Lack of family support

[Charliexxx]

Well my journey has been rather long, arduous and continues.

Thanks to 2 doctors I was admitted to a neurology ward. On my return home, I received a box of chocolates containing WHEAT. They were from a sibling who is a medical consultant and their spouse is also a consultant (liver and blood so trained in gastroenterology). I did not thank them for the arsenic. 

Both celiac and non celiac gluten sensitivity can be poorly understood. I’ve heard comments such as, ‘Well a little bit won’t hurt’.  At that time, I asked specifically for it not to be brought into my home having decontaminated it. My wishes were disregard. Biscuits and sandwiches were brought in. If people do not really understand how dangerous gluten can be then please open the link below. It can produce morphine like substances. Doctors may not be able to identify the real illness because a patient can be behaving or thinking particularly oddly.  

https://pubmed.ncbi.nlm.nih.gov/26825414/

As the illness continues undetected, consumption of large amounts of food can occur. It is in a desperate attempt to get vital nutrients including amino acids into the body. That is survival. 

It can be really difficult for doctors to use their loaf (pun intended) but using more of their frontal lobe would be better. It is the part of the brain responsible for social interaction, judgment, fairness, self-control and decision making.

Yesterday, I was far too exhausted to shower but did stagger to get my B12 shot. On the journey home, I sat down 6 times as dizziness is not my idea of fun. 

Thanks for reading

 

[Scott Adams]

It sounds like, but I can't tell for sure from your post, that you ate some and got glutened, is that correct?

If so, this may help, including the comments:

 

[Charliexxx]

  On 1/11/2023 at 8:27 PM, Scott Adams said:

It sounds like, but I can't tell for sure from your post, that you ate some and got glutened, is that correct?

If so, this may help, including the comments:

 

Expand Quote  

Thanks Scott, 

Unfortunately,  I haven’t received the official stamp of celiac disease. I have had 2 positive blood tests. When the doctor told me of the second not realising I had had a first, I felt pretty unwell, so decided not to eat it ever again. Cleaned my home, changed kitchen items. I found out I have the HDL DQ2.5 gene, plus have had signs and symptoms for decades. Despite not eating gluten, I got worse, I had multiple deficiencies leaving me practically bed bound for months. It was due to small Intestinal bacterial and archea overgrowth. I have had many flares. Also the valve between my small and large intestine does not work properly. It gets stuck closed. 

Where I live, they insist I undertake a 46 day gluten challenge for biopsy for the definitive diagnosis. It is day 31. So, I am purposely poisoning myself and my home is full of the stuff. Neither of my positive tests were documented properly on my medical notes, so doctors have made ridiculous assumptions that I don’t eat properly or because I am female,  I have an eating disorder. My family, I now just ignore them. 

[Scott Adams]

I hope you find you answer soon. At some point you may want to look into this diet: