Nausea and fatigue almost all day

[itarachiu]

15 minutes ago, trents said:

Also, we are discovering that the optimum amount of D is considerably greater than what the established minimum daily requirement is.

And that's why I stay more than 15 minutes. They recommend to stay 15 minutes for the daily "dose" however 1h exposed in the sun will not hurt anyway. The climate here in my area is very good we didn't have snow in the last 3-4 years at all. Today was 20 degrees outside, almost like summer. 20 degrees C = 68 degrees F.

I might take in consideration to buy a suppliment too for D vitamin, in case I don't get outside but most of the days I do, I like the sun.

[itarachiu]

Ok so I made some progress I guess... Yesterday after I woke up, like 3 minutes later I start to had pulse close to 100, panic attacks, IBS and intestine and stomach and nausea and... I said well let me take the B12 sublingual and 1 B complex without eating. 3 hours later like a switch my heart rate was normal, nausea was gone, everything was normal, my appetite incrased because I couldn't eat anymore. However I didn't know what was... because of B12 or B complex.

Today, I sleep last night for only 3 hours, it was my mistake I forgot to let volume down on my phone so something was playing and woke me up. I couldn't fall asleep again because I got again nausea and high pulse and anxiety so I said well let me test I will take only B12. 2 hours later again those symtomps shut down like a switch.

I do take these B12 suppliments in the last 2-3 months but I never made the connection and some day I did skip to take the B12 because I said... neah I'm fine... So finally I'm pretty sure I found what was wrong with me in the last 5-6 months. I'm severely B12 deficient probably and most likely hand in hand with leaky gut... before I got COVID I use to eat meat everyday, pork, wild fish, I do go fishing very often salt water is 15 minutes away from my home so the most organic fish I can ever get, eggs(private farm) but I probably didn't absorb it or I don't absorb it enough.

On my B12 methylcobalamin sublingual laber it says to take 1 per day. Can I take 2? 1 has 1000ug. I want to take 2 for a few weeks at least. It also says if I take more than 1 it can act like a laxative but that doesn't mind me because I'm a little bit on the constipated side after eating bananas and sweet potato for a few days. Today I will introduce walnuts, hope they will help me being constipated. All foods HAS to be fodmap only.

[trents]

B12 is water soluble so it is not toxic in large amounts. You just pee it out if you take more than the body can use. Yes, take as many as you need to. 1000ug is not a high amount per pill anyway.

[Posterboy]

On 10/18/2022 at 12:15 AM, itarachiu said:

My brother has Wilson disease, a very rare autoimmune(kind of) disease so this autoimmune thing is running in my family so, me, my brother and my father we all share something in common, autoimmune disease and nobody is asking what is wrong in our lifestyle.

Itarachiu,

I just wanted to cite some research that might help you and your brother.

Entitled "The Role of Zinc in the Treatment of Wilson’s Disease"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9409413/

Zinc is important for healthy GI tract and for reducing the absorption of too much Copper!

I would also reccommend this blog post to you by Blue_Sky that shows how a Zinc deficiency affects our GI health....

Which often is triggered by a Niacinamide/Niacin deficiency first becasue Niacin aka Vitamin B-3 helps regulate our Zinc levels in our liver and thus the rest of the body!

Good luck on your continued journey!

2 Timothy 2:7 As always, “Consider what I say; and the Lord give thee understanding in all things” this included.

I hope this is helpful, but it is not medical advice.

Posterboy by the grace of God,

[knitty kitty]

@itarachiu,

I'm so glad you found B12 helps! 

Does taking just the thiamine help when you have anxiety?  I'd be interested to know. 

Do take a B Complex and the thiamine.  Just taking one B vitamin can cause an imbalance in the others.  B12 needs Folate B9 (methylfolate will help more than folic acid).  Folate needs B6 pyridoxine which needs riboflavin B2 and thiamine which needs magnesium.

Have you looked into the Autoimmune Protocol Diet?  

Keep us posted on your progress!  

[itarachiu]

@Posterboy

I will send to my brother what you said but I don't think he is gonna change his mind. The only reason why he is still alive is because he takes a treatment, very very expensive that we as familly we can't afford and he gets it as donation from US. Because I have celiac disease it may be a chance that he has it too but he does not and he will not care as long he can keeps continue his life. He still smokes, he still eats only and only processed foods, coffes and coca cola all day, every day. This lifestyle made him sick. My father is the same, some people are just like that, I don't wanna be like them.

@knitty kitty

I didn't took yet the B1 only yet. I will ask in a few days what type of B1 should I buy for the moment I take only what I have which is B12 and B complex, I already doubles the "dose". Yesterday I took 2 of B12 and 2 of B complex. I will also what type of Magnesium and maybe others I should take. I remember that I studied a little with B12 and everybody said to take methylcobolamin so we will talk in a few days.

Also I have some good news, this morning I achieved 24 hours in the last 6 months without having nausea. Yesterday I introduced walnuts in my diet and after I wake up this morning I had a little bit of IBS and some kind of nausea but not the same nausea(without fatigue) that I was complain when I opened this thread. I think I eat too much, about 6 or 7 of them. After I had a bowel movment the IBS and that little nausea feel went away after just 2 mins. This was the most normal bowel movement that I had in the last year maybe, the stool was not floating anymore btw and it almost didn't hurt me anymore.

I don't know about Autoimmune Protocol Diet but I will check that out too.

EDIT: I start to suspect that maybe because of walnuts or at least they are part of the equation why I felt bad in the last 6 months because if I remember correctly exactly 6 months ago I introduced them again in my diet. Because I had no diet journal, I didn't make the connection.

[knitty kitty]

@itarachiu

I like magnesium glycinate because it's easily absorbed.  Magnesium citrate is also good.  Be careful because too much can cause diarrhea.  If that does happen, don't take as much.

Thiamine Hydrochloride is good to start with.  Benfotiamine helps the digestive tract heal.  

Here's a link to the Autoimmune Protocol Diet.

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

I'm so glad you're feeling better!

[itarachiu]

Just an update: I did mostly fine in the last 48 hours, 3 days ago was the last time when I eat walnuts, according to my research it does take between 1-3 days for the transit to get them 'out of my system'. Also what I discovered, yesterday was about 7 am and I made a limonade... citrus... I introduced lemonade 2 days ago in my diet and yesterday I had bloating 10 mins after drinking the lemonade... and I said... well it can't be the lemonade to hurt my gut. Thank to Google I filtered my search queries for this website and I found people reacting to citrus as well. I just can't believe it, I was eating the wrong foods even after going gluten free which explains why I was still not doing fine. Today I was planning to introduce oranges, yeah right... nope! Now I will go back a little which means I will eat only sweet potato, carrots, bananas and blueberries. Another funny thing, before I opened this post during my last few months of having nausea everyday, I was drinking lemonade to cope and hoping it will make nausea to go away, now I realised that I was putting gasoline on fire.

Also before I got COVID, I did eat chocholate made from soy for about 2-3 weeks on daily basis. Well was my first time when I tried chocholate after 5 years of gluten free and no more processed foods. Soy is bad for leaky gut too. I was living with the ideea that going gluten free will be enough.

During my last 2 days I didn't experienced fatigue anymore and high pulse rate or panic attacks or the feel that I will faint, just nausea and not as much and not as bad. Now I have to wait for the lemon the get out of my system, because is water soluble maybe it will get out more faster than something else like walnuts.

@knitty kitty I ordered the suppliments from my local pharmacy but I have to wait 1 week, 10 days until they will be on stock. Same company, Solgar. I seen the same suppliments from other ghost companies that are 5 times cheaper or with the words "GYM" on them, I avoid any products that is advertised for GYM, I think they are scams.

[itarachiu]

Now I do feel some pain in my left side kidney, I can't really stand up so I'm in bed right now. I start to feel this pain in the last week but todays is the worse. Some changes are happening in the body since this journey or testing foods.

On the other hand I do feel great, no nausea no brain fog, just this uncomfortable pain I guess?

[knitty kitty]

Have you read about histamine intolerance?  

Histamine is released as part of the immune response.  Sometimes the mast cells that make and release histamine get out of control.  Thiamine helps the mast cells calm down and quit releasing histamine.  But you also want to eat a diet that's low in histamine, too.

Some foods contain more histamine than others.  Some foods stimulate the release of histamine.  

Low Histamine Diet avoids citrus fruits, nuts, fermented foods, processed meats like sausages, smoked meats, seafood like fish and crustaceans.  

https://www.healthline.com/health/low-histamine-diet

https://www.healthline.com/health/histamine-intolerance

Stay hydrated. Hope you feel better soon! 

[itarachiu]

Thank you for reply but for the moment I'm in that stage where I have to find some foods that don't hurt me and keeps my hunger away. I will see in the next 2 days how I do without lemons.

[itarachiu]

Kidney or the spleen. I just googled what organ is in that location. I have some discomfort in my left part of my body that goes in the back somewhere where my arm elbow joint is. Laying in bed calmed a little that area, I will try to stay in bed a few days maybe I'm just too tiered.

[trents]

Too much inactivity is not good for your general health.

[knitty kitty]

@itarachiu,

Eat some carrots cooked until soft.  The lemonade is acidic.  You are probably feeling it go through your digestive tract, not your spleen or kidney.  If you eat something like carrots that will counteract all the pain of the acidic lemonade.  

 

[itarachiu]

I do have carrots in my diet. For the moment I eat only sweet potato, carrots, blueberries and bananas.

I just woke up and I still feel some pain but I can stand up again and walk. No nausea also.

[itarachiu]

3 days later, in just 3 days of not puting foods that hurt me I obtained the following: no more nausea at all, no pain, no more fatigue, no more panic attacks, no feel of losing consciousness, bowel movments are not hurting anymore, well... not really at all but they are 100 times better than before. My willing of live increased from almost 0 to 100, it's finally harmony now in my stomach and my hole gut line. The problem in my case was... my gluten free diet was not enough, I will still have to test every food, for the moment at least a few months I will stay with only low fodmap stuff. Spinach, walnuts, lemons, oranges, fats, onions, these are things that hurt me and they were part of my diet which caused me to feel bad every day. I was functional for the most part in my last years of gluten free but in the last 6 months nausea feeling start to take control over me, I couldn't function anymore.

Also my mind is sharper than ever, I can't even remember when was the last time when I had my mind so clear and so sharp, my hands and feets are not that cold anymore, I'm not feeling that anemic anymore

So thank you to everybody that replied, I will update this post every 1-2 weeks for 1-2 months, but I already now as I said just after 3 days how much progress I made, now I feel that I'm on the right road to achieve the health that once I had it.

Today I will add to my diet okra, then I will try salt to add on food and then I will try fermented cucumber(water and salt only) and then I will try canned tuna(own sauce, no oils). I will give to every food 3 days after I add it because it takes 3 days on average to fully transit the gut. Now I do have a journal where I will write what to avoid and what is safe. I will also add the suppliements that I ordered a few days ago in 1-2 week, I'm a little bit scared to put too many.

So, in another words what I have is leaky gut, it's the only explanation and a gluten free diet was not enough.

https://www.ibsdiets.org/fodmap-diet/fodmap-food-list/

https://youtu.be/wha30RSxE6w

[itarachiu]

Update.

Yesterday I had GERD. I still have it today too almost 24 hours later but not as much. Symptoms: stomach pain, acid taste in the mouth and throat, nausea again, heart pulse increased and a little bit of almost diarrhea, bloating, stomach noises. My diet is still the same, yesterday I introduced zucchini but I doubt that was the problem. Laying in bed it makes me feel worse, I can feel the acid in my throat so I had to stay up.

Now I'm depressed again because for a few days I felt very good and now I don't know what was the problem. I don't remember having GERD even when I was eating gluten or when I cut off gluten.

I will try smaller meals and chewing more.

[itarachiu]

Oh, I forgot to mention that yesterday in my home my familly cooked fish with wheat and I was in the kitchen for 5 minutes while the fish was on the gas cooker. I could also feel the floor was oily/slippy because of the oil steam in the air... I'm wondering if I got contaminated, is it possible? I washed my hands after I got out but maybe because of the oil steam in the air got a little on my lips, then you swallow... and then there you go, a reaction. Is this possible?

[trents]

4 hours ago, itarachiu said:

Oh, I forgot to mention that yesterday in my home my familly cooked fish with wheat and I was in the kitchen for 5 minutes while the fish was on the gas cooker. I could also feel the floor was oily/slippy because of the oil steam in the air... I'm wondering if I got contaminated, is it possible? I washed my hands after I got out but maybe because of the oil steam in the air got a little on my lips, then you swallow... and then there you go, a reaction. Is this possible?

We have people on this forum who testify to getting glutened from simply walking down the bread isle in the supermarket and smelling the aroma of fresh bread. So, for those who are really sensitive to gluten, what's in the air seems to cause a reaction sometimes.

[itarachiu]

30 minutes ago, trents said:

We have people on this forum who testify to getting glutened from simply walking down the bread isle in the supermarket and smelling the aroma of fresh bread. So, for those who are really sensitive to gluten, what's in the air seems to cause a reaction sometimes.

Yeah, I will find out in 2-3 days if that was the problem. I'm almost sure that was the problem.

I will eat again blueberries 2morrow, yesterday I tried blueberries from another brand so I suspect them too, probably they are not the problem... and If I don't get a reaction I will try again zucchini... and if that does not make me feel bad either that means just because I stayed there breathing that oily air with gluten caused me the reaction. Right now I'm more than 24 hours later and I start to feel better already. I will update in a few days.

Breathing or just simply that oily air, you get it on the lips, then you swallow and you know the rest.

[itarachiu]

And another update.

Now I have the confirmation that staying in kitchen for 5 minutes breathing that steam oil with wheat flour while my mother was cooking caused me a reaction. It wasn't the zucchini or the blueberries from another brand because I eat them in the last 2 days and I'm fine. The acid reflux is gone, it lasted for 36-48 hours. Usually when I get glutened I don't have acid reflux so this was new to me.

Another than that I'm mostly fine, I start to get more than 4-5 hours of sleep every night, my skin on the face is much clear and more shiny, my eyes dark circles are almost gone, no more nausea after or before eating, bowel movments are normal than ever almost no pain. Today I'm introducing parsley, I have such an appetite but I have to test all the foods and to find out what is bad and what is good for my gut. I still feel something in the intestine, it's not a pain but some sort of discomfort, it comes and goes and comes again... however compared to how I was 2-3 weeks ago, it's 80% better. I have to be patient and allow to gut to heal.

For the moment other suppliments I didn't added, still on B12 and B complex only, I'm afraid it will be too much for my gut so I will introduce them but in 1-2 weeks.

[knitty kitty]

Rah! Rah! Rah!  You figured it out!

We're all rooting for you!  

Yes, easy to get impatient, but healing does take time. 

I can't go into seafood restaurants because the boiled shrimp and all triggers my shellfish allergy.  Same with bakeries triggering a gluten reaction.  

[itarachiu]

And another update.

Good new and bad news. A few days ago because my diet is very minimal I start to feel like I want to eat everything so I said well I will eat more blueberries. The FODMAP list says no more than 50g per day and I did eat like 200g in one day. After eating all these blueberries nausea striked me again after like 15 minutes for about 12 hours and diarrhea(almost) next day. I will reintroduce them 2morrow I think but again in small quantaties FOR SURE. Blueberries are high in salicylates, so I guess I don't tolerate high amounts of salicylates foods. I was just fine with 50-100 grams per day untill I doubled the amount.

Now I also tested eggs, I reacted too, half of baked egg, 1 hour later nausea for 4-5 hours, very bad nausea. I already browsed this forum for these problems and some people they do react to eggs, some don't, some are ok with organic eggs, is a 50/50, I guess I don't tolerate them for the moment. My eggs are organic from a neighbour that has a small farm, I don't know they hens are feeded but they are 100% organic because they look and have that good taste compared to eggs from caged/factories/etc. However what I know that 2-3 years ago when I introducem them again after gluten free diet I was doing fine... for a while at least.

Canned tuna around 250g per day, I'm fine with them, I eat them in the last 48h and everything is great.

Overall I'm better, still struggling to find a base of foods that I can eat them but I'm getting closer.

[trents]

For what it's worth, I found that I tolerate eggs just fine if they are poached (cooked with water and steam) but not if they are fried or scrambled. I did some research and discovered that the water/steam used in poaching creates a hydrolysis effect that breaks down the protein and allows some people who cannot eat eggs cooked other ways to tolerate them.

Back to the blueberries, is it the salicylates or is it the high histamine that is causing you problems?

[itarachiu]

27 minutes ago, trents said:

Back to the blueberries, is it the salicylates or is it the high histamine that is causing you problems?

I have no ideea what but doubling the quantity hit me with nausea pretty much immediately. According to Google blueberries are NOT high in histamine, they are high in salicylates.

EDIT: Eggs were boiled in water with the shell.