Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  1. StephNich12

    StephNich12


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,073
    • Most Online (within 30 mins)
      7,748

    Mimi L
    Newest Member
    Mimi L
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Before you conclude you don't have celiac disease, you should request a more complete celiac blood antibody panel. You got the bare minimum blood test. You should ask for: Total IGA tTG-IGA DGP-IGA DGP-IGG TTG-IGG You need to have been eating generous amounts of gluten for weeks beforehand but sounds like you are aware of that. Here is a primer that outlines the different kinds of blood antibody tests that can be run when checking for celiac disease:  
    • Neat1
      Hey there! The test was Tissue Transglutaminase Ab, IgA and result was <1.  
    • trents
      Welcome to the forum, @Neat1! Can you list the celiac blood antibody tests that were done? Another possibility is that you are IGA deficient which can create false negatives on IGA-based antibody tests. There is a blood test to check for that, commonly known as "total IGA" but many docs don't know to run it.
    • Neat1
      Hey there, I had a blood test for celiac (was eating copious amounts of wheat) that came back negative, but I’m still having problems with digestion that are worse when eating wheat. While I have overlap with some symptoms similar to SIBO or dysbiosis there are some that still make me think it’s celiac. After ingesting gluten I have terrible neck and shoulder pain. This is repeatable; I thought I slept on it wrong so after pain abated I ate gluten again, bam, pain returned. Being not specifically digestive this is indicative of an autoimmune response, right?  for what it’s worth I’ve been to a gastroenterologist but after testing for celiac and receiving a negative result they wrote me a prescription for Linzess and told me follow up with an APRN. No further testing of any kind.   Thank you for reading my post and I look forward to any insights others are able to share from their experiences
    • cristiana
      Hi @Sarah Grace I'm a British coeliac too, and have had quite a number of different types of migraine. ***Are you under a gastroenterologist and receiving annual coeliac blood tests to test for compliance, and perhaps also for deficiencies?  If not, I think that is worth considering.  If gluten is still sneaking into your diet that could be the issue.*** That said, for me there was a huge improvement when I went gluten free, but I still get nauseating migraines from time to time, and a new type since going gluten free - aura migraines where I lose my central vision (the middle of my vision looks as if water is running down glass).  This tends to be triggered by small screens and close work.    I know that in the past thirst was a massive trigger for me, and also low blood sugar.   Another contributor for me is tension in my neck caused by poor posture or cold weather, and certain light conditions, like low sun in the winter, can start one up.  One other thought - have you looked into sleep apnea, which can cause migraines?   But in any case, I think I'd be inclined to contact the Migraine Trust if you haven't already.   https://migrainetrust.org/ Cristiana  
×
×
  • Create New...