Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gaining Weight and working out

pbzgf

By pbzgf
in Sports and Fitness

 Share

Recommended Posts

pbzgf Newbie
pbzgf
Posted

Hello everyone,

I have been Celiac since 2010 ( I was born 2005-so I'm 17 now). 

Current weight: 60kg (132 lbs) current height:177cm (5 foot 10 inches)

I never really thought of celiac disease so influencing of the life I live. Until recently I just thought of it as a simple allergy to food that requires me to be on a specific diet. However, recently I discovered this page and have become more aware of all the affects it can have on my life. Making me realise that many of its affects have been influencing my life without me even realising.

I have recently chosen to start going to the gym, like most teens its to build more muscle as I have always felt somewhat weaker to my classmates and be skinnier then average. However, I know that diet is important and after some research I concluded that a daily intake of 3100 calories and 96 grams of protein are required to build muscle and increase weight when working out 3-4 times a week so I bought some whey protein supplement to facilitate reaching that amount of protein. I have always felt that I eat more than regular people including my family, for example I will always be the one to ask for seconds and eat other snacks more regularly throughout the day.

However, I still feel like I struggle to put on weight and that the progress will be slower due to being Celiac. So below are my questions:

Can anyone with similar experience share advice? How does Celiac disease affect muscle growth and gaining weight? Is it a case of maybe waiting to grow a bit more as I am still quite young? Does Celiac Disease make you more susceptible to injury?

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wheatwacked Veteran
Wheatwacked
Posted

At last you're here now. Get lots of vitamin D. The plasma level of healthy lifeguards is around 70 ng/ml at the end of summer. Get it tested if you can. Eat foods with potassium. In the US the recommend daily amount is 4700 grams per day or more. If you eat 5 grams of potassium (not supplements) a day it is easy to keep track and you'll be eating foods that also have most of the other vitamins and minerals.

Seventeen year olds grow up fine even without gluten don't let anyone tell you different.

trents Grand Master
trents
Posted

Welcome to the forum, pbzgf!

Are you making a conscientious effort to eat gluten-free? You don't really say that in your first post but you did say, "I never really thought of celiac disease so influencing of the life I live." So, it made me wonder whether or not you were taking the gluten-free lifestyle seriously. Also, you state you just thought of it as "a simple food allergy . . . " Do you realize the celiac disease is not a food allergy but is an autoimmune disorder that actually damages your body if gluten is not consistently and totally avoided? Do you allow yourself to cheat on the gluten-free diet sometimes? I hope I don't sound critical and judgmental because I don't mean to.

pbzgf Newbie
pbzgf
Posted
  • Author
30 minutes ago, trents said:

Welcome to the forum, pbzgf!

Are you making a conscientious effort to eat gluten-free? You don't really say that in your first post but you did say, "I never really thought of celiac disease so influencing of the life I live." So, it made me wonder whether or not you were taking the gluten-free lifestyle seriously. Also, you state you just thought of it as "a simple food allergy . . . " Do you realize the celiac disease is not a food allergy but is an autoimmune disorder that actually damages your body if gluten is not consistently and totally avoided? Do you allow yourself to cheat on the gluten-free diet sometimes? I hope I don't sound critical and judgmental because I don't mean to.

Hi Trents, 

Sorry for not being clearer earlier. What I meant was that since i was diagnosed all I did was stay strictly gluten-free without cheating it and I knew that it caused things such as weight loss and other physical changes to the body. However, until i researched more and started reading these forums I realised that it affects much more than just your digestive system (such as its affects on the nervous system).
I have always stuck to the diet and since I was diagnosed I have only had one or two celiac attacks (both were mistakes made by restaurants which led to cross contaminations).

Thanks

 

trents Grand Master
trents
Posted

Thank you for the clarification. 

A couple of other questions.

1. Have you been retested since your diagnosis 10 years ago? This would give an indication of whether or not there has been healing of the villi that line the small bowel and if gluten is somehow getting into your diet despite you efforts to eat gluten free. Studies show that most people who believe they are eating gluten-free are actually eating lower gluten because they are unaware of CC (Cross Contamination) issues. Whether or not you have a full blown "celiac attack" is probably not a good indicator of whether or not you are avoiding CC. There may be a threshold amount of gluten CC that needs to be crossed to create an attack. Do you live in a household where other members are not eating gluten-free? If you have not recently been retested, I would encourage you to get that done.

2. Are you still consuming oats and dairy and soy? These can cause reactions similar to gluten for many celiacs. Perhaps you have other food sensitivities not gluten related. This is very common among celiacs. 

pbzgf Newbie
pbzgf
Posted
  • Author
29 minutes ago, trents said:

Thank you for the clarification. 

A couple of other questions.

1. Have you been retested since your diagnosis 10 years ago? This would give an indication of whether or not there has been healing of the villi that line the small bowel and if gluten is somehow getting into your diet despite you efforts to eat gluten free. Studies show that most people who believe they are eating gluten-free are actually eating lower gluten because they are unaware of CC (Cross Contamination) issues. Whether or not you have a full blown "celiac attack" is probably not a good indicator of whether or not you are avoiding CC. There may be a threshold amount of gluten CC that needs to be crossed to create an attack. Do you live in a household where other members are not eating gluten-free? If you have not recently been retested, I would encourage you to get that done.

2. Are you still consuming oats and dairy and soy? These can cause reactions similar to gluten for many celiacs. Perhaps you have other food sensitivities not gluten related. This is very common among celiacs. 

Thanks for your reply Trents,

I haven't actually had a retest since the diagnosis. That seems like a good idea and will bring it up to my dietician when I visit her in September. Also I live with my parents and siblings non of which are Celiac. However they are all aware of my requirements and understand the severity of CC. 

trents Grand Master
trents
Posted

At 5'10" and 137 lbs that can't be too far off of your ideal weight I would think. What do you want to weigh? It can be a challenge for someone your age to gain weight if genetically they are prone to be thin. When I was your age (I am a male) I was 5'8" and 145 lbs, lifted weights, ate a lot but could not gain weight. I may have had celiac disease back then as well but not sure. I am 71 now and have the opposite problem with weight. Time usually takes care of that. If you are otherwise healthy I wouldn't fret too much over not being able to gain weight yet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 months later...
Debbiere Newbie
Debbiere
Posted
On 8/29/2022 at 9:55 PM, pbzgf said:

Hello everyone,

I have been Celiac since 2010 ( I was born 2005-so I'm 17 now). 

Current weight: 60kg (132 lbs) current height:177cm (5 foot 10 inches)

I never really thought of celiac disease so influencing of the life I live. Until recently I just thought of it as a simple allergy to food that requires me to be on a specific diet. However, recently I discovered this page and have become more aware of all the affects it can have on my life. Making me realise that many of its affects have been influencing my life without me even realising.

I have recently chosen to start going to the gym, like most teens its to build more muscle as I have always felt somewhat weaker to my classmates and be skinnier then average. However, I know that diet is important and after some research I concluded that a daily intake of 3100 calories and 96 grams of protein are required to build muscle and increase weight when working out 3-4 times a week so I bought some whey protein supplement to facilitate reaching that amount of protein. I have always felt that I eat more than regular people including my family, for example I will always be the one to ask for seconds and eat other snacks more regularly throughout the day.

However, I still feel like I struggle to put on weight and that the progress will be slower due to being Celiac. So below are my questions:

Can anyone with similar experience share advice? How does Celiac disease affect muscle growth and gaining weight? Is it a case of maybe waiting to grow a bit more as I am still quite young? Does Celiac Disease make you more susceptible to injury using it?

 

 

Hi. It seems to me that your age has its influence. If so, then do not stop exercising in the gym - in any case, this will give its results, and you will improve your physical condition and learn how to perform the exercises correctly. And of course, enjoy your exercisies. Good luck!

  • 1 year later...
CatherineWang Apprentice
CatherineWang
Posted

If you have celiac disease and are experiencing challenges with muscle growth, weight gain, or susceptibility to injury, it's essential to work closely with a healthcare provider and a registered dietitian who specializes in celiac disease and sports nutrition. They can help you develop a personalized nutrition plan to address nutrient deficiencies, optimize caloric intake, and support muscle growth and overall physical health. Additionally, managing celiac disease through a strict gluten-free diet is crucial for reducing inflammation, improving nutrient absorption, and promoting overall well-being.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,875
    • Most Online (within 30 mins)
      7,748
    Nancy Robinson
    Newest Member
    Nancy Robinson
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      How long after being diagnosed with Celiac do you feel better?

      By trents · Posted

      Thanks for sharing, Karen. Certainly a needed reminder what we already knew (and I've posted many times on this forum) but sometimes forget, namely, autoimmune disorders tend to cluster. Where one is found, you can look for others to show up eventually. The thing that is unusual in your son's case is the onset of several of them at such a young age. My sister in law, who is in her early 60's has Crohn's and struggles with constipation so I don't think that is unusual with Crohn's. If nothing else, it's the outcome of not eating much because of the pain. Now that you know what is going on with your son and the Crohn's, we hope he is beginning to improve.
    • Nathan.
      How long after being diagnosed with Celiac do you feel better?

      By Nathan. · Posted

      Hi there. My son is turning 16 this month. He had an endoscopy and biopsy to confirm celiac. He went gluten-free and his pain never got any better. I think it got worse. Months went by. The pain started around 7th grade. He missed a lot of school in 8th grade, and a whole lot in 9th grade. He couldn't go to school in 10th grade. All along the gastroenterologist prescribed Hyoscyamine, didn't help at all. Cyproheptadine, no less pain. Peppermint oil, ginger, Miralax, Senna. Doc said he was constipated, but I couldn't get him to have Miralax daily. Eventually he went on Linzess and no senna or Miralax. Sorry this is long, there will be a point.  We gave his school not just a doctors not, but everything, and U of M makes a lot of notes. They still turned us in for Truancy.  I didn't get him enrolled in online school fast enough.  The school would not recommend an online school and i didn't know which one to choose.  Doc thought it was nerve pain and mental. He recommended the u of m my pain program.  Nathan did so good, 3 days a week supposed to be for 4 weeks.  Never missed, always on time.   After two weeks, they discharged him. Said it was not  benefitting him.  Pain went on. I had been asking if there were any other test they could do. Ultrasound, colonoscopy. Doc said we can do it, but I don't think we'll find anything.  Finally he had a colonoscopy and another endoscopy.  Guess what, they did find something. They found a ton of tiny ulcers everywhere, from the esophagus to his rectum. They think Crohn's. I understand they didn't check for that because he was more constipated, not much diarrhea. He is getting an MRI with contrast on Sunday. Also they want him to do a cal-protectin (give a poop sample). Then an appointment on the 16th to talk about treatment. Then the probation officer on the 17th. In the meantime he is taking Budesonide extended release.  $276.00 for 30 pills, and that's with insurance. Also he was diagnosed with hyperthyroidism, Graves disease a few months ago. If it is for sure Crohn's,  it will be three autoimmune diseases. If someone is gluten-free for a month or more, and the pain is no better, don't stop looking. I was beside myself. Did they think he was exaggerating, lying? I was considering taking him to a holistic doctor, who would probably recommend Peppermint oil and ginger.  He's such a good kid. Kind of an introvert. He was on the 9th grade soccer team. He would try to go to practice and kept having to stop, the pain was that bad. Every time he ate, it didn't matter what, gluten-free chicken tenders, mac and cheese, pizza, ice cream, all gluten-free, he would eat a normal amount but stop and say, I can't eat anymore, my stomach hurts.  If anyone reads all this, thank you. I had a gut feeling, no pun intended, that he had an additional problem. They found celiac and stopped looking. If you don't feel better, keep on your doctor to check further, keep looking.   Take care, Karen  
    • Scott Adams
      Recent blood test results check in - TTG- IGA

      By Scott Adams · Posted

      Most likely cross-contamination I believe.
    • cristiana
      How long after being diagnosed with Celiac do you feel better?

      By cristiana · Posted

      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase at diagnosis. Once established on a gluten free diet, the gut is able to heal and lactose digestion returns to normal. Lactose intolerance is therefore usually temporary." So if this helps your daughter, this doesn't mean you have to give up lactose forever, especially as dairy is such a good source of calcium for growing kids.   Bear in mind you should be able to reintroduce it. As for fatigue, this can be due to vitamin and mineral deficiencies,such as iron, vitamin D and B12.  Were these levels tested?  If not, I would suggest you get them done.  If your daughter is deficient in these, it is vital you address the deficiencies, and get the tests redone in a few months, particularly the iron, because too much can be dangerous.
    • knitty kitty
      Inhaler problem

      By knitty kitty · Posted

      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...