Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Worrying is Exhasuting

Emma E
 Share

Recommended Posts

Emma E Newbie
Emma E
Posted

Hi! I’m new to the forum, so I’m not really sure how many people are active on here. 
After lifelong GI issues (paired with other health issues that I’ve long suspected correlate with each other). I saw a GI specialist who ran a blood panel and I was told I have markers for celiac. The soonest I can get in for my biopsy is mid-March 2023 and I’m having a difficult time coping with the unknown. Curious if anyone else has or is currently going through a similar process and what you’ve done to cope. I have a meeting with a nutritionist coming up and I hope that will give me more peace of mind. 
🤍

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum! Feel free to share your test results here if you like, and if you do please include the reference ranges for positive test results. I mention this because in Europe strong positive results 10x the level for celiac disease mean that you can be diagnosed without an endoscopy, however, doing the biopsy is still considered the best overall way to diagnose celiac disease. 

Since you have to wait so long it might make sense to go gluten-free for now, but you will need to eat ~2 slices worth of wheat bread per day for at least 2 weeks before the endoscopy, otherwise you could end up with false negative results.

If you have little or no symptoms now, then you may want to just continue eating gluten regularly. If you do have symptoms and stop gluten for now, and your symptoms go away, this would be another indicator that you indeed do have it, or at least have non-celiac gluten sensitivity (no tests for this yet, although ~10x more people have it than celiac disease).

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,746
    • Most Online (within 30 mins)
      7,748
    Jaxine
    Newest Member
    Jaxine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Thank you so much Trents (Scott?)! I have started working with a dietitian and did a deep research dive as soon as I got the diagnosis. I am aware of what you mentioned in the first two paragraphs, and was not aware of anything in the third, so I am grateful for that information, and will talk to the dietitian about that. I think I was most interested in the withdrawal process - it gives me hope that, although I have felt unwell recently, I just need to be patient (not a strong suit). I have printed the article you sent and will look at it more closely. Thanks again!
    • Sandi20
      Gluten Free Daily Vitamins for Kids w/ Celiac

      By Sandi20 · Posted

      I really like Thorne!  I've researched thier products.  Thank you so much.
    • trents
      Newly gluten free… withdrawal?

      By trents · Posted

      Welcome to the forum, @K6315! Gluten withdrawal typically lasts for a period of a few weeks. But there is a real learning curve involved in actually attaining to a gluten free dietary state. Much more is involved than just cutting out major sources of gluten such as bread and pasta. It's all the places that gluten is hidden in the food supply that is difficult to ferret out, like soy sauce and canned tomato soup, canned chili and canned pork n' beans, some "lite" pancake syrups, potato salad, flavorings, etc., etc. Gluten-containing grain products are hidden through alternate terminology and found in places you would never expect.  There is also "cross contamination" where naturally gluten free foods come into contact with gluten-containing grains during farming, transportation, storage and manufacturing processes. Then there is the issue of "cross reactivity" whereby you may be having gluten-like reaction to food proteins whose structure is similar to gluten. Chief among these are dairy, oats (even gluten-free oats), soy, corn and eggs. I am including this article that you might find helpful:   
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Prior to being diagnosed, I had a gluten heavy diet. I stopped all gluten exactly a week ago and have continued to feel sick in the ways I did prior to going gluten free - primarily on and off nausea, brain fog, and fatigue. Wondering if this is normal and, if so, how long can I expect to feel this way?
    • Scott Adams
      Gluten Free Daily Vitamins for Kids w/ Celiac

      By Scott Adams · Posted

      Some of the largest contract manufacturers in the U.S. include companies like NutraScience Labs, Capsugel (part of Lonza), and Thorne Research. These companies produce supplements for a wide range of brands, from small startups to well-known names.
×
×
  • Create New...