Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How to locate gluten free medications


Sara lombardi-thorman

Recommended Posts

Sara lombardi-thorman Newbie

I have AFib and suffering from each medication I try. Symptoms congruent with gluten ingestion. Trying to figure if it might be the time release capsule or gluten product in medication itself. Trying to locate lists of safe medications 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)
13 minutes ago, Sara lombardi-thorman said:

I have AFib and suffering from each medication I try. Symptoms congruent with gluten ingestion. Trying to figure if it might be the time release capsule or gluten product in medication itself. Trying to locate lists of safe medications 

Sara, welcome to the forum!

May we assume that you already have been diagnosed with either celiac disease or NCGS (Non Celiac Gluten Sensitivity) such that you already know gluten causes you problems?

Edited by trents
knitty kitty Grand Master

@Sara lombardi-thorman,

Which medications are you taking or trying to ascertain if they are gluten free?

 

GF-Cate Enthusiast

If you go to: the NIH's Daily Med website

- enter your med in the search box

- select you med (there are often several manufacturers - you can find the manufacturer on your bottle's prescription label) (the website list it as "packager")

- scroll down to "ingredients and appearance" to view the inactive ingredients in the medication 

GIG has a list of Common Gluten-Free Pharmaceutical Excipients

There is also the Gluten Free Drugs website, which is maintained by a pharmacist, but it was last updated in 2020. Keep in mind formulations change and all the data there may not be up to date. 

Of course you can always call or email manufacturers. Personally I've had mixed results receiving a response, but it's certainly worth a try. 

This is the FDA's statement about gluten in medications. Unfortunately, there are no actual requirements as there are with food labeling. 

This article from Beyond Celiac is a great resource. It also briefly covers other possibilities for symptoms, such as side effects of the prescribed medication. This one from the Celiac Disease Foundation is also very informative. 

It is time consuming & frustrating to have to dig so deep and spend so much time getting this information when the onus should be on manufacturers to disclose ingredients of what we are putting in our bodies. 

Scott Adams Grand Master

Please search the ingredients of any prescription medications here:

https://dailymed.nlm.nih.gov/dailymed/ 

knitty kitty Grand Master
On 11/2/2022 at 3:45 PM, Sara lombardi-thorman said:

I have AFib and suffering from each medication I try. Symptoms congruent with gluten ingestion. Trying to figure if it might be the time release capsule or gluten product in medication itself. Trying to locate lists of safe medications.

 

AFib can be caused by a deficiency in magnesium or a deficiency in Thiamine Vitamin B1.  Have you been checked for these?

Some medications cause certain vitamin deficiencies.  Are you taking any other medications?

 

  • 2 weeks later...
Sara lombardi-thorman Newbie

I take enough magnesium to choke a horse and I take complex b twice daily. My reaction is to gluten plain and simple. I’m a Geiger counter for the stuff. If gluten is in a product I invest my body crippled up with pain from inflammation. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,220
    • Most Online (within 30 mins)
      7,748

    Jorge farias
    Newest Member
    Jorge farias
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ryangf
      I haven’t had any noticeable reactions to salt so I will continue using it. I think I just freaked out when I realized this but it doesn’t cause me any discomfort- so thanks!
    • plumbago
      Ok, thanks. I'm so glad to hear you are in the hands of a dermatologist. I hope he/she has given you 1) a diagnosis; and 2) a plan of care with a couple of options so that you have buy-in and comfort with it. I have some ideas, but not having seen the abscesses or you in person, it doesn't really make sense for me to kind of ... speculate further. But your question was regarding gluten, and you've gotten a couple of other follow up questions and answers that are good, including the idea to keep a food diary. Let us know if we can help further or answer any other questions. I'm sorry you're going through this, it sounds very painful.
    • LookingForAnswers101
      @plumbago They appear as boils. They are big, like the size of a nickel--quarter, and they hurt when I touch them. I have gone to the same derm for them over and over and she thinks my body is colonized by a bacteria, but even after using hibiclens all over my body they come back.
    • Scott Adams
      Welcome to the gluten-free community! It’s great to have you here. While gluten sensitivity or celiac disease can indeed cause skin issues, such as dermatitis herpetiformis (a blistering rash), abscesses in areas like the lower buttocks or thighs are less commonly linked directly to gluten. However, chronic abscesses could be a sign of an underlying immune or inflammatory condition, which might be worth discussing with a healthcare professional. Some people with gluten-related disorders also experience secondary issues like bacterial overgrowth or immune dysregulation, which could potentially contribute to recurrent infections. It’s always a good idea to explore all possible causes, including gluten sensitivity, with your doctor. In the meantime, keeping a food and symptom diary might help identify any patterns. Wishing you the best on your health journey!
    • trents
      You say you have gluten sensitivity? Have you been officially diagnosed with celiac disease or do you refer to NCGS?
×
×
  • Create New...