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How to locate gluten free medications

Sara lombardi-thorman
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Sara lombardi-thorman Newbie
Sara lombardi-thorman
Posted

I have AFib and suffering from each medication I try. Symptoms congruent with gluten ingestion. Trying to figure if it might be the time release capsule or gluten product in medication itself. Trying to locate lists of safe medications 

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trents Grand Master
trents
Posted
(edited)
13 minutes ago, Sara lombardi-thorman said:

I have AFib and suffering from each medication I try. Symptoms congruent with gluten ingestion. Trying to figure if it might be the time release capsule or gluten product in medication itself. Trying to locate lists of safe medications 

Sara, welcome to the forum!

May we assume that you already have been diagnosed with either celiac disease or NCGS (Non Celiac Gluten Sensitivity) such that you already know gluten causes you problems?

Edited by trents
knitty kitty Grand Master
knitty kitty
Posted

@Sara lombardi-thorman,

Which medications are you taking or trying to ascertain if they are gluten free?

 

GF-Cate Enthusiast
GF-Cate
Posted

If you go to: the NIH's Daily Med website

- enter your med in the search box

- select you med (there are often several manufacturers - you can find the manufacturer on your bottle's prescription label) (the website list it as "packager")

- scroll down to "ingredients and appearance" to view the inactive ingredients in the medication 

GIG has a list of Common Gluten-Free Pharmaceutical Excipients. 

There is also the Gluten Free Drugs website, which is maintained by a pharmacist, but it was last updated in 2020. Keep in mind formulations change and all the data there may not be up to date. 

Of course you can always call or email manufacturers. Personally I've had mixed results receiving a response, but it's certainly worth a try. 

This is the FDA's statement about gluten in medications. Unfortunately, there are no actual requirements as there are with food labeling. 

This article from Beyond Celiac is a great resource. It also briefly covers other possibilities for symptoms, such as side effects of the prescribed medication. This one from the Celiac Disease Foundation is also very informative. 

It is time consuming & frustrating to have to dig so deep and spend so much time getting this information when the onus should be on manufacturers to disclose ingredients of what we are putting in our bodies. 

Scott Adams Grand Master
Scott Adams
Posted

Please search the ingredients of any prescription medications here:

https://dailymed.nlm.nih.gov/dailymed/ 

knitty kitty Grand Master
knitty kitty
Posted
On 11/2/2022 at 3:45 PM, Sara lombardi-thorman said:

I have AFib and suffering from each medication I try. Symptoms congruent with gluten ingestion. Trying to figure if it might be the time release capsule or gluten product in medication itself. Trying to locate lists of safe medications.

 

AFib can be caused by a deficiency in magnesium or a deficiency in Thiamine Vitamin B1.  Have you been checked for these?

Some medications cause certain vitamin deficiencies.  Are you taking any other medications?

 

  • 2 weeks later...
Sara lombardi-thorman Newbie
Sara lombardi-thorman
Posted
  • Author

I take enough magnesium to choke a horse and I take complex b twice daily. My reaction is to gluten plain and simple. I’m a Geiger counter for the stuff. If gluten is in a product I invest my body crippled up with pain from inflammation. 

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