Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is Your Most Annoying Symptom?


erin24

Recommended Posts

erin24 Explorer

I was just thinking...what is everyone's most annoying symptom/side effect of celiac? (fatigue, bloating, C, D, etc). I was just wondering if other people were just as annoyed with their bloating as me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 98
  • Created
  • Last Reply
dlp252 Apprentice

Dizziness. I'll be sitting here at my desk and all of a sudden feel like I'm going to fall out of my chair.

The second most annoying is the diarrhea.

VydorScope Proficient

I was gonan aswer this.. but I just cant think straight right now.....

Guhlia Rising Star

Definitely the major fatigue. When I get glutened I have to take a nap every day for usually about a week. I can't get out of bed in the morning. My two year old runs circles around me. The fatigue is definitely the worst for me.

jams Explorer

My left temple twitches for about a week. It is very obnoxious!

My second thing is my stomach gurguling. I just don't like that feeling. That lasts for a few days too.

Moongirl Community Regular

Bloating! I might as well be pregnant....im 5'3 about 105, then there is this huge belly, picture that now...lol

Then the uncomfortableness of the gut, yuck!

erin24 Explorer
Bloating! I might as well be pregnant....im 5'3 about 105, then there is this huge belly, picture that now...lol

Then the uncomfortableness of the gut, yuck!

Moongirl,

Me too. While I am not as petite as you, I look pregnant. Does your bloating come and go or (before you went gluten-free) were you always bloated?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

The most annoying to me are--

Fatigue--it is still hanging on despite enough and better sleep

Low abdominal cramping--especially after "going" in the morning (or whenever ;) )

Bloating--I start out ok in the AM, but my midsection gets bigger as the day goes on

aaascr Apprentice

Bloating, D, and itchy itchy rashes are all up there, but so is the fatigue - I

play on several soccer teams and hate when

I can't contribute... :angry:

penguin Community Regular
I was gonan aswer this.. but I just cant think straight right now.....

EXACTLY!

My face going numb and having the rest of my head on the ceiling is really annoying, especially at work. DH doesn't appreciate it either, my attention span goes from zero to negative...

The D is pretty annoying also, nothing like abandoning your cart a half hour into your wal-mart trip to ruin your day. And stinking up the place. Luckily Target has mini Oust air freshener so that I can do that public service of decontaminating the bathroom :ph34r: ...

StrongerToday Enthusiast

Mine is the D or always worring about it.

cgilsing Enthusiast

Bloating/cramps - It goes on for days and I look pregnant! (when I'm not) I've actually had strangers ask when I'm due! :blink: That's an akward moment! Now that I am actually pregnant if I get bloated there is even less room in there and it's really painful. :(

I don't have constant cramps, but they can strike at any moment for no reason - in the grocery store, at work, in the car......it's never when I'm at home and close to my own bathroom! :angry:

It wouldn't be so bad if it was just for a day...but it lasts upwards of a week!

aikiducky Apprentice

My GI symptoms aren't all that bad really (or I don't mind them so much) but the BRAIN FOG :blink: and fatigue are really annoying!

The most annoying symptom though is that I get very depressed when I get glutened, and that makes dealing with all the other symptoms so much harder. I mean, then I end up being depressed about being tired, and bloated, and so on...and I hate knowing that life doesn't feel like any fun due to a stupid gluten molecule, and not because my life actually sucks, because it doesn't.

Congratulations to anyone who understood the above sentence! You have been now officially diagnosed as having NO brainfog at this moment! :lol:

Pauliina

francelajoie Explorer

Gas..pretty much the only symptom I have.

Guest cassidy

brain fog, anxiety and irritability, all that bothers me much more than the intestinal symptoms

Estelle Newbie

Definitely the pain. I'm a tiny person but if I accidentally eat gluten *curses all the restaurants promising the meal I odered is gluten-free*, my belly balloons to a size of a house and is pretty #%!**@# painful. Not nice. As a result-crankiness and fatigue. :(

Nantzie Collaborator

EXTREMELY FOUL GAS and unpredictable, immediate DIARRHEA.

It meant that I couldn't GO anywhere. I couldn't go to the store, to the bank, to people's houses. There were even a couple funerals I missed and that family still doesn't know why I missed.

The worst though was when my dad was sick and after he died, I couldn't even go to church because the gas was so bad, and almost constant. There was NO WAY I could go to church like that. That was the worst because I had lost so much, and I couldn't even have that.

Other than that, my back was in so much pain, I could barely walk. Which even further dimished my ability to do anything other than sit on my booty.

Since going gluten-free though, even when I get glutened I really don't have a problem with gas, diarrhea or back pain.

So now, if I get glutened I get REALLY cranky and get a headache. But that's just from cross contamination or forgetting to read a label. I haven't cheated since going gluten-free, so I don't know what would happen if I actually ATE something gluten.

My husband and best friend would both agree that CRANKY is my most irritating symptom. :lol:

B)

Nancy

MallysMama Explorer

My worst symptom (and sometimes ONLY symptom) would be the gas! It comes usually in the evening/night and ruins any romantic time with my hubby. I think he'd say that was my worst symptom too - I'm never "in the mood" because I'm afraid of the noises my tummy's going to make. :D

anerissara Enthusiast

I'd have to say the D and bloating are the worst, however brain fog drives me nuts, being tired all the time isn't fun, the itchy rash I get is miserable, and the low cramping is crummy. Come to think of it, the whole thing pretty much stinks!

MattUK Newbie

Brain fog which is so depressing as i am a writer. Then the tiredness.

Guest BERNESES

this is a great question! For me I would say the mood swings and the NAUSEA. I get so nauseous I can't do anything. And it's not "normal' nausea- it's some foul mutation. UGH!

VegasCeliacBuckeye Collaborator

Gas and my non-stop general sense of malaize....

I also dislike having to explain this disease to EVERY person I meet.

mmaccartney Explorer

For me the pain is close to unbearable (I'm a lucky micro sensitive person!), however the most annoying is the nausea and belching. Not the actual act of belching, but the most retched, foul, rotten smell and taste that comes with the belching, and lasts around 7 hours (which has actually triggered vomiting).

I'll take every other symptom of mine over that!

Lisa Mentor

My most annoying symptom is when my husband askes me in the morning if I want a biscuit from McDonalds, then says...."oh I forgot". <_<

mookie03 Contributor

I'm with you Nantzie, no question about it, those emissions are THE WORST! :ph34r: Enough to make u never want to mess up on the diet, huh? :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,109
    • Most Online (within 30 mins)
      7,748

    Kathy001
    Newest Member
    Kathy001
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.