Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How does one cope?


wildwitchnz
Go to solution Solved by Scott Adams,

Recommended Posts

wildwitchnz Apprentice

How do y'all cope with the 'gluten poops' ? And the 'gluten farts' 🤭 sorry gross question but I had to ask. I have found that my number 2's have a very distinctive smell compared to normal number 2's, and it also looks different (yes I've looked lol) I don't know if anyone else has done this, but mine seems to have this greasy/oily kind of look to it, and it's pale and can sometimes look almost yellowish in colour, but the worst has got to be the foul smell, like, even I can't stand the smell and it's coming out of me lol and the wind is just as bad, the smell after passing wind(farting) is horrendous and just seems to linger for ages. I find this part of being 'glutenend' really embarrassing and in the beginning, I barely left my house. Now, I'm almost a year diagnosed and getting so much better at choosing the right food, but when those 'mistakes' happen, boy, I feel so sorry for everyone else in my household that has to deal with that smell 😐 

Has anyone found an air freshener or anything that helps to get rid of that smell fast? I'd be very keen to know of anything that would work! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Were you diagnosed with celiac disease, and if so, how long have you been gluten-free? I ask because greasy floating stools are a common issue with the malabsorption that is cased by the flattened villi. It can take a year or two for your gut to fully heal.

wildwitchnz Apprentice

I was only diagnosed in March 2021 so I'm still finding my way thru

  • Solution
Scott Adams Grand Master

There may be ways to speed up gut healing, for example taking supplements like the amino acid glutamine and/or collagen. Just make sure they say "gluten-free" on their labels.

knitty kitty Grand Master

My grandmother always said to light a match.  There was frequently a candle burning in her bathroom.

RMJ Mentor

You could try a product like Poo-Pourri.  I haven’t used it but it gets good reviews. You spray in the toilet before use and it is supposed to create a film on the top of the water that traps the odor. It wouldn’t help with wind though.

Marimarston Rookie
On 11/4/2022 at 7:35 PM, wildwitchnz said:

How do y'all cope with the 'gluten poops' ? And the 'gluten farts' 🤭 sorry gross question but I had to ask. I have found that my number 2's have a very distinctive smell compared to normal number 2's, and it also looks different (yes I've looked lol) I don't know if anyone else has done this, but mine seems to have this greasy/oily kind of look to it, and it's pale and can sometimes look almost yellowish in colour, but the worst has got to be the foul smell, like, even I can't stand the smell and it's coming out of me lol and the wind is just as bad, the smell after passing wind(farting) is horrendous and just seems to linger for ages. I find this part of being 'glutenend' really embarrassing and in the beginning, I barely left my house. Now, I'm almost a year diagnosed and getting so much better at choosing the right food, but when those 'mistakes' happen, boy, I feel so sorry for everyone else in my household that has to deal with that smell 😐 

Has anyone found an air freshener or anything that helps to get rid of that smell fast? I'd be very keen to know of anything that would work! 

Oh dear I’ve been there! Yes, the oily/greasy residue is normal after gluten as is a very distinctive smell, at least it was to me. But this continued for quite a while into my GFD. I think it takes time for your bowels to settle down and heal after years of gluten damage. I used to fly regularly between New York and London, and it was a huge embarrassment on the flights! Eventually the smell gets so bad people can actually identify it’s coming from you from rows away! The most effective thing I found was striking a match in the bathroom after, or lighting a candle (doesn’t have to be fragranced) helps. Overnight, scattering some bicarbonate of soda in your loo can help suppress lingering smells. However, sadly none of these are an option on an aeroplane, so if you figure that one out, let me know! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rhonda Hildreth Newbie

Try a product called MedChoice - a biological odor eliminator. I have a 2 ounce spray bottle and it is distributed by Owens and Minor, Mechanicsville, VA 23116. Made in USA. Also, there is a product called Medi-aire  by C.R. Bard, Inc. in Covington, GA 30014. Phone 1-800-526-4455.  These products should be available through medical supply stores. 

Ginger38 Rising Star
On 11/4/2022 at 3:35 PM, wildwitchnz said:

How do y'all cope with the 'gluten poops' ? And the 'gluten farts' 🤭 sorry gross question but I had to ask. I have found that my number 2's have a very distinctive smell compared to normal number 2's, and it also looks different (yes I've looked lol) I don't know if anyone else has done this, but mine seems to have this greasy/oily kind of look to it, and it's pale and can sometimes look almost yellowish in colour, but the worst has got to be the foul smell, like, even I can't stand the smell and it's coming out of me lol and the wind is just as bad, the smell after passing wind(farting) is horrendous and just seems to linger for ages. I find this part of being 'glutenend' really embarrassing and in the beginning, I barely left my house. Now, I'm almost a year diagnosed and getting so much better at choosing the right food, but when those 'mistakes' happen, boy, I feel so sorry for everyone else in my household that has to deal with that smell 😐 

Has anyone found an air freshener or anything that helps to get rid of that smell fast? I'd be very keen to know of anything that would work! 

Man I can totally relate to this!! For this reason when I go certain places , like my significant others house, I eat very little.. if anything. It’s embarrassing for sure and when I have to go I have to go and it’s very loud 😳 I have looked at my stools as well, and if gluten is involved they are just as you described. At one point into my gluten free diet I asked my mom what normal poo looks like bc mine was not normal To me but apparently what I was seeing was actually “normal” unfortunately that was short lived for me, I have really been messing up on my diet and not being careful enough 🤦🏼‍♀️ the smell is very bad…. Bad enough that my daughter calls it gluten poop. There are times she is like mom have you had gluten bc it smells like it 😳😂 I use candles and sprays but idk how much it helps. I tried that poo-pouri stuff once but I wasn’t that impressed for the price and to be honest sometimes I don’t have the extra time to spray before.  Also if I have really bad gas I take gas ex and I’ve done some yoga poses I found online to help relieve the trapped gas

Linda Hannibal Rookie

I completely relate to this topic and have tried pre and probiotics. I find that bone broth has helped. Your gut is compromised because of Celiac and leaky gut. I developed an intolerance to soy which causes similar symptoms to a gluten exposure. Try the elimination diet and add foods back in and see if dairy or soys could also be the culprit. You could also getting exposure to gluten via cross contamination. My vitamin D is low and I get muscle spasms. Celiac is a pain in my derrière

Good luck

Lisa A. Pickering Newbie

I'd ask your Dr. re: oily stools. Pancreas issues are sometimes related to that. Keep your fiber and fluids up daily.  Good Luck! 

wildwitchnz Apprentice
3 hours ago, Linda Hannibal said:

I completely relate to this topic and have tried pre and probiotics. I find that bone broth has helped. Your gut is compromised because of Celiac and leaky gut. I developed an intolerance to soy which causes similar symptoms to a gluten exposure. Try the elimination diet and add foods back in and see if dairy or soys could also be the culprit. You could also getting exposure to gluten via cross contamination. My vitamin D is low and I get muscle spasms. Celiac is a pain in my derrière

Good luck

I am also lactose intolerant, and I  haven't had any dairy since being a small child and my mum found out and put me on soy milk. I try so very hard to eat exclusively on my own and I use a separate shelf/utensils/toaster/bread board etc it's so very frustrating 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,963
    • Most Online (within 30 mins)
      7,748

    Cheryl minshew
    Newest Member
    Cheryl minshew
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Pasballard
      I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they  are high in carbs.  I put on 25 lbs in a short amount of time.  Whole Foods are the best way to go but I struggle with this.  The cost of gluten free is also a problem.  I love black licorice but most have gluten.  My favorite chili seasoning as well.  The list is endless.  I take  Advil liquid gels and had no idea until I read this.  I hope you do better than I have done.  I feel I am destined to suffer daily no matter what.  My aunt didn’t take care of herself and died from complications.  I hope you can get on a good routine.
    • growlinhard1
      Thank you, I appreciate the response. I'm going to begin the gluten free diet and wait for the biopsy results. I feel fairly certain that it's the right thing for my well being. I will keep you posted.
    • Scott Adams
      The flu vaccine is indeed not 100% effective every year, as its effectiveness varies depending on how well the vaccine strains match the circulating flu viruses. However, even in years when the match is less than perfect, the flu vaccine still provides significant benefits. Studies consistently show that vaccinated individuals who contract the flu often experience milder symptoms, a lower risk of complications, and a reduced likelihood of hospitalization or death compared to those who are unvaccinated. For high-risk groups, such as the elderly, young children, and individuals with chronic health conditions, the flu vaccine remains a critical tool for reducing severe outcomes. Regarding the mention of risks associated with vaccines, it’s important to note that the flu vaccine is generally very safe for most people. Serious side effects are extremely rare, and the benefits of vaccination far outweigh the risks for the vast majority of individuals. If someone has specific concerns about vaccine safety due to medical conditions or allergies, they should consult their healthcare provider to discuss their options. As for alternative measures like a D Lamp (ultraviolet light disinfection), while these can be useful for reducing pathogens in the environment, they are not a substitute for vaccination. The flu virus spreads primarily through respiratory droplets, and personal protection measures like hand hygiene, masking, and improving indoor ventilation can complement vaccination but cannot replace its targeted immune protection.
    • trents
      Because you have already had the "gold standard" test done, and because you have some experiential evidence that removing gluten from your diet causes you to feel better, it would make sense to begin the gluten-free diet as you wait for biopsy results.
    • growlinhard1
      I wasn't given any blood tests. I think I should try the gluten free diet because when I cut it out a few weeks ago for just a couple of days, I know I started feeling better. The difference was actually pretty dramatic. When I learned gluten free eating may cause false negative biopsy results, I went back to gluten full force and feel like you know what × 10. Do you feel it would be okay since the gold standard for diagnosis is behind me or should I wait for biopsy results? In your opinion, of course. I know you can't offer me medical advice.
×
×
  • Create New...