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Can you have a positive blood test, but a negative biopsy - and still be celiac?

Jojo7
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Jojo7 Newbie
Jojo7
Posted

Hi everyone :)

Soooooo... I'm super confused. 

I had my blood tests done a month ago ish and it came back positive on Transglutaminase-IgA. They even did it twice. Same result. And ofc i ate gluten back then. 

Then they did my biopsy about two weeks ago. Right after when I woke up they informed me that they had seen some signs of celiac and that I should go on a glutenfree diet immediately.

Cut to two weeks later - now. 

I just got the answer from the biopsy in a letter and now they say it's normal and that I can go back to eating gluten again. (I've chosen not to, until I know what's going on) They will schedule a meeting where they'll probably close my case. I'm super confused. 

Especially cause I have so many symptoms as well. I've noticed a pattern when I think I'm glutened. 

Tired AF -> bloated and having a hard time breathing -> excessive yawning -> jerks while sleeping -> nauseous -> MAJOR headache waking up next day and super tired -> and ofc constipated.

Have anyone tried anything like this? (Negative biopsy, but still feeling bad. Or similar symptoms) 

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LynseyClare Rookie
LynseyClare
Posted
On 12/12/2022 at 12:19 PM, Jojo7 said:

Hi everyone :)

Soooooo... I'm super confused. 

I had my blood tests done a month ago ish and it came back positive on Transglutaminase-IgA. They even did it twice. Same result. And ofc i ate gluten back then. 

Then they did my biopsy about two weeks ago. Right after when I woke up they informed me that they had seen some signs of celiac and that I should go on a glutenfree diet immediately.

Cut to two weeks later - now. 

I just got the answer from the biopsy in a letter and now they say it's normal and that I can go back to eating gluten again. (I've chosen not to, until I know what's going on) They will schedule a meeting where they'll probably close my case. I'm super confused. 

Especially cause I have so many symptoms as well. I've noticed a pattern when I think I'm glutened. 

Tired AF -> bloated and having a hard time breathing -> excessive yawning -> jerks while sleeping -> nauseous -> MAJOR headache waking up next day and super tired -> and ofc constipated.

Have anyone tried anything like this? (Negative biopsy, but still feeling bad. Or similar symptoms) 

Hey! I've just put a post on pretty identical to yours!! I'm so fed up! 

Had my endoscopy 2 weeks ago and spoke to my GP today who read out my report. Said unlikely coeliac :( I have an appointment with the consultant but not until 11 January!!

If its not coeliac then what is it!!!! 

Scott Adams Grand Master
Scott Adams
Posted

@Jojo7 your situation is unusual, and it would be a great question to ask your gastroenterologist. Why would they tell you it looks like celiac disease as you were recovering from your biopsy, then change this on the report? I can't think of any reason at all.

If your tTG blood test result was positive, then you likely have celiac disease--especially if your gastro told you this right after your biopsy, which they did!

I think you should just go gluten-free and see if your symptoms improve, and assume you have celiac disease.

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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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