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Recent Activity
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- Vickey Matteson replied to Vickey Matteson's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Celiac diagnosis
I had a colonoscopy and they went up to the small intestine and saw something. Prior to this I was having episodes of vomiting. It would be months apart and diarrhea would come too but always started with vomiting. Just out of the blue I would be attacked. They don't know what that is from. -
- knitty kitty replied to BadHobit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Help! I have to eat gluten :(
Welcome to the forum, @BadHobit Were you tested for H. Pylori infection? Sometimes this infection can cause stomach irritation and even ulcers. H. Pylori infection can trigger Celiac Disease. H.Pylori infection is frequently found in celiac disease. Ask for DNA testing to see if you have any of the genes seen in Celiac Disease. Having the genes... -
- trents replied to Nielskii's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Unusual high levels
Check with your doctor to find out if he/she wants to refer you to a GI specialist for an endoscopy/biopsy to confirm the results of the blood antibody testing or whether or not the tTG-IGA levels are high enough to grant a celiac disease diagnosis without further tests being done. If further testing is expected, you need to refrain from starting a gluten... -
- trents replied to BadHobit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Help! I have to eat gluten :(
Welcome to the forum, @BadHobit! For the biopsy they only took one sample from the stomach and one from the small intestine? They should take several samples from the small bowel as the damage from celiac disease can be patchy. Sounds like you were the victim of poor timing with regard to each of your celiac testing experiences in the sense of... -
- Scott Adams replied to Nielskii's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Unusual high levels
Do you know the reference range for your test? It can be different depending on the lab that processed the test. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research...
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By Vickey Matteson · Posted
I had a colonoscopy and they went up to the small intestine and saw something. Prior to this I was having episodes of vomiting. It would be months apart and diarrhea would come too but always started with vomiting. Just out of the blue I would be attacked. They don't know what that is from. -
By knitty kitty · Posted
Welcome to the forum, @BadHobit Were you tested for H. Pylori infection? Sometimes this infection can cause stomach irritation and even ulcers. H. Pylori infection can trigger Celiac Disease. H.Pylori infection is frequently found in celiac disease. Ask for DNA testing to see if you have any of the genes seen in Celiac Disease. Having the genes for Celiac shows you have the potential to develop Celiac Disease. Infections, physical trauma and stressful events can trigger the Celiac genes to become active. Symptoms appear once activated. If you don't have any genes for Celiac Disease, then it can be ruled out, and another reason for the ulcer and Gerd should be pursued. Stick with 4 - 6 slices of bread for the Gluten Challenge. Keep us posted on your progress! -
Check with your doctor to find out if he/she wants to refer you to a GI specialist for an endoscopy/biopsy to confirm the results of the blood antibody testing or whether or not the tTG-IGA levels are high enough to grant a celiac disease diagnosis without further tests being done. If further testing is expected, you need to refrain from starting a gluten free diet or you risk sabotaging the tests.
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Welcome to the forum, @BadHobit! For the biopsy they only took one sample from the stomach and one from the small intestine? They should take several samples from the small bowel as the damage from celiac disease can be patchy. Sounds like you were the victim of poor timing with regard to each of your celiac testing experiences in the sense of being tested while being off gluten. One thing to be aware of is that once you remove gluten from your diet for a significant period of time, when you return to consuming it your reactions may be much stronger than when you were consuming it consistently. Experts in the field have recently issued revised guidelines for the "gluten challenge" as they realized that their previous advice for amounts of gluten consumed daily during the gluten challenge was not intense enough to produce valid test results consistently. They are now recommending at least 10g of gluten daily (roughly the amount in 4-6 slices of bread) for at least 2 weeks prior to either blood antibody testing or the biopsy. The rash you describe, do you think it could have been dermatitis herpetiformis?
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By Scott Adams · Posted
Do you know the reference range for your test? It can be different depending on the lab that processed the test. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:
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