Horrible situation

[Ericaagl]

Thanks for the input. I've looked into that, but I'm following a diet for Mast Cell right now. As I said, all I'm eating is plain chicken, sweet potatoes, and berries. It doesn't seem to be working.

[LP023]

51 minutes ago, Ericaagl said:

Thanks for the input. I've looked into that, but I'm following a diet for Mast Cell right now. As I said, all I'm eating is plain chicken, sweet potatoes, and berries. It doesn't seem to be working.

Potatoes could be the culprit. Her chicken can not sit in the refrigerator, it can’t be eaten as left overs. It has to be prepared from frozen (only let it unthaw in the refrigerator and cook it as soon as it is unthawed) and eaten before it gets cool. She also takes a medication for it and takes a Claritin in the morning and I think a Zyrtec at night. It’s not just eating certain things. It has to be handled and prepared in a way.

[Ericaagl]

Oh, that's great advice about the temperature of the chicken, thank you! Now I want to clarify, I'm talking about SWEET potatoes, not regular potatoes. Do you really mean sweet potatoes could be a problem? They've never been a problem for me before, and all my doctors promise me they're safe. If I eliminate the sweet potatoes I'll hardly get any calories. How does your mother get any carbohydrates?

[LP023]

Sweet potatoes are low histamine. She eats a lot of steamed vegetables. Once you figure out the right beef (hers is organic grass fed and has to be butchered as soon as it’s killed or hung in the freezer immediately)and the right preparation for all of your meat you may find you’re able to tolerate other foods. She couldn’t eat anything until she learned the rules of low histamine foods and how they need to be prepared as far as storing and thawing. She can now eat eggs but they have to be organic brown and free range and can not get warm at all. She takes an ice chest to the store. He doctor is at the Mayo Clinic in Missouri. All that time she was diagnosed with so many diseases and it was mast cell. She lost over 100lbs. 

[Ericaagl]

Yes, that's what I thought about sweet potatoes. I might try organic brown, free range eggs, because I really can't stand plain chicken. Thanks for your advice. It's very inspiring and gives me hope.

[knitty kitty]

@Ericaagl,

I think you should stop eating sweet potatoes.  Sweet potatoes contain proteins that destroy Thiamine Vitamin B 1.  

Here is a study done about a dog fed sweet potatoes which developed thiamine deficiency.  

Thiamine deficiency in a dog associated with exclusive consumption of boiled sweet potato (Ipomoea batatas): Serial changes in clinical findings, magnetic resonance imaging findings and blood lactate and thiamine concentrations

https://pubmed.ncbi.nlm.nih.gov/32966700/

I experienced thiamine deficiency.  I had symptoms of  Gastrointestinal Beriberi.  I could not leave the bathroom.  Anything I ate disagreed with me.  I hurt all over, had no energy, and got winded easily.  My doctors did not recognize the symptoms of gastrointestinal beriberi.  

Gastrointestinal Beriberi Mimicking a Surgical Emergency in a Well-Nourished Patient: A Case Report

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6978589/

and...

Gastrointestinal beriberi: a forme fruste of Wernicke’s encephalopathy?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6978589/

and...

Elevated Lactate Secondary to Gastrointestinal Beriberi

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4699997/

"Neurological exam was normal and an extensive workup was negative, but after being treated with thiamine, his lactate level improved overnight and all of his symptoms resolved. Thiamine levels returned low at 44 nmol/L (normal 78–185 nmol/L). Lack of recognition of this phenomenon, while rare, can lead to unnecessary tests and procedures and increased morbidity and mortality."

Testing of lactate levels and Erythrocyte transketolase test for thiamine deficiency may be helpful.  

Talk to your doctors.

My doctors were stumped.  

I had learned how important vitamins and minerals were in cell metabolism at university.  Especially thiamine.  Without sufficient thiamine, the other essential B vitamins can't function either.

I took over-the-counter thiamine hydrochloride, 100 mg tablets.  I took three hundred mgs (3 tablets).  My symptoms began to improve within minutes.  I continued to take higher doses of thiamine for months and continued to have health improvements.  

Thiamine is water soluble (excreted easily by kidneys) and nontoxic even in higher doses. 

Niacin (Vitamin B 3) deficiency can cause gastrointestinal symptoms.  Vitamin B12 deficiency can cause gastrointestinal symptoms.  

Tryptophan (a form of Vitamin B 3 Niacin) and Vitamin B 6 Pyridoxine together can help improve gastrointestinal function.

Celiac Disease causes malabsorption of vitamins and minerals needed for the body to function properly.  Blood tests are not an accurate measurement of vitamin levels within the cells and how well they are being utilized.  

I hope this helps.

[Ericaagl]

Ok, but what carbohydrate can I eat instead then? You need to give me some alternative. Rice? Regular potatoes? Without sweet potatoes I’ll be left with only chicken and berries. I would starve. I can’t live like that. Eating only chicken and berries simply is not any option for me. I need carbohydrates. You need to give me things to add if you’re going to recommend removing things from my already extremely restricted and unhealthy diet. You need to be realistic. I’m just not a person who can survive on only chicken and berries. 

I’ll get all those vitamins and take them at high doses. 

[Ericaagl]

Also, I have gluten reactions to every vitamin I’ve tried. Everything that calls itself gluten-free can still have small amounts or traces of gluten. Every over the counter version has made me sick. I’ve been sick the whole time I’ve been taking the ones from piping rock, though I was sick before then so I don’t know for sure what’s going on with them. I need a way to get vitamins that are truly 100% gluten-free, with not a SINGLE ppm. Serious. Not one. No one seems to be able to wrap their heads around just how sensitive I am. I really can’t have things that are manufactured. Do you know of anywhere to get them with not a trace of gluten?

[Ericaagl]

One possibility instead of a different carb would be an additional source of protein. I just desperately need more than chicken and berries to feel satisfied. If I got rid of sweet potatoes and started eating organic free range brown eggs with my chicken and berries, would that be safe?

[knitty kitty]

@Ericaagl,

Root vegetables...parsnips, turnips, carrots, rutabaga.  Coarsely chopped, toss with olive oil, salt and pepper, roast in oven, easy and delicious.  Root vegetables with greens (turnip, collards or kale) and a Chuck roast in the crock pot.

Try grass fed beef.  Some people react to the protein in chicken meat because it resembles gluten.  Duck, Cornish hens, Turkey are okay.  

Eat liver.  It's full of vitamins and minerals.  

I use Life Extension brand vitamins and Seeking Health, Nuticost, Naturewise, Nature's Way, Nature's Best, Doctor's Best, Best Naturals, Ecological Formulas, Now, Thorne.  

Get vitamins that are just vitamins without herbal and vegetable  ingredients.

 

Edited February 27, 2023 by knitty kitty
Typo correction

[knitty kitty]

I would not add eggs just yet.  Eggs are high histamine and one of the most common food allergens.  

Eat low histamine foods.  Like root vegetables.  

Beets and sweet potatoes have thiaminase which destroys thiamine.  So does Casava and tapioca.  Don't eat those.

[knitty kitty]

I looked at the Piping Rock vitamin website.  The ingredients label lists rice powder as one of the "filler" ingredients.  

You may be reacting to the rice powder.  I cannot take vitamins with rice powder.  I react to rice.  

Perhaps you are reacting to the rice powder. 

 

[Sabaarya]

On 1/22/2023 at 5:34 AM, Ericaagl said:

Hi all, 

I'm Erica. Nice to meet you. I wanted to share my story and my problem and see if any of you had suggestions about what to do.

I was diagnosed by biopsy in August 2021. I had had symptoms all my life, but I had no idea they were "symptoms" of anything; I just thought they were life. I've been in and out of hospitals for years for anorexia, which has been the medical industry's easy answer for my extreme, sudden, and rapid weight loss and failure to keep weight on when I gain it back. But I've never believed myself that I had anorexia, since I don't have any of the typical thought patterns ("I want to lose weight"; "I want to be thin"; "I don't like my body"; "I'm afraid of food"). In fact, I've always preferred high fat, high carb, high calorie foods. I've never tried to lose weight. My problem with weight -- and this is different from many celiacs -- is that I GAIN weight (a lot of it) from gluten, and LOSE weight (quickly and a lot of it) when I cut out gluten. So I'd be in pain (though in the past I didn't know it was pain I was feeling in my stomach; I just knew I didn't want to eat), and I'd be going to the bathroom constantly, so I'd eat less to make myself feel better. Well, the effect of eating less food was that I was eating less gluten, and as a result I'd immediately lose ridiculous amounts of weight, maybe 20 lbs in a week. So essentially, I've been misdiagnosed for almost thirty years. A clever doctor finally caught onto the truth after she'd been seeing me for six years and saw the pattern and got to know the real me -- something no other doctor or treatment center had ever made the effort to do. She caught a blood test showing positive for celiac's and then had me do an endoscopy, and that's how I found out I had celiac's. I was 39 at the time.

I immediately went gluten-free then, and it was like a miracle at first. I'd never known why it was so hard for me to read and why my brain was so foggy (even though I was finishing a PhD program -- I'd always pushed through the brain fog), but suddenly I could read a book a day and think clearly in a way I never knew was even possible. I had energy instead of weakness and fatigue, I could socialize, my stomach pain went away, I was no longer stuck in the bathroom all day with a combination of constipation and diarrhea, my temperature regulated better, my depression and anxiety lifted, I was no longer anemic, my insomnia resolved, my medications worked better because they were being absorbed, I stopped having seizures, and more. But after a few weeks, it seemed that I started becoming increasingly more sensitive to gluten and my symptoms started again. Before long, I was having more bad days than good days per week. I cut out more and more foods, and when I first cut something out, things would improve, but then it would be something else causing problems. My dietician and GI doctor, neither of whom were celiac specialists, made things worse. My dietician kept telling me I could eat anything labeled gluten free. Well, that was not true; I was reacting to the 20 or fewer ppm of gluten in packaged foods, and eventually just ignored her and started eating only natural foods. My GI doctor couldn't get it through her head how much of a problem gluten was for me and kept prescribing me laxatives that had gluten in them. Even my primary care doctor, the brilliant one who had discovered the celiac, wasn't well-trained in celiac and didn't (and still doesn't) understand how it's possible for me to GAIN weight from gluten; she still thinks you can only lose weight from it, so every time I'd gain weight (which was often because I was getting contaminated (or often cross-contaminated -- from products made on shared equipment in facilities that processed items with gluten), she'd think things were improving from a celiac standpoint.

I finally put down my foot with my terrible GI doctor, and two weeks ago she referred me to a celiac specialist in her practice. Yes, it took her all this time to refer me to a celiac specialist SHE WORKS WITH. I don't get it. He pointed out areas where I was still consuming manufactured products (butter) and got me in to see a celiac dietician who has the disease herself and normally only sees clients who work with GI doctors at a different university, where she's based. I meet with her in early Feb. My diet is extremely limited because I can only eat naturally gluten free foods, and yet I'm still getting sick from these things. Here is what I'm eating (there's NOTHING else; I've cut out all spices, even salt):

-brussels sprouts, broccoli, cauliflower

-avocados

-bananas, strawberries, pears

-eggs

-sweet potatoes

-regular potatoes

-water

I know regular potatoes and eggs have proteins that mimic gluten, so I'm wondering if those could be causing problems. I'm going to try eliminating them, but that leaves me with no sources of protein. I react to meat, cheese, fish, and beans because they come wrapped in packages or in bags and thus can be affected by trace contamination in the packaging process. So I really don't know how I'll get any protein. And in general, I'm very deprived and can't live on such little variety forever. But in the immediate term, what really concerns me is getting all the contamination out. I can't afford to keep getting sick because at this point when I get sick (which is most days), I'm completely debilitated, can't leave the bathroom, and am in severe pain. This is causing career problems for me, because I'm a teacher, and I've already had to have people cover my classes for me, and that can't happen again. So I NEED to figure out how to stay gluten-free (and free of anything else that might be causing me to react) before Monday, or I'm bound to lose my job. Can anybody help me? Thank you!

Hi Erica,welcome! I was also diagnosed in August 21 at the age of 39:). My symptoms were tingling in my hands,headaches,dizziness,ear buzzing,weakness,occasional diarrhea and constipation,iron deficiency,vitamin deficiencies and weight gain. After gluten-free diet I lost weight which was really good but still was experiencing symptoms. My damage was mild,as doctor said, Marsh 3A score. I was very anxious since symptoms were still there,my doctor prescribed me Lexapro (antidepressants) which helped me a looooooottt. It kind of relaxed my nervous  system and I was not panicking about eating food. I was zooming so much on eliminating so much stuff and still having symptoms. I’ve started Lexapro, B complex, B1 ,B12 shots,vitamin D and kept eating everything gluten free. It took 12 months for me to start feeling better and it was with mild damage. My doctor kept telling me that the reason of my persistent symptoms was my nervous system,the signals that I was sending to my brain constantly,being scared of eating anything. Anyways,15 months after diagnose had endoscopy and everything got healed. I feel much better than 2 years ago,but still experiencing mild symptoms which is normal. I still need take vitamins. I’ve gained weight again,I think it’s because of high carbs diet. Now I eat everything gluten-free,even chips ,chocolates, biscuits .What about rice? Are you able to eat rice? My main diet is rice with different kind of stews.What was your biopsy results,what was the damage score?

Saba

[Ericaagl]

Thanks to both of you for your assistance. Sabaaryra, it’s comforting to know I’m not alone. I was also diagnosed at age 39. Kitty, I also researched vitamins and if they’re labeled gluten-free they can have up to 20 ppm so it’s either that or the rice powder. I’m definitely going to stop taking vitamins. Is there any way for me to get thiamine naturally? My doctors don’t think I need iv thiamine so that’s not an option. Is it good enough to just stop eating sweet potatoes? As far as no eggs, please, you’ve gotta give me some caloric alternatives to sweet potatoes. You’re not being realistic. I can’t get satisfied on chicken alone. Instead of just saying no to things, please provide options that I CAN have. Rice? Regular potatoes? I need caloric items. I’m starving all the time. Keep in mind that even though I’ve been gaining a lot of weight, I was extremely underweight to begin with and my doctors are still requiring me to gain weight if I want to be allowed to stay in my PhD program. So I need more calories than I can get from chicken alone. Please keep in mind that everyone is different. Not everyone can afford to starve. 

[Wheatwacked]

I am sorry you are still having problems.

What medications are you taking? They can have serious side effects. My doctors kept trying to put me on diurectics for high BP. The first amlodipine caused me to double urine output and made my eyes so dry I had touble wearing contacts. When that did not lower BP he added lisinopril and the persistan cough side effect gave me an inguninal hernia. At that point he told me to find another doctor. My new doctor, two years later, tried hydrolozine and that messed my lower body muscles. After two weeks, an hour after taking the pill I was was wobbling like a bobble head. Next try was chlorthalidone and that messed with my quadrecepts. I had a knee medial meniscus tear 25 years ago that never needed surgery and rarely bothers me but this drug, again after two weeks would totally destabilize my knee so I was walking bent over and would need crutches or a wheelchair had I continued. Finally she looked for a non diuretic and I take Clonidine. It not only brought my bp to between 140 and 115, but it was intended to treat adolescents for ADHD so I am benefiting from that too.  So if you are on meds, they could be a problem.

Why don't you eat potatoes? Bad reaction or someone said it is bad for you. White potatoes have no histamine.  Nutritional value of potato gives a complete list. My son (Celiac from infancy) started eating a potato for breakfast and is doing well (he's 48). Independant of that I started eating mostly beef and potatoes. I cook up a beef bourguinon from a top round london broil and eat it most every day with 10 ounces of potato and my glucose dropped from 180 mg/dl to 140 overnight. Cooking the beef 3 hours seems to break down the bad stuff. Kind of like bone broth but without the bones. The same beef in the form of 80/20 ground beef will cause me stomach upset about half the time. For breakfast I have 4 ounces of fresh carrots, 4 ounces of orange juice (not from concentrate) 4 ounces of 100% pasture fed milk, a teaspoon of inulin, and 2 eggs, liquified in a blender. A good source of vitamin A both animal and plant, choline, etc.

Has your doctor tested your vitamin D? A tanning bed would help both your vitamin D and melatonin. The danger of skin cancer is miniscule compared to the danger of low vitamin D. The UV would also increase your production of melatonin.

Since last June first I have dropped 25 lbs of belly fat. Apparently the combination of 500 mg each of B1, B3, B5, B12 and Choline turned off storage mode and started burning belly fat. I am running out of belly fat so I expect my morning glucose to soon drop. In the meantime I am wearing the same size Wranglers I wore when I was 21.

Quote

In addition to improving sleep, melatonin is also involved in managing immune function, blood pressure and cortisol levels. Plus, it acts as an antioxidant, with some research finding that it can significantly affect many health conditions. In fact, studies show that melatonin may improve eye health, reduce symptoms of seasonal depression and even provide relief from acid reflux. Source). https://www.healthline.com/nutrition/melatonin#what-it-is

Quote

Potatoes do not have a high histamine content and do not increase the body’s histamine burden. Therefore, most people with histamine intolerance can eat them safely. You can also eat potatoes with additional food sensitivities, such as gluten sensitivity.   https://www.healthifyme.com/blog/pros-and-cons-of-low-histamine-diet/#:~:text=Potatoes do not have a,sensitivities%2C such as gluten sensitivity.

 

[Ericaagl]

1 hour ago, knitty kitty said:

@Ericaagl,

Root vegetables...parsnips, turnips, carrots, rutabaga.  Coarsely chopped, toss with olive oil, salt and pepper, roast in oven, easy and delicious.  Root vegetables with greens (turnip, collards or kale) and a Chuck roast in the crock pot.

Try grass fed beef.  Some people react to the protein in chicken meat because it resembles gluten.  Duck, Cornish hens, Turkey are okay.  

Eat liver.  It's full of vitamins and minerals.  

I use Life Extension brand vitamins and Seeking Health, Nuticost, Naturewise, Nature's Way, Nature's Best, Doctor's Best, Best Naturals, Ecological Formulas, Now, Thorne.  

Get vitamins that are just vitamins without herbal and vegetable  ingredients.

 

I can’t eat grass fed ground beef or any other red meat. I was eating it before and it made my gastroperesis insanely intolerable. My dietician says I can’t have any veggies because my gastroperesis is so severe. I guess I’ll try turkey, although I can’t stand the taste. Like I said, I can’t consume vitamins that say gluten-free because they can have up to 20 ppm. 

14 minutes ago, Wheatwacked said:

I am sorry you are still having problems.

What medications are you taking? They can have serious side effects. My doctors kept trying to put me on diurectics for high BP. The first amlodipine caused me to double urine output and made my eyes so dry I had touble wearing contacts. When that did not lower BP he added lisinopril and the persistan cough side effect gave me an inguninal hernia. At that point he told me to find another doctor. My new doctor, two years later, tried hydrolozine and that messed my lower body muscles. After two weeks, an hour after taking the pill I was was wobbling like a bobble head. Next try was chlorthalidone and that messed with my quadrecepts. I had a knee medial meniscus tear 25 years ago that never needed surgery and rarely bothers me but this drug, again after two weeks would totally destabilize my knee so I was walking bent over and would need crutches or a wheelchair had I continued. Finally she looked for a non diuretic and I take Clonidine. It not only brought my bp to between 140 and 115, but it was intended to treat adolescents for ADHD so I am benefiting from that too.  So if you are on meds, they could be a problem.

Why don't you eat potatoes? Bad reaction or someone said it is bad for you. White potatoes have no histamine.  Nutritional value of potato gives a complete list. My son (Celiac from infancy) started eating a potato for breakfast and is doing well (he's 48). Independant of that I started eating mostly beef and potatoes. I cook up a beef bourguinon from a top round london broil and eat it most every day with 10 ounces of potato and my glucose dropped from 180 mg/dl to 140 overnight. Cooking the beef 3 hours seems to break down the bad stuff. Kind of like bone broth but without the bones. The same beef in the form of 80/20 ground beef will cause me stomach upset about half the time. For breakfast I have 4 ounces of fresh carrots, 4 ounces of orange juice (not from concentrate) 4 ounces of 100% pasture fed milk, a teaspoon of inulin, and 2 eggs, liquified in a blender. A good source of vitamin A both animal and plant, choline, etc.

Has your doctor tested your vitamin D? A tanning bed would help both your vitamin D and melatonin. The danger of skin cancer is miniscule compared to the danger of low vitamin D. The UV would also increase your production of melatonin.

Since last June first I have dropped 25 lbs of belly fat. Apparently the combination of 500 mg each of B1, B3, B5, B12 and Choline turned off storage mode and started burning belly fat. I am running out of belly fat so I expect my morning glucose to soon drop. In the meantime I am wearing the same size Wranglers I wore when I was 21.

 

Great, I’ll eat potatoes. Thank you for finally giving me some options that won’t exacerbate my gastroperesis!

[Ericaagl]

Do you think rice might be a possibility?

[Wheatwacked]

You might try Cream of Rice. It is on the shelf next to the Cream of Wheat cereal, near the oatmeals. It's been around for half a century at least and might be one of the first products that cleary stated. Gluten Free in big bold letters. Rice consumption is one of the reasons the Japanese created benfothiamine.

 

[Ericaagl]

7 minutes ago, Wheatwacked said:

You might try Cream of Rice. It is on the shelf next to the Cream of Wheat cereal, near the oatmeals. It's been around for half a century at least and might be one of the first products that cleary stated. Gluten Free in big bold letters. Rice consumption is one of the reasons the Japanese created benfothiamine.

 

When it says "gluten-free," could that still mean up to 20ppm like every other manufactured item or is it 100% gluten-free?

I'm not sure what you mean when you say "Rice consumption is one of the reasons the Japanese created benfothiamine." Is your point that rice isn't safe?

About turkey, the only thing I can find is gluten free organic ground turkey. I can't find any plain, non-smoked turkey breast. Is ground turkey safe?

[Wheatwacked]

Out of curiosity, is the doctor telling you you don't need Thiamine the same one who insisted you don't have a problem with Gluten? It is a shame you can't get the thiamine injection.

Regarding Cream of Rice: all you can do is try a small amount and see how you tolerate it. It has added vitamins.

Does rice cause thiamine deficiency?

Thiamin deficiency (causing beriberi and other problems) is most common among people whose diet mainly consists of white rice or highly processed carbohydrates in countries with high rates of food insecurity and among people with alcohol use disorder. Thiamin Deficiency - Disorders of Nutrition - Merck Manualshttps://www.merckmanuals.com › home › vitamins › thia...

Cream of Rice Ingredients

Granulated Rice, Calcium Carbonate, Ferric Orthophosphate (Iron), Niacinamide, Niacinamide (Vitamin B3), Thiamine Mononitrate (Vitamin B1), Pyridoxine, Hydrochloride (Vitamin B6). Riboflavin (Vitamin B2), Folic Acid, Cholecalciferol (Vitamn D3).

Nutrition Facts

8 servings per container

Serving Size1 packet (43g)

Amount Per Serving150

Calories

% Daily Value*

Total Fat 0g0%

Saturated Fat 0g0%

Trans Fat 0g

Polyunsat. Fat 0g

Monounsat. Fat 0g

Cholesterol 0mg0%

Sodium 0mg0%

Total Carbohydrate 33g12%

Dietary Fiber 0g0%

Includes 0g Added Sugars0%

Protein 2g

Calcium 330mg25%

Iron 12.1mg70%

Vitamin D 5mcg25%

Thiamin 0.3mg15%

Riboflavin 0.3mg25%

Niacin 4mg25%

Vitamin B6 0.4mg25%

Folate 95mcg DFE 5525%

Potassium 30mg0%

* The % Daily Value (DV) tells you how much a nutrient in a serving of food contributes to a daily diet. 2,000 calories a day is used for general nutrition advice.

[knitty kitty]

@Ericaagl,

Gastroparesis IS a symptom of thiamine deficiency.  

You shouldn't stop taking vitamins.  You should take vitamins that your body needs to heal.

Sweet potatoes are considered a vegetable.  But your dietician said not to eat vegetables?  

Not being able to digest meats is symptomatic of low stomach acid which occurs in thiamine and niacin deficiencies.

What healthy fats are you eating?  Olive oil, flaxseed oil, avocado oil?  

https://ods.od.nih.gov/factsheets/Thiamin-Consumer/

Edited February 27, 2023 by knitty kitty
Add link

[Ericaagl]

No, this is the doctor who figured out that I had celiac and had me get the endoscopy.

The problem with only going by the ingredients list is that that can't tell you how it's manufactured. It's in the manufacturing process that contamination can occur.

[Ericaagl]

1 minute ago, knitty kitty said:

@Ericaagl,

Gastroparesis IS a symptom of thiamine deficiency.  

You shouldn't stop taking vitamins.  You should take vitamins that your body needs to heal.

Sweet potatoes are considered a vegetable.  But your dietician said not to eat vegetables?  

Not being able to digest meats is symptomatic of low stomach acid which occurs in thiamine and niacin deficiencies.

What healthy fats are you eating?  Olive oil, flaxseed oil, avocado oil?  

https://ods.od.nih.gov/factsheets/Thiamin-Consumer/

My dietician said no vegetable with fiber. She said as look as I take the skin off the sweet potatoes, they're safe. She's considered the foremost expert in my city on Celiac and gastroperesis.

I get sick from every oil I've tried. My GI doctor says they probably get contaminated with gluten in the manufacturing/bottling process. So I'm not eating any healthy fats.

I can't take vitamins that could have up to 20 ppm. What do you suggest I do? ANY gluten makes me very, very sick. I don't think even most people with celiac can grasp what it means to be as sensitive as I am.

What do you recommend for turkey? Is ground turkey safe?

I'm going to keep asking for iv thiamine.

Again, can you recommend anything caloric that is naturally gluten-free?

[Wheatwacked]

Quote

 

Is Cream of Rice Gluten Free? I Tested It!

Because Cream of Rice is manufactured by the same brand as Cream of Wheat, I wanted to make sure that Cream of Rice was truly free from gluten.

I decided to test it with my Nima Sensor, a portable gluten-detecting device. While the device has limitations, which you can read about here, it’s great for testing foods for hidden gluten without needing a full allergen testing lab and going for broke. It can cost $75-$150 to test a single product in a lab for hidden gluten, but with Nima, it costs about $6 per capsule.

As you can see below, Nima displayed a smiley face. This means the device didn’t find any gluten.

 

 

[Ericaagl]

Great, I'll try Cream of Wheat! Thank you!

Kitty, first you tell me to cut sweet potatoes. Then you tell me to cut chicken. You realize you've left nothing but berries, right? Yet you recommend that I consume vitamins, which can contain gluten? Are you keeping track of your arguments? Do you see that you're not giving me anything to eat? Do you expect me to starve? I'm sorry to keep challenging you, but I'm skeptical when someone essentially advises starving. I'm trying to take you seriously, but it seems like you're not aware of what you're saying.