Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How long to be gluten free before endoscopy?

Tico
 Share
Go to solution Solved by Scott Adams,

Recommended Posts

Tico Rookie
Tico
Posted

Hi,

I was diagnosed by bloodwork with celiacs the middle of June.  My doctor told me to start a gluten free diet and booked me for an endoscopy.  I have still not had my endoscopy, met with the surgeon the end of August, and he said it would be about 3 months before I would have my endoscopy.  I know I need to eat gluten before my endoscopy.  How long before should I have gluten?  I seem to get all kinds of different answers when I look.  My GP told me to eat gluten for 2 weeks before.  Is this correct or should I start eating gluten now?  Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Solution
Scott Adams Grand Master
Scott Adams
Posted
  • Solution

Welcome to the forum!

It's unfortunate that you have to wait so long for your endoscopy. Yes, technically your GP is correct, and the amount you should eat daily for 2 weeks beforehand should be equal or greater than 2 slices of wheat bread. You could also do this for a longer time just to be certain, but the minimum length of time for this would be 2 weeks.

trents Grand Master
trents
Posted

The Mayo Clinic guidelines for the pretest endoscopy/biopsy gluten challenge is a minimum of two weeks of daily consumption of two slices of wheat bread or the gluten equivalent.

Tico Rookie
Tico
Posted
  • Author

Thank you for the info!  I’ll have to check how much in advance they book the appointments and maybe do 3 - 4 weeks on gluten just to be certain.

trents Grand Master
trents
Posted
8 minutes ago, Tico said:

Thank you for the info!  I’ll have to check how much in advance they book the appointments and maybe do 3 - 4 weeks on gluten just to be certain.

That sounds like a good approach to me. I would make you aware, however that since you have been abstaining from gluten for about four months already you may find that you react more strongly to gluten than before. Over time, once we go gluten free we tend to lose whatever tolerance we used to have when consuming it regularly.

Tico Rookie
Tico
Posted
  • Author

I know, I am somewhat nervous about consuming gluten now, even though there are things I would like to eat.  It seems wrong to consume gluten after not having any for so long.  We will see how it goes!

trents Grand Master
trents
Posted

Understood. Maybe it would help to ease into it to to allow whatever acclimation to happen that can rather than jumping right to 2 slices of bread the first day back on gluten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted
17 hours ago, Tico said:

I know, I am somewhat nervous about consuming gluten now, even though there are things I would like to eat.  It seems wrong to consume gluten after not having any for so long.  We will see how it goes!

Let us know how things turn out. It sounds to me like you've already linked your symptoms with gluten consumption, so at the very least you likely are in the non-celiac gluten sensitive category and may need to remain gluten-free even if your test results turn out negative for celiac disease (there is no test yet for NCGS).

Tico Rookie
Tico
Posted
  • Author

I do believe I have celiacs.  I really didn’t have many symptoms prior, a bit of bloating and tiredness, but nothing significant.  My ferritin was low and would not go up to normal even with supplements which is why the Doctor ordered the tests.  My bloodwork came back with Tissue Transglutaminase IgA positive and high 320, normal is <7.0.  I just want to get an accurate result from the endoscopy.  I phoned this morning, but they still are unsure when it will be.  I will let you know how it goes.  

trents Grand Master
trents
Posted

With a tTG-IGA that high I wouldn't have much doubt you have celiac disease. Most of the other causes of high tTG-IGA seem to give marginal positives.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. GrammieOf6
      - GrammieOf6 commented on Scott Adams's article in Latest Research
      1

      New Smartphone with Test Strip Gluten Detection for Celiac Disease Meal Safety (+Video)

      Do we get to know the name of it? Where can we get it? Do you have a video of how to use it?
    2. trents
      - trents replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Blood tests low iGA 4 years later digestive issues

      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not...
    3. Mmoc
      - Mmoc posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Blood tests low iGA 4 years later digestive issues

      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is...
    4. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    5. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,159
    • Most Online (within 30 mins)
      7,748
    Werae71
    Newest Member
    Werae71
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.