Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gaining Weight and working out


pbzgf

Recommended Posts

pbzgf Newbie

Hello everyone,

I have been Celiac since 2010 ( I was born 2005-so I'm 17 now). 

Current weight: 60kg (132 lbs) current height:177cm (5 foot 10 inches)

I never really thought of celiac disease so influencing of the life I live. Until recently I just thought of it as a simple allergy to food that requires me to be on a specific diet. However, recently I discovered this page and have become more aware of all the affects it can have on my life. Making me realise that many of its affects have been influencing my life without me even realising.

I have recently chosen to start going to the gym, like most teens its to build more muscle as I have always felt somewhat weaker to my classmates and be skinnier then average. However, I know that diet is important and after some research I concluded that a daily intake of 3100 calories and 96 grams of protein are required to build muscle and increase weight when working out 3-4 times a week so I bought some whey protein supplement to facilitate reaching that amount of protein. I have always felt that I eat more than regular people including my family, for example I will always be the one to ask for seconds and eat other snacks more regularly throughout the day.

However, I still feel like I struggle to put on weight and that the progress will be slower due to being Celiac. So below are my questions:

Can anyone with similar experience share advice? How does Celiac disease affect muscle growth and gaining weight? Is it a case of maybe waiting to grow a bit more as I am still quite young? Does Celiac Disease make you more susceptible to injury?

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wheatwacked Veteran

At last you're here now. Get lots of vitamin D. The plasma level of healthy lifeguards is around 70 ng/ml at the end of summer. Get it tested if you can. Eat foods with potassium. In the US the recommend daily amount is 4700 grams per day or more. If you eat 5 grams of potassium (not supplements) a day it is easy to keep track and you'll be eating foods that also have most of the other vitamins and minerals.

Seventeen year olds grow up fine even without gluten don't let anyone tell you different.

trents Grand Master

Welcome to the forum, pbzgf!

Are you making a conscientious effort to eat gluten-free? You don't really say that in your first post but you did say, "I never really thought of celiac disease so influencing of the life I live." So, it made me wonder whether or not you were taking the gluten-free lifestyle seriously. Also, you state you just thought of it as "a simple food allergy . . . " Do you realize the celiac disease is not a food allergy but is an autoimmune disorder that actually damages your body if gluten is not consistently and totally avoided? Do you allow yourself to cheat on the gluten-free diet sometimes? I hope I don't sound critical and judgmental because I don't mean to.

pbzgf Newbie
30 minutes ago, trents said:

Welcome to the forum, pbzgf!

Are you making a conscientious effort to eat gluten-free? You don't really say that in your first post but you did say, "I never really thought of celiac disease so influencing of the life I live." So, it made me wonder whether or not you were taking the gluten-free lifestyle seriously. Also, you state you just thought of it as "a simple food allergy . . . " Do you realize the celiac disease is not a food allergy but is an autoimmune disorder that actually damages your body if gluten is not consistently and totally avoided? Do you allow yourself to cheat on the gluten-free diet sometimes? I hope I don't sound critical and judgmental because I don't mean to.

Hi Trents, 

Sorry for not being clearer earlier. What I meant was that since i was diagnosed all I did was stay strictly gluten-free without cheating it and I knew that it caused things such as weight loss and other physical changes to the body. However, until i researched more and started reading these forums I realised that it affects much more than just your digestive system (such as its affects on the nervous system).
I have always stuck to the diet and since I was diagnosed I have only had one or two celiac attacks (both were mistakes made by restaurants which led to cross contaminations).

Thanks

 

trents Grand Master

Thank you for the clarification. 

A couple of other questions.

1. Have you been retested since your diagnosis 10 years ago? This would give an indication of whether or not there has been healing of the villi that line the small bowel and if gluten is somehow getting into your diet despite you efforts to eat gluten free. Studies show that most people who believe they are eating gluten-free are actually eating lower gluten because they are unaware of CC (Cross Contamination) issues. Whether or not you have a full blown "celiac attack" is probably not a good indicator of whether or not you are avoiding CC. There may be a threshold amount of gluten CC that needs to be crossed to create an attack. Do you live in a household where other members are not eating gluten-free? If you have not recently been retested, I would encourage you to get that done.

2. Are you still consuming oats and dairy and soy? These can cause reactions similar to gluten for many celiacs. Perhaps you have other food sensitivities not gluten related. This is very common among celiacs. 

pbzgf Newbie
29 minutes ago, trents said:

Thank you for the clarification. 

A couple of other questions.

1. Have you been retested since your diagnosis 10 years ago? This would give an indication of whether or not there has been healing of the villi that line the small bowel and if gluten is somehow getting into your diet despite you efforts to eat gluten free. Studies show that most people who believe they are eating gluten-free are actually eating lower gluten because they are unaware of CC (Cross Contamination) issues. Whether or not you have a full blown "celiac attack" is probably not a good indicator of whether or not you are avoiding CC. There may be a threshold amount of gluten CC that needs to be crossed to create an attack. Do you live in a household where other members are not eating gluten-free? If you have not recently been retested, I would encourage you to get that done.

2. Are you still consuming oats and dairy and soy? These can cause reactions similar to gluten for many celiacs. Perhaps you have other food sensitivities not gluten related. This is very common among celiacs. 

Thanks for your reply Trents,

I haven't actually had a retest since the diagnosis. That seems like a good idea and will bring it up to my dietician when I visit her in September. Also I live with my parents and siblings non of which are Celiac. However they are all aware of my requirements and understand the severity of CC. 

trents Grand Master

At 5'10" and 137 lbs that can't be too far off of your ideal weight I would think. What do you want to weigh? It can be a challenge for someone your age to gain weight if genetically they are prone to be thin. When I was your age (I am a male) I was 5'8" and 145 lbs, lifted weights, ate a lot but could not gain weight. I may have had celiac disease back then as well but not sure. I am 71 now and have the opposite problem with weight. Time usually takes care of that. If you are otherwise healthy I wouldn't fret too much over not being able to gain weight yet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 months later...
Debbiere Newbie
On 8/29/2022 at 9:55 PM, pbzgf said:

Hello everyone,

I have been Celiac since 2010 ( I was born 2005-so I'm 17 now). 

Current weight: 60kg (132 lbs) current height:177cm (5 foot 10 inches)

I never really thought of celiac disease so influencing of the life I live. Until recently I just thought of it as a simple allergy to food that requires me to be on a specific diet. However, recently I discovered this page and have become more aware of all the affects it can have on my life. Making me realise that many of its affects have been influencing my life without me even realising.

I have recently chosen to start going to the gym, like most teens its to build more muscle as I have always felt somewhat weaker to my classmates and be skinnier then average. However, I know that diet is important and after some research I concluded that a daily intake of 3100 calories and 96 grams of protein are required to build muscle and increase weight when working out 3-4 times a week so I bought some whey protein supplement to facilitate reaching that amount of protein. I have always felt that I eat more than regular people including my family, for example I will always be the one to ask for seconds and eat other snacks more regularly throughout the day.

However, I still feel like I struggle to put on weight and that the progress will be slower due to being Celiac. So below are my questions:

Can anyone with similar experience share advice? How does Celiac disease affect muscle growth and gaining weight? Is it a case of maybe waiting to grow a bit more as I am still quite young? Does Celiac Disease make you more susceptible to injury using it?

 

 

Hi. It seems to me that your age has its influence. If so, then do not stop exercising in the gym - in any case, this will give its results, and you will improve your physical condition and learn how to perform the exercises correctly. And of course, enjoy your exercisies. Good luck!

  • 1 year later...
CatherineWang Apprentice

If you have celiac disease and are experiencing challenges with muscle growth, weight gain, or susceptibility to injury, it's essential to work closely with a healthcare provider and a registered dietitian who specializes in celiac disease and sports nutrition. They can help you develop a personalized nutrition plan to address nutrient deficiencies, optimize caloric intake, and support muscle growth and overall physical health. Additionally, managing celiac disease through a strict gluten-free diet is crucial for reducing inflammation, improving nutrient absorption, and promoting overall well-being.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,834
    • Most Online (within 30 mins)
      7,748

    Lucy20
    Newest Member
    Lucy20
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Manaan2,  I'm so happy to hear you're going to try thiamine and magnesium!  Do let us know the results!   You may want to add a B 50 Complex with two meals of the day to help boost absorption.  Thiamine interacts with each of the other B vitamins which are all water soluble.   When supplementing magnesium, make sure to get sufficient calcium.  Calcium and magnesium need to be kept in balance.  If you choose a calcium supplement, take two hours apart from magnesium as they compete for absorption.  Take Calcium with Vitamin D.  Vitamin D helps calm the immune system.   For pain, I use a combination of thiamine, B12 Cobalamine, and Pyridoxine B6.  These three vitamins together have analgesic effects.  My preferred brand is "GSG 12X Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets".  Alinamin is another form of thiamine.  It really is excellent at relieving my back pain from crushed vertebrae without side effects and no grogginess.   Look into the low histamine version of the Autoimmune Protocol Duet (Dr. Sarah Ballentyne, a Celiac herself, developed it.)  It really helps heal the intestines, too.  It's like a vacation for the digestive system.  Add foods back gradually over several weeks after feeling better.   I'm so happy to have pointed the way on your journey!  Let us know how the journey progresses! P. S. Add a Potassium supplement, too.  Potassium is another electrolyte, like magnessium, that we need.
    • Manaan2
      @knitty kitty I can't thank you enough!  My husband and I already started looking into those supplements.  We definitely plan to give it a try.  We've been against the Miralax since it was originally advised by PCP, but because of the level of pain she experienced on a daily basis, we decided to try it.  We've made many attempts to gradually decrease but due to her pain and related symptoms, we've kept her on it while trying all sorts of other dietary adjustments pre and post diagnosis specific to food; so far none of those efforts have made a significant difference.  I will definitely share how she's doing along the way!
    • BIg Nodge
      Hi, I have recently embarked on the gluten-free journey. I have what to me seems like a somewhat confusing set of test results and symptoms. I have been impressed by the accumulated knowledge and thoughtfulness as I browse this forum, so I figured I'd make a post to see if anyone can offer any insight. I know there are many posts like this from new users, so I have tried to do my baseline research first and not ask super obvious questions.  I'm 43, overall very healthy. No history of gluten sensitivity or really any of the classic GI symptoms. About three years ago I started to experience intermittent bouts of fatigue, chills/cold intolerance, and shortness of breath/air hunger (sometimes feels like a hollowness in my chest, hard to describe). The symptoms over time have become fairly significant, though not debilitating, I am able to exercise regularly and am fairly physically active, continue to perform well at work. But for example I have gone from someone who consistently ran hot, was always cranking the a/c, to someone who wears a down vest inside at work in winter and get chills if the a/c even blows on me in summer. I get tired and lose energy even when getting decent amounts of sleep, and have to have my wife take over on long drives that I could previously handle with no problems. More generally when I am experiencing these symptoms they seem to crowd out space in my mind for focusing on my family, my hobbies/activities etc, I sort of withdraw into myself.   I happened to be experiencing these symptoms during an annual physical with my PCP a few years ago, he observed post nasal drip and suggested it was allergies and that I treat it with claritin. At first it seemed to respond to claritin (though not zyrtex), but over time I became unsatisfied with that answer. There didn't seem to be any seasonal rhyme or reason to my symptoms, and I felt like I was on an endless loop of taking claritin, then stopping, not being sure if it was even making a difference. I did eventually get allergy tests and found modest allergies to dust and pollen, which didn't feel like a smoking gun.  I then started seeing a natural medicine doctor who was much more willing to explore my symptoms via testing. The first thing that came back abnormal was elevated thyroid peroxidase antibodies/TPOs, 137 IU/mL vs a reference range of <9. At the same time my thyroid panel showed normal thyroid hormone levels. So it appears my immune system is attacking my thyroid even though it is working fine. I got a thyroid ultrasound at the time, it was clear, but with some abnormalities such that they suggested I get is scanned again in a year. These are certainly risk factors for a thyroid autoimmune disease, though my thyroid seems to be working fine for now.  From here my doctor considered celiac due to the murky thyroid/celiac links, so we did a panel. Results were as follows: TT IGA <1 U/ml, TT IGG <1 U/ml, deamidated gliadin IGA 24.6 U/ml, deamidated gliadin IGG <1 U/ml, IGAs 170 mg/dL. Readings greater than 15 considered high by my lab for the first four, my IGAs are within reference range. So basically just the deamidated IGA popped, but my IGAs are normal. I also notice on the tests that my thyroglobulin was high, 86.7 ng/ml vs a range of 2.8 - 40.9.  My doctor suggested that it certainly wasn't conclusive for celiac, but it was possible, and likely that I have some sort of gluten sensitivity. She suggested going gluten free and seeing how I felt as opposed to doing a biopsy. The best theory I can come up with is perhaps I am a silent celiac or just have a gluten sensitivity that doesn't produce immediate GI symptoms, but is still doing damage and over time has caused leaky gut. So now gluten is getting into my blood, and my immune system is attacking it but also mistakingly attacking my thyroid.  So that's what I did, went gluten free in October. It's been about four months, and I am really not feeling any difference. I still get the same symptoms that come and go. My bowel movements may be a bit more regular, but it was never a major issue before so I would consider that a minor improvement. I know that it can take a while to see improvements, and I am going to remain gluten-free and see how I feel. But I am definitely questioning whether I really understand what is going on, and am open to any thoughts or suggestions from the forum. Sometimes I wish I just went ahead with the biopsy before going gluten-free. While I would certainly be down to start drinking IPAs again ahead of a biopsy, you know, for science, I feel like at this point I would be throwing away four months of work and am better off staying the course and seeing what happens. But I'm really not sure.  I know there is a lot of thyroid knowledge on these boards, along with the celiac expertise, so I'm curious if this resonates with anyone's experience. And I'm interested in what sort of timelines people have experienced in terms of feeling improvements for some of these non-GI symptoms like chills, SOB, brain fog etc. Thanks in advance. 
    • cameo674
      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
    • Scott Adams
      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
×
×
  • Create New...