Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Toe pain?

Ian frakes

By Ian frakes
in Related Issues & Disorders

 Share

Recommended Posts

Ian frakes Rookie
Ian frakes
Posted

Does anybody with celiac get rlly bad morning toe pain that dies down a bit but continues through the day? My toes feel like they got jammed really bad and it hurts to bed them plus they won’t pop 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum, Ian!

What you describe sounds like it could be tendonitis.

Ian frakes Rookie
Ian frakes
Posted
  • Author

It just started recently and I’m still new to celiac!

trents Grand Master
trents
Posted
(edited)

While it is true that celiac disease has long fingers, there is a tendency in the celiac community to blame all health issues on celiac disease.

Have you ever had plantar fasciitis (inflammation of the plantar tendon on the bottom of your foot and heel)? The pattern there is for it to be so tender in the morning when you get out of bed that you can hardly walk but it loosens up some during the day as you move around. May I ask what is your age?

Edited by trents
Ian frakes Rookie
Ian frakes
Posted
  • Author

Never, and I’m 20. I went to the hospital in November from a celiac attack and from then on it’s been nothing but bad health. I lost about 30 pounds in 2 months and am still recovering and I’ve had a ridiculous amount of symptoms/issues since my last gluten exposure 

cc284 Rookie
cc284
Posted
Quote

Just came across your post. I had exactly the same problem after switching to a gluten free diet. My toe hurt so much that I almost couldn't walk. It was a gout attack. I find it interesting that you mention the weight loss. Have read a lot about this, besides a diet change, purines in food, rapid weight loss is often a reason. 

 

Ian frakes Rookie
Ian frakes
Posted
  • Author

I was thinking gout because my toes were swollen and my mom has a history of gout thank you for the response!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cc284 Rookie
cc284
Posted
1 minute ago, Ian frakes said:

I was thinking gout because my toes were swollen and my mom has a history of gout thank you for the response!

Yes, I would get it tested. It sounds like it. When I was in the hospital they could tell me it‘s gout. I changed my diet. Not too much meat. I was worried because of my weight loss from gluten free. I never had it again.

Ian frakes Rookie
Ian frakes
Posted
  • Author

Good to know thank you!

cc284 Rookie
cc284
Posted

👍

trents Grand Master
trents
Posted

Ian, are you struggling in so far as compliance with the gluten free diet?

Ian frakes Rookie
Ian frakes
Posted
  • Author

I live on a college campus so being able to eat properly is a struggle, it will be better when I can cook for myself though!

trents Grand Master
trents
Posted
(edited)

Yes, eating gluten free on a college campus would be quite a challenge. Do you eat a central cafeteria on campus? What's the arrangement for meals there?

Edited by trents
Ian frakes Rookie
Ian frakes
Posted
  • Author

Yeah lol it’s like 90% fast food

trents Grand Master
trents
Posted
(edited)
6 minutes ago, Ian frakes said:

Yeah lol it’s like 90% fast food

I'm 71 years old so I know things have changed since I was in university training. Back then we had two or three cafeterias where everyone ate together but the food was cooked in the kitchen and you went through a serving line. It was covered in our tuition. But they were full course meals.

Edited by trents
Scott Adams Grand Master
Scott Adams
Posted

I've had issues with toe cramping in the morning, which, in my case, was likely a magnesium deficiency, as it went away when I began taking magnesium citrate daily. 

knitty kitty Grand Master
knitty kitty
Posted

Gout is a build up of uric acid.  Thiamine helps the body process the uric acid out of the body.  

Try supplementing with Benfotiamine.  It's cleared mine up.

Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat

https://pubmed.ncbi.nlm.nih.gov/18951979/

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,911
    • Most Online (within 30 mins)
      7,748
    Deborah anne
    Newest Member
    Deborah anne
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jack Common
      What should I do with these test results?

      By Jack Common · Posted

      My old results (almost a year ago) are: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months and after I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   I didn't have any symptoms now except tiredness but I think it's just work. I'm not IgA deficient as you can see so I don't need to do this Deamidated gliadin peptide IgG test. But I do because it's sometimes not in the normal range. What do you think this time? I think I don't have celiac disease. But this test... 
    • Wheatwacked
      Anyone else with very high HDL?

      By Wheatwacked · Posted

      @plumbago, I found a good PDF on cholesterol:  Unlocking the mysteries of VLDL: exploring its production, intracellular trafficking, and metabolism as therapeutic targets I just started it, but it may have answers for us, with whacky cholesterol.  The pharmaceuticals don't seem to be interested in anything but statins.   "The nicotine in tobacco causes a decrease in the HDL cholesterol level. " Maybe you should start smoking? 🤪 I have high LDL and low HDL.  It is genetic mutations in the LDLR, APOB, PCSK9, or LDLRAP1 genes. My whole family is on statins for Familial Hyperliperdemia except me.  December I had ultrasound and cat scan for Carotid Artery blockage and both sides are above 85% blockage.  I started on Atorvastatin and that made me weaker than ever, even with CoQ10.  I asked for and got prescription for 2000 mg/day Nicotinic Acid B3 and in the 3 weeks my numbers changed. I am feeling realy good lately.  Stronger and more flexible.  Sleeping better.  Getting roto router (TCar) as soon as I get clearance from a cardiologist.  I expect that by my next blood panels in April to be even better. I am beginning to believe that like vitamin D where the RDA only accounts for preventing Rickets, the RDA for B3 is way underestimated.   From Oct 22 to Jan 17: A1c from 13.5 to 10.2 eGFR from 55 to 79 Triglyeride from 458 to 362 Total cholesterol from 245 to 264 HDL from 27 to 44 VLDL from 84 to 68 LDL from 134 to 154
    • plumbago
      Anyone else with very high HDL?

      By plumbago · Posted

      I have taken thiamine on and off (just not at this exact moment), and I’m not sure it's made any difference. Yes, I almost always “fast” (12 hours NPO) for blood tests, as do a great many other Americans, so I tend to think that’s not it. All I can say is that the mystery continues. I could do some speculating here…well, heck, let me go ahead and speculate now: The lab ranges we all see on our reports are more or less the averages of Americans who have had those blood tests. Now, it’s up to you and me whether or not to think of the average American as healthy. I can make arguments both ways, more often than not, on the negative. My point here is that maybe the current range of HDL is somewhat skewed (ie, low), and maybe just maybe my super high (plus 100s) HDL results are not something to worry about; the range just needs updating. Why do I say this? Because pre-celiac disease diagnosis, my HDL values were in the normal range, but post celiac disease diagnosis, my HDL levels are way above average. See where I’m going? My trusty guidebook on celiac disease, Recognizing Celiac Disease by Cleo Libonati, RN, BSN, says that HDL increases after being on the gluten free diet. Or can increase, I guess. Then again, it could be something else. ¯\_(ツ)_/¯ In thinking of going to a cardiologist, I sort of fear that he/she will be dismissive of a link to celiac disease, treated celiac disease, and would not therefore be considering all possibilities. @trents I'm sorry you've been diligently working on your numbers to no effect. That must be frustrating. LDL is a world that is far better understood than HDL, so for you there's maybe less "mystery." Familial hypercholesterolemia is for sure something that can be tested. Outside of that, you're right, genetics can determine a general pattern.
    • trents
      Anyone else with very high HDL?

      By trents · Posted

      Well, I have the opposite problem. My LDL has been moderately high for years. I eat healthy and exercise regularly but can't seem to move that meter. I used to be on a statin (and my doctors want me to go back on one) and it brought both HDL and LDL down but the ratios never changed. I think a lot of that cholesterol stuff is just baked into the genes.
    • knitty kitty
      Anyone else with very high HDL?

      By knitty kitty · Posted

      Wow, @plumbago, Curiouser, and curioser... Have you been fasting?  Apparently HDL levels increase after fasting... https://ajcn.nutrition.org/article/S0002-9165(23)31185-7/abstract   I must say it, try taking some Thiamine.  Thiamine helps regulate lipoproteins... Thiamine helped lower HDL in this study whether they had diabetes or not. https://pmc.ncbi.nlm.nih.gov/articles/PMC3921172/#:~:text=Serum thiamine and its derivatives,supplementation (p %3D 0.009).
×
×
  • Create New...