Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

effects on peritoneum/ rib cartiledge?


wayne w

Recommended Posts

wayne w Newbie

Wondering if anyone else has experienced the cartilage on their ribs or their peritoneum being affected by gluten? I cannot tell which it is, but underneath the floating ribs has sharp pains and weird gurgling sounds. Been restricted from physical activity for months now. It feels like the cartiledge under my ribs has disconnected, but sometimes I get the pains and gurgling all over my stomache and occasionally even around to my back (though this is more of a dull pain), so that and the history of neuropathy stuff makes me think its my peritoneum.

 

I've been gluten free 4-6 now months after two years of some crazy neuropathy stuff - twitching, stomach (or peritoneum?) spasms, formication, white flashes in my eyes, spinal sensations, etc. Took me this long to figure out it was PRIMARILY the gluten. At first, I thought it was coffee or anything histamine/ caffeine related. Had hives and dry skin for years before something, either the death of my father or bathing in a dirty stream, catalyzed my full blown allergy to gluten then it got real crazy starting a little very two years ago.

 

Now  I am finding I am EXTREMELY sensitive to not just gluten, but also dairy, sugar (even grapefruit), and anything high in histamine (e.g. coffee, tomatoe juice). I've been drinking diet soda thinking its some low histamine method of getting caffeine, but now that seems to be bothering me too. 

 

Docs checked for parasites and found none, so unless its some exotic thing that is difficult to detect I think thats out. Had a CT 1.5 years ago when it was mostly just starting up and they found nothing. Now they are reluctant to do another CT.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wayne w Newbie
Just now, wayne w said:

Wondering if anyone else has experienced the cartilage on their ribs or their peritoneum being affected by gluten? I cannot tell which it is, but underneath the floating ribs has sharp pains and weird gurgling sounds. Been restricted from physical activity for months now. It feels like the cartiledge under my ribs has disconnected, but sometimes I get the pains and gurgling all over my stomache and occasionally even around to my back (though this is more of a dull pain), so that and the history of neuropathy stuff makes me think its my peritoneum.

 

I've been gluten free 4-6 now months after two years of some crazy neuropathy stuff - twitching, stomach (or peritoneum?) spasms, formication, white flashes in my eyes, spinal sensations, etc. Took me this long to figure out it was PRIMARILY the gluten. At first, I thought it was coffee or anything histamine/ caffeine related. Had hives and dry skin for years before something, either the death of my father or bathing in a dirty stream, catalyzed my full blown allergy to gluten then it got real crazy starting a little very two years ago.

 

Now  I am finding I am EXTREMELY sensitive to not just gluten, but also dairy, sugar (even grapefruit), and anything high in histamine (e.g. coffee, tomatoe juice). I've been drinking diet soda thinking its some low histamine method of getting caffeine, but now that seems to be bothering me too. 

 

Docs checked for parasites and found none, so unless its some exotic thing that is difficult to detect I think thats out. Had a CT 1.5 years ago when it was mostly just starting up and they found nothing. Now they are reluctant to do another CT.

*cartilage not cartiledge

knitty kitty Grand Master
(edited)

Welcome to the forum, @wayne w!

Yes, it's called Costochondritis.  

I had it while I was deficient in Thiamine Vitamin B 1 prior to diagnosis.  I've been supplementing with high dose thiamine (as Dr. Derrick Lonsdale suggested) and B Complex, magnesium and Vitamin D.  

Here are some articles from Dr. Lonsdale's website with Dr. Marrs

https://www.hormonesmatter.com/?s=Costochondritis

Your symptoms sound similar to Mast Cell Activation Syndrome/Histamine Intolerance/Fructose Malabsorption Syndrome.  

I found the Autoimmune Protocol Diet (AIP diet) is very helpful in getting ones health back.

Hope this helps!

Edited by knitty kitty
Add link and information
cristiana Veteran

Another costochondritis sufferer here.  I get gastritis like symptoms when I am glutened, and burning particularly under my left rib.  But for some reason it seems to set off nasty, burning rib pain too, which wraps round the enitre left side of my lower ribs.   Maybe the associated bloating I get with glutening is a contributing factor.  It is really horrid and the pain got to me tremendously when first diagnosed because I just couldn't understand how it couldn't be something more serious.

There used to be a costochondritis forum, can't find it now.  I read it for many months some years ago and guess what - the person  who set it up ended up with a coeliac diagnosis!  

I'm not a doctor however - so before self-diagnosing, do mention this to him/her and see what they think.   

wayne w Newbie

Sounds very similar to what I'm experiencing. Starting to fear it might be chronic fungal or bacterial infection or cancer in the peritoneum, neither of which are good. Was unsure if celiac could do something like this so thanks. 

 

wayne w Newbie
On 1/8/2023 at 9:29 PM, knitty kitty said:

Welcome to the forum, @wayne w!

Yes, it's called Costochondritis.  

I had it while I was deficient in Thiamine Vitamin B 1 prior to diagnosis.  I've been supplementing with high dose thiamine (as Dr. Derrick Lonsdale suggested) and B Complex, magnesium and Vitamin D.  

Here are some articles from Dr. Lonsdale's website with Dr. Marrs

https://www.hormonesmatter.com/?s=Costochondritis

Your symptoms sound similar to Mast Cell Activation Syndrome/Histamine Intolerance/Fructose Malabsorption Syndrome.  

I found the Autoimmune Protocol Diet (AIP diet) is very helpful in getting ones health back.

Hope this helps!

Yes when this first started two years ago histame (mainly coffee) was what I thought was the only thing I'm reacting to. Now it's everything. Thiamine is one thing I've never looked into so really thank you 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      33

      What should I do with these test results?

    2. - Itsabit replied to Itsabit's topic in Dermatitis Herpetiformis
      10

      SkinSafe

    3. - Itsabit replied to Itsabit's topic in Dermatitis Herpetiformis
      10

      SkinSafe


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,324
    • Most Online (within 30 mins)
      7,748

    TimothyV
    Newest Member
    TimothyV
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Itsabit
    • Itsabit
    • trents
      From the article you linked: "Currently, there are no recommended methods to test for non-celiac gluten sensitivity." "No recommended methods" is the key phrase here. Just on the anecdotal evidence of reading many posts on this forum, I think we sometimes see some elevated igg test scores with NCGS. They seem to be mildly elevated in these cases, not high high.
    • Itsabit
      Thank you for your reply. I’m beginning to think of iodine as another culprit in this, as much as I fear it. I will say my rash is extreme and diffuse - it’s everywhere! I first had it on both sides of my neck in the summer of 2023. My PCP and dermatologist at the time, thought it was a reaction to jewelry I was wearing, even though I had been wearing the same necklaces for literally years with no reaction. The dermatologist at the time repeated over and over again that “allergies are acquired.” Which I knew. But I was not reacting to any other jewelry I was wearing. So it didn’t make any sense to me that it would only be from my necklaces. Anyway, it abated on it’s own. Only to come back with a vengeance months later - and I had not worn any necklaces at all. And the rash involved more area. I was put on Prednisone (oral steroid) taper and it worked well, and the itch and eventually the rash went away. Another trip to a different dermatologist at that time, prior to starting the Prednisone, told me to change all of my hygiene products like soap and shampoo, and to slather on Vaseline. None of which worked, hence the Prednisone. Needless to say, the itch and subsequent rash returned - and now spread everywhere, not just the hollows on both sides of my neck. It’s there, on my upper chest and left breast, both upper arms front and back, and elbows, my entire back, down both of my hips and buttocks and the front of my right thigh. Now the back of that right thigh is starting to itch as well. Also my lower right forearm and middle knuckle on my left hand since going gluten free. I’m just itching everywhere all the time. It keeps me awake, or wakes me up when I do fall asleep. I’m trying my best not to scratch, but it’s nearly impossible! I’ve been using a dry washcloth to rub instead of scratching. And I have used cool wet washcloths which help, but only lasts for a few minutes before starting up again. I’m pretty much at my wit’s end. Just waiting for something to indicate what’s really going on so I can do SOMETHING to stop it! 
    • Itsabit
      Reply to Russ H, Thank you for your input. As a nurse for 46 years I was aware of much of this. However, as a new member to dermatitis herpetiformis, I have been reading and researching everything I can about it in order to educate and help myself. I was hoping that the oral Dapsone would help to alleviate the itching. I knew the rash would take longer to abate. Instead of relief from the Dapsone, I had adverse reactions so had to stop it. After 2 months on it, if hadn’t helped with the itching at all, and I understand it usually helps in the first few days if it’s going to. My itch and rash actually got worse on the Dapsone and with going gluten free - which lead me to question whether I was getting glutined from other products I am using. It’s like a huge puzzle trying to put all these pieces together to somehow make it fit and make sense. Right now, myself and my doctor are perplexed. 
×
×
  • Create New...