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  • Posts

    • trents
      Testing Help

      By trents · Posted

      Welcome to the forum, @LizzieF! Yes, I also question whether or not your exposure to gluten before either the endoscopy/biopsy or the antibody testing was long enough or intense enough to render valid test results. Guidelines for the "gluten challenge" have recently been revised to recommend more intense exposure: at least 10g of gluten (about the amount in 4-6 slices of wheat bread) daily for at least two weeks leading up to the day of the blood draw or the procedure. But frankly, I would certainly give it twice that long to be sure. It is also very possible you are dealing with NCGS (Non Celiac Gluten Sensitivity) instead of celiac disease. They share many of the same symptoms but...
    • trents
      Intermittent Fatigue

      By trents · Posted

      Chris, has your husband had a recent checkup with detailed bloodwork (CBC and CMP)? Has he been checked for vitamin and mineral deficiencies?
    • LizzieF
      Testing Help

      By LizzieF · Posted

      Hi everyone - I have been gluten free for 2+ years after doing some genetic testing that showed inability to process gluten and carrying a gene for celiac (I’ve had GI related issues for 20+ years that were diagnosed as IBS/lactose intolerance). After persistent low iron, new GI suggested we look at celiac. Endoscopy results noted the below. I have to add that I added gluten for about 12 days prior to my test (and was miserable in the process). “The differential diagnosis includes celiac disease, but the degree of intraepithelial lymphocytes does not reach the threshold for Marsh 1 lesion.” Chrons/Colitis negative. GI suggested I continue eating gluten (after a 3 day pause awaiting...
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

      It was a long road to get to this point, but we have discussed many times that if my husband had not seen the remarkable transformation in my health with just diet and supplements, he never would have accepted the advice of this cardiologist.  He would have thought he was a quack and found another doctor.  As it was, he was leery of seeing this guy, but his cardiologist retired and this was the man who took over the practice.  He left that hospital for a bigger practice, but my husband, and most of his patients followed him, even though it is an hour away now.  
    • knitty kitty
      Intermittent Fatigue

      By knitty kitty · Posted

      Welcome to the forum, @ChrisDun! Has your husband been checked for nutritional deficiencies?  Many newly diagnosed are short on the B Complex vitamins (especially Thiamine), Vitamin D and minerals like magnesium and iron.   Talk to the doctor and nutritionist about supplementing the eight essential B vitamins while healing.   I had episodes where I would "hit a walk" and had to stop and rest.  I was very deficient in Thiamine and the other B vitamin.  The B vitamins are water soluble, and so are easily excreted if not needed, but the difference supplementing them was enormous, especially with Thiamine in the form Benfotiamine which promotes intestinal healing.   ...
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