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Still bloated even after stopping gluten


Jensamms

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Jensamms Newbie

I am wondering why I am still so painfully bloated every night after going gluten free. It's been about 2 months since my celiac diagnosis. Why do I still look pregnant and hurt so bad at night? 


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trents Grand Master

Welcome to the forum, Jensamms!

Have you been checked for SIBO (Small Intestine Bacterial Overgrowth)? It is very common among the celiac population and fits the description you give of symptoms.

Scott Adams Grand Master

Is your diet 100% gluten-free? If you eat at restaurants this may not be the case. 

This article may be helpful:

 

knitty kitty Grand Master

@Jensamms,

I've found it helpful to keep a food mood poo'd journal to help identify problematic foods.

I also followed the Autoimmune Protocol Diet which helps intestines heal.  It's mostly grassy fed meat, veggies and some fruits.  By cutting out carbohydrates and starchy vegetables, the intestinal bacteria will change from those gas producing ones to more beneficial ones.  

In SIBO, those carbohydrate loving bacteria invade the small intestine where they are not meant to be.  If their supply of carbohydrates is cut off, they will die off.  And the beneficial bacteria have a chance to repopulate.  

Also removing dairy from your diet may help.  In some Celiac people, dairy can cause continuing inflammation and damage to the small intestine.  

Supplementing with B Complex vitamins supplements would be beneficial.  Correcting vitamin and mineral deficiencies caused by malabsorption due to damaged to the small intestine is part of proper follow up care for Celiac people.  Discuss this with your doctor or nutritionist.

Hope this helps!

 

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  • Posts

    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
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      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
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