated with Covid and long haulers.

Be well: A potential role for vitamin B in COVID-19

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428453/

And...

Evaluation of thiamine as adjunctive therapy in COVID-19 critically ill patients: a two-center propensity score matched study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8242279/

 

Thank you knitty. I had ophthalmologist appointment a month ago since genetically I do have large eye nerves, so I get checked every year and doctor said that my eye nerves looks very healthy and there is no evidence of MS or brain tumor she explained actually how would they look in case of MS and tumora. I had right hand tingling before diagnose and B12 shots helped,don’t understand why I developed toes tingling and feet pain. To be honest i don’t consume lots of veggies and fruits. Had ear buzzing but after taking iron supplements for a month resolved that issue. So I guess I’m still vitamin deficient. My last check up of vitamin B12 was 300 and my doctor said that I should be in 600-700 ranges.I wonder if there is an injection for B complex. Back in my country I remember getting B complex injections. And as one of the doctors said for celiac patients getting vitamins in injection form is much more beneficial rather than pills. I don’t know why in US doctors are so resistant in prescribing vitamin injections or should I get vitamins in IV form? Anyways made an appointment with neurologist and rheumatologist for October…

[knitty kitty]

@Sabaarya,

Peripheral neuropathy, paresthesia, pins and needles starts with the extremities, the fingers and toes.  

When I had vitamin deficiencies, my fingers and toes had pins and needles sensations that got increasingly worse.  Soon it felt like a swarm of bees buzzing in my feet.  The buzzing progressed upwards, up my legs until I felt itching and pins and needles in my thighs and backside.  My fingers and arms had the upwards progression as well.  I lost feeling in my extremities and found I often dropped things because I could not feel them in my hands.  

My symptoms did not improve until I took B Complex and high dose Thiamine.  

Take your B Complex every day!  Improve your diet.  Eat more veggies and meat.  Stay away from processed foods.  Don't eat out.  

 

[Sabaarya]

Ok,will do! Thank you 🙂

[Posterboy]

On 8/20/2022 at 1:21 AM, Sabaarya said:

Also I do take SSRI, Lexapro,not sure if that can cause tingling as well.Does anyone else have those tingling situation while on gluten-free diet?

Sabaarya,

I saw where you take Lexapro.

It is not uncommon for Depression medicines to cause GI problems.

See this research about it entitled "Antidepressant-mediated gastroesophageal reflux disease" aka GERD.

https://pubmed.ncbi.nlm.nih.gov/21486738/

This imporant because Low Stomach acid can lead to low Magnesium levels and this will lead to the "Pins and Needles" you describe.

See this article that explains how Anti-depressants can make you low in your B-Vitamins and Magnesium (so importatn for mental health)....and overall health in general.

https://www.healthy-holistic-living.com/antidepressants-side-effects/

It also worth noting that Lexapro and other SSRI's have been linked to Restelss leg Syndrome....aka RLS.

See this reseasrch entitled "Restless legs syndrome induced by escitalopram (aka Lexapro): case report and review of the literature"

https://pubmed.ncbi.nlm.nih.gov/18225972/

I had taken Antidepressants for years but Magnesium helped me get off of them for good!

See this research about how Magnesium can help depression entitled "Rapid recovery from major depression using magnesium treatment"

https://pubmed.ncbi.nlm.nih.gov/16542786/

I hope this is helpful but it is not medical advice.

2 Timothy 2:7 "Consider what I say; and the Lord give thee understanding in all things."

Posterboy by the Grace of God,

[Sabaarya]

Thank you. My magnesium level was less than normal.