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- cristiana replied to Kathleen JJ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Options - 7 year old boy - Helicobacter pylori and serology
Hi Kathleen Welcome to the forum. I am based in the UK so I am just picking this post up before our US based moderators appear. I think they will want to know the lab values of both of the figures you have provided us with (min/max reading) as they tend to vary - could you post those for us, please? We see a lot of coeliacs who also have helicobacter... -
- Kathleen JJ posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Options - 7 year old boy - Helicobacter pylori and serology
Hi all, I'm very new at this and 'this' has been quite a rollercoaster ride. Last august my 7 year old son suddenly had these colic like pain attacks that would come a few times per day/night during 10 days. Because they were that bad and because our older daughter had her appendix taken out at 7, we ended up at ER twice to have him checked... -
- Wheatwacked replied to CeliacChica's topic in Related Issues & Disorders29Muscle Twitching
Welcome @aperlo34, The transistion to GFD seems scarier than it is. It took my infant son six months to heal. Adults take longer, six months to two years to heal the gut. There are over 200 various symptoms and diseases that result from gluten and the resulting vitamin and mineral deficiencies malabsorption syndrome causes. Most will go... -
- trents replied to jjiillee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Daughter waiting for appointment
Fantastic! Be sure to ask about continuing gluten until the procedure should the GI doc want to do an endoscopy/biopsy. He/she may also want to repeat antibody testing. -
- jjiillee replied to jjiillee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Daughter waiting for appointment
Thanks for the replies. They had a cancellation and now she can se the gastroenterologist tomorrow!
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0December 11, 2024 12:00 AM
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Posts
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By Kathleen JJ · Posted
Thank you for your reaction. The reference values are both "<10", although I found a medical paper from Netherlands (I'm Belgian) who use the same values and there the see a positive daignosis as twice more then 200 and a positive biopsie. I didn't see how to change this in my original message, sorry... -
Hi Kathleen Welcome to the forum. I am based in the UK so I am just picking this post up before our US based moderators appear. I think they will want to know the lab values of both of the figures you have provided us with (min/max reading) as they tend to vary - could you post those for us, please? We see a lot of coeliacs who also have helicobacter pylori on this forum. I am not sure how that would reflect in the blood results so I will leave this to be answered by my more experienced colleagues @trents or @Scott Adams. Obviously, you won't really know for sure where things stand until you have your meeting with the consultant. I am sorry that you have to wait, but it will be worth knowing one way or another. Apart from his recent gastric issues, it is fantastic to know that your son is otherwise a picture of health. But it is worth bearing in mind that undiagnosed coeliac disease can cause health issues in the longer term, so far better to know now if he does turn out to have coeliac disease and adapt your son's diet accordingly, before other health issues have a chance to appear. Cristiana
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By Kathleen JJ · Posted
Hi all, I'm very new at this and 'this' has been quite a rollercoaster ride. Last august my 7 year old son suddenly had these colic like pain attacks that would come a few times per day/night during 10 days. Because they were that bad and because our older daughter had her appendix taken out at 7, we ended up at ER twice to have him checked out. On both accounts blood was taken, on one account an ultrasound was made, showing swollen lymph nodes around the stomach, and the working theory was it was a violent reaction to a viral infection (even though he was not nauseous nor had diarrhea or anything like that). After 10 days it stopped as suddenly as it came on. On October 1d my daughter started vomiting in the middle of the night, had a fever, and my son also threw up once (no fever). We kept them home from school, daughter kept on vomiting, fever stayed, son was perfectly healthy during the day, although he only ate yoghurt to be safe. The plan was to let him go to school the day after. In the night prior to his school return however, he woke up at 1, screaming with pain, begging to go to ER, which we did - the pain from august had returned. Again bloodwork, but nothing found. It ended up only being that one pain attack, but because they were that bad, we went to the pediatrician the week after to have him checked up more thoroughly. He is a very energetic, sporty boy and he showed off his six pack with great pride to the doctor. She said he looked as an example of health, but did a more extended search because as the last blood test his liver values had been ever so slightly raised and she wanted to see how they'd do after a month. So on November 8 we had his blood drawn again. His liver values had returned to normal, which did confirm the working theory that his pains were viral-infection triggered. However, to everyone's (including the doctor) surprise, he also had these values: Transglutaminase IgA + >128 U/mL Gliadine IgG + 123.0 U/mL I take it these are quite high. So last Tuesday he got his gastroscopy done, we'll have the result around the 25d we hope. Whilst going for taking samples of the bowel, the gastro enterologist did notice some nodes in his stomach that present like a reaction to a Helicobacter pylori type infection, which would very much explain the type of pains he had. We are still very much in shock by the Ceoliakie diagnosis (I know, it still needs to be confirmed by the biopsy, but with those numbers we kind of expect it) as he has no symptoms at all. The doctor said 'once he goes on a gluten free diet you'll see him blossom into an energetic, more happy boy' and we're like: but he is bouncing around singing and joking all day, I really can't imagine him being MORE energetic and happy - meaning, he's welcome to be that of course, but this is not a tired, withdrawn kid. And even if the biopsy gets back negative (unlikely), what could these numbers have meant then? Could the Helicobacter pylori have an influence on this? I have so many questions but are only eligible for a consult on December 6d so my data driven mind is going crazy having so little information or knowing so little about what everything means... Kind regards, Kathleen -
By Wheatwacked · Posted
Welcome @aperlo34, The transistion to GFD seems scarier than it is. It took my infant son six months to heal. Adults take longer, six months to two years to heal the gut. There are over 200 various symptoms and diseases that result from gluten and the resulting vitamin and mineral deficiencies malabsorption syndrome causes. Most will go away in time. I counted nineteen symptoms that improved with gluten free diet. But it is also tricky, because gluten is found even in products like shampoo. Read labels. Be alert to cross contamination. Possibly the cramps in your side is from the withdrawal of gluten. Gluten activates the opiod receptors and it takes time to clear. It takes time to heal. Is that vitamin D3 daily? I need to take 10,000 IU to keep my blood at 80 ng/ml the natural level. It also help anxiety. Vitamin D Is Not as Toxic as Was Once Thought Low lithium levels in drinking water can affect anxiety. Perhaps the increase in mass shootings is because everyone drinks bottled water. 5 mg of Lithium Orotate helped me with impatience to get results. ie. let things go when appropriate. Lithium in the public water supply and suicide mortality in Texas Deficiency in the B vitamins especially Thiamine Riboflavin, Nicotinic Acid and Pantothenic Acid are common and deficiency can have all kinds of weird effects. Iodine: Iodine Insufficiency in America: The Neglected Pandemic Vitamin D 10,000 IU (250 mcg) DHEA 100 mg 500 mcg Iodine 10 drops of Liquid Iodine B1 Thiamin 250 mg - Fatigue, irritability, loss of appetite, poor memory, and sleep disturbances, leg cramps. B2 Riboflavin 100 mg B3 Nicotinic Acid 500 mg B5 Pantothenice Acid 500 mg Vitamin C 500 mg Selenium twice a week 200 mcg Some of the ingredients in your multivitamin can cause problems. Especially folic acid. Folic acid supplementation was associated with increased risk of prostate cancer. By contrast, baseline dietary folate was inversely associated with prostate cancer risk. Eat foods low in omega 6 to reduce inflammation. -
Fantastic! Be sure to ask about continuing gluten until the procedure should the GI doc want to do an endoscopy/biopsy. He/she may also want to repeat antibody testing.
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