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Seronegative Celiac

AutumnSky
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AutumnSky Rookie
AutumnSky
Posted

Hello I'm new here. 

I am seronegative celiac. It runs in the family. My father carries two variants of the gene but I only have one. My grandmother had celiac as does My brother. 

My most recent EGD and colonoscopy showed intraepithelial lymphocytosis last December. But since the tests came back negative the doctor was unwilling to call it celiac. Now is still have the lymphocytosis, elevated liver enzymes, and b12 deficiency and completely dairy/lactose intolerant. A new GI has decided that I meet the requirements for seronegative celiac and MARSH lvl 1. 

Anyways, I am trying to go gluten free. It's hard. But I need to stick with this. I'm on day three. I hope I can start feeling well soon. 

 

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trents Grand Master
trents
Posted
17 minutes ago, AutumnSky said:

Hello I'm new here. 

I am seronegative celiac. It runs in the family. My father carries two variants of the gene but I only have one. My grandmother had celiac as does My brother. 

My most recent EGD and colonoscopy showed intraepithelial lymphocytosis last December. But since the tests came back negative the doctor was unwilling to call it celiac. Now is still have the lymphocytosis, elevated liver enzymes, and b12 deficiency and completely dairy/lactose intolerant. A new GI has decided that I meet the requirements for seronegative celiac and MARSH lvl 1. 

Anyways, I am trying to go gluten free. It's hard. But I need to stick with this. I'm on day three. I hope I can start feeling well soon. 

 

Thanks for sharing this. We have scattered reports here and there of seronegative celiac disease coupled with negative biopsies. But it is a real thing and your report helps confirm that.

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Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum, and this article may be helpful:

 

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