Mild atrophy mucosa???

[musicalmummy]

My 15 year old daughters gastroscopy was done today due to having a positive with her blood test for coeliacs. The said what he saw didn’t look too bad for what the naked eye could see. The report he gave us for the gastroscopy states oesophagis normal, stomach normal, and mildly atrophic mucosa was found in the duodenal bulb. 
Will get the biopsy results next week so 🤞🏻 it’s also all normal.

Im beside myself waiting because of it’s not coeliac then they need to do further investigation as to why her bloods were positive.

[knitty kitty]

Welcome to the forum, @musicalmummy!

Gastroscopy and biopsy is the "Gold Standard" of diagnosis.  

"...mildly atrophic mucosa was found in the duodenal bulb..." may well be Celiac Disease. 

The duodenal bulb is often the area where damage is found.  That's where your doctor can see changes with the naked eye.  Much of the damage in early Celiac Disease is microscopic.  

Not diagnostic.  Not a doctor.  But typical of Celiac.

Some doctors will diagnose Celiac if blood tests are high enough.

Remember Celiac Disease is genetic.  Other family members need to be tested even if they don't have gastrointestinal symptoms.

Keep us posted on the results!

[trents]

1 hour ago, musicalmummy said:

" . . .mildly atrophic mucosa was found in the duodenal bulb . . . "

Im beside myself waiting because of it’s not coeliac then they need to do further investigation as to why her bloods were positive.

 

Atrophy of the duodenal bulb mucosa, especially if it is visible to the naked eye, points to celiac disease.

I guess I'm having a hard time understanding why you hope the biopsy results come back normal. If there is damage to the villi in the small bowel then that would confirm celiac disease and you would have your answer as to what is causing your daughter's health issues. If it comes back negative, you will be in limbo, with two factors indicating having celiac disease and one not.

Edited October 19, 2022 by trents

[musicalmummy]

1 hour ago, knitty kitty said:

Welcome to the forum, @musicalmummy!

Gastroscopy and biopsy is the "Gold Standard" of diagnosis.  

"...mildly atrophic mucosa was found in the duodenal bulb..." may well be Celiac Disease. 

The duodenal bulb is often the area where damage is found.  That's where your doctor can see changes with the naked eye.  Much of the damage in early Celiac Disease is microscopic.  

Not diagnostic.  Not a doctor.  But typical of Celiac.

Some doctors will diagnose Celiac if blood tests are high enough.

Remember Celiac Disease is genetic.  Other family members need to be tested even if they don't have gastrointestinal symptoms.

Keep us posted on the results!

Thanks. It’s only been recent that she was sick, since she’d had covid actually about 4 months ago. 
I have had the blood test just after we got her blood results and mine are negative which surprised me as I can’t eat much without feeling gassy and my iron is so low I’m classed anaemic. Once we get biopsy results I’ll check the rest of the family 

52 minutes ago, trents said:

 

Atrophy of the duodenal bulb mucosa, especially if it is visible to the naked eye, points to celiac disease.

I guess I'm having a hard time understanding why you hope the biopsy results come back normal. If there is damage to the villi in the small bowel then that would confirm celiac disease and you would have your answer as to what is causing your daughter's health issues. If it comes back negative, you will be in limbo, with two factors indicating having celiac disease and one not.

Yes I did rethink about this and would prefer the answer we are testing for rather than having to investigate other reasons her bloods were like this 

[knitty kitty]

@musicalmummy,

You said "I can’t eat much without feeling gassy".  That's  symptomatic of Celiac and you've adjusted your diet not to include "much" already.  

Your body won't make antibodies to gluten if you are not eating gluten.  The blood tests for Celiac measure these antibodies.  Not consuming enough gluten will skew the test to a false negative.

If you were not eating at least two slices of wheat bread (or equivalent) in the two months prior to your antibody tests, you might have a false negative. 

Anemia can affect antibody production and result in a false negative.   So can diabetes.  Anemia impacts production of red blood cells and white blood cells such as the antibody producing cells.  

You might want get genetic testing to see if you carry any of the most common Celiac genes.    

 

Edited October 19, 2022 by knitty kitty

[musicalmummy]

2 minutes ago, knitty kitty said:

@musicalmummy,

If you were not eating at least two slices of wheat bread (or equivalent) in the two months prior to your antibody tests, you might have a false negative.   

Your body won't make antibodies to gluten if you are not eating gluten.  The blood tests for Celiac measure these antibodies.  Not consuming enough gluten will skew the test to a false negative.

Anemia can affect antibody production and result in a false negative.   So can diabetes.  Anemia impacts production of red blood cells and white blood cells like antibody producing cells.  

You might want get genetic testing to see if you carry any of the most common Celiac genes.  

 

Yep was eating all gluten so maybe I’m just intolerant. 
I’ll see how her results go and then go further 🙂

[musicalmummy]

The gastrologist rang and has put my daughter on an emergency wait list to discuss her results 

[knitty kitty]

@musicalmummy

We're praying for you all.

[trents]

6 hours ago, musicalmummy said:

The gastrologist rang and has put my daughter on an emergency wait list to discuss her results 

An emergency wait list? That sounds like a contradiction in terms. What kind of symptoms is your daughter having? Is she quite ill?

Edited October 21, 2022 by trents

[musicalmummy]

On 10/22/2022 at 12:47 AM, trents said:

An emergency wait list? That sounds like a contradiction in terms. What kind of symptoms is your daughter having? Is she quite ill?

I meant emergency cancellation. 
She feels ill and nauseous after eating