Benefits are national but different Drs and health trusts interpret them differently unfortunately. Those diagnosed are supposed to get an annual review, Dexa scans every 2/3 years (one on diagnosis) , annual blood tests to check for vit deficiency etc. But very few seem to get these !    Advice from gastroenterologist:   I suggest monitor if she is asymptomatic, Unfortunately I can not see gastroscopy report, i hope biopsies were taken from D2 and D1. She may also try Gluten free diet for 4-6 weeks and recheck TTG to see if normalise. /—   I know 4 biopsies were taken from D2 in 2021.  I have contacted my private health care provider requesting a referral to gastroenterologist. I’m fed up being monitored! Also worried that if I do have celiac disease I’m damaging my gut and raising risk of cancers which freaks me out !   

I had a couple of friends who after a course of antibiotics were struggling to eat much. The anti biotucs can kill off alit of your gut bacteria and it took quite some time to build these up again but after a year or so they could eat normally again.

Welcome to the forum, @Patrick-Tyler! I think most of us are at least a little nervous about eating at fast food restaurants, even McDonalds, who claims to offer gluten-free fries.  What does that mean? Only that gluten is not an intentional ingredient or does it also mean the fries are cooked in a dedicated frier? This has long been a question kicked around by our community and I'm not sure anyone has ever found a clear answer. I wounder what kind of an answer you would get if you went to a particular McDonalds and asked the manager, "Do you cook your fries in a dedicated frier or are other food products cooked in the same frier that you use to cook your fries?"  Personally, I have eaten fries and meat patties (I take my own gluten free bread or just eat it as a lettuce wrap) at McDonalds quite a few times over the past 20 years since my dx without any discernable gluten reaction. But I am not a particularly sensitive celiac so what I get away with may not be safe for every celiac.

Hai Community, I have doubt on  McDonald's? even it is dedicated to fryers and added gluten-free buns, I’d still be nervous about ordering there for my daughter who has celiac. Anyone else feel uneasy about trusting fast food places with cross-contamination? Would love to hear if anyone’s had good (or bad) experiences with gluten-free options at McDonald's or other fast-food restaurants. Thank You...

I got my dna test back and here are the results:  HLA-DQA1, ALLELE 1 Value 01:02 HLA-DQA1, ALLELE 2 Value 02:01 HLA-DQB1, ALLELE 1 Value 02:02 HLA-DQB1, ALLELE 2 Value 06:02 I had a CT scan, which nothing was found except for a large bowel fecal mass, which doesn’t surprise me because I get super constipated and my GI track doesn’t seem to push anything out.  Stuff just sits in my rectum hanging there…  My blood labs for celiac were negative, but I’ve also been gluten-free since May 2024. Here are my symptoms and why I was getting tested for gluten intolerance or celiac:  Chronic constipation, bowel not active, brain fog, language issues, finding my words, memory issues, brain feels like it’s on fire sometimes, adhd, depression, anxiety, dry mouth, mouth sores, skin lesions/sores that went away with gluten-free diet, dry eyes, joint pain and cracking, chronic fatigue (debilitating physical fatigue- not wanting to move anywhere), graphical tongue, breast tenderness, vitamin B12 and D deficiencies (while not on gluten-free diet), gas that would clear a room, leg and ankle feel like they are heavy or retaining water/painful when walking, acne, brittle nails, night sweats and horrible heart palpitations My GI doc said to do the gluten challenge, but honestly, I’m scared to go through it.  Many of these symptoms have cleared up after gluten-free.  Most noticeable is joint cracking has gone way down, mouth is not as chronically dry, my fatigue is better, graphic tongue is gone (I’ve had this my whole entire life!), vitamin levels are stabilizing, no more horrible smelly gas, my cuticles look much better.   I’m just not sure if it’s worth the true diagnosis and going through it all.   Thoughts???