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Feels like I can’t eat anything


SargeMaximus

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SargeMaximus Collaborator
1 hour ago, knitty kitty said:

Yes that one is great.  

I looked on the same site and found this one...

https://www.walmart.ca/en/ip/Life-Extension-Mega-Benfotiamine-250-mg-120-Vegetarian-Capsules/PRD7A85TQTKJAN5

Yes $46. I think I’ll try the cheaper ones first. Thanks


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SargeMaximus Collaborator
1 hour ago, knitty kitty said:

Yes that one is great.  

I looked on the same site and found this one...

https://www.walmart.ca/en/ip/Life-Extension-Mega-Benfotiamine-250-mg-120-Vegetarian-Capsules/PRD7A85TQTKJAN5

Those are both over $30 and $40 dollars tho! Where is that $4.99 one you mentioned?

trents Grand Master

Perhaps the technology knows the location of the one checking the price on the Canadian vendor's website such that shipping to a U.S. location is much cheaper.

SargeMaximus Collaborator
3 minutes ago, trents said:

Perhaps the technology knows the location of the one checking the price on the Canadian vendor's website such that shipping to a U.S. location is much cheaper.

So i live in Canada but it costs less to ship it to the states?

trents Grand Master

knitty kitty lives in the U.S.. When she checks the price from the U.S., she gets a different shipping rate than you do and therefore a different price. Just be cause the website (walmart.ca.com) is Canadian-based doesn't mean the product referenced is shipping from Canada. That's my theory.

knitty kitty Grand Master
(edited)

@SargeMaximus,

Here's the link....

https://www.vitamart.ca/now-b-1-100mg

 

@trents it does look like prices are higher if one doesn't have "prime".  

Edited by knitty kitty
Add link
SargeMaximus Collaborator
19 hours ago, knitty kitty said:

@SargeMaximus,

Here's the link....

https://www.vitamart.ca/now-b-1-100mg

 

@trents it does look like prices are higher if one doesn't have "prime".  

Ok thanks. I got it off Walmart.ca and it arrives Wednesday. Is this the one that helps heal intestines too?

 

 

also, I had a few protein bars today just randomly and I felt absolutely incredible! Any idea why? “Healthy food” doesn’t give me this feeling. I can’t figure out what caused it. One was a Cliff Bar and the other was a “ONE” bar


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knitty kitty Grand Master

@SargeMaximus,

I'm glad you found it!  

Yes, any thiamine will help heal.  Benfotiamine has been studied and shown to heal the intestinal tract.  Benfotiamine can enter cells easily without going through the Thiamine transporters (doorways).  

Thiamine Hydrochloride has to go through the transporters to get into the cells.  If there's a high concentration of Thiamine HCl outside the cells, the transporters are forced open and thiamine HCl can get in. 

When I was taking Thiamine Hydrochloride, I increased my doses gradually until I took 300 mg Thiamine HCl tablets every three hours until six pm.  Taking Thiamine at night can make it difficult to go to sleep.  

Our bodies can absorb about 300 mg in about 3 hours.  I was severely deficient.  I had improvement within an hour of taking my first dose.  If you're not as deficient, you may not need to take Thiamine as aggressively as I did.  You can start with 100 mgs with each meal (3 times a day).  As long as you're feeling better and seeing improvement, keep increasing the dose.

Some people taking Thiamine will feel better and then feel worse.  Reduce the dose until you feel better, then try increasing it again.  It's the body's way of adjusting to having a constant supply of Thiamine.  

Thiamine needs magnesium to make important enzymes.  Oatmeal, nuts, and dark chocolate are good sources of magnesium.  I take Magnesium Glycinate.  

Healthy fats, Omega Threes, help thiamine work.  Your brain is mostly fats, too.  Nuts and seeds, olive oil, avocado oil, salmon are examples of healthy Omega Threes.  

Maybe you felt better after those snack bars because they contained nuts with healthy fats.  Maybe your body liked it because it all those nuts and crisps are stuck together with rice syrup, tapioca syrup, and cane syrup and maltotol.  Those syrups are mainly glucose which goes directly into your blood stream.  A big sugar high.  

Be careful!!!  Some flavors of Cliff bars used BARLEY Malt extract or maltitol.  Barley is a grain that contains gluten.  (Wheat, barley and rye.)  Some have dairy ingredients, if you're sensitive to dairy.

You didn't mention the flavor, but I hope you didn't get glutened! 

Now is a good time to start a food/mood/poo'd journal if you haven't already.  Keep track of your thiamine intake there as well.  

Visit Eliot Overton's website and YouTube channel for more information about taking Thiamine.  

https://www.eonutrition.co.uk/blog

Dr. Derrick Lonsdale and co author Dr. Chandler Marrs' website

https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/

 

I'm not a doctor.  This is what works for me and is based in much scientific research. 

Keep us posted on your progress!

trents Grand Master
1 hour ago, SargeMaximus said:

Ok thanks. I got it off Walmart.ca and it arrives Wednesday. Is this the one that helps heal intestines too?

 

 

also, I had a few protein bars today just randomly and I felt absolutely incredible! Any idea why? “Healthy food” doesn’t give me this feeling. I can’t figure out what caused it. One was a Cliff Bar and the other was a “ONE” bar

In any recent blood work you have had done did they check for albumin and total protein levels?

SargeMaximus Collaborator
6 minutes ago, trents said:

In any recent blood work you have had done did they check for albumin and total protein levels?

I will ask when I see the doctor as I recently had blood drawn.

 

@knitty kitty thanks for the details! Yes it was a macadamia flavour but I get gluten from my pasta as well.

SargeMaximus Collaborator

Oh btw @knitty kitty does this mean my body somehow doesn’t get glucose from regular food? You mentioned the protein bars have glucose that goes straight into my blood… does that mean it isn’t going I to my blood from regular food sources? If so, why not?

knitty kitty Grand Master
(edited)

@SargeMaximus,

In a way, yes.  Thiamine and other vitamins are needed to make digestive enzymes, enzymes that break down complex carbohydrates into simple sugars like glucose.  The heavier the carbohydrate load, the more Thiamine is required.  

Glucose can go through the intestinal wall and get into the blood stream.  In the brain, glucose stimulates certain cells to make neurotransmitters which help brain function and thought processes. 

A large load of glucose can lower histamine levels in the brain.  High histamine levels in the brain shut systems down resulting in brain fog.  Histamine is released as part of the autoimmune response in Celiac.  Mast Cell disorders and histamine intolerance are common in Celiac.  Thiamine helps mast cells not release histamine.

Ugh, I've had the brain fog and high histamine.  The AIP diet definitely helped with that.  

Do you eat Vitamin C foods?

Dairy is very inflammatory.  Have you tried excluding dairy for a bit to see if it helps?

Edited by knitty kitty
Additional information
SargeMaximus Collaborator
27 minutes ago, knitty kitty said:

@SargeMaximus,

In a way, yes.  Thiamine and other vitamins are needed to make digestive enzymes, enzymes that break down complex carbohydrates into simple sugars like glucose.  The heavier the carbohydrate load, the more Thiamine is required.  

Glucose can go through the intestinal wall and get into the blood stream.  In the brain, glucose stimulates certain cells to make neurotransmitters which help brain function and thought processes. 

A large load of glucose can lower histamine levels in the brain.  High histamine levels in the brain shut systems down resulting in brain fog.  Histamine is released as part of the autoimmune response in Celiac.  Mast Cell disorders and histamine intolerance are common in Celiac.  Thiamine helps mast cells not release histamine.

Ugh, I've had the brain fog and high histamine.  The AIP diet definitely helped with that.  

Do you eat Vitamin C foods?

Dairy is very inflammatory.  Have you tried excluding dairy for a bit to see if it helps?

Very useful, thank you.

I've had bad brain fog lately. Not sure what's causing it tbh.
Yes I went without dairy and without grains entirely for a few years but it was very difficult. I felt clear and healthy but couldn't put on weight. I always seem to come back to bread because it's the only thing my body seems to respond to. I remember when I was eating sourdough bread regularly I'd have my memories coming back! Normally I can barely remember anything but on sourdough bread I was remembering everything. It was astounding. Like being a different person. So the differences in bread vs no bread are severe.

And yes I eat pineapple nearly everyday
 

knitty kitty Grand Master

Breads are a source of vitamins that may have helped your brain function.  But the inflammation and long term damage it causes in Celiacs isn't worth it.  

That's why taking essential vitamins and minerals when you go gluten free is important, especially while healing.  

Even people who have been on the gluten free diet for a long time can develop nutritional deficiencies.  Choosing nutrient dense foods is important.  

Is the pineapple fresh or canned?  Fresh pineapple would be beneficial.  It has more Vitamin C and Betaine Hydrochloride which helps digestion.  

Wheatwacked Veteran

 

The added B vitamins in Canadian flour and sourdough is fermented for benificial bacteria. May explain the boost. It's got B1,B2,B3,B5,B6,B9 and magnesium to power up your flour. Too bad it has gluten.

Quote

 

Labelling and composition requirements for grain and bakery products

Enriched flour and bread

Flour (which may also be called white flour, enriched flour or enriched white flour) must contain added thiamine, riboflavin, niacin, folic acid and iron at the levels prescribed by regulation [B.13.001, FDR]. In addition, vitamin B6, d-pantothenic acid, magnesium and calcium may also be added to prescribed levels [B.13.001, FDR]. These added nutrients are not required to be declared in the Nutrition Facts table [B.01.402(7), FDR] unless they are the subject of a claim [B.01.402(4), FDR]

 

 

SargeMaximus Collaborator
6 hours ago, knitty kitty said:

Breads are a source of vitamins that may have helped your brain function.  But the inflammation and long term damage it causes in Celiacs isn't worth it.  

That's why taking essential vitamins and minerals when you go gluten free is important, especially while healing.  

Even people who have been on the gluten free diet for a long time can develop nutritional deficiencies.  Choosing nutrient dense foods is important.  

Is the pineapple fresh or canned?  Fresh pineapple would be beneficial.  It has more Vitamin C and Betaine Hydrochloride which helps digestion.  

It’s frozen pineapple 

Liquid lunch Enthusiast
On 1/6/2023 at 12:53 AM, knitty kitty said:

Allithiamine and Thiamax help with brain function.  

@knitty kitty Thankyou so much for this :) I came here thinking I might be able to help others with things I’ve found that help but have learned so much already.

I’m having trouble in the U.K. locating these types of thiamine for brain function, is it worth getting the stuff that helps with the guts as well and taking half of each if both brain and guts are an issue? Could you point me in the direction of the brain ones or alternatives available here please? I’m really struggling. I’ve found the one for guts but not the brains. 

Liquid lunch Enthusiast

@knitty kitty I just realised I have a relative on her way to America now for a visit so I could ask her to bring some back, do you get your Allithiamine and Thiamax from the American Amazon website? It doesn’t seem to be available on the U.K. Amazon.

Liquid lunch Enthusiast

@knitty kitty ok I just re read this whole conversation and found this link a few pages back.

thanks again so much for this info, I plan on taking half of each type. My whole family have similar symptoms so it’s not just me you’ve helped, Thankyou! I’m hopeful about this.

https://www.pureformulas.com/allithiamine-vitamin-b1-50-mg-60-capsules-by-ecological-formulas.html?accountid=53000524&CAWELAID=847733950&CATARGETID=530005240008780909&cadevice=t&gclid=EAIaIQobChMIycTA4uKx_AIVgRXUAR2sqgJEEAQYASABEgKPuPD_BwE

knitty kitty Grand Master
(edited)

@Liquid lunch,

It's a blessing to me that you and your family are going to try Thiamine!  

I'm glad you found a link to the Allithiamine.  Do be aware that Allithiamine is made from garlic, a member of the Allium family of plants.  Sometimes there's an essence of garlic if one takes a very high dose.  It's not bothersome to me.  It fades away as my body utilizes it.  So spread your doses out and increase doses slowly.  

Thiamax is the synthetic form of allithiamine.  Thiamax has a little added in magnesium taurate which makes it really smooth and subtle. 

It's available on Elliott Overton's website in the U.K. here....

https://www.eonutrition.co.uk/store

There's another formulation, Lipothiamine, that is good.  It's got a little lipoic acid added.         I was taking this form but it became scarce a couple years ago (thiamine does have antiviral properties).  Just adding it here  as another option that you can shop for.  

https://www.pureformulas.com/lipothiamine-60-tablets-by-ecological-formulas.html

 

All these TTFD (Tetrahydrofurfuryl disulfide) formulations get into the brain.  Benfotiamine needs a carrier, a red blood cell, to cross the Blood/Brain Barrier.  Allithiamine and the others have a backstage pass and go in unescorted.  😼  Benfotiamine is the one that has been scientifically studied specifically  for intestinal health.  Allithiamine has been studied specifically for it's benefits to the brain.  

I take a combination of Benfotiamine and Allithiamine and thiamine hydrochloride every day.  I've found taking Allithiamine and Thiamine HCl after supper can make sleep elusive, but they are great in place of coffee in the morning.

Caffeine, coffee, black tea, chocolate, and sweet potatoes have thiaminase, a chemical that makes Thiamine inactive.  Do be careful not to take these within a couple of hours of each other.

Do take a magnesium supplement, too.  Thiamine needs magnesium as a cofactor in enzymes.  Magnesium citrate and magnesium glycinate are good choices. 

Do take a good B Complex supplement.  All eight B vitamins need each other to work properly.

Taking healthy Omega Three fats with these fat soluble forms of Thiamine.  It will help their absorption.  I take Flaxseed oil and Evening Primrose oil.  

Do keep us posted on your results!  I'm looking forward to hearing about your family's results, too!

Best wishes!

 

 

P. S.  Not a doctor, not diagnosing, not prescribing.  This is what works for me.

Edited by knitty kitty
Typo
knitty kitty Grand Master

@SargeMaximus,

Only fresh pineapple has Betaine Hydrochloride.  But Betaine Hydrochloride capsules are available over the counter.  

Betaine Hydrochloride is a digestive enzyme that is helpful for those with low stomach acid.  Gerd is a symptom of low stomach acid.  

Liquid lunch Enthusiast
15 minutes ago, knitty kitty said:

Thiamax is the synthetic form of allithiamine.

You are a wealth of information and excellent at communicating it :). I have a natural aversion to anything synthetic and don’t mind garlic so will try the allithiamine and Benfotiamine. My sister isn’t back from America until March so I’ll have to wait until then for the allithiamine but I can get benfotiamine from Amazon delivered here so I’ll try that first and let you know how it goes.

SargeMaximus Collaborator
42 minutes ago, knitty kitty said:

@SargeMaximus,

Only fresh pineapple has Betaine Hydrochloride.  But Betaine Hydrochloride capsules are available over the counter.  

Betaine Hydrochloride is a digestive enzyme that is helpful for those with low stomach acid.  Gerd is a symptom of low stomach acid.  

What is gerd? Also, you mentioned garlic. I eat a clove of garlic a day… will that give me any of these things I need?

trents Grand Master
27 minutes ago, SargeMaximus said:

What is gerd? Also, you mentioned garlic. I eat a clove of garlic a day… will that give me any of these things I need?

Gastro Esophageal Reflux Disease

knitty kitty Grand Master
30 minutes ago, SargeMaximus said:

What is gerd? Also, you mentioned garlic. I eat a clove of garlic a day… will that give me any of these things I need?

Eating a clove of garlic a day is good for other reasons, but there's not enough Allithiamine in one or several cloves to work like the Allithiamine and Benfotiamine supplements.

 

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