Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mild atrophy mucosa???

musicalmummy
 Share

Recommended Posts

musicalmummy Apprentice
musicalmummy
Posted

My 15 year old daughters gastroscopy was done today due to having a positive with her blood test for coeliacs. The said what he saw didn’t look too bad for what the naked eye could see. The report he gave us for the gastroscopy states oesophagis normal, stomach normal, and mildly atrophic mucosa was found in the duodenal bulb. 
Will get the biopsy results next week so 🤞🏻 it’s also all normal.

Im beside myself waiting because of it’s not coeliac then they need to do further investigation as to why her bloods were positive.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


knitty kitty Grand Master
knitty kitty
Posted

Welcome to the forum, @musicalmummy!

Gastroscopy and biopsy is the "Gold Standard" of diagnosis.  

"...mildly atrophic mucosa was found in the duodenal bulb..." may well be Celiac Disease. 

The duodenal bulb is often the area where damage is found.  That's where your doctor can see changes with the naked eye.  Much of the damage in early Celiac Disease is microscopic.  

Not diagnostic.  Not a doctor.  But typical of Celiac.

Some doctors will diagnose Celiac if blood tests are high enough.

Remember Celiac Disease is genetic.  Other family members need to be tested even if they don't have gastrointestinal symptoms.

Keep us posted on the results!

trents Grand Master
trents
Posted
(edited)
1 hour ago, musicalmummy said:

" . . .mildly atrophic mucosa was found in the duodenal bulb . . . "

Im beside myself waiting because of it’s not coeliac then they need to do further investigation as to why her bloods were positive.

 

Atrophy of the duodenal bulb mucosa, especially if it is visible to the naked eye, points to celiac disease.

I guess I'm having a hard time understanding why you hope the biopsy results come back normal. If there is damage to the villi in the small bowel then that would confirm celiac disease and you would have your answer as to what is causing your daughter's health issues. If it comes back negative, you will be in limbo, with two factors indicating having celiac disease and one not.

Edited by trents
musicalmummy Apprentice
musicalmummy
Posted
  • Author
1 hour ago, knitty kitty said:

Welcome to the forum, @musicalmummy!

Gastroscopy and biopsy is the "Gold Standard" of diagnosis.  

"...mildly atrophic mucosa was found in the duodenal bulb..." may well be Celiac Disease. 

The duodenal bulb is often the area where damage is found.  That's where your doctor can see changes with the naked eye.  Much of the damage in early Celiac Disease is microscopic.  

Not diagnostic.  Not a doctor.  But typical of Celiac.

Some doctors will diagnose Celiac if blood tests are high enough.

Remember Celiac Disease is genetic.  Other family members need to be tested even if they don't have gastrointestinal symptoms.

Keep us posted on the results!

Thanks. It’s only been recent that she was sick, since she’d had covid actually about 4 months ago. 
I have had the blood test just after we got her blood results and mine are negative which surprised me as I can’t eat much without feeling gassy and my iron is so low I’m classed anaemic. Once we get biopsy results I’ll check the rest of the family 

52 minutes ago, trents said:

 

Atrophy of the duodenal bulb mucosa, especially if it is visible to the naked eye, points to celiac disease.

I guess I'm having a hard time understanding why you hope the biopsy results come back normal. If there is damage to the villi in the small bowel then that would confirm celiac disease and you would have your answer as to what is causing your daughter's health issues. If it comes back negative, you will be in limbo, with two factors indicating having celiac disease and one not.

Yes I did rethink about this and would prefer the answer we are testing for rather than having to investigate other reasons her bloods were like this 

knitty kitty Grand Master
knitty kitty
Posted
(edited)

@musicalmummy,

You said "I can’t eat much without feeling gassy".  That's  symptomatic of Celiac and you've adjusted your diet not to include "much" already.  

Your body won't make antibodies to gluten if you are not eating gluten.  The blood tests for Celiac measure these antibodies.  Not consuming enough gluten will skew the test to a false negative.

If you were not eating at least two slices of wheat bread (or equivalent) in the two months prior to your antibody tests, you might have a false negative. 

Anemia can affect antibody production and result in a false negative.   So can diabetes.  Anemia impacts production of red blood cells and white blood cells such as the antibody producing cells.  

You might want get genetic testing to see if you carry any of the most common Celiac genes.    

 

Edited by knitty kitty
musicalmummy Apprentice
musicalmummy
Posted
  • Author
2 minutes ago, knitty kitty said:

@musicalmummy,

If you were not eating at least two slices of wheat bread (or equivalent) in the two months prior to your antibody tests, you might have a false negative.   

Your body won't make antibodies to gluten if you are not eating gluten.  The blood tests for Celiac measure these antibodies.  Not consuming enough gluten will skew the test to a false negative.

Anemia can affect antibody production and result in a false negative.   So can diabetes.  Anemia impacts production of red blood cells and white blood cells like antibody producing cells.  

You might want get genetic testing to see if you carry any of the most common Celiac genes.  

 

Yep was eating all gluten so maybe I’m just intolerant. 
I’ll see how her results go and then go further 🙂

musicalmummy Apprentice
musicalmummy
Posted
  • Author

The gastrologist rang and has put my daughter on an emergency wait list to discuss her results 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


knitty kitty Grand Master
knitty kitty
Posted

@musicalmummy

We're praying for you all.

trents Grand Master
trents
Posted
(edited)
6 hours ago, musicalmummy said:

The gastrologist rang and has put my daughter on an emergency wait list to discuss her results 

An emergency wait list? That sounds like a contradiction in terms. What kind of symptoms is your daughter having? Is she quite ill?

Edited by trents
musicalmummy Apprentice
musicalmummy
Posted
  • Author
On 10/22/2022 at 12:47 AM, trents said:

An emergency wait list? That sounds like a contradiction in terms. What kind of symptoms is your daughter having? Is she quite ill?

I meant emergency cancellation. 
She feels ill and nauseous after eating

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless...
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system?
    3. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once...
    4. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note:...
    5. Scott Adams
      0

      Homemade Gluten-Free Egg Drop Soup

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,844
    • Most Online (within 30 mins)
      7,748
    Shelly Fitzgerald
    Newest Member
    Shelly Fitzgerald
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.