Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestive Enzyme side effects


MattGreen

Recommended Posts

MattGreen Newbie

Years ago i was diagnosed with celiacs, i cut out gluten for a while and now it seems its just a celiac intolerance, comes up barely on the blood test.  With my digestive problems came a bunch of food intolerance's i never had though, my digestion has never really gotten back to normal, i assumed i have some form of 'leaky gut' or along those lines.  Last year i started taking plant/fungal based Digestive Enzymes and found they helped me greatly, way more than the previously prescribed animal based enzymes i had tried.  But it didn't take long before i started feeling side effects, the most notable one being breathing difficulties, and slightly increased heart rate, making it hard to sleep and exercising uncomfortable.  It starts becoming very noticeable after i take them with every meal over the course of a day or 2.  basically my digestion starts feeling great, i can eat more and more types of foods, energy goes up, but then the side effects kick in, so im basically trying to figure out how to manage taking these digestive enzymes.  I've tried 3 brands, one from 'prairie naturals' called enzyme force, 2 or 3 different ones from 'enzymedica', and another from 'natural factors' called multi-enzyme.  They all generally start giving the same side effects.  Has anyone else had the same issue ? Or is there a brand someone else would recommend? 

This is probably a very isolated issue but i feel if i could just find one that didn't start giving me side effects my digestion could start feeling normal again.

 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

Welcome to the forum!

Could you give us a better idea of what you are eating? 

Are you eating out at restaurants and possibly getting cross contaminated? 

Is your diet heavy on carbohydrates?

Have you been checked for vitamin and mineral deficiencies?  Celiac Disease damages the small intestine where vitamins and minerals are absorbed.  

"...side effects, the most notable one being breathing difficulties, and slightly increased heart rate, making it hard to sleep and exercising uncomfortable."

These are early symptoms of thiamine insufficiency.  Thiamine is needed to make and secrete digestive enzymes.  Thiamine is needed to help red blood cells carry oxygen to the cells, especially during exercise.  "Sailors' asthma" is a symptom of thiamine insufficiency.  Tachycardia and insomnia are also symptoms of thiamine insufficiency.  

The more carbohydrates you eat, the more Thiamine you need to convert them to energy.  

Discuss with your doctor the benefits of supplementing with Thiamine Vitamin B 1 and the rest of the B vitamins and magnesium.  Talk to a nutritionist to ensure you are getting a nutrient dense diet.

 

Link to comment
Share on other sites
trents Grand Master

Welcome to the forum, Matt!

Are you back to eating significant amounts of gluten?

You say you "it comes up barely on the blood test". Which blood test do you refer to? Can you be more specific? I assume you are referring to a celiac antibody blood test but there is not just one. Do you have access to your medical record from recent testing and can you post the test result along with the reference range?

But the fact that you are still getting a weak positive means you are still producing celiac antibodies so I do not think the lower scores indicate you have converted somehow from having celiac disease to merely being gluten sensitive (aka, NCGS for Non Celiac Gluten Sensitivity, a better term than your "gluten intolerant" which is an umbrella term for all gluten-related disorders). Some celiacs report that they have gone into "remission" but it usually doesn't last.

Is there a common ingredient in the various "digestive enzyme" products you are taking that might cause the side effects you describe?

I' afraid that you are deceiving yourself into thinking you no longer have celiac disease and damage to your body is still happening, even though the outward symptoms are not what they used to be. And that brings up a good question. In the beginning when you were diagnosed with celiac disease, what were your symptoms? What led you to get tested for celiac disease? Are those symptoms, in fact, gone now?

Link to comment
Share on other sites
Scott Adams Grand Master

Welcome to the forum!

What is your goal with the enzymes? Do you eat at restaurants and at other non-gluten-free homes? Is your goal to deal with the effects of possible cross-contamination with gluten? If so, you would need an enzyme designed for this, for example GliadinX, which is one of our sponsors. General enzymes may be good for lots of different things, but AN-PEP enzymes work specifically to break down gliadin in the stomach (small amounts only).

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to hilly's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Extreme bloating even gluten-free

    2. - hilly posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Extreme bloating even gluten-free

    3. - Scott Adams replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Shaking/Tremors and Off Balance

    4. - cristiana replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Shaking/Tremors and Off Balance

    5. - Ginger38 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Shaking/Tremors and Off Balance


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      124,666
    • Most Online (within 30 mins)
      7,748

    Jteach
    Newest Member
    Jteach
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.7k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Some studies, with admittedly small sample sizes, show that about 50% of celiacs react to the protein casein in dairy the same way they do gluten. Can't find the NIH article I'm looking for but this one basically makes the point:   
    • hilly
      I was diagnosed in April. I have been very careful about being gluten-free, except for one accident in August where I ate candy with wheat. Despite being careful, I still experience extreme painful bloating almost daily. I'm so frustrated. I stopped eating gluten-free oats because I wondered if that was it. Now I am wondering if is dairy. I'm already tired of constantly wondering if I messed up.
    • Scott Adams
      In general I'm all for a formal diagnosis, except in cases where someone gets very sick when they eat gluten, and have already been on a gluten-free diet for a long time and don't plan to eat it again anyway. There seems to be more drawbacks that keep popping up with being formally diagnosed--at least here in the USA. I can testify that it's definitely harder to obtain life insurance, and if you can get it the premiums are quite a bit higher than if I did not have it, at least from my fairly recent experience when getting a new policy.  @Ginger38 you're very close to the end of your challenge, so let us know how it turns out.
    • cristiana
      Just to add something here... if any people in the UK are reading this, there can be definite advantages if you are formally diagnosed coeliac,  in terms of getting extra support from the NHS.  For free you get to see a nutritionist, additional vaccinations if deemed necessary, in some areas prescriptions for gluten free food; bone density scans, annual blood tests and reviews with a gastroenterologist, plus it has been my experience I've been able to see a gastroenterologist without a GP's re-referral when I've had complications.  That said, I don't know what impact there would be on health insurance; but I have found that when it comes to travel insurance I have had to declare it but it hasn't made any difference to the premium. However, I realise things can be very different in other parts of the world, and I am not sure where you are from, @Ginger38  
    • Ginger38
      Yes I figured out I couldn’t have gluten years ago when I was symptomatic and tested positive, but was misinformed and told I couldn’t have celiac but to go gluten free. I was already gluten free. I was never willing to go back on gluten and make myself so sick to have the biopsy especially when the biopsy isn’t 💯. But Now I have to have a procedure anyway and he told me he was doing the biopsy either way .. but I should consider the gluten challenge since I have never had the biopsy. He acted like it was super important to have this on paper.  I had no idea there were any possible negative drawbacks to having a formal diagnosis 🤦🏼‍♀️
×
×
  • Create New...