Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  1. Grlybrainiac

    Grlybrainiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,133
    • Most Online (within 30 mins)
      7,748

    Tanushka
    Newest Member
    Tanushka
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Stuartpope
      Thank you for the input. We go back to the GI doctor in June- she wants to do more labs to check vitamin levels( not sure why the didn't check all at once with the iron being so low) and recheck inflammatory levels. Just trying to find him some relief in the meantime.
    • trents
      Welcome to the forum, @Stuartpope! With Marsh 3b damage to the villous lining of the small bowel, your son is likely deficient in a number of vitamin and minerals due to poor absorption, not just iron. B12 and all the other B vitamins are likely low. I would suggest looking into a high quality gluten-free B complex, D3, magnesium glycinate (the form of magnesium is important) and zinc. A children's multivitamin likely will not be potent enough. We commonly recommend this combo of vitamins and minerals to new celiacs as adults. Thing is, you would want to consult with a pediatrician about dosage because of his young age. In time, with the gluten-free diet his villi will rebound but he may need a kick start right now with some high potency supplements.
    • Stuartpope
      Hey yall!  New Celiac mama trying to help my son! My 3 year old was just diagnosed with Marsh 3b by a biopsy. We started this journey due to him being severely anemic (ferritin levels 1.2) He has had  3 iron infusions to help with the anemia. He has also been gluten free for a month. He is still having leg/ joint pain( he described a burning/ hurting) Im trying to help with his leg pain. He has trouble playing ( spending most days on the couch) He tells me 5/6X a day that his legs are hurting. Gets worse when walking or  playing. We have done OTC pain meds/ heating pad/ warm baths. What else can I do to help him be a kid.     Thanks for the help 
    • trents
      Not sure about the state of my osteopenia. I haven't had a DEXA scan done since about age 50 and I'm now 74. No fractures, though. I have significant curvature of the upper spine (kyphosis) but that was well along by the time I was diagnosed with celiac disease almost 25 years ago. So, I think it may have been arrested at least.
    • trents
      Zinc is also a very important supplement when it comes to infection resistance.
×
×
  • Create New...