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increased insulin dosage after gluten free diet?

Flaco

By Flaco
in Related Issues & Disorders

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Flaco Rookie
Flaco
Posted

Haven't asked my doc yet, but wondering if anyone has had this experience.  I'm 70, a type 1 diabetic for 25 years, and after going gluten free for 6 weeks, I have had to increase my insulin dosage.  Makes me wonder if there is a connection.  My daily nausea is gone and so is the knee joint pain and ear itch.  But my blood sugar numbers have been running higher.  Now that my body is getting the nutrients, could that be why in need more insulin?  The only change in diet is to be gluten free.  Thanks.. 

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trents Grand Master
trents
Posted

Dennis, most gluten-free processed foods are high in carbs, lower in fiber and practically devoid of nutrition. gluten-free flours are not required to be enriched with vitamins and minerals as are their gluten counterparts. I'm wondering if this may be the issue. I also think that people with undiagnosed celiac disease may be instinctively cutting back on carbs from wheat-based foods and then up their carbs after diagnosis with celiac disease since they now have "safe" breads and snacks.

Flaco Rookie
Flaco
Posted
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10 minutes ago, trents said:

Dennis, most gluten-free processed foods are high in carbs, lower in fiber and practically devoid of nutrition. gluten-free flours are not required to be enriched with vitamins and minerals as are their gluten counterparts. I'm wondering if this may be the issue. I also think that people with undiagnosed celiac disease may be instinctively cutting back on carbs from wheat-based foods and then up their carbs after diagnosis with celiac disease since they now have "safe" breads and snacks.

Thanks.  Your reply makes sense to me.  I've noticed that some gluten-free breads are very high in carbs and I dose accordingly.   As you probably know, blood sugar can be affected by things other than food, like stress.  And, it has been a bit stressful with the life style changes required by going gluten free.  Like eating at a restaurant, or not eating out.  My wife is unfairly along for the ride and our restaurant activities have been reduced.  That in itself bothers me and causes a bit of anxiety. 

trents Grand Master
trents
Posted
6 minutes ago, dennis yoder said:

Thanks.  Your reply makes sense to me.  I've noticed that some gluten-free breads are very high in carbs and I dose accordingly.   As you probably know, blood sugar can be affected by things other than food, like stress.  And, it has been a bit stressful with the life style changes required by going gluten free.  Like eating at a restaurant, or not eating out.  My wife is unfairly along for the ride and our restaurant activities have been reduced.  That in itself bothers me and causes a bit of anxiety. 

I understand. It's a big adjustment. But eventually it becomes the new norm.

Tracy414 Explorer
Tracy414
Posted
2 hours ago, dennis yoder said:

Haven't asked my doc yet, but wondering if anyone has had this experience.  I'm 70, a type 1 diabetic for 25 years, and after going gluten free for 6 weeks, I have had to increase my insulin dosage.  Makes me wonder if there is a connection.  My daily nausea is gone and so is the knee joint pain and ear itch.  But my blood sugar numbers have been running higher.  Now that my body is getting the nutrients, could that be why in need more insulin?  The only change in diet is to be gluten free.  Thanks.. 

I have a strange question. Can you tell me more about your ear itch? I ask because I started having itchy ear around the time a bunch of my other symptoms started. Just curious if it’s the same “itch” if you will! All my labs were negative for celiac, but I feel 99% better not eating gluten!! 

Flaco Rookie
Flaco
Posted
  • Author
10 minutes ago, Tracy414 said:

I have a strange question. Can you tell me more about your ear itch? I ask because I started having itchy ear around the time a bunch of my other symptoms started. Just curious if it’s the same “itch” if you will! All my labs were negative for celiac, but I feel 99% better not eating gluten!! 

Yeah, both ears itched.  Just inside the ear canal.  About 18 months ago my ENT doc thought it was due to our dry climate and he suggested Pro Ear ear drops.  It helped, but now that I have about 6 weeks of gluten free, it's all but gone.  I feel fortunate that the gluten-free diet is making me feel better. 

Tracy414 Explorer
Tracy414
Posted
13 minutes ago, dennis yoder said:

Yeah, both ears itched.  Just inside the ear canal.  About 18 months ago my ENT doc thought it was due to our dry climate and he suggested Pro Ear ear drops.  It helped, but now that I have about 6 weeks of gluten free, it's all but gone.  I feel fortunate that the gluten-free diet is making me feel better. 

Mine was more on the top part of my ear, but it was intense and has also significantly improved since eliminating gluten. So interesting! Glad you’re feeling better

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Beverley Ann Johnson Contributor
Beverley Ann Johnson
Posted
On 9/27/2022 at 4:00 PM, Tracy414 said:

Mine was more on the top part of my ear, but it was intense and has also significantly improved since eliminating gluten. So interesting! Glad you’re feeling better

I had itchy inner ears as well.  It was very bothersome and now I realize it is gone, gluten free since April.  No more vertigo, itchy ears, nausea, brain fog, stomach issues, bloating and lower left intestinal pain.  A whole lot less pain in general.

 

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    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

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    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
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