Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is Your Most Annoying Symptom?

erin24

By erin24
in Coping with Celiac Disease

Recommended Posts

erin24 Explorer
erin24
Posted

I was just thinking...what is everyone's most annoying symptom/side effect of celiac? (fatigue, bloating, C, D, etc). I was just wondering if other people were just as annoyed with their bloating as me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 98
  • Created
  • Last Reply
dlp252 Apprentice
dlp252
Posted

Dizziness. I'll be sitting here at my desk and all of a sudden feel like I'm going to fall out of my chair.

The second most annoying is the diarrhea.

VydorScope Proficient
VydorScope
Posted

I was gonan aswer this.. but I just cant think straight right now.....

Guhlia Rising Star
Guhlia
Posted

Definitely the major fatigue. When I get glutened I have to take a nap every day for usually about a week. I can't get out of bed in the morning. My two year old runs circles around me. The fatigue is definitely the worst for me.

jams Explorer
jams
Posted

My left temple twitches for about a week. It is very obnoxious!

My second thing is my stomach gurguling. I just don't like that feeling. That lasts for a few days too.

Moongirl Community Regular
Moongirl
Posted

Bloating! I might as well be pregnant....im 5'3 about 105, then there is this huge belly, picture that now...lol

Then the uncomfortableness of the gut, yuck!

erin24 Explorer
erin24
Posted
  • Author
Bloating! I might as well be pregnant....im 5'3 about 105, then there is this huge belly, picture that now...lol

Then the uncomfortableness of the gut, yuck!

Moongirl,

Me too. While I am not as petite as you, I look pregnant. Does your bloating come and go or (before you went gluten-free) were you always bloated?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

The most annoying to me are--

Fatigue--it is still hanging on despite enough and better sleep

Low abdominal cramping--especially after "going" in the morning (or whenever ;) )

Bloating--I start out ok in the AM, but my midsection gets bigger as the day goes on

aaascr Apprentice
aaascr
Posted

Bloating, D, and itchy itchy rashes are all up there, but so is the fatigue - I

play on several soccer teams and hate when

I can't contribute... :angry:

penguin Community Regular
penguin
Posted
I was gonan aswer this.. but I just cant think straight right now.....

EXACTLY!

My face going numb and having the rest of my head on the ceiling is really annoying, especially at work. DH doesn't appreciate it either, my attention span goes from zero to negative...

The D is pretty annoying also, nothing like abandoning your cart a half hour into your wal-mart trip to ruin your day. And stinking up the place. Luckily Target has mini Oust air freshener so that I can do that public service of decontaminating the bathroom :ph34r: ...

StrongerToday Enthusiast
StrongerToday
Posted

Mine is the D or always worring about it.

cgilsing Enthusiast
cgilsing
Posted

Bloating/cramps - It goes on for days and I look pregnant! (when I'm not) I've actually had strangers ask when I'm due! :blink: That's an akward moment! Now that I am actually pregnant if I get bloated there is even less room in there and it's really painful. :(

I don't have constant cramps, but they can strike at any moment for no reason - in the grocery store, at work, in the car......it's never when I'm at home and close to my own bathroom! :angry:

It wouldn't be so bad if it was just for a day...but it lasts upwards of a week!

aikiducky Apprentice
aikiducky
Posted

My GI symptoms aren't all that bad really (or I don't mind them so much) but the BRAIN FOG :blink: and fatigue are really annoying!

The most annoying symptom though is that I get very depressed when I get glutened, and that makes dealing with all the other symptoms so much harder. I mean, then I end up being depressed about being tired, and bloated, and so on...and I hate knowing that life doesn't feel like any fun due to a stupid gluten molecule, and not because my life actually sucks, because it doesn't.

Congratulations to anyone who understood the above sentence! You have been now officially diagnosed as having NO brainfog at this moment! :lol:

Pauliina

francelajoie Explorer
francelajoie
Posted

Gas..pretty much the only symptom I have.

Guest cassidy
Guest cassidy
Posted

brain fog, anxiety and irritability, all that bothers me much more than the intestinal symptoms

Estelle Newbie
Estelle
Posted

Definitely the pain. I'm a tiny person but if I accidentally eat gluten *curses all the restaurants promising the meal I odered is gluten-free*, my belly balloons to a size of a house and is pretty #%!**@# painful. Not nice. As a result-crankiness and fatigue. :(

Nantzie Collaborator
Nantzie
Posted

EXTREMELY FOUL GAS and unpredictable, immediate DIARRHEA.

It meant that I couldn't GO anywhere. I couldn't go to the store, to the bank, to people's houses. There were even a couple funerals I missed and that family still doesn't know why I missed.

The worst though was when my dad was sick and after he died, I couldn't even go to church because the gas was so bad, and almost constant. There was NO WAY I could go to church like that. That was the worst because I had lost so much, and I couldn't even have that.

Other than that, my back was in so much pain, I could barely walk. Which even further dimished my ability to do anything other than sit on my booty.

Since going gluten-free though, even when I get glutened I really don't have a problem with gas, diarrhea or back pain.

So now, if I get glutened I get REALLY cranky and get a headache. But that's just from cross contamination or forgetting to read a label. I haven't cheated since going gluten-free, so I don't know what would happen if I actually ATE something gluten.

My husband and best friend would both agree that CRANKY is my most irritating symptom. :lol:

B)

Nancy

MallysMama Explorer
MallysMama
Posted

My worst symptom (and sometimes ONLY symptom) would be the gas! It comes usually in the evening/night and ruins any romantic time with my hubby. I think he'd say that was my worst symptom too - I'm never "in the mood" because I'm afraid of the noises my tummy's going to make. :D

anerissara Enthusiast
anerissara
Posted

I'd have to say the D and bloating are the worst, however brain fog drives me nuts, being tired all the time isn't fun, the itchy rash I get is miserable, and the low cramping is crummy. Come to think of it, the whole thing pretty much stinks!

MattUK Newbie
MattUK
Posted

Brain fog which is so depressing as i am a writer. Then the tiredness.

Guest BERNESES
Guest BERNESES
Posted

this is a great question! For me I would say the mood swings and the NAUSEA. I get so nauseous I can't do anything. And it's not "normal' nausea- it's some foul mutation. UGH!

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Gas and my non-stop general sense of malaize....

I also dislike having to explain this disease to EVERY person I meet.

mmaccartney Explorer
mmaccartney
Posted

For me the pain is close to unbearable (I'm a lucky micro sensitive person!), however the most annoying is the nausea and belching. Not the actual act of belching, but the most retched, foul, rotten smell and taste that comes with the belching, and lasts around 7 hours (which has actually triggered vomiting).

I'll take every other symptom of mine over that!

Lisa Mentor
Lisa
Posted

My most annoying symptom is when my husband askes me in the morning if I want a biscuit from McDonalds, then says...."oh I forgot". <_<

mookie03 Contributor
mookie03
Posted

I'm with you Nantzie, no question about it, those emissions are THE WORST! :ph34r: Enough to make u never want to mess up on the diet, huh? :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    2. HAUS
      - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free...
    3. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

      Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
    4. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    5. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,432
    • Most Online (within 30 mins)
      7,748
    Betty Alex
    Newest Member
    Betty Alex
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.