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proud of my healing

MADMOM
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MADMOM Community Regular
MADMOM
Posted

just wanted to share that i’ve been on my gluten-free journey now for 22 months!  i was diagnosed in Dec 2021 with a marsh score of 3-4 flattened villi - i recently saw my GI dr for a blood test to check my levels such were in the 200s and can proudly report that both my levels are in the normal range and come up as negative in my system - 11.2 and 11.6 

my GI says it’s so rare to see such improvement and is proud of me!  i’m proud of myself - i feel great so please 

have faith in the process 

Just now, MADMOM said:

just wanted to share that i’ve been on my gluten-free journey now for 22 months!  i was diagnosed in Dec 2021 with a marsh score of 3-4 flattened villi - i recently saw my GI dr for a blood test to check my levels such were in the 200s and can proudly report that both my levels are in the normal range and come up as negative in my system - 11.2 and 11.6 

my GI says it’s so rare to see such improvement and is proud of me!  i’m proud of myself - i feel great so please 

have faith in the process 

sorry i was dx in Dec 2020 

 

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cnazrael89 Enthusiast
cnazrael89
Posted

Sounds like you are doing very well! Good job! That is an awesome achievement and you should indeed be very proud of yourself! Keep taking care of yourself. Thanks for sharing! I was just diagnosed by blood and endoscopy and it's nice to hear about your success! Gives me hope! I've been gluten free since 10/24/22. 

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RMJ Mentor
RMJ
Posted

Congratulations!  You should be proud.  It took me 6 years to get all antibody levels to the normal range.  DGP IgA was really stubborn.

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MADMOM Community Regular
MADMOM
  • Author
Posted
3 hours ago, RMJ said:

Congratulations!  You should be proud.  It took me 6 years to get all antibody levels to the normal range.  DGP IgA was really stubborn.

ty i really kept it strict and was so excited when my dr called!  i don’t know how much lower i can get then at this point but my levels now come up negative 🙌🏻

3 hours ago, RMJ said:

Congratulations!  You should be proud.  It took me 6 years to get all antibody levels to the normal range.  DGP IgA was really stubborn.

if you stick to it and don’t cheat - you will have the same success! 

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RMJ Mentor
RMJ
Posted
20 minutes ago, MADMOM said:

ty i really kept it strict and was so excited when my dr called!  i don’t know how much lower i can get then at this point but my levels now come up negative 🙌🏻

if you stick to it and don’t cheat - you will have the same success! 

My values continued to get lower even after they were in the negative range - except for a time I was using gluten free flour that wasn’t quite as gluten free as it could have been.

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GodsGal Community Regular
GodsGal
Posted
On 11/5/2022 at 8:56 PM, MADMOM said:

just wanted to share that i’ve been on my gluten-free journey now for 22 months!  i was diagnosed in Dec 2021 with a marsh score of 3-4 flattened villi - i recently saw my GI dr for a blood test to check my levels such were in the 200s and can proudly report that both my levels are in the normal range and come up as negative in my system - 11.2 and 11.6 

my GI says it’s so rare to see such improvement and is proud of me!  i’m proud of myself - i feel great so please 

have faith in the process 

 

Congratulations! Good job! Well done.

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GodsGal Community Regular
GodsGal
Posted
14 hours ago, cnazrael89 said:

Sounds like you are doing very well! Good job! That is an awesome achievement and you should indeed be very proud of yourself! Keep taking care of yourself. Thanks for sharing! I was just diagnosed by blood and endoscopy and it's nice to hear about your success! Gives me hope! I've been gluten free since 10/24/22. 

You can do it! I remember how hard it was when I started. I don't know how it has been for you. I tell people that when I started, it was like I was trying to get a drink of water from a high pressure water hose. But it does get better. There's definitely hope for you. 

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Kate333 Rising Star
Kate333
Posted

Congrats, Madmom!!  You are right to be proud of yourself!!   Adopting and maintaining a strict gluten-free diet (including avoiding the risk of cross-contamination) is one of the biggest challenges you will likely encounter in life, esp. in a culture which promotes almost 100% packaged, processed, unhealthy food.

BTW, I also had TTG antibody levels in the 200s (224, as I recall) when first diagnosed in late 2019, and it also took about 2 years on a strict gluten-free diet to finally reach that magic number (normal range).    I was so pleasantly shocked when my GI doc said the latest labs this past June showed G antibodies were undetectable (0.5), that I even insisted on a repeat of the test just to make sure there was no lab error.  LOL

So go celebrate--with a gluten-free meal, of course--but don't let your guard down.  You want to maintain that hard-won progress and healing!  

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MADMOM Community Regular
MADMOM
  • Author
Posted

ty and you should be proud as well 🙌🏻

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Rogol72 Collaborator
Rogol72
Posted

Congrats @MADMOM ...well done! Just goes to show you hard work and diligence really does pays off.

@Kate333, that's really impressive to get G antibodies so low. Mine were at 3.1 a year ago, more motivation to get even lower now!!

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